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    • 1 hour, 32 minutes ago
      Mary Halverson likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      Yes, I was diagnosed by my family physician as type II because I was not a child. I was treated for type II for 2-3 years and could never get my A1C down. I finally drove an hour to an Endo and hour back. As soon as the dr walked in he said, Hmmm.. I do not believe you are type II but we will do a peptide test just to see. Sure enough, I was not and then was diagnosed as type I. Most general practitioners do not know enough about diabetes to treat patients with it. GO TO AN ENDO! I learned!
    • 1 hour, 36 minutes ago
      Sheri Marcus likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      At the age of 31, I had no symptoms of diabetes, either type, but my blood sugar was abnormal at my yearly checkup, and so it was assumed to be type 2. After three months of taking oral medicine and trying to convince the doctor I was not forgetting this but no decrease in my hemoglobin, I went to the hospital to start insulin. I would not have been aware of any of this for who knows how long.
    • 1 hour, 36 minutes ago
      Sheri Marcus likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      After a routine blood test my primary care doctor told me I had type 2. I was not feeling sick in any way. Since I was age 66, I had no reason not to believe him. But the Metformin he prescribed made me very sick. He was disinterested so I found an endo on my own, who diagnosed type 1 immediately.
    • 1 hour, 36 minutes ago
      Sheri Marcus likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      Type 2
    • 1 hour, 36 minutes ago
      Sheri Marcus likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      Yes, Type 2 because I was 36. Even though it was rapid onset and I kept loosing weight and getting sicker on Metformin. From 1st mistaken diagnosis by Internist to correct diagnosis by Endocrinologist was 1-1/2 months
    • 1 hour, 37 minutes ago
      Sheri Marcus likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      diagnosed with Type 2 by my GP at age 43. put me on glucophage and avandia but my A1C kept climbing. said I'd start on Lantus after the holidays if it didn't go down. found my endo who was the head of adult diabetes center in med center in Houston.
    • 1 hour, 37 minutes ago
      Sheri Marcus likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      I was 39, so diagnosed at type 2 and put on a medication to make my pancreas produce more insulin. Obviously, it didn't work!
    • 1 hour, 37 minutes ago
      Sheri Marcus likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      Was diagnosed with DM2 for two years. I knew I didn’t have type 2 but doctors said I did. Finally and Endo did a C-peptide and said I was LADA or adult onset T1D
    • 1 hour, 37 minutes ago
      Sheri Marcus likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      After c-peptide test showed T1D. Adult onset.
    • 1 hour, 38 minutes ago
      Sheri Marcus likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      Yes. Diagnosed T2D first.
    • 1 hour, 38 minutes ago
      Sheri Marcus likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      Yes, I was misdiagnosed with Type 2
    • 1 hour, 38 minutes ago
      Sheri Marcus likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      I was diagnosed at age 50+. My primary care (PC) doctor was absolutely certain I was type 2 and treated accordingly. After 6 mos. of totally useless oral medications I visited an endocrinologist (my PC refused to refer!) who ran the appropriate blood work to determine I was in fact type 1 and insulin dependent. Needless to say, I sought and found a new PC.
    • 2 hours, 4 minutes ago
      Robin Melen likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      So I had a severe case of the mumps at the end of fifth grade. Slowly, for over a year, I began having symptoms that no one picked up on. I was a very active kid so that may have staved off the damage done to my pancreas by my immune system during that mumps illness. But, I also had a sweet tooth, so that didn’t help. Finally after many trips to the doctor the previous year, at the beginning of my seventh grade year, I started vomiting and could not stop. I had lost so much weight during the past year and that didn’t help. I looked like a skeleton and all I could think about was drinking water and then, of course, peeing a lot. I was DKA. My Mom, again, took me to our family doctor who sent me straight to the hospital where I was diagnosed Type 1. I realized years later that I was probably only inches away from a coma.
    • 2 hours, 16 minutes ago
      Karen DeVeaux likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      Yes. Diagnosed T2D first.
    • 3 hours, 16 minutes ago
      Lawrence S. likes your comment at
      In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
      I always check CGM before driving.
    • 3 hours, 16 minutes ago
      Lawrence S. likes your comment at
      In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
      Always check my bloodsugar before driving to be safe. Plus, I tend to wait an hour or so after meals before I get in the car to drive. Then, I always carry tabs in an easy to reach location while I am driving. Better safe than sorry.
    • 3 hours, 16 minutes ago
      Lawrence S. likes your comment at
      In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
      If blood sugar is low you do not even start the car! Technology makes that a simple choice!
    • 3 hours, 16 minutes ago
      Lawrence S. likes your comment at
      In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
      I check my bg on cgm before starting the car --> always!
    • 3 hours, 17 minutes ago
      Lawrence S. likes your comment at
      In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
      I wear DexCom monitoring and Tandem insulin pump. I also carry snacks allowing me to treat impending low.
    • 3 hours, 17 minutes ago
      Lawrence S. likes your comment at
      In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
      No, but almost. Thankfully I was right around the corner from my final destination so I could deal with it as soon as I stopped. It was just trending down and I had a couple mins to spare before it required action.
    • 3 hours, 17 minutes ago
      Lawrence S. likes your comment at
      In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
      I have had to stop. I have glucose tablets in my man-purse (3 tubes) and in each of my 3 vehicles, car, truck, and motorcycle. I am not a fan of pulling over and can take glucose tablets most times without stopping. When riding the MC I ALWAYS STOP.
    • 3 hours, 18 minutes ago
      Lawrence S. likes your comment at
      In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
      I didn't pull over, but I definitely downed a couple of orange sugar pills at the next light!
    • 3 hours, 19 minutes ago
      Lawrence S. likes your comment at
      In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
      If I am low while driving and feel ok (most instances) I will just treat it. If I'm high, I ake a bolus from my phone and with my phone in the CD holder it can recognize my face.
    • 3 hours, 23 minutes ago
      Lawrence S. likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      Yes. I was seven and my mother died on Aug 1. The church was bringing us (dad and three siblings) dinners and desserts every night. Halloween rolled around and I was “acting strange” wetting my pants, walking into trees. The doctor diagnosed me with psychosis stemming from grief and put me on a couple of antidepressants. I had developed a cough so I was given cough syrup (pure sugar). I slipped into a coma and no one knew what was wrong with me. It took two days until, finally, a young doctor on the emergency staff figured out to test my bg.
    • 3 hours, 24 minutes ago
      Lawrence S. likes your comment at
      Were you misdiagnosed with another condition before you were diagnosed with T1D?
      My GP knew instantly. Besides all the classic symptoms, extreme thirst, constant urination, and unexplained weight loss, a quick test gave him all he needed, there was no question in his mind. And even though I was 32 at the time, he got me started on insulin almost immediately. He first had me get a glucose tolerance test at the hospital lab, but they told me they wouldn't do one once they saw my fasting blood glucose; they said the test would make me sick and my doc didn't need any more information for the diagnosis.
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    Have you ever donated blood while living with T1D? Share your experiences in the comments!

