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    • 14 hours, 54 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 14 hours, 56 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 14 hours, 57 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 14 hours, 57 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 15 hours, 5 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 16 hours, 58 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 16 hours, 59 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 17 hours, 1 minute ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 1 minute ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 23 hours, 3 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 49 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    How important is the A1c measurement to you?

    Home > LC Polls > How important is the A1c measurement to you?
    Previous

    When evaluating your T1D, is your A1c or your time in range more important to you?

    Next

    For caregivers of children with T1D, do you have any special accommodations available from your child’s school? For adults with T1D, did you have special accommodations when you were in school?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    34 Comments

    1. Barb Robertson

      I answered somewhat unimportant. Time in range is much more important and more precise

      7
      2 years ago Log in to Reply
    2. Douglas Kosmicki

      With CGM data and a hgba1c between 5 to 5.4 for over 5 years now I don’t check it more than every 6-12 months. However this my choice and would check more often if blood sugars were not normal.

      2 years ago Log in to Reply
    3. Kathy Hanavan

      I answered moderately important even though I view TIR as much more valuable because the medical world, other than in diabetes providers is focused on A1c still. One day soon, I hope that changes.

      3
      2 years ago Log in to Reply
    4. Lawrence S.

      I answered “very important”, but felt perhaps somewhere between very important and somewhat important. I view all of my T1D numbers as important. My A1c is just one important part of the the puzzle. Time in Range is important, as are trends, actual CGM readings, and a myriad of other important blood test and urine test results.

      4
      2 years ago Log in to Reply
    5. Patrick Burner

      The older you get the more important it becomes just like kidney health.

      1
      2 years ago Log in to Reply
    6. John Barbuto

      TIR most important.

      2
      2 years ago Log in to Reply
    7. Dennis Dacey

      I answered “neutral” as this measurement is treated by me as a guidepost on my journey through diabetes.
      Yes, what we now call HgA1c/HbA1c is certainly an important measurement guide, I do not use this reading as a goal. I say that even though, in 1974, my body and blood was used in the development of this test.

      2
      2 years ago Log in to Reply
    8. Jane Cerullo

      I try to keep eye on A1c, TIR standard deviation. Keeps me honest

      2
      2 years ago Log in to Reply
    9. Rex Franklin

      I answered ‘Very Important’ because my A1C shows to my Endo and Medical Insurance that I am compliant and well controlled T1D.

      1
      2 years ago Log in to Reply
    10. Marty

      I care about A1c’s only to the extent that it affects some health care providers’ (not my endo’s) impression of my blood sugar control. Particularly because I have irregularities with hemoglobin metabolism, A1c’s don’t mean much for me and actual blood sugar measurements are far more informative.

      2
      2 years ago Log in to Reply
      1. Lorri McLuckie

        This is exactly how I feel. My Dexcom predicted A1C is always much lower than the actual test result comes back. And all other doctors besides my endo, look at A1c and don’t think that my control is as good as it actually is.

        1
        2 years ago Log in to Reply
    11. Lyn McQuaid

      It used to be more important in the days before CGMs. I am suspicious of it for me now because it is always significantly lower than the average blood sugar values my Dexcom gives for 30, 60, and 90 days. For example, my Dexcom will say the average would result in an A1C of 6.1 while my A1C result is a 5.4. It’s been consistently like this ever since I got my first Dexcom eight years ago and my endo can’t explain it.

      1
      2 years ago Log in to Reply
      1. Bruce Schnitzler

        Same trends for me. My endocrinologist thinks it may be due to (1) my severe anemia or (2) the cancer medications I take.

        1
        2 years ago Log in to Reply
      2. Lyn McQuaid

        Thanks for your reply, Bruce! I am neither anemic nor take cancer meds so I’m not sure what my issue is but that is interesting to know. My endo originally thought that perhaps the meter I was using for finger stick calibrations (back when I used a Dexcom that required calibration) was inaccurate so I got a new meter that is supposed to the most accurate on the market but nothing changed. (Shrugs)

        1
        2 years ago Log in to Reply
    12. Janice B

      I am much more concerned with time in range. Which gives a better measure of blood sugar measurement

      7
      2 years ago Log in to Reply
    13. Kristi Warmecke

      My TIR (time in range) is more import to me and my endocrinologist.

