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    • 1 minute ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 4 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 4 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 40 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 51 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 hour, 3 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 hour, 4 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 2 hours, 19 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 4 hours, 16 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 4 hours, 16 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 18 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 19 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 4 hours, 28 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 33 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 4 hours, 35 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 36 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 53 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 4 hours, 53 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 4 hours, 53 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 4 hours, 54 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 54 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 4 hours, 54 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
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    Have you ever altered your clothing to accommodate T1D devices?

    Home > LC Polls > Have you ever altered your clothing to accommodate T1D devices?
    Previous

    If you wear a device, how many times in the past month have you accidentally ripped out a sensor or pump site?

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    34 Comments

    1. Patricia Dalrymple

      For a wedding, I wore a dress with pockets. I normally don’t wear dresses because of the pump but I deliberately wanted one with pockets to put a hole in the pocket so I could put my pump in it. It worked great.

      2 years ago Log in to Reply
    2. Bob Durstenfeld

      I like a pocket for my pump in my pajama top

      2 years ago Log in to Reply
    3. Janis Senungetuk

      I had an inside pocket added to a suit jacket to hold my pump.

      2 years ago Log in to Reply
    4. Ahh Life

      ā„ Starting on a pump in 1996, I put a small 1/4″ hole in every right pants pocket, since I invariably carried the pump in my right pocket. I suppose my clothes will be given to a thrift store after I die. Wonder what the recipients will think about each right pocket having the same hole in the same place in them? ā„

      2 years ago Log in to Reply
    5. Gene Maggard

      Every time I buy a new pair of pants, my wife slices the inside of the right pocket and sews on velcro. to enable it to be closed after I put my pump in. My night shirts are all pocket tees to accommodate the pump while I’m sleeping.

      2 years ago Log in to Reply
    6. joan Fray

      I stopped wearing dresses after I got the pump. Which is fine because now I only wear šŸ‘–. Warmer, easier, go with anything. Of course I wear tops too!

      2 years ago Log in to Reply
    7. connie ker

      I donated all of my sleeveless dresses and tops because of the Abbott Freestyle Libre sensors worn on the upper arms. I have seen Theresa May of England in a sleeveless top, and her Freestyle sensor showed on TV. So I know she is wearing one and I could identify with this lady. She probably is public with her takng of insulin too, and we need to get over being secretive with our condition and treatments.

      2 years ago Log in to Reply
    8. Beckie McCammitt

      I’ve cut small holes in the pockets of dresses/rompers for the tubing of my pump

      2 years ago Log in to Reply
    9. AimmcG

      I have altered little but I choose certain clothing to accommodate my insulting pump. I have to admit I have considered changing my pump to a pod due to the tubing issue and clothing with the pump but the continuous loop is not an option with the pod yet.

      2 years ago Log in to Reply
    10. Ernie Richmann

      No- alterations are beyond my pay grade. Just use the belt clip.

      2 years ago Log in to Reply
    11. Deb Souther

      I try to choose clothing with pockets. I will often cut a hole in the pocket to accommodate tubing. I sometimes sow a pocket in a bra or leggings to accommodate my pump.

      2 years ago Log in to Reply
    12. Annie Wall

      I answered ā€œotherā€. When I was on the pump, I stopped wearing dresses. But a year and a half ago, I went off the pump (after 24 years, scarring prevented infusion sets from working properly) so I can wear anything now. I wear my Dexcom pretty much anywhere including my bare arms and have actually met others wearing CGMs and I’ve enjoyed that. I don’t mind being ā€œpublicā€ with my T1D.

      2 years ago Log in to Reply
    13. Sherolyn Newell

      I have pods and I don’t care if they show, so my answer was no. Clothes were one of the reasons I chose the pods. I know you can strap the pumps to your leg for dresses, but then what? You lift up your dress to give a bolus? I didn’t care for that idea.

      2 years ago Log in to Reply
    14. Kathleen Amper

      I started my first pump in 1986 and they were so large that my grandmother sewed pockets in all my pants custom made for the pump.

      2 years ago Log in to Reply
    15. Clare Fishman

      I wear pods. Their tubeless design is one of the main reasons I chose them over a tubed pump. I use a DIY Loop which allows my iphone to collect my Dexcom readings and use a RileyLink to send instructions to my pod. It is pretty sweet. I have been Looping almost 2 years and have never experienced such ease of blood sugar management.