    Home > LC Polls > Have you ever donated blood while living with T1D? Share your experiences in the comments!
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    46 Comments

    1. Leona Hanson

      They won’t take my blood because I’m RH- blood it is rare that there’s only 35 people in the world has it.my blood can’t be used on anyone esei can’t even receive o blood

      2 years ago Log in to Reply
      1. Annie Wall

        It’s exactly the opposite! RH- is the universal red cell donor blood. Anyone with RH positive can receive either RH+ or RH- blood. They want RH- blood donors for that 15% who have RH- blood because we can receive only RH- blood. The Red Cross often publishes that they have a RH- shortage.

        Leona, whoever told you that was absolutely wrong. They need your RH- blood!

        Google this and read what the Red Cross has to say and give blood again if you want to!

        2
        2 years ago Log in to Reply
      2. Ceolmhor

        This is just an idle curiosity question, but with those transfusion limitations, have you ever considered having your own blood stored in case *you* ever need it?

        2 years ago Log in to Reply
    2. Meghan Larson

      I will be donating blood for the first time next week!

      2
      2 years ago Log in to Reply
    3. Sasha Wooldridge

      I stopped trying because they always told me I couldn’t if I was diabetic! I considered lying but I wasn’t positive why it mattered and I didn’t want to inadvertently endanger anyone they might give my blood to. I’ll be looking into this and will start donating again.

