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    • 7 hours, 57 minutes ago
      lis be likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 10 hours, 49 minutes ago
      Ahh Life likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 12 hours, 12 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 12 hours, 12 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 15 hours, 46 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day, 14 hours ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day, 14 hours ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day, 14 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 3 days, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 3 days, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 3 days, 8 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 3 days, 11 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 14 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 15 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 16 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 16 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 17 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 17 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 4 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023?
    Previous

    In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments!

    Next

    If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    15 Comments

    1. Jane Cerullo

      Insulin for MDI $210. Iport $60. Needles $10. Dexcom no cost.

      3 years ago Log in to Reply
    2. Gerald Oefelein

      Medicare deductible.

      3 years ago Log in to Reply
    3. emily anderson

      I live in Spain, where we have socialized medicine. Our citizens´ taxes pay for my insulin, sensors, tubing, pump, and all medical appointments. I am from the USA but would be terrified to have to move back there because of my diabetes. I mean, that, and all the mass shootings…

      7
      3 years ago Log in to Reply
      1. JOAN ULMER

        So how much are citizens paying in taxes? Just curious how much socialized medicine costs each person/year?

        1
        3 years ago Log in to Reply
    4. Daniel Bestvater

      I live in Ontario Canada so pump is covered but not Dexcom G6, insulin and medication. So I spent ~$1,800 during this time period.

      3 years ago Log in to Reply
    5. Louise Robinson

      Annual Part B Medicare Deductible. $226 in 2023.

      3 years ago Log in to Reply
    6. Steven Gill

      Dropped insurance until the end of the year, guessing about $500 for Libre3, insulin pens, strips, and prescriptions. Lower than my copay with insurance? (dropped the pump/CGM combo)

      3 years ago Log in to Reply
    7. Marty

      I spent $227, about half my Medicare Part D deductible, on prescriptions. I also had to buy some test strips out of pocket because CVS suddenly won’t refill the prescription. It’s probably some nonsense about Medicare Part B coverage but I haven’t had time to devote to waiting on the phone to try to figure it out.

      3 years ago Log in to Reply
    8. KarenM6

      I spent over $6,000. Ugh and ouch.

      1
      3 years ago Log in to Reply
    9. Wanacure

      At least $500. ($105 for 3 vials of Lantus, long acting insulin + $105 for 3 vials of Humalog, fast acting insulin + $127.85 Byram for Dexcom 6 supplies in January and $127.85 to Byram for Dexcom 6 supplies in March

      3 years ago Log in to Reply
    10. Wanacure

      + cost of surgery for ankle fracture surgery caused by osteopenia & neuropathy in feet, both T1D complications, + pain pills & antibiotics after ankle surgery exceeds $500 total out of pocket costs for T1D January thru March 2023. I forgot cost of crutches and walker and appointment copayments, x-rays. Most of the thousands of $ for surgery and metal implants and screws and overnight hospital stay were paid by Medicare. Do not privatize Medicare.

      3 years ago Log in to Reply
    11. Michelle Turner

      My Insurance is the best I have ever had! I work for a hospital, I get my meds from their pharmacy. All of my diabetes supplies are covered. My Insulin, my omnipod 5, DexcomG6. I’m very Thankful!

      2
      3 years ago Log in to Reply
    12. Troy Bruce

      Largest expense is for Dexcom g6 Sensors. Using GoodRX averaging 170 a month. My insurance won’t consider them as preventative. So i have to meet a ridiculous deductible first. DoubleCross of Michigan. They do consider insulin as preventative. I believe it’s mandatory. Fiasp and Lantus each is around 200 for 90 day supply. Can’t complain about that.

      1
      3 years ago Log in to Reply
    13. Maurine Bowser

      I spent around $500 in Jan to get an InPen which also covered my deductible. I’m on Medicare so generics are covered but not pen needles.

      3 years ago Log in to Reply
    14. Britni

      I misread the question. I answered 501-750 but should have said 1-250

      3 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023? Cancel reply

    You must be logged in to post a comment.




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