      2 years ago Log in to Reply
    16. Kelly Steiner

      My wedding dress! They added a pocket for my pump!

      2 years ago Log in to Reply
    17. Trina Blake

      For some dresses I simply wear lightweight men’s boxers underneath – nice waistband. I have also taken the side bands from worn out bras, cut them off the old bra and use them to make pockets in the sidebands of new bras. Easy access to the pump via my neckline. Of course most of the time, I wear pants so I use the clip.

      2 years ago Log in to Reply
    18. Kristine Warmecke

      Yes, I no longer wear one piece clothing like dresses, jumpsuits, etc. unless I have to. Then I have to have it altered so that it works for me & still lays correctly.

      2 years ago Log in to Reply
    19. Ceolmhor

      After the 30-lb weight loss that was one of the symptoms that caused me to self-diagnose as diabetic at age 72, I don’t have enough real estate around my waist to support a system of rotating sites for sensors and infusion sets (Medtronic). So I use my thighs for those placements, and I’ve had button-hole style openings made inside all my front pants pockets to allow the pump in my pocket to connect with the infusion set internally.

      2 years ago Log in to Reply
    20. Nicholas Argento

      No. Most men do not have to for a simple reason: pockets. I use a belt clip most of the time but pockets other times. I feel for women on this, because it is far more of a challenge, esp with more formal attire.

      2 years ago Log in to Reply
    21. Donald Stitt

      I have cut holes in pockets to run the infusion set through… sometimes I like to have my pump in my pocket without the line going out of my waistband….

      2 years ago Log in to Reply
    22. Thomas Brady

      Hated the pump line coming out of my pocket routed to the infusion site! I had a tailor put button hole style pockets in my suit pants so it did not show.

      2 years ago Log in to Reply
    23. Janice B

      I have had pockets added clothing and holes on pockets for tubing. I have had pouches made for bras for my pump. I have also added a slim clip attached directly to my pump so the pump sits closer to my clothing so the pump does not protrude as much.

      2 years ago Log in to Reply
    24. Carol Meares

      No but I buy clothing to accommodate my pump and supplies. All clothing must have pockets. Many times multiple pockets.

      2 years ago Log in to Reply
    25. Stacie G.

      Yes, I’ve cut slits into pockets so my pump can fit through and my inset line won’t be hanging out so much. It tends to get caught on door handles, cabinets and my purse if I don’t.

      2 years ago Log in to Reply
    26. Molly Jones

      Dresses now have to have buttons up the front or not have a high neck in order to be worn. This would be the only alteration in my clothing I can think of.

      2 years ago Log in to Reply
    27. Pat Reynolds

      Al the time! I make holes so that I can feed the cannula from apimp in a pocket Tomy flesh.

      2 years ago Log in to Reply
    28. Pat Reynolds

      A pump!

      2 years ago Log in to Reply
    29. Pat Reynolds

      To my!

      2 years ago Log in to Reply
    30. Nevin Bowman

      Every pair of pants has a hole in the top of the right pocket to run my pump tubing through.

      2 years ago Log in to Reply
    31. ConnieT1D62

      Occasionally. I mostly adapt and make due with whatever I choose to wear. I often just slip the pump into a pocket or clip it to the waistband of whatever I am wearing. T-slim has a pretty slim profile. If wearing a one piece dress sometimes I just stick it into my bra.

      2 years ago Log in to Reply
    32. Joanne Bohm

      Oh my gosh, I almost laughed at this question. Only because of the daily modifications I go through for all of my attachments. Not for looks but for convenience. Judging from the results of the answers, it is not that way for half of us. I have other T1 complications that also have attachments so I’m sure that adds to the ordeal.

      2 years ago Log in to Reply
    33. Anita Galliher

      When I was wearing a pump with tubing I would cut a hole in the pocket to run the tubing through. I even thought about starting a clothing line with a hole already there and call it something like ā€œHole In My Pocket.ā€ Then I started wearing an Omnipod which is tubeless -YES!!! So in the winter I wear Jeanne Pierre sweaters that many times have 2 small pockets at the bottom of the sweater (I ONLY buy the ones with pockets) and in the summer I wear dresses and skorts and shorts with pockets. I need the pockets for my CGM and PDM. Oh how I’d love a cure!!! (57 years