      2 years ago Log in to Reply
      1. Kaylea Bowers

        Whoever is telling you this is completely wrong! T1Ds can donate no problem. Only concern would be if you ever used bovine insulin, but that’s unlikely and what most of us use is synthetic

        2 years ago Log in to Reply
    4. Lawrence Stearns

      I have attempted to donate blood on two occasions. I was turned away twice, not because of my T1D, but because of another health condition. Such a shame, because I would like to donate.

      2 years ago Log in to Reply
    5. Beckett Nelson

      I’ve donated once, since we just became able to donate as type 1s here in Canada. I just went to donate again on Friday, but was denied because I’m anemic right now *curses*

      2 years ago Log in to Reply
    6. John McQuaid

      I used to donate regularly, Until when they started asking about Mad Cow disease. I can’t swear that I never used Beef insulin, even though I cannot remember ever buying it. But because there is a remote chance that I used insulin made from beef, they won’t let me donate blood.

      2 years ago Log in to Reply
    7. George Lovelace

      It took months and a little help from my Endo and the Medical Director of the local Carter Blood Center finally approved me. to donate. I made 2 draws of whole blood and came off taking aspirin and got on to the Apheresis Platelet donation team. I donated for several years and got my “12 Gallon” Pin

      2 years ago Log in to Reply
    8. aude bandini

      I wanted to, but was told that PWT1D could not donate blood.

      2 years ago Log in to Reply
      1. Kaylea Bowers

        That’s 100% false! I donate regularly. You should ask someone else ☺️ The only concern I think is if you used one of the suuuuper old forms of bovine insulin.

        2 years ago Log in to Reply
    9. Kaylea Bowers

      I donate regularly every 8 weeks 🙂

      2 years ago Log in to Reply
    10. Janice B

      I tend to have anemia so I am not able to give blood….nothing to do with T1D

      2 years ago Log in to Reply
    11. Joan Fray

      I used to donate regularly 1965 to 1977. Then i began to have consistently low iron, so my blood bank told me not to bother. Nothing about beef insulin, but I probably got both pork and beef in the 60-s…….

      2 years ago Log in to Reply
    12. Steve Gold

      never have. Now that they will take blood from Type 1 diabetics i would.

      2 years ago Log in to Reply
    13. Derek West

      I was told I could not donate because I am Type 1, and I have not tried since, but that was 40 years ago!
      Maybe time to try again.

      2 years ago Log in to Reply
    14. Sahran Holiday

      O negative. Donated previously and lost consciousness each time. Could and will donate in a hospital setting.

      1
      2 years ago Log in to Reply
    15. rick phillips

      I would do it in a heartbeat. However for about 30 years I could not because of insulin. Now it is because of RA meds. But yes give me a chance and I am all in.

      2 years ago Log in to Reply
    16. Diane McEniry

      I tried to donate last year when blood supplies got low during the pandemic. I was diagnosed in 1977 and could not remember if my insulin at that time was pork or bovine. I think it was pork but because of the chance it could have been bovine, they would not take it.

      2 years ago Log in to Reply
      1. Julie Blehm

        Diane, I have had The same experience. I was diagnosed in 1973 and was donated blood prior to that. First the reason was I was using syringes. When that became allowed then I could not get up because I had initially been on beef pork insulin

        2 years ago Log in to Reply
    17. Steve Rumble

      I donated blood long ago with out problems and then could no longer donate because I could not confirm that I had not used beef insulin after 1980? Rules changed and I am now donating plasma about every 4 weeks with no impact on my T1D.

      2 years ago Log in to Reply
      1. LuckyPineapple

        Really?? I’d love to give plasma but they won’t let me because of the diabetes

        2 years ago Log in to Reply
    18. Jneticdiabetic

      Before having kids, I used to donate platelets regularly. They wouldn’t take whole blood donations from T1Ds at the time, but from the other comments, sounds like this has changed. When I tried donating platelets after having kids, I was told I needed to have a special antibody test done first. This is a good reminder to follow-up on that.

      2 years ago Log in to Reply
    19. Stephen Woodward

      It is so sad to see the comments that say that T1D can’t donate. This is a medical myth that needs to be stopped. Other than the non T1D related things that keep someone from donating, there currently is no medical reason that a T1D cannot donate blood.

