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  • Activity
    • 1 hour, 53 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 2 hours, 35 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 2 hours, 52 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 2 hours, 52 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 3 hours, 8 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 3 hours, 9 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 3 hours, 9 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 3 hours, 11 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 4 hours, 31 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 4 hours, 31 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 4 hours, 33 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 4 hours, 34 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 4 hours, 34 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 4 hours, 35 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 4 hours, 35 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 4 hours, 37 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 7 hours, 33 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 7 hours, 33 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 7 hours, 33 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 7 hours, 33 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 8 hours, 20 minutes ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 8 hours, 48 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 8 hours, 49 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 8 hours, 49 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 8 hours, 50 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    How much do you currently pay out-of-pocket for one month’s supply of insulin?

    Home > LC Polls > How much do you currently pay out-of-pocket for one month’s supply of insulin?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    31 Comments

    1. Wanacure

      My state legislature passed a law regulating the cost of insulin for patients. But that doesn’t stop the drug companies from charging my Medicare plan $1000 per vial, and I use one vial of lispro and one vial of glargine every 28 days. These drug companies need to be turned into non-profit.

      1
      2 years ago Log in to Reply
    2. LizB

      I use Humalog in my pump and my co-pay is $30. It would be $30 whether I get 1 vial a month or 3. If I was on injections I’d have to pay an additional $30 for a long acting insulin.

      1
      2 years ago Log in to Reply
    3. John McHenery

      I live in the UK so insulin is free

      2 years ago Log in to Reply
    4. dave hedeen

      if on Medicare with pump, insulin is free via Part B coverage.

      2 years ago Log in to Reply
      1. ConnieT1D62

        It’s nice coverage, but unfortunately not so for all on Medicare. It all depends on specific Medicare policy negotiations and what state you live in.

        2
        2 years ago Log in to Reply
    5. George Lovelace

      Pay $0 after paying $325 in Medicare Ins. Premiums

      2 years ago Log in to Reply
    6. Paul Matuschka

      I have Medicare and full coverage BC/BS insurance. I pay $20 a month for Novolog and $$315 for a 90-supply (2 vials) of Tresiba for a total of $125 a month for insulin.

      2 years ago Log in to Reply
    7. P-O Heidling

      Live in Sweden so insulin is free for all T1D (or actually paid by the general Healthcare insurance/Swedish income taxes, but I don’t consider that as a “pay out-of-pocket” expense).

      2 years ago Log in to Reply
    8. Sherolyn Newell

      Currently $0, but until I meet my $3500 deductible, about $300 per vial. I get two per month.

      2 years ago Log in to Reply
    9. Gerald Oefelein

      On Medicare. Zero dollars after meeting annual deductible. Considered durable medical supplies for insulin pump.

      2 years ago Log in to Reply
    10. Patricia Dalrymple

      Have good health insurance, Cigna PPO and before that BC/BS PPO. I have whatever my plan costs per pay (am employed nearing retirement) and then pay $0 for insulin without having to meet a deductible. It is my pump supplies that cost me about $625 per year, as long as I make sure I do the second order after meeting deductible.

      2 years ago Log in to Reply
    11. Annie Wall

      Until recently when I was MDI, my Medicare Part D with Express Scripts had $0 co-pay for insulin. But that does mean that I would get to the infamous donut and would have to start paying lots out-of-pocket. Now that I am back on the pump, Medicare and my Medigap policy pays through Part B so I pay nothing after meeting the Part B deductible.

      2 years ago Log in to Reply
    12. Ashlyn Troutman

      After I meet my deductible of $2000, I pay 20% which is $80 for 3 month supply until my out of pocket max of $4000 is met.

      2 years ago Log in to Reply
    13. connie ker

      I am on a Cigna Medicare RX using their Mail Order Express Scripts. So my out of pocket is for this monthly premium that covers insulin as a tier 6 drug. So I pay no co-pays for insulin other than the monthly premium and the coverage gap is also covered for insulin starting this current year.

      2 years ago Log in to Reply
    14. T1DGJ

      USA/AZ I use lantus & humalog. I have no insurance, so I cross the border to Mexico, or buy it when we travel to other countries. Lantus is about $50/bottle, Humalog about $35. Usually at Walmart pharmacy, but also small ones. No scrip needed in most countries, & drug manufacturer is the same. Been doing this for 12 years.

