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    • 7 hours, 46 minutes ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 8 hours, 43 minutes ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 8 hours, 50 minutes ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 9 hours, 50 minutes ago
      Kathy Hanavan likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 9 hours, 53 minutes ago
      John Barbuto likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 10 hours, 56 minutes ago
      Gerald Oefelein likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 10 hours, 57 minutes ago
      Laurie B likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I’m curious about the reasoning behind using a dedicated reader. Could someone please enlighten me?
    • 10 hours, 57 minutes ago
      Laurie B likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 10 hours, 58 minutes ago
      mojoseje likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      For Minimed, the dedicated reader is the pump.
    • 10 hours, 58 minutes ago
      mojoseje likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I chose "dedicated reader". That reader is my pump, a Minimed 780G.
    • 10 hours, 58 minutes ago
      Marthaeg likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 23 hours, 30 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 23 hours, 31 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 23 hours, 31 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 day, 5 hours ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 5 hours ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      Extremely. I have a certificate in Medical Billing & Coding.
    • 1 day, 9 hours ago
      Kathy Hanavan likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 1 day, 10 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Roughly half my lows are caused by my auto correct system now. I expect AI hallucinations to make it worse. I have enough hallucinations when I'm low and need non-hallucinatory help. We all need more info on this subject to make better decisions. As my favorite 80's AI robot (Johnny 5) said, "Need input."
    • 1 day, 10 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I'm not comfortable for many reasons: 1) AI hasn't proven respects boundaries, quite the opposite, too many reports of AI tend to view its responsibilities and decisions as NOT mine; 2) the companies behind AI systems do likewise in not respecting my data as mine and jumble it in with their own; 3) AI systems haven't proven themselves as reliable parties regarding data and actions. There are many more; AI systems have a long way to go before I entrust one with dosing strategies while I'm awake, let alone while I'm asleep!
    • 1 day, 10 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I’ve done a large 2 week focus group through Syracuse University on AI. I’ve also been watching shows on European news about AI and medical issues. AI still has too many glitches when it comes to medical issues.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Having recently dealt with ongoing tech issues involving our heat and electrical-use notifications for more than six months — and it’s still not fully resolved — I’m not always a fan of too much technology. That said, I am interested in advances like the Twist Insulin Pump potentially detecting scar tissue or helping with infusion-site issues. But then reality kicks in: taking devices off for MRIs, replacing failed equipment, and navigating Medicare when it’s primary insurance can become a nightmare of paperwork and delays. And honestly, AI in some call centers has been pretty frustrating. Sometimes it feels like no one can answer a real-world question anymore. I think we should tread lightly and make sure technology actually makes life easier for people living with T1D — especially older adults who already manage enough complexity every day. Some days I think about a less stress free life and going back to a syringe and insulin. over 45 years of doing that, and now 25+ of devices, I'm tired of the challenges in getting replacements, and scar tissue, and mail order supplies and on and on.
    • 2 days, 6 hours ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all technical advancements there are good things and bad things. The bad things (unforseen consequences) could be deadly like Hallucinations for the user, getting over doses of insulin. So, carefully thought out guard rails need to be developed and thoroughly tested. A good thing must be the accumulation of scenarios that KSannie mentioned. However it can not be completely autonomous. The current accuracy of Dex G7 and other sensors introduce error in to the calculations. This is similar to "self driving cars." The Robo taxi experiments have shown the unusual events that could become dangerous. Either audible situation commands or textual inputs like "goin to bed" or "driving" or "exercising" may be required at the beginning for a new user. As an example, after wearing my smart watch for a year now, it recognizes exercising without me having to tell it I'm exercising. This drives a more advanced and improved user interface. The other perceivable advantage might be accumulating changes over time, such as sicknesses, weight gain or loss, or changes in activity. Changes in food intake might be difficult to overcome. Something like "Under my Fork" app. Personally, I would like to see a reminder to bolis before eating! With all that said, we do we need all that? Probably not. Evolution of modified closed loop control may eliminate the need for AI control. The reality may be somewhere in-between the two.
    • 2 days, 6 hours ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
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    Have you ever participated in a T1D focused clinical trial? Tell us about it in the comments!

    Home > LC Polls > Have you ever participated in a T1D focused clinical trial? Tell us about it in the comments!
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. 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    31 Comments

    1. Lenora Ventura

      I was in the DCCT trial back in the 90’s

      0
      2 years ago Log in to Reply
    2. Molly Jones

      I incorrectly answered yes.
      I have only participated in research, not clinical trials for diabetes.

      2 years ago Log in to Reply
    3. Jneticdiabetic

      Yes, I participated in an early closed loop clinical trial in ~2007. 3 days in the hospital, hooked up to 2 CGMs, a pump, and a laptop to control insulin delivery. So cool to think how far tech has come since then. Auto mode in real life – no lap top required!

      1
      2 years ago Log in to Reply
    4. Ahh Life

      Not to succumb to that evil trait of cynicism but, . . . I somehow feel my entire life has been a T1D closely focused clinical trial. 🥱

      4
      2 years ago Log in to Reply
    5. Steve Rumble

      In the mid 80s I participated in a trial at the National Institute of Health that was investigating the effects of a medication on the capillaries of the retina, to determine whether the medication w/could help prevent diabetic retinopathy.

      2 years ago Log in to Reply
    6. Gerald Wertz

      I completed all of the trial papawork in person at the clinic. I was called 3 days later and told that I did not qualify because my A1c was too low. I was at 5.9 then. The clinical drug turned out to be Mounjorno.

      2 years ago Log in to Reply
    7. Gary Taylor

      Yes, for Medtronic as they were seeking further trial data for approval in several countries in Asia of their 680G and Sensor 2 AID system. This was also at the beginning of the Time In Range understanding of glucose control and we were part of that study also. All of this required me to travel to the International Diabetes Center in a Minneapolis suburb multiple times over a year.

      2 years ago Log in to Reply
    8. Gary Rind

      applied for a Vertex trial without immunosuppression drugs. my A1C was lower than the range they wanted for the survey.

      1
      2 years ago Log in to Reply
    9. Seth Arlow

      I had been on insulin pumps for over 20 years. I entered a drug trial on long acting injectables and found I had much better control with shots than with the pump. I have been on shots ever since, 15+ years.

      0
      2 years ago Log in to Reply
    10. Nevin Bowman

      No – I tried and everything was fine until they found out my A1C was less than 7 🙁

      1
      2 years ago Log in to Reply
      1. Dennis Dacey

        I can relate to that, Nevin.
        On one trial 3 years ago I was eliminated after a year of evaluation because my HbA1c was 3 percentage points too low.

        2 years ago Log in to Reply
    11. Carl Robertson

      I participated in the Faustman lab BCG trial.

      2 years ago Log in to Reply
    12. Bob Durstenfeld

      I participated in the trial for TANDEM’S CONTROL IQ, and several Dexcom G7 adhesive trials.

      2 years ago Log in to Reply
    13. Dennis Dacey

      I’ve participated in several trials over the years; some whuch proved successful for continuing and, more that didn’t work out as expected. Three of the “successes” were:

      1) A four year trial in the 1960s to determine if a Ruby LASER might work to contain Retinopathy. Later a few other eye experiments.
      2) In 1974 the development of the successful glycosylated hemoglobin test study; test later referred to by its chemistry symbols as HgA1c and HbA1c,
      3) 1977 – 1979 development [before digital BG meters] of what has now become known as MDI. Our work was validated through the Worldwide DCCT Study of the 1980s.

      2 years ago Log in to Reply
    14. Edward Geary

      PERL: allopurinil, fenophibrate, bone loss.

      2 years ago Log in to Reply
    15. Jen Serrano

      I met with and gave blood to Dr Faustman in Boston. It seemed so hopeful back in 2007ish.

      2 years ago Log in to Reply
    16. Judith Marged

      I have been a part of several clinical trials. One I was very happy to be a part of as it was for inhalable insulin. Unfortunately, the trial was halted midway through with the company deciding not to go forward with the product. I was very glad that Mannkind continued with their production and release of Afrezza, as I did super with the inhalable insulin as opposed to multiple injections.

      2 years ago Log in to Reply
    17. Sue Compo

      Years ago I supplied bloodwork. Happy to help

      2 years ago Log in to Reply
    18. Ann Auerbach

      The effects of hypoglycemia on the brain as measured by MRI as well as cognitive testing at Yale-New Haven hospital. Also, Dr Faust’s BCG trial in Boston, MA

      2 years ago Log in to Reply
    19. Ann Auerbach

      Faustman–not Dr Faust.

      2 years ago Log in to Reply
    20. Chris Axford

      In the 80’s I participated in a trial for early treatment for retinopathy. They did laser treatment on one eye and at end of study did laser on the other eye. Was given a pill or placebo to see if aspirin affected outcome. I developed an ulcer so was taken of off pill/placebo

      2 years ago Log in to Reply
    21. Anita Stokar

      No, but I was told by my endocrinologist that one may come up close to me that will focus a pump giving glucagon and insulin. If that trial does come close to my home, I might try that one.

      2 years ago Log in to Reply
    22. Lee Johnson

      Never seem to qualify!!

      2 years ago Log in to Reply
    23. Hadley Horton

      I participated in the clinical trial testing the effectiveness of Tresiba versus Lantus

      2 years ago Log in to Reply
    24. Kristen Clifford

      About ten years ago, I did a trial with a medication that was meant for T2Ds that they also wanted to maybe try on T1Ds. I don’t remember what it was called, and I don’t even know if it got approved. I just know it wasn’t a weight loss drug

      2 years ago Log in to Reply
    25. Paul McGuigan

      DCCT/EDIC, 39 years and counting.

      2 years ago Log in to Reply
    26. Maureen Helinski

      I participated in one for the essence sensor but it was just to see how the readings went on the device, not the sensor being inserted.

      2 years ago Log in to Reply
    27. Becky Hertz

      PERL, PERL-age

      2 years ago Log in to Reply
    28. Janice B

      U have been in Phase 1,2 and 3 trials. Sometimes with placebo sometimes with investigational drug. First trial I ever did caused some problems and couple of deaths- trial stopped and drug did not proceed. I had some lingering health issues but have continued to volunteer. The drugs that I trialed that made it to market are inhaled insulin. And an SLG1 inhibitor. I have also tested new meters and been in a focus group to review directions for devices to make sure the language and directions were easy to follow.

      2 years ago Log in to Reply
    29. KarenM6

      I just started one!
      It’s fascinating… the names of the chemicals/hormones they are testing elude me at the moment. It has something to do with what insulin tells the liver to do… I didn’t know insulin had another job in the body other than lowering blood sugar!

      2 years ago Log in to Reply
    30. Vicki Andersen

      Vertex Clinical Trial

      2 years ago Log in to Reply

    Have you ever participated in a T1D focused clinical trial? Tell us about it in the comments! Cancel reply

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