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    • 8 hours, 13 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 3 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 9 hours, 59 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 42 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 1 minute ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 11 hours, 33 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 37 minutes ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 32 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 12 hours, 33 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 13 hours, 2 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 13 hours, 11 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 13 hours, 16 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 5 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 7 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 9 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    In the past six months, have you been forced to change medications because of your health insurance?

    Home > LC Polls > In the past six months, have you been forced to change medications because of your health insurance?
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    Have you ever experienced symptoms of hypothermia caused by a hypoglycemic event (not due to environmental causes), such as body temperature below 95 F (35 C), shivering, and slow breathing?

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    Each year living with T1D is an accomplishment. Do you celebrate your diabetes anniversary (diaversary) in a special way? Share with us in the comments!

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    22 Comments

    1. Jeff Perzan

      Haven’t been ‘forced’ but in order to continue my current test strips (tied to my insulin pump), co-pay (30 day supply) went from $10 to $69.95.

      3 years ago Log in to Reply
    2. Bob Durstenfeld

      insurance forced me to move to generic insulin or not have coverage.

      3 years ago Log in to Reply
    3. Alyne Branson

      Not in the past 6 months but there has been at least 3 times I have had to switch between Humalog and Novolog because one of them was not covered by my health insurance. Currently I don’t have insurance and I use Insulin Aspart but haven’t had to purchase because I ordered as much as I could before my insurance ended.

      3 years ago Log in to Reply
    4. Gene Maggard

      Not forced but wanted to go to generic Humalog insulin for my pump to bring down the cost. Supposedly insulin prices were going to be set at $35 a month according to the government but I am not seeing that.

      3 years ago Log in to Reply
    5. Jana Wardian

      Insurance companies often have a “preferred” insulin. I always ask because I can save $ by going with the lower cost insulin. Am I bring “forced” to change? I think I am STRONGLY encouraged and this is not a battle I want to fight.

      3 years ago Log in to Reply
    6. Greg Felton

      Not within the past 6 months, but every few years my insurance designates either Humalog or Novolog as the covered insulin. Within the past few years they named a single brand of test strips as the preferred brand.

      3 years ago Log in to Reply
    7. Grey Gray

      Insurance.. I wish.. lilly cares Humalog program for the uninsured. Thank you lilly

      3 years ago Log in to Reply
    8. Mick Martin

      I don’t have to pay for my prescription medications as it’s covered by our NHS (National Health Service), which is funded via direct taxation of all working people that earn over a prescribed minimum. (I live in the United Kingdom of Great Britain and Northern Ireland.)

      3 years ago Log in to Reply
    9. Kathy Hanavan

      I have been forced to change a non diabetes med, but not my insulin.

      3 years ago Log in to Reply
    10. Rick Martin

      Been forced – Mannkind Cares offered me “free” Afrezza. I have very poor absorption – and seem to develop (despite good hygiene practices) infections in injection sites. So, inhaled insulin was the answer. The docs pleaded my case with insurance for months to no avail. So, I’m back to injections – tried pump but absorption was poor and infections too numerous to continue. The > $1,000/mo for Afrezza was simply too steep to remain on once the Mannkind Cares program dumped me.

      3 years ago Log in to Reply
    11. Annie Wall

      The only thing that happened recently was for a prescription of eye drops that I was taking for eye pressure. I had to switch to something else because of manufacturing problems the company was having. I had to wonder if that was covid related but I’ll never know. The good thing for me is that my diabetes supplies, including insulin, are completely free for me this year, $0 co-pays.

      3 years ago Log in to Reply
    12. Mark Schweim

      Happens almost every time my Insurance changes… They keep flopping me back & forth between Humalog and Novolog Insulin. Still have about 2 months of Humalog remaining but current insurance switched me back to Novolog again so I have one vial Novolog waiting for when I run out of Humalog.

      3 years ago Log in to Reply
    13. gary rind

      my PBM has been lots of fun to deal with but my endo has worked with them to get the insulin he wants. was forced off novolog to humalog but endo eventually got prior authorization for FIASP. however, strips were another story. only brand they cover is OneTouch Verio and it was so bad that I paid entirely from my own pocket for Choice meter / strips from Amazon. now using FreeStyle Libre 14 day and they cover it.

      3 years ago Log in to Reply
    14. Daniel Bestvater

      Pre-existing condition (T1D) so I can’t get any insurance coverage in Ontario Canada.

      3 years ago Log in to Reply
    15. Barbara Long

      My insurance wants a switch to Lispro—generic version. My doc said no, so for now I remain on branded Humalog. Idk. I need to ask in other forums I guess whether people have had issues with the switch from brand to generic. Makes me nervous.

      3 years ago Log in to Reply
    16. Phyllis Donahue

      Wish I could change my insurance it covers nothing. Would love to change pump and get dex6 also. Just to expensive.

      3 years ago Log in to Reply
    17. connie ker

      Being a senior, the Medicare RX with Cigna is the best company to use having type 1 diabetes. The tier 6 is for diabetics and no co-pay for insulins even in the coverage gap. But you have to be 65 years old on Medicare to enroll.

      3 years ago Log in to Reply
    18. Sue Herflicker

      My insurance will not pay for my Novolog anymore, now I have to use homolog and not diabetic related they won’t pay for my ventolin inhaler, I have to use the generic Albuterol … Not a happy camper!

      3 years ago Log in to Reply
    19. Annie Maley

      With my prior insurance I could either get 3 vials of Humalog for $150 through my Medicare part A & B due to insulin pump or pay about $80 for 3 vials through my husbands private insurance. We now have Caremark Rx’s thru GEHA and they wanted $600 for a 84 day supply of Humalog. Had to switch to Novolog and will still pay over $200. What the ??? I thought insulin was supposed to be coming cheaper, not more expensive. So PO’d. 🙁 I know. Stop whining. At least I have insurance.

      3 years ago Log in to Reply
    20. Chris Deutsch

      12 months ago my RX order for NovoPen was changed to Humalog KwikPens. Since it’s a big hassle to change ae

      3 years ago Log in to Reply
    21. Leona Hanson

      I’m on Medicaid insurance they don’t change my diabetes supplies just my pills I take but there just trying to save you money the generic is a dollar copay name brands are 3.00 copays but I do understand that 1 medication works better than the other the doctor has to tell them why the one works better than the generic

      3 years ago Log in to Reply
    22. Carlene Vaitones

      I’ve had to switch from Apidra to Humalog. I prefer Apidra as it’s more fast acting for me and I don’t have to wait 40 minutes before I eat like I do with Humalog.

      3 years ago Log in to Reply

    In the past six months, have you been forced to change medications because of your health insurance? Cancel reply

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