      Go for it, everyone!

      2
      2 years ago Log in to Reply
    20. Karington Johnston

      I didn’t weigh enough to donate blood until after I was diagnosed with type 1! You do need to have your bg under control to donate, but I probably donate at least once a year now!

      2 years ago Log in to Reply
    21. Vicki Breckenridge

      TID for 37 years. I was unable to donate for about 3 years because of uncertainty of safety with non animal sourced insulin. Fortunately in Iowa they changed the ruling if you had never had animal insulin you could donate. I’m a 6 gallon donor!

      2 years ago Log in to Reply
    22. Janis Senungetuk

      The Red Cross turned me down when I attempted to donate in 2011 because I had used beef/pork insulin from 1955 until 1980.

      2 years ago Log in to Reply
    23. M C

      Where I live, it is not allowed.

      2 years ago Log in to Reply
    24. Brett Crystal

      While I was initially told after diagnosis by a family friend who was a nurse that I could not donate with T1D, I was then given the correct information and began donating as much as possible. As I have enjoyed the act of donating and being able to use my tolerance for needles in a good way, I made it a lifelong goal to one day break the world record for the most blood donations.
      Thus far, I have made a total of 302 blood/platelet/plasma donations!

      2 years ago Log in to Reply
    25. Adrienne Hitch

      When I was diagnosed in 1974. I was told I wouldn’t be able to donate blood but could donate plasma. Fast forward to after 2005 – tried to donate plasma, told them at the beginning of the application process that I was Diabetic. Got all the way thru the process but then was asked why I took insulin (!) and that I couldn’t donate plasma due to the fact I was diabetic,
      Couple of years later, tried to donate blood but because I couldn’t remember if I had taken beef insulin in my early years I was denied. Haven’t tried since.

      2 years ago Log in to Reply
    26. Molly Jones

      With all the medications I take for multiple autoimmune conditions, my blood is not desired. I also live in the US, but a spent time in Ireland during mad cow disease. I don’t think anyone wants the possibility of CJD.

      2 years ago Log in to Reply
    27. Andrea Rueff

      I try to Donate every 6 weeks but I live in Kingsville, TX and the blood mobile doesn’t get here very much. I don’t have a car which having a car I could travel for the donation. The last donation has been 3+ months because I had a bad bout with Hydrocephalus and I had a Brain Surgery on April 16, 2021 and my Neurosurgeon asked me not to donate until he releases me. I man doing very well but I still have some time before I can donate again. I have Type 1 Diabetic and I have had it for over 30 years. Taking well care of yourself it does give it back to you. I have so many problems and I am on Disability due to a Traumatic Brain Injury in 2013 and the doctor told my sister that I had 98% Brain dead. I am having some issues but donations I have been doing this ever since I was 16. Donating is good for everyone.

      2 years ago Log in to Reply
    28. KSannie

      Diabetics could not give blood way back when I was diagnosed. In 1991 my family moved to England. When we returned in 2006, evidently diabetics were now allowed to give blood. But our lengthy stay in England meant no one in the family will ever be allowed to give blood again. They are afraid of Creutzfeld-Jacob disease from the Mad Cow disease that occurred in Britain for a couple of years. However, the incidence of Creutafeld-Jacob disease is no higher in the UK than in the U.S. So this is a ridiculous prohibition. What is even more ridiculous is that it only applies to people who were in the UK more than 6 months. Let me tell you, British beef was awful, so we never ate any. But a tourist visiting for a couple of weeks could eat fast food burgers there a dozen times and still be allowed to donate blood upon their return to the U.S. As others have commented, I have been tempted to lie, but I figure the U.S. doesn’t deserve my family’s blood!

      2 years ago Log in to Reply
    29. KarenM6

      I tried a few times, but they always deny me because I used beef/pork derived insulin until 1996.
      So, like others, the first time I tried, I was denied because of being Type 1… the rest are mad cow concerns.

