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    • 2 hours, 23 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 2 hours, 24 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 5 hours, 14 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 2 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 9 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 9 hours, 10 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 29 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 29 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 42 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 22 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 22 hours, 41 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 6 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 9 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 9 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 9 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 9 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 9 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 6 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I’ve been a T1D for about 50 years. After about 10 years I moved towards a more whole food diet with only small amounts of meat. I seem to consume 100-150 grams of carbs per day and try not to eat more than 30-40 grams at a time.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      No. Fruits, veggies and whole grains are too important for our health.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I do not eat keto but it is safe. The term is ketosis which is very different from DKA. “ Ketosis is a normal metabolic process where the body produces ketones for energy when carbohydrate intake is limited, while ketoacidosis is a life-threatening complication of diabetes where dangerously high levels of ketones cause blood to become acidic. Ketosis is typically harmless and can be induced by fasting or following a ketogenic diet, according to Healthline. Ketoacidosis, however, is a serious emergency requiring immediate medical attention, says the Mayo Clinic.
    • 3 days, 9 hours ago
      Deborah Wright likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      i agree! eating lower card due to Dr. Bernsteins book was a game changer in my type 1 control. I am so grateful he wrote it. I only found the book 10 years ago but wish I had known about it for the first 32 years of insulin treatment.
    • 3 days, 9 hours ago
      Deborah Wright likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I have been a Type 1 since 1976. Back in the early 2000's, a friend gave me the book "Diabetes Solution" written by Dr Richard K Bernstein. Reading that book was a turning point for me in my diabetes control as it made me aware of the HUGE role carbohydrates play in glucose levels. I immediately became "carb-aware" and started tracking and reducing the number of total carbohydrate grams I was eating. My A1c's dropped from 9's and 8's into the low 6's with several higher 5's. My goal is to keep my A1c in the low 6's. As I've aged, (now 75), I've had to reduce the total number of daily carbs I consume in order to maintain my control. I credit becoming carb-aware and reducing my daily carbohydrate intake for not having developed any of the serious long-term diabetes complications that require additional treatment and medication. The diabetic ophthalmopathy that was first noticed in the late 1990's as well as neuropathy in my feet noticed about the same time have not progressed in the intervening 25 years. (I was on MDI until 2011 when I transitioned to an insulin pump. I resisted using a pump for years but love the added control and flexibility the pump gives me.) Life is good!
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    How much do you currently pay out-of-pocket for one month’s supply of insulin?

    Home > LC Polls > How much do you currently pay out-of-pocket for one month’s supply of insulin?
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    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    31 Comments

    1. Wanacure

      My state legislature passed a law regulating the cost of insulin for patients. But that doesn’t stop the drug companies from charging my Medicare plan $1000 per vial, and I use one vial of lispro and one vial of glargine every 28 days. These drug companies need to be turned into non-profit.

      1
      4 years ago Log in to Reply
    2. LizB

      I use Humalog in my pump and my co-pay is $30. It would be $30 whether I get 1 vial a month or 3. If I was on injections I’d have to pay an additional $30 for a long acting insulin.

      1
      4 years ago Log in to Reply
    3. John McHenery

      I live in the UK so insulin is free

      4 years ago Log in to Reply
    4. dave hedeen

      if on Medicare with pump, insulin is free via Part B coverage.

      4 years ago Log in to Reply
      1. ConnieT1D62

        It’s nice coverage, but unfortunately not so for all on Medicare. It all depends on specific Medicare policy negotiations and what state you live in.

        2
        4 years ago Log in to Reply
    5. George Lovelace

      Pay $0 after paying $325 in Medicare Ins. Premiums

      4 years ago Log in to Reply
    6. Paul Matuschka

      I have Medicare and full coverage BC/BS insurance. I pay $20 a month for Novolog and $$315 for a 90-supply (2 vials) of Tresiba for a total of $125 a month for insulin.

      4 years ago Log in to Reply
    7. P-O Heidling

      Live in Sweden so insulin is free for all T1D (or actually paid by the general Healthcare insurance/Swedish income taxes, but I don’t consider that as a “pay out-of-pocket” expense).

      4 years ago Log in to Reply
    8. Sherolyn Newell

      Currently $0, but until I meet my $3500 deductible, about $300 per vial. I get two per month.

      4 years ago Log in to Reply
    9. Gerald Oefelein

      On Medicare. Zero dollars after meeting annual deductible. Considered durable medical supplies for insulin pump.

      4 years ago Log in to Reply
    10. Patricia Dalrymple

      Have good health insurance, Cigna PPO and before that BC/BS PPO. I have whatever my plan costs per pay (am employed nearing retirement) and then pay $0 for insulin without having to meet a deductible. It is my pump supplies that cost me about $625 per year, as long as I make sure I do the second order after meeting deductible.

      4 years ago Log in to Reply
    11. Annie Wall

      Until recently when I was MDI, my Medicare Part D with Express Scripts had $0 co-pay for insulin. But that does mean that I would get to the infamous donut and would have to start paying lots out-of-pocket. Now that I am back on the pump, Medicare and my Medigap policy pays through Part B so I pay nothing after meeting the Part B deductible.

