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    • 1 hour, 1 minute ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?

    Home > LC Polls > How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?
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    On average, how long do you have to travel to see your primary diabetes health care provider?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Jonathan Strait

      Can’t forget to factor in healthcare premiums (or taxes if using gov’t funded healthcare system.) That gets complicated too, how much of that goes toward the negotiated or fully funded prices for these supplies and how much for other things? No matter how you cut it, diabetes ain’t cheap though.

      5 years ago Log in to Reply
    2. Sherolyn Newell

      I have a $3500 deductible/max out-of pocket. Since I use both pump and CGM, I usually meet that in the first quarter or shortly thereafter. Then I pay $0.

      5 years ago Log in to Reply
    3. connie ker

      I am on Medicare RX for insulin through Cigna but this plan designed for diabetics is

      5 years ago Log in to Reply
      1. connie ker

        I am on a supplement with Medicare which is Anthem Blue Cross, about $220 a month. It covers CGM supplies and what Medicare doesn’t cover for Dr. visits. I am also on Cigna RX plan which has diabetics in mind on their highest plan which is about a $50 monthly premium. The premiums are my biggest monthly cost and yearly cost is presently $3,240. Premiums increase with age too. When I hit the donut hole, it is a different story of coverage too. Medical costs keep going up and I am old enough to remember the pediatrician Dr. coming to our home because Mothers in the 50s didn’t have transportationian. The Dr. would leave a bottle of medicine on the counter and say “split this between the children”.

        1
        5 years ago Log in to Reply
    4. Ahh Life

      While it may be unfair to lump all my health insurance costs (I excluded my wife’s premiums), into “diabetic related,” many of the high-priced consultants I employ, with few exceptions, are because of and driven by the underlying diabetic condition. Therefore the $3,000+ calculation was arrived at as follows:

      CVS out of pocket yearly expense $1,303
      Medicare yearly premium $1,872
      Private insurance yearly expense $8,196
      Private insurance dental premium $672
      Summation = $12,043. Divide by 4 for a 3-month estimate of $3,011

      5 years ago Log in to Reply
    5. Amanda Barras

      I have a secondary insurance that picks up any balances not paid by primary. So, I pay nothing except primary premiums.

      5 years ago Log in to Reply
    6. Janis Senungetuk

      You left out “coinsurance” charges. Even with “good” coverage DME prices keep increasing.

      1
      5 years ago Log in to Reply
    7. Bill Williams

      With Medicare and a supplement, I pay nothing out of pocket for Libre. Also have a zero copay for insulin through Cigna Part D plan.

      5 years ago Log in to Reply
    8. Daniel Bestvater

      I seem to average about $800/month. That’s for insulin, test strips, pump supplies and Dexcom G6.
      I live in Canada so all doctor visits are covered but that’s it.

      5 years ago Log in to Reply
    9. Pauline M Reynolds

      I still haven’t figured out my insurance coverage. Now that I am in the Part D “gap”, I pay more for pump supplies, test strips and insulin, which I was under the impression fell under Durable Medical Equipment, not Part D. I’m told it is because my insurance is an HMO.

      5 years ago Log in to Reply
    10. Molly Jones

      The only thing I have to contribute to is glucagon. It costs me around twenty.

      5 years ago Log in to Reply
    11. Gerald Oefelein

      My answer $1001 – 1500 included a glucagon kit and backup insulin pens for use if pump fails (again).

      5 years ago Log in to Reply
    12. Sahran Holiday

      I pay a lot for health insurance which I guess doesn’t count for this question. All I have to pay for is insulin $40 for 90 days so 13.25 per month. DME; i.e., CGM, Pods, test strips covered at 100%.

      5 years ago Log in to Reply
    13. Babis Perantonakis

      I don’t pay anything (Greece). Everything is covered by the National Health System. All employers and employees contribute to this system with the 20% of the salary (13% Employers, 7% employees)

      1
      5 years ago Log in to Reply
    14. Wanacure

      In the last 3 months costs went over $1000, because I bought a $600 iPhone that would be compatible with the Dexcom 6 app. But the Dexcom monitor is so easy to use, I rather regret paying for all the expensive unneeded Apple iPhone’s other bells & whistles. The cheap flip phone I was originally using alerted me far better to incoming calls than the much more expensive iPhone. In the last 3 months I started using the CGM which will add $50 to $100 per month. Eyeglasses and hearing aids are not covered by my Medicare plan. But a recent state law limits cost of insulin vials so my copay for glargine + lispro is $90/28 days. I save $ by using syringes over and over till the needle bends, seldom change lancets. There’s a copay for foot care every 3 months.

      5 years ago Log in to Reply
      1. Tom Rintelmann

        Hi Wannacure, I was surprised to read that you were reusing needles until the needle bends and that you don’t replace lancets when checking your sugar via glucose meter. Are you boiling the needles or using rubbing alcohol topically? Everything I’ve read and heard cites the likely chance of infection, when reusing needles.
        Tom

        5 years ago Log in to Reply
    15. Patricia Kilwein

      Catch me next year. I just bought a new pump at the beginning of 2021…..supplies are usually $700 deductible, $200 every 3months for supplies.

      5 years ago Log in to Reply

    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months? Cancel reply

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