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    • 53 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 44 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 2 hours, 50 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 2 hours, 50 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 51 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 2 hours, 53 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 1 minute ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 7 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 8 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 10 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 26 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 3 hours, 26 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 3 hours, 27 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 3 hours, 27 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 27 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 hours, 28 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 28 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 46 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 3 hours, 47 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 3 hours, 49 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 19 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 4 hours, 33 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 41 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
    • 4 hours, 44 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 5 hours, 7 minutes ago
      Katrina Mundinger likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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    How much do you currently pay out-of-pocket for one month’s supply of insulin?

    Home > LC Polls > How much do you currently pay out-of-pocket for one month’s supply of insulin?
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    31 Comments

    1. Wanacure

      My state legislature passed a law regulating the cost of insulin for patients. But that doesn’t stop the drug companies from charging my Medicare plan $1000 per vial, and I use one vial of lispro and one vial of glargine every 28 days. These drug companies need to be turned into non-profit.

      1
      2 years ago Log in to Reply
    2. LizB

      I use Humalog in my pump and my co-pay is $30. It would be $30 whether I get 1 vial a month or 3. If I was on injections I’d have to pay an additional $30 for a long acting insulin.

      1
      2 years ago Log in to Reply
    3. John McHenery

      I live in the UK so insulin is free

      2 years ago Log in to Reply
    4. dave hedeen

      if on Medicare with pump, insulin is free via Part B coverage.

      2 years ago Log in to Reply
      1. ConnieT1D62

        It’s nice coverage, but unfortunately not so for all on Medicare. It all depends on specific Medicare policy negotiations and what state you live in.

        2
        2 years ago Log in to Reply
    5. George Lovelace

      Pay $0 after paying $325 in Medicare Ins. Premiums

      2 years ago Log in to Reply
    6. Paul Matuschka

      I have Medicare and full coverage BC/BS insurance. I pay $20 a month for Novolog and $$315 for a 90-supply (2 vials) of Tresiba for a total of $125 a month for insulin.

      2 years ago Log in to Reply
    7. P-O Heidling

      Live in Sweden so insulin is free for all T1D (or actually paid by the general Healthcare insurance/Swedish income taxes, but I don’t consider that as a “pay out-of-pocket” expense).

      2 years ago Log in to Reply
    8. Sherolyn Newell

      Currently $0, but until I meet my $3500 deductible, about $300 per vial. I get two per month.

      2 years ago Log in to Reply
    9. Gerald Oefelein

      On Medicare. Zero dollars after meeting annual deductible. Considered durable medical supplies for insulin pump.

      2 years ago Log in to Reply
    10. Patricia Dalrymple

      Have good health insurance, Cigna PPO and before that BC/BS PPO. I have whatever my plan costs per pay (am employed nearing retirement) and then pay $0 for insulin without having to meet a deductible. It is my pump supplies that cost me about $625 per year, as long as I make sure I do the second order after meeting deductible.

      2 years ago Log in to Reply
    11. Annie Wall

      Until recently when I was MDI, my Medicare Part D with Express Scripts had $0 co-pay for insulin. But that does mean that I would get to the infamous donut and would have to start paying lots out-of-pocket. Now that I am back on the pump, Medicare and my Medigap policy pays through Part B so I pay nothing after meeting the Part B deductible.

      2 years ago Log in to Reply
    12. Ashlyn Troutman

      After I meet my deductible of $2000, I pay 20% which is $80 for 3 month supply until my out of pocket max of $4000 is met.

      2 years ago Log in to Reply
    13. connie ker

      I am on a Cigna Medicare RX using their Mail Order Express Scripts. So my out of pocket is for this monthly premium that covers insulin as a tier 6 drug. So I pay no co-pays for insulin other than the monthly premium and the coverage gap is also covered for insulin starting this current year.

      2 years ago Log in to Reply
    14. T1DGJ

      USA/AZ I use lantus & humalog. I have no insurance, so I cross the border to Mexico, or buy it when we travel to other countries. Lantus is about $50/bottle, Humalog about $35. Usually at Walmart pharmacy, but also small ones. No scrip needed in most countries, & drug manufacturer is the same. Been doing this for 12 years.