      4 years ago Log in to Reply
    12. Ashlyn Troutman

      After I meet my deductible of $2000, I pay 20% which is $80 for 3 month supply until my out of pocket max of $4000 is met.

      4 years ago Log in to Reply
    13. connie ker

      I am on a Cigna Medicare RX using their Mail Order Express Scripts. So my out of pocket is for this monthly premium that covers insulin as a tier 6 drug. So I pay no co-pays for insulin other than the monthly premium and the coverage gap is also covered for insulin starting this current year.

      4 years ago Log in to Reply
    14. T1DGJ

      USA/AZ I use lantus & humalog. I have no insurance, so I cross the border to Mexico, or buy it when we travel to other countries. Lantus is about $50/bottle, Humalog about $35. Usually at Walmart pharmacy, but also small ones. No scrip needed in most countries, & drug manufacturer is the same. Been doing this for 12 years.

      4 years ago Log in to Reply
    15. Dorian Dowell

      I should have clicked on $1 – $50.
      Fortunately, I get supplied by the VA.

      4 years ago Log in to Reply
    16. ConnieT1D62

      Right now $35 copay for a 30 day supply of pump use Novolog on a regional NYS health insurance Medicare Advantage plan. I have back-up supply scripts written for MDI use that are covered as well at the $35/mo co-pay but my endocrine provider usually gives me sample pens of Tresiba, Novolog, and Fiasp to use as needed for MDI use.

      4 years ago Log in to Reply
    17. ConnieT1D62

      Wow – reading everyone’s comments shows that despite all the progress of ongoing advocacy efforts there is still no consistent rhyme or reason across the board to regulate the cost of insulin in the US.

      It is no panacea for those of us on Medicare because the rigmarole of premiums, deductibles, and donut hole spending outweigh any temporary relief of a lower co-pay for insulin.

      1
      4 years ago Log in to Reply
    18. pchevillet

      After my $3000 deductible we pay nothing for insulin or supplies.

      4 years ago Log in to Reply
    19. Becky Hertz

      This issue irritates me, or as Peter Griffin in Family Guy would say, “It grinds my hearts”. I’m on Medicare with an advantage plan. If I were on MDI my co-pays would be much less, $90 a month for Novolog since it’s a tier 4 (I’m allergic to the preferred brand), and less for Lantus (partD) Because I’m on a tube pump (Omnipod is excluded from this) my insulin is covered under Part B with a20% copay. My personal opinion is that insulin should be one cost no matter if you’re on a pump or MDI, and we should have freedom of choice of the insulin we use. And I know from state to state, insurance to insurance there is no consistency.

      2
      4 years ago Log in to Reply
    20. Janis Senungetuk

      Zero, if not including the monthly insurance premiums.

      4 years ago Log in to Reply
    21. Jneticdiabetic

      I have employer provided health insurance (HMO/POS). $15/mo Co-pay for one vial of Humalog insulin, which I use via pump. Another $15/month for BG test strips. I also have to pay 50% of my pump/CGM supply cost, which runs ~$750 every 3-4 months. I’m lucky to be able to afford this at this phase of life, but worry that such cost is a barrier to optimizing T1D care for many.

      4 years ago Log in to Reply
    22. Molly Jones

      We have a nice insurance in the US and insulin is free. It makes no sense that it wouldn’t be for a company as the complications of hyperglycemia would be more expensive.

      4 years ago Log in to Reply
    23. Kristine Warmecke

      IF I could afford to buy my insulin as I should, it would be $272 a month for Novolog. I’m Medicare with an Advantage Plan, Novolog is not covered so they don’t pay any of it. I’m allergic to the insulin they do cover. My pump & dexcom supplies are covered 80/20.

      4 years ago Log in to Reply
      1. Becky Hertz

        @Kristine Warmecke has your doctor written a letter of necessity for you? That may help with your co-pay.

        4 years ago Log in to Reply
      2. james murphy

        Do you know anybody that goes to Canada for work or pleasure. I only use one bottle a month of Novalog or Humalog or Apidra, which ever is on sale. The cost of one of these bottles was approx $40 last time i was there. I purchased 20 bottles from different pharmacies and had no problems

        4 years ago Log in to Reply
    24. Thomas Cline

      My copay for 90 days is $60, but it stops about midyear when we have reached our family copay limit.

      4 years ago Log in to Reply
    25. Jeff Perzan

      $570 during deductible
      $50 after deductible met

      4 years ago Log in to Reply
    26. Sahran Holiday

      My copay relatively reasonable except that I pay 18% of my net salary for my health insurance. Then there’s that insulin is more than a century old and even the synthetic analogs we use today are 4 decades. It is the only medicine the government allows the patent not to expire toadying to pharmaceutical lobby. And the so-called advocacy groups like TD1 do nothing.

      4 years ago Log in to Reply
    27. Cheryl Seibert

      My copay for 90 days is $60 dollars regardless of how much or how little insulin I use.

      4 years ago Log in to Reply
    28. Sonia Espinel

      After I pay my deductible it is $25 because Novolog has a coupon.

      4 years ago Log in to Reply

    How much do you currently pay out-of-pocket for one month’s supply of insulin? Cancel reply

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