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    • 2 hours, 10 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 19 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 21 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 1 hour ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 2 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 3 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 4 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 4 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 19 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 19 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 21 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 22 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 23 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 4 days, 1 hour ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
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    How important is a strong knowledge of nutrition for T1D management?

    Home > LC Polls > How important is a strong knowledge of nutrition for T1D management?
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    Has your insurance company ever denied your T1D medications or supplies? Share more in the comments about how you navigated this process.

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    23 Comments

    1. Molly Jones

      I consider basic digestion of carbohydrates regulated by activity and fats to be the most important understandable aspect of nutrition for T1D management.
      Most other aspects of nutrition/ biochemistry affect my health and T1D but I would leave up to my doctor to understand/ diagnose.

      1
      2 years ago Log in to Reply
    2. Ahh Life

      Mom lived to 98. Dad lived to 102.

      1
      2 years ago Log in to Reply
      1. Ahh Life

        May have been due to healthy diabetic exchange diet started in 1951 with my diagnosis of T1D.

        4
        2 years ago Log in to Reply
    3. fletchina

      I actually chose a career in nutrition and am a Registered Dietitian Nutritionist.

      3
      2 years ago Log in to Reply
    4. Jian

      for person with Type 1or 2 as well as providers -essential for both

      2
      2 years ago Log in to Reply
    5. Janice B

      As important as it is for anyone who wants to be sure to eat in a balanced nutritional way. No matter your choice of diet you need to make sure to have all the vitamins covered.

      1
      2 years ago Log in to Reply
    6. Lawrence S.

      This question is like asking if the sky is blue, or the grass is green. Managing T1D is all about knowing and using nutrition. I learned the nutritional values of fruits, and vegetables and read the labels on all packaged foods, so I know what is going into my body. Not just the carbohydrates, but the fats and proteins as well. Also, I need to know what minerals and vitamins I am getting. Yes, it is Very important to have a strong understanding of nutrition in the management of T1D.

      3
      2 years ago Log in to Reply
    7. TomH

      I put “somewhat” because I interpret it as meaning “more so than a non-T1D” and I think it’s important for all of us.

      2
      2 years ago Log in to Reply
    8. Lynn Smith

      This is a very dumb question.

      2 years ago Log in to Reply
    9. cynthia jaworski

      A clear consensus agrees that understanding nutrition is important.

      Another question here might be: how much detail does one need?

      2 years ago Log in to Reply
      1. George Lovelace

        Every Detail including Timing and what response you achieve

        2 years ago Log in to Reply
    10. George Lovelace

      I answered “Very” because there wasn’t an “Extreme” Answer offered. One you know about nuntrition and Carbs and Protien and Fat you have the Basis of what your insulin dosage should be, then just factor in the Timing issues and you can get an A1c of 5.4 like me! Until I changed to Dex G7 and Tandem and I think I need to come off 24/7 Sleep mode with CIQ

      2 years ago Log in to Reply
    11. Ernie Richmann

      A strong knowledge of nutrition is important for all individuals. But only if you don’t want to be obese, have fatty liver, heart disease, a weak immune system.

      2 years ago Log in to Reply
    12. Jeanne McMillan-Olson

      I was a Registered Dietitian and CDE for 30 plus years. Well worth it.

      2 years ago Log in to Reply
    13. Janis Senungetuk

      It’s essential information .

      1
      2 years ago Log in to Reply
    14. Nevin Bowman

      Important, but I was also fed a lot of very bad information from a dietician that I will pay for the rest of my life. Carb counting is one of the biggest fallacies in the diabetes field they way it is usually presented.

      2 years ago Log in to Reply
    15. Eva

      How your body uses nutrients is vital. For example, when you go low, your cells suck up potassium, salt, calcium etc. Super Important to know. Knowing how fat, protein and carbs interact with each other is vital. More important everyone can be different with regards to iron absorption.

      2
      2 years ago Log in to Reply
    16. Becky Hertz

      Very important, but as I’m finding out, you need to be the one with the strong knowledge. Physicians, etc don’t get enough education themselves. A good nutritionist helps, but it’s really up to the individual.

      3
      2 years ago Log in to Reply
    17. Phyllis Biederman

      It is absolutely essential!

      2
      2 years ago Log in to Reply
    18. Steven Gill

      Diabetes is an endocrine disorder (failed pancreas?), everything effects it. Stress, activity, and food.

      2 years ago Log in to Reply
    19. Jeff Balbirnie

      There is a BASIC fundamental knowledge all D’s MUST possess period. What food group is X food in? What is a single portion of X food? What happens to that portion size, if/when you cook X food? It is not hard once truly learned… Getting the insulin dosages “correct” in order to cover whatever food(s) we eat, that can be @#*(@ challenging math!!! Lacking foundational information about food, basic nutrition that can increase our suffering severely, and with no real need to do so…just saying

      2 years ago Log in to Reply
    20. ConnieT1D62

      I answered Very Important because a T1 PWD has to learn and master basic knowledge about selecting healthy food choices in appropriate amounts to feed oneself. As a kid with T1 diabetes in the 1960s we had to learn to eat portion sizes from the ADA exchange plan. We followed a little booklet published by the ADA as a guideline. (I bet some of you long timers remember those booklets grey/white illustrations and black.print). No color pictures of healthy plate portion sizes – it was 3 oz meat, 1/2 c veg from list A and B, 1 free food, 1/2 pc of fruit. And graham crackers and milk as after school and bedtime snack. BORING!

      Later on, as diabetes science progressed, in the early 1980s I attended a diabetes self-care program in NYC as part of the DDCT and learned to select a variety of nutritious foods by reading food content labels to determine appropriate portion sizes for carb, protein, and fat content and to choose foods with wholesome healthy ingredients. It was then I learned about the CHO/insulin ratio factor … made a world of difference in my understanding of “we are what we eat” and how to manage my diabetes.

      2 years ago Log in to Reply
    21. T1D4LongTime

      VERY important! If a diabetic is not aware of proper nutrition, they would be eating foods high in carbs or foods that would have a negative impact on their long-term health. A reasonably-sized, balanced diet is the key

      2 years ago Log in to Reply

    How important is a strong knowledge of nutrition for T1D management? Cancel reply

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