      2 years ago Log in to Reply
    30. Wanacure

      Some places are afraid a diabetic will pass out during or after the donation due to low bg. When I was hard up as a youth, I sometimes sold my blood. That was before any knowledge of mad cow disease. A research lab a couple of years ago was buying blood at $125/pint if you qualified with certain antibodies or blood characteristics after a small sample was taken. I qualified, but when the tech took my pulse it was “too low.” At that time I was aerobic swimming 3 to 4 times a week, so of course my resting pulse and bp were lower than “average American.” I tried to explain the beneficial aspects of doing aerobics, but the tech feared I would pass out due to low bp! I no longer sell/donate blood or plasma even just for lab research. Since mad cow awareness, and since I injected beef/pork insulin, I don’t want to endanger anybody’s health. And I very seldom eat beef, pork, chicken, or turkey meat anymore. I get protein from yoghurt, kefir, nuts, seeds, eggs, cheese, salmon (Alaska, wild-caught) or sardines every day.

      2 years ago Log in to Reply
    31. Amy Schneider

      For many years I understood I couldn’t donate as a T1D. Then when my congregation did a drive, it turned out I was eligible. I’ve donated regularly since then except for last year due to COVID.

      2 years ago Log in to Reply
    32. LizB

      I was excited when I found out I could donate. I donated several times but then I kept failing the hemoglobin check. They really wanted my Type O blood and would call me constantly. I went back a few times and failed every time so I asked to be removed from their call list. When I mentioned it to the NP at my endo’s office she said, “Oh yeah, you’ve been slightly anemic for awhile” but she had never told me! My current PCP has told me to start taking an iron supplement.

      2 years ago Log in to Reply
      1. james murphy

        I use to fail the Iron level but then it was just a simple thing of not drinking tea in the morning i was giving blood. I did not think this was it but it was simple. So now i am back on schedule every 60 days.

        2 years ago Log in to Reply
    33. Ken Raiche

      I’ve been doing it for years and I like to help out if and when I can. That said I wanted to donate bone marrow to help in a good cause but no such luck because of my condition and the risks, there’s no harm in trying but if the risk is way to high then so be it. Hence the blood giving.

      2 years ago Log in to Reply
    34. Megan W

      I donated once while in high school. However, afterward I was sitting at a table drinking the recommended juice (my BS wasn’t low) and passed out. I then was dizzy and puking for 24 hours. So, I haven’t donated since.

      2 years ago Log in to Reply
    35. John B. Welsh

      I have donated about 8 gallons lifetime, but a couple of years ago the blood bank gave me an updated set of questions that included one about injection drug use. Of course I use injection drugs every day. The blood bank put me on a permanent deferral list (a lifetime ban) because in the early 1980s I was using beef insulin from Eli Lilly, and couldn’t guarantee that the cows were all from the US. The blood bank apparently thought that my blood could transmit mad cow disease (bovine spongiform encephalopathy) from British cows. No more blood donations because of a dumb (IMHO) question from the blood bankers.

      2 years ago Log in to Reply
    36. Siri Lachmansingh

      Yes! I just did for the first time two weeks ago. I found out that as long as you have well controlled blood sugars, donating blood as a type 1 diabetic is fine! The people at the donation center never even asked if I was diabetic and it was not one of the qualifying questions. I have yet to see where my donation has gone but knowing that I can donate in the future is great!

      2 years ago Log in to Reply
    37. Bekki Weston

      As a LADA (dx 7 yrs ago), I’d already been donating for years. Found no “exclusion” on the in-take questionnaire, so I’m still at it. By the end of the year, I’ll have 100 donations to my name. I encourage all to check again if you were previously told NO, as there seems to be a lot of mis-information out there.

      2 years ago Log in to Reply
    38. Jeff Perzan

      I have donated UNTIL returning from living abroad in France for 3 years (decades ago). Have been banned since they say it’s because of the possibility of having been exposed to mad cow disease.

      2 years ago Log in to Reply
    39. Marie Seymour-Green

      I do donate, but they always have trouble finding a “good” vein. I always end up getting bruises from the probing for a vein and the little circular, metal thing that is pressed into my skin to mark the location of the vein. Sometimes the machine keeps alarming because the bag is filling up too slow or not filling at all, or something. Then you are in danger of the blood being tossed because there is not enough in the bag. 😐 Argh.

      2 years ago Log in to Reply

    Have you ever donated blood while living with T1D? Share your experiences in the comments! Cancel reply

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