      2 years ago Log in to Reply
    15. Dorian Dowell

      I should have clicked on $1 – $50.
      Fortunately, I get supplied by the VA.

      2 years ago Log in to Reply
    16. ConnieT1D62

      Right now $35 copay for a 30 day supply of pump use Novolog on a regional NYS health insurance Medicare Advantage plan. I have back-up supply scripts written for MDI use that are covered as well at the $35/mo co-pay but my endocrine provider usually gives me sample pens of Tresiba, Novolog, and Fiasp to use as needed for MDI use.

      2 years ago Log in to Reply
    17. ConnieT1D62

      Wow – reading everyone’s comments shows that despite all the progress of ongoing advocacy efforts there is still no consistent rhyme or reason across the board to regulate the cost of insulin in the US.

      It is no panacea for those of us on Medicare because the rigmarole of premiums, deductibles, and donut hole spending outweigh any temporary relief of a lower co-pay for insulin.

      1
      2 years ago Log in to Reply
    18. pchevillet

      After my $3000 deductible we pay nothing for insulin or supplies.

      2 years ago Log in to Reply
    19. Becky Hertz

      This issue irritates me, or as Peter Griffin in Family Guy would say, “It grinds my hearts”. I’m on Medicare with an advantage plan. If I were on MDI my co-pays would be much less, $90 a month for Novolog since it’s a tier 4 (I’m allergic to the preferred brand), and less for Lantus (partD) Because I’m on a tube pump (Omnipod is excluded from this) my insulin is covered under Part B with a20% copay. My personal opinion is that insulin should be one cost no matter if you’re on a pump or MDI, and we should have freedom of choice of the insulin we use. And I know from state to state, insurance to insurance there is no consistency.

      2
      2 years ago Log in to Reply
    20. Janis Senungetuk

      Zero, if not including the monthly insurance premiums.

      2 years ago Log in to Reply
    21. Jneticdiabetic

      I have employer provided health insurance (HMO/POS). $15/mo Co-pay for one vial of Humalog insulin, which I use via pump. Another $15/month for BG test strips. I also have to pay 50% of my pump/CGM supply cost, which runs ~$750 every 3-4 months. I’m lucky to be able to afford this at this phase of life, but worry that such cost is a barrier to optimizing T1D care for many.

      2 years ago Log in to Reply
    22. Molly Jones

      We have a nice insurance in the US and insulin is free. It makes no sense that it wouldn’t be for a company as the complications of hyperglycemia would be more expensive.

      2 years ago Log in to Reply
    23. Kristine Warmecke

      IF I could afford to buy my insulin as I should, it would be $272 a month for Novolog. I’m Medicare with an Advantage Plan, Novolog is not covered so they don’t pay any of it. I’m allergic to the insulin they do cover. My pump & dexcom supplies are covered 80/20.

      2 years ago Log in to Reply
      1. Becky Hertz

        @Kristine Warmecke has your doctor written a letter of necessity for you? That may help with your co-pay.

        2 years ago Log in to Reply
      2. james murphy

        Do you know anybody that goes to Canada for work or pleasure. I only use one bottle a month of Novalog or Humalog or Apidra, which ever is on sale. The cost of one of these bottles was approx $40 last time i was there. I purchased 20 bottles from different pharmacies and had no problems

        2 years ago Log in to Reply
    24. Thomas Cline

      My copay for 90 days is $60, but it stops about midyear when we have reached our family copay limit.

      2 years ago Log in to Reply
    25. Jeff Perzan

      $570 during deductible
      $50 after deductible met

      2 years ago Log in to Reply
    26. Sahran Holiday

      My copay relatively reasonable except that I pay 18% of my net salary for my health insurance. Then there’s that insulin is more than a century old and even the synthetic analogs we use today are 4 decades. It is the only medicine the government allows the patent not to expire toadying to pharmaceutical lobby. And the so-called advocacy groups like TD1 do nothing.

      2 years ago Log in to Reply
    27. Cheryl Seibert

      My copay for 90 days is $60 dollars regardless of how much or how little insulin I use.

      2 years ago Log in to Reply
    28. Sonia Espinel

      After I pay my deductible it is $25 because Novolog has a coupon.

      2 years ago Log in to Reply

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