      1
      2 years ago Log in to Reply
    14. Sharon Gerdik

      My A1C results have never been accurate. My Endo says I probably have a protein in my blood that negates the results. I always get a Fructosamine test and that result correlates with my TIR.

      1
      2 years ago Log in to Reply
    15. Pauline M Reynolds

      It was all important in the past, but just moderately important since I have had a CGM.

      1
      2 years ago Log in to Reply
    16. Ernie Richmann

      A1c is important- just understand that it is an average. Also very important is time in range. An acceptable average doesn’t tell the whole story especially if an individual is experiencing many lows and highs.

      2
      2 years ago Log in to Reply
    17. Melissa Childers

      A1c is not as important now that 6 are CGM’S with TIR.

      1
      2 years ago Log in to Reply
    18. Christine Gran

      As the mother of a teen with T1 it is very important to me, but not important enough for my son to change his habits to have better blood sugar management.

      1
      2 years ago Log in to Reply
    19. Carol Meares

      The 3 major pieces of data I use to assess how well I am doing:
      A1c, Time in range, and Standard deviation. Occasionally, I will delve deeper if numbers are getting out of whack.

      2
      2 years ago Log in to Reply
    20. David Hedeen

      A1c somewhat important yet TIR tell a better story of diabetic control

      2
      2 years ago Log in to Reply
    21. Ahh Life

      1. Time in range
      2. Standard deviation
      3. CGM hourly one month report.

      These are the most useful for my management. A1c is very useful for me to educate non-endocrinologist physicians who erroneously believe:

      1. Everyone should have lower A1c’s,
      2. The A1c is the be-all and end-all of diabetic management, and
      3. A1c is the gold standard for diabetic management. 🤕🤠

      2
      2 years ago Log in to Reply
    22. Janis Senungetuk

      I consider TIR far more important, because the A1c is an average and after 68 years living with T1D “average” is an illusion. A1c results from the same time period have varied from one certified lab to another. My endo agrees with me, unlike the other physicians I see who treat the A1c number as the decisive judgement on my glucose management skills.

      2
      2 years ago Log in to Reply
    23. Becky Hertz

      Time in range is the more important measurement for me. A1c is important for insurance reasons but TIR gives a better indication of how steady I am.

      2 years ago Log in to Reply
    24. TomH

      I use GMI, SD, and CoV more, A1c is only because my Endo still uses due to Medicare and medical community reliance on it.

      2 years ago Log in to Reply
    25. Juha Kankaanpaa

      Since using a cgm, the A1c measurement is no longer important to me. The cgm gives me real information on my bg levels whereas A1c is, and always has been, an estimate with high individual variation.

      2
      2 years ago Log in to Reply
    26. cynthia jaworski

      one doesn’t get a complete picture unless multiple statistics are used. I like to see a1c, TIR and SD.

      2 years ago Log in to Reply
      1. lis be

        Hi, what’s SD?

        2 years ago Log in to Reply
    27. Stephen Woodward

      Given that the A1C testing technology is decades old and directly impacted by ethnicity, health, recent big, lab variabilities, food, drugs, and more, it is not a valuable daily management assessment tool, CGM data is far more effective at assessing daily management.

      2 years ago Log in to Reply
    28. Kim Murphy

      I didn’t realize how important A1C was in relation to things besides T1D. I had a sholder injury and needed rotator cuff repair. Two surgeons said oh you are diabetic so it is just Normal age related wear and tear. When I finally found a surgeon that agreed I had an actual injury he said he would only do surgery if my A1C was under 7. So I am glad I keep it at 6.3- 6.6

      2 years ago Log in to Reply
    29. Jeff Balbirnie

      Zero importance. I understand how the information is used. Most white coats utilize it in the manner of as “moral” scythe (e.g. entirely negative) at every possible opportunity. I understand it well, I reject any import

      2 years ago Log in to Reply
    30. T1D4LongTime

      A1C is important because it is the only current measure of T1D control that reflects actual physical lab-obtained BG. However, it alone is not a good measure of control. TIR and SD are dependent on BG meters (point in time) or CGMs (continuous measuring). Both meters and CGMs can vary from lab-drawn BG values.

      2 years ago Log in to Reply

    How important is the A1c measurement to you? Cancel reply

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