      2 years ago Log in to Reply
    15. Dorian Dowell

      I should have clicked on $1 – $50.
      Fortunately, I get supplied by the VA.

      2 years ago Log in to Reply
    16. ConnieT1D62

      Right now $35 copay for a 30 day supply of pump use Novolog on a regional NYS health insurance Medicare Advantage plan. I have back-up supply scripts written for MDI use that are covered as well at the $35/mo co-pay but my endocrine provider usually gives me sample pens of Tresiba, Novolog, and Fiasp to use as needed for MDI use.

      2 years ago Log in to Reply
    17. ConnieT1D62

      Wow – reading everyone’s comments shows that despite all the progress of ongoing advocacy efforts there is still no consistent rhyme or reason across the board to regulate the cost of insulin in the US.

      It is no panacea for those of us on Medicare because the rigmarole of premiums, deductibles, and donut hole spending outweigh any temporary relief of a lower co-pay for insulin.

      1
      2 years ago Log in to Reply
    18. pchevillet

      After my $3000 deductible we pay nothing for insulin or supplies.

      2 years ago Log in to Reply
    19. Becky Hertz

      This issue irritates me, or as Peter Griffin in Family Guy would say, “It grinds my hearts”. I’m on Medicare with an advantage plan. If I were on MDI my co-pays would be much less, $90 a month for Novolog since it’s a tier 4 (I’m allergic to the preferred brand), and less for Lantus (partD) Because I’m on a tube pump (Omnipod is excluded from this) my insulin is covered under Part B with a20% copay. My personal opinion is that insulin should be one cost no matter if you’re on a pump or MDI, and we should have freedom of choice of the insulin we use. And I know from state to state, insurance to insurance there is no consistency.

      2
      2 years ago Log in to Reply
    20. Janis Senungetuk

      Zero, if not including the monthly insurance premiums.

      2 years ago Log in to Reply
    21. Jneticdiabetic

      I have employer provided health insurance (HMO/POS). $15/mo Co-pay for one vial of Humalog insulin, which I use via pump. Another $15/month for BG test strips. I also have to pay 50% of my pump/CGM supply cost, which runs ~$750 every 3-4 months. I’m lucky to be able to afford this at this phase of life, but worry that such cost is a barrier to optimizing T1D care for many.

      2 years ago Log in to Reply
    22. Molly Jones

      We have a nice insurance in the US and insulin is free. It makes no sense that it wouldn’t be for a company as the complications of hyperglycemia would be more expensive.

      2 years ago Log in to Reply
    23. Kristine Warmecke

      IF I could afford to buy my insulin as I should, it would be $272 a month for Novolog. I’m Medicare with an Advantage Plan, Novolog is not covered so they don’t pay any of it. I’m allergic to the insulin they do cover. My pump & dexcom supplies are covered 80/20.

      2 years ago Log in to Reply
      1. Becky Hertz

        @Kristine Warmecke has your doctor written a letter of necessity for you? That may help with your co-pay.

        2 years ago Log in to Reply
      2. james murphy

        Do you know anybody that goes to Canada for work or pleasure. I only use one bottle a month of Novalog or Humalog or Apidra, which ever is on sale. The cost of one of these bottles was approx $40 last time i was there. I purchased 20 bottles from different pharmacies and had no problems

        2 years ago Log in to Reply
    24. Thomas Cline

      My copay for 90 days is $60, but it stops about midyear when we have reached our family copay limit.

      2 years ago Log in to Reply
    25. Jeff Perzan

      $570 during deductible
      $50 after deductible met

      2 years ago Log in to Reply
    26. Sahran Holiday

      My copay relatively reasonable except that I pay 18% of my net salary for my health insurance. Then there’s that insulin is more than a century old and even the synthetic analogs we use today are 4 decades. It is the only medicine the government allows the patent not to expire toadying to pharmaceutical lobby. And the so-called advocacy groups like TD1 do nothing.

      2 years ago Log in to Reply
    27. Cheryl Seibert

      My copay for 90 days is $60 dollars regardless of how much or how little insulin I use.

      2 years ago Log in to Reply
    28. Sonia Espinel

      After I pay my deductible it is $25 because Novolog has a coupon.

      2 years ago Log in to Reply

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