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    • 1 hour, 33 minutes ago
      Amanda Barras likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      It would depend on if it was blood sugar responsive. I currently have an A1c near 6 and don’t want to give up control.
    • 7 hours, 36 minutes ago
      Bruce Schnitzler likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      This sounds like a pipe dream to me. I said, "Not at all interested," with a little unsure. How would one dose a week of insulin handle high and low blood glucose? How would it handle exercise and work activities? If you're talking only as a long-acting insulin, and you have to take boluses, then it's NOT once-weekly. I took NPH years ago, and it was a horrible experience for me (for 25 yrs. ).
    • 7 hours, 37 minutes ago
      Bruce Schnitzler likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 11 hours, 32 minutes ago
      Molly Jones likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 15 hours, 4 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      If it handled basal and bolus correctly, where my time in range was 80-90% and I only had to do one shot a week that would be amazing
    • 15 hours, 4 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Would this be a basal insulin? How would meal-time insulin be administered? And how would fluctuating insulin needs (day vs night, sedentary vs active) be managed with a single dose? I have many questions that outweigh the possible convenience of a single injection (if that’s what this question is about).
    • 15 hours, 4 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 15 hours, 4 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 15 hours, 4 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I said moderately because being on Medicare, I’d need much more information such as how many weeks would I be able to have on hand without additional prescriptions? Would I still need some kind of preauthorization once per year that’s a hassle getting? How long would it stay good - the same amount of time? Would the pump take a week’s worth or how does that work with pump supplies?
    • 15 hours, 15 minutes ago
      eherban1 likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I'm MDI and if we're talking basal it isn't a big deal to me. Now if we're talking fast acting, that's a much different story!
    • 15 hours, 17 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Would this be a basal insulin? How would meal-time insulin be administered? And how would fluctuating insulin needs (day vs night, sedentary vs active) be managed with a single dose? I have many questions that outweigh the possible convenience of a single injection (if that’s what this question is about).
    • 15 hours, 17 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 15 hours, 17 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 15 hours, 19 minutes ago
      KCR likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 15 hours, 20 minutes ago
      KCR likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I'm MDI and if we're talking basal it isn't a big deal to me. Now if we're talking fast acting, that's a much different story!
    • 15 hours, 25 minutes ago
      Bonnie Lundblom likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 15 hours, 31 minutes ago
      eherban1 likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      I find I can normalize my BG in 15-30 minutes. But after ~50 years with T1D and maybe due to getting older I am fairly exhausted for hours after a hypo.
    • 15 hours, 32 minutes ago
      eherban1 likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      To feel like it hadn’t happened I need a nap.
    • 15 hours, 33 minutes ago
      Derek West likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      It varies from 5 minutes to 20 minutes. The exception to this is the very occasional low that's resistant to resolving and - as Anthony said in his comment - I continue adding more glucose until I begin to feel the symptoms ebb. Once the low is gone the extra glucose will slowly but surely result in a higher-than-desired blood sugar.
    • 15 hours, 34 minutes ago
      Derek West likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      I answered 15-30 minutes, but there are times, especially at night, especially when very low, that it can take 1-2 hours. That's a real pain. I just keep throwing glucose at the problem which will creat high readings later, but I have to get the glucose reading to rise and it won't. Also, my best quality decisions are not made when awoken in the middle of the night.
    • 15 hours, 36 minutes ago
      Debbie Pine likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 15 hours, 49 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never! I think about my blood sugar so much less with all these devices attached. And I barely notice them once they are on. It’s such a blessing that when I have to take them off that’s more of a problem/inconvenience than a vacation.
    • 15 hours, 50 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never. I have severe hypoglycemic unawareness. No symptoms even at glucose levels of 40.
    • 15 hours, 51 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Nope. Love my technology! Having it frees up so much mental bandwidth that I would otherwise have to spend on finger sticks, calculating insulin doses, figuring how much insulin on board, etc. Also, I love not carrying a purse with all that "stuff" everywhere I go - I put my license & credit card in my phone case and I'm hands-free. Absolute magic!
    • 15 hours, 51 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Not sure how I would without serious ramifications!
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023?
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    In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments!

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    If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    15 Comments

    1. Jane Cerullo

      Insulin for MDI $210. Iport $60. Needles $10. Dexcom no cost.

      3 years ago Log in to Reply
    2. Gerald Oefelein

      Medicare deductible.

      3 years ago Log in to Reply
    3. emily anderson

      I live in Spain, where we have socialized medicine. Our citizens´ taxes pay for my insulin, sensors, tubing, pump, and all medical appointments. I am from the USA but would be terrified to have to move back there because of my diabetes. I mean, that, and all the mass shootings…

      7
      3 years ago Log in to Reply
      1. JOAN ULMER

        So how much are citizens paying in taxes? Just curious how much socialized medicine costs each person/year?

        1
        3 years ago Log in to Reply
    4. Daniel Bestvater

      I live in Ontario Canada so pump is covered but not Dexcom G6, insulin and medication. So I spent ~$1,800 during this time period.

      3 years ago Log in to Reply
    5. Louise Robinson

      Annual Part B Medicare Deductible. $226 in 2023.

      3 years ago Log in to Reply
    6. Steven Gill

      Dropped insurance until the end of the year, guessing about $500 for Libre3, insulin pens, strips, and prescriptions. Lower than my copay with insurance? (dropped the pump/CGM combo)

      3 years ago Log in to Reply
    7. Marty

      I spent $227, about half my Medicare Part D deductible, on prescriptions. I also had to buy some test strips out of pocket because CVS suddenly won’t refill the prescription. It’s probably some nonsense about Medicare Part B coverage but I haven’t had time to devote to waiting on the phone to try to figure it out.

      3 years ago Log in to Reply
    8. KarenM6

      I spent over $6,000. Ugh and ouch.

      1
      3 years ago Log in to Reply
    9. Wanacure

      At least $500. ($105 for 3 vials of Lantus, long acting insulin + $105 for 3 vials of Humalog, fast acting insulin + $127.85 Byram for Dexcom 6 supplies in January and $127.85 to Byram for Dexcom 6 supplies in March

      3 years ago Log in to Reply
    10. Wanacure

      + cost of surgery for ankle fracture surgery caused by osteopenia & neuropathy in feet, both T1D complications, + pain pills & antibiotics after ankle surgery exceeds $500 total out of pocket costs for T1D January thru March 2023. I forgot cost of crutches and walker and appointment copayments, x-rays. Most of the thousands of $ for surgery and metal implants and screws and overnight hospital stay were paid by Medicare. Do not privatize Medicare.

      3 years ago Log in to Reply
    11. Michelle Turner

      My Insurance is the best I have ever had! I work for a hospital, I get my meds from their pharmacy. All of my diabetes supplies are covered. My Insulin, my omnipod 5, DexcomG6. I’m very Thankful!

      2
      3 years ago Log in to Reply
    12. Troy Bruce

      Largest expense is for Dexcom g6 Sensors. Using GoodRX averaging 170 a month. My insurance won’t consider them as preventative. So i have to meet a ridiculous deductible first. DoubleCross of Michigan. They do consider insulin as preventative. I believe it’s mandatory. Fiasp and Lantus each is around 200 for 90 day supply. Can’t complain about that.

      1
      3 years ago Log in to Reply
    13. Maurine Bowser

      I spent around $500 in Jan to get an InPen which also covered my deductible. I’m on Medicare so generics are covered but not pen needles.

      3 years ago Log in to Reply
    14. Britni

      I misread the question. I answered 501-750 but should have said 1-250

      3 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023? Cancel reply

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