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    • 4 hours, 54 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 4 hours, 55 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 4 hours, 55 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 4 hours, 56 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 7 hours, 8 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 9 hours, 41 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 11 hours, 35 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 13 hours ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 13 hours, 43 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 13 hours, 44 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 14 hours, 17 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 2 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 2 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 3 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 10 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 10 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 10 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 10 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 10 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 10 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 10 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 11 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
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    Have you ever experienced symptoms of hypothermia caused by a hypoglycemic event (not due to environmental causes), such as body temperature below 95 F (35 C), shivering, and slow breathing?

    Home > LC Polls > Have you ever experienced symptoms of hypothermia caused by a hypoglycemic event (not due to environmental causes), such as body temperature below 95 F (35 C), shivering, and slow breathing?
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    In the past six months, have you been forced to change medications because of your health insurance?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Nicholas Argento

      The worst occurred when I was a college student and working outdoors. I passed out on a day in the 80’s from hypoglycemia, was revived after 911 called- and then had chills like crazy on the way to the ER. It has happened other times, too. The reason is that sweating is a great way to diffuse heat. It works when it is hot. But when you have a normal temp, and are sweating because you have a low BG, your temp drops. Shivering is a way to generate heat to raise your temp.

      5 years ago Log in to Reply
    2. Ahh Life

      Yes, in central Florida in late May, a quite warm time of the year. I temperatured in at 93 degrees ℉. I was recovering from a severe hypoglycemic incident wrapped in a scratchy, thick wool blanket trying to hold a half-full styrofoam cup of coffee still enough that I could sip it. The brain was straining to get all the glucose it could to keep the brain going, with little regard to the rest of the body and secondary concerns like warmth. ❄ ❄ ❄ There is nothing, absolutely nothing worse than internal cold, no matter what the surrounding conditions are outside ☃ ☃ ☃

      5 years ago Log in to Reply
    3. Nevin Bowman

      I can’t answer definitively, but the only time I experienced hypoglycemia I was also shaking violently, but I don’t know what my temperature was. It was also 20 some years ago…

      5 years ago Log in to Reply
    4. Sherolyn Newell

      Maybe I’ve never been low enough for that. I was going to say that the opposite happens to me. Less than 55, and I get very hot and start sweating. My lowest was about 35 once. My brain felt stupid and my body felt weak, but I don’t remember feeling cold. I had been half dozing on the sofa and didn’t feel the low until I stood up, must have been pre-Dexcom. Or I was asleep enough the alarm didn’t sink in.

      5 years ago Log in to Reply
    5. Lawrence Stearns

      This has happened to my on many occasions over the past 43 years.

      5 years ago Log in to Reply
    6. carol Huhn

      I’m not sure about hypothermia but I have broken out in a cold sweat with a bad low.

      5 years ago Log in to Reply
    7. connie ker

      Being a T1D senior, I am old and cold a lot, living in a wintry cold state. Sometimes I get cold after injecting insulin, sometimes I wake up in the night cold, I have had chills with vaccines for flu, shingles, and now covid. I do my best to follow the numbers on my cgm and keep sugars above 70. I don’t sweat except sometimes with a low, then I sweat but not because of heat. I shivered a lot as a child and it had nothing to do with diabetes, my teeth would chatter. Bottom line is wear layers of clothes, always wear socks and gloves when needed, and now wear face masks!

      5 years ago Log in to Reply
    8. Carlene Vaitones

      It can definitely take me awhile to warm up – I’ll say an hour and a half, though I’ve never checked my temp and I don’t shiver or have slow breathing – just need extra layers to warm up.

      5 years ago Log in to Reply
    9. Annie Maley

      I’ve had this happen when having extreme low blood glucose. This was before I started wearing an insulin pump.

      5 years ago Log in to Reply
    10. Bill Williams

      When I get a severe (under 45 or so), I suffer from diaphoresis and get extremely cold. I suppose the EMTs have checked my temp when they’ve been called, but I have no idea what it was.

      5 years ago Log in to Reply
    11. Phyllisa Deroze

      Never checked my temperature, but certainly feel cold!

      5 years ago Log in to Reply
    12. Natalie Daley

      After the heat and sweating from the adrenaline surge caused by blood sugar below 50, the recovery phase after eating is extreme cold and intense sleepiness.

      5 years ago Log in to Reply
    13. mwmeganwolff@gmail.com

      I’ve never taken my temp but have been extremely cold in the middle of the night after a bad low. A couple of times I’ve taken a hot shower to help warm up. Now that I have dexcom, I’m woken up before a low gets that bad.

      5 years ago Log in to Reply
    14. Becky Hertz

      Shivering but not taken my temp. Also, since I’m hypoglycemic unaware, sometimes internal cold or sudden tiredness are the symptoms I get to tell me to check my bg. Dexcom helps, but it can be slower than my symptoms.

      5 years ago Log in to Reply
    15. Mary Ann Sayers

      YES!!! Once, many years ago, I had a reaction and ended up in the ER. THERE WASN’T ANY TEMPERATURE READING on the thermometer!!! They had to do it rectally. And even then they had to treat my for hypoglycemia as well as hypothermia. That was the ONLY time that happened. Since then, I’m aware that my temp does decrease with low bgs.

      5 years ago Log in to Reply
    16. Stacie G.

      Every time I have a low below 45 I get freezing cold with shivers, the drenching sweats, draining sleepiness for at least 4 hours after the episode and I usually get made fun of for some of the attitude I throw out there while my friend or roommate is trying to get me to drink my orange juice. I’m so glad it only happens once in a while, unlike so many I know, where hi’s & low’s happen multiple times per week.

      5 years ago Log in to Reply
    17. Pat Reynolds

      Sometimes feel very cold. But when hypo and wouldn’t be priotising measuring my temperature or my breathing. I suspect that these are symptoms noted by carers, not diabetics.

      5 years ago Log in to Reply
    18. poodlebone@yahoo.com

      Prior to using a CGM, I would often have severe lows that caused me to lose consciousness (if I wasn’t already asleep) and have seizures. When I would wake up I would be freezing cold and shivering uncontrollably. It could last for a long time. I was told this happens not because you’re low but because your BG is going back up, but I’m not sure what the science behind it is.

      5 years ago Log in to Reply
    19. Donna Condi

      When I have had a few low lows I have sweating but don’t remember feeling chilled.

      5 years ago Log in to Reply
    20. Aimee Minton

      I had no idea your body temp could drop during a severe low. I’ve had many severe lows with intense shaking and feeling miserably cold and drenched in sweat. Many seizures too. It’s much better with CGM.

      5 years ago Log in to Reply
    21. ConnieT1D62

      When my BG plummets in a severe downward spiral I perspire profusely, then as BG starts to recover and climb upwards I experience what I call “the cold shiver sweats”. If I am at home or at a hotel during travel I have to jump into a warm/hot shower for about 20 minutes to stabilize my body temp as BG level rises. Then I dry off, put on socks and flannel pjs and crawl under a down comforter to warm up and stop shivering. I usually sleep for an hour or two after an episode like that. Otherwise if I am at work or somewhere out in the world away from a home base and a warm shower, I walk around wearing soaking wet clothes feeling clammy, drenched, and chilled to the bone. Ugh – I hate the discomfort of feeling like that.

      5 years ago Log in to Reply

    Have you ever experienced symptoms of hypothermia caused by a hypoglycemic event (not due to environmental causes), such as body temperature below 95 F (35 C), shivering, and slow breathing? Cancel reply

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