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    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    In the past six months, have you been forced to change medications because of your health insurance?

    Home > LC Polls > In the past six months, have you been forced to change medications because of your health insurance?
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    Have you ever experienced symptoms of hypothermia caused by a hypoglycemic event (not due to environmental causes), such as body temperature below 95 F (35 C), shivering, and slow breathing?

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    Each year living with T1D is an accomplishment. Do you celebrate your diabetes anniversary (diaversary) in a special way? Share with us in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Jeff Perzan

      Haven’t been ‘forced’ but in order to continue my current test strips (tied to my insulin pump), co-pay (30 day supply) went from $10 to $69.95.

      5 years ago Log in to Reply
    2. Bob Durstenfeld

      insurance forced me to move to generic insulin or not have coverage.

      5 years ago Log in to Reply
    3. Alyne Branson

      Not in the past 6 months but there has been at least 3 times I have had to switch between Humalog and Novolog because one of them was not covered by my health insurance. Currently I don’t have insurance and I use Insulin Aspart but haven’t had to purchase because I ordered as much as I could before my insurance ended.

      5 years ago Log in to Reply
    4. Gene Maggard

      Not forced but wanted to go to generic Humalog insulin for my pump to bring down the cost. Supposedly insulin prices were going to be set at $35 a month according to the government but I am not seeing that.

      5 years ago Log in to Reply
    5. Jana Wardian

      Insurance companies often have a “preferred” insulin. I always ask because I can save $ by going with the lower cost insulin. Am I bring “forced” to change? I think I am STRONGLY encouraged and this is not a battle I want to fight.

      5 years ago Log in to Reply
    6. Greg Felton

      Not within the past 6 months, but every few years my insurance designates either Humalog or Novolog as the covered insulin. Within the past few years they named a single brand of test strips as the preferred brand.

      5 years ago Log in to Reply
    7. Grey Gray

      Insurance.. I wish.. lilly cares Humalog program for the uninsured. Thank you lilly

      5 years ago Log in to Reply
    8. Mick Martin

      I don’t have to pay for my prescription medications as it’s covered by our NHS (National Health Service), which is funded via direct taxation of all working people that earn over a prescribed minimum. (I live in the United Kingdom of Great Britain and Northern Ireland.)

      5 years ago Log in to Reply
    9. Kathy Hanavan

      I have been forced to change a non diabetes med, but not my insulin.

      5 years ago Log in to Reply
    10. Rick Martin

      Been forced – Mannkind Cares offered me “free” Afrezza. I have very poor absorption – and seem to develop (despite good hygiene practices) infections in injection sites. So, inhaled insulin was the answer. The docs pleaded my case with insurance for months to no avail. So, I’m back to injections – tried pump but absorption was poor and infections too numerous to continue. The > $1,000/mo for Afrezza was simply too steep to remain on once the Mannkind Cares program dumped me.

      5 years ago Log in to Reply
    11. Annie Wall

      The only thing that happened recently was for a prescription of eye drops that I was taking for eye pressure. I had to switch to something else because of manufacturing problems the company was having. I had to wonder if that was covid related but I’ll never know. The good thing for me is that my diabetes supplies, including insulin, are completely free for me this year, $0 co-pays.

      5 years ago Log in to Reply
    12. Mark Schweim

      Happens almost every time my Insurance changes… They keep flopping me back & forth between Humalog and Novolog Insulin. Still have about 2 months of Humalog remaining but current insurance switched me back to Novolog again so I have one vial Novolog waiting for when I run out of Humalog.

      5 years ago Log in to Reply
    13. gary rind

      my PBM has been lots of fun to deal with but my endo has worked with them to get the insulin he wants. was forced off novolog to humalog but endo eventually got prior authorization for FIASP. however, strips were another story. only brand they cover is OneTouch Verio and it was so bad that I paid entirely from my own pocket for Choice meter / strips from Amazon. now using FreeStyle Libre 14 day and they cover it.

      5 years ago Log in to Reply
    14. Daniel Bestvater

      Pre-existing condition (T1D) so I can’t get any insurance coverage in Ontario Canada.

      5 years ago Log in to Reply
    15. Barbara Long

      My insurance wants a switch to Lispro—generic version. My doc said no, so for now I remain on branded Humalog. Idk. I need to ask in other forums I guess whether people have had issues with the switch from brand to generic. Makes me nervous.

      5 years ago Log in to Reply
    16. Phyllis Donahue

      Wish I could change my insurance it covers nothing. Would love to change pump and get dex6 also. Just to expensive.

      5 years ago Log in to Reply
    17. connie ker

      Being a senior, the Medicare RX with Cigna is the best company to use having type 1 diabetes. The tier 6 is for diabetics and no co-pay for insulins even in the coverage gap. But you have to be 65 years old on Medicare to enroll.

      5 years ago Log in to Reply
    18. Sue Herflicker

      My insurance will not pay for my Novolog anymore, now I have to use homolog and not diabetic related they won’t pay for my ventolin inhaler, I have to use the generic Albuterol … Not a happy camper!

      5 years ago Log in to Reply
    19. Annie Maley

      With my prior insurance I could either get 3 vials of Humalog for $150 through my Medicare part A & B due to insulin pump or pay about $80 for 3 vials through my husbands private insurance. We now have Caremark Rx’s thru GEHA and they wanted $600 for a 84 day supply of Humalog. Had to switch to Novolog and will still pay over $200. What the ??? I thought insulin was supposed to be coming cheaper, not more expensive. So PO’d. 🙁 I know. Stop whining. At least I have insurance.

      5 years ago Log in to Reply
    20. Chris Deutsch

      12 months ago my RX order for NovoPen was changed to Humalog KwikPens. Since it’s a big hassle to change ae

      5 years ago Log in to Reply
    21. Leona Hanson

      I’m on Medicaid insurance they don’t change my diabetes supplies just my pills I take but there just trying to save you money the generic is a dollar copay name brands are 3.00 copays but I do understand that 1 medication works better than the other the doctor has to tell them why the one works better than the generic

      5 years ago Log in to Reply
    22. Carlene Vaitones

      I’ve had to switch from Apidra to Humalog. I prefer Apidra as it’s more fast acting for me and I don’t have to wait 40 minutes before I eat like I do with Humalog.

      5 years ago Log in to Reply

    In the past six months, have you been forced to change medications because of your health insurance? Cancel reply

    You must be logged in to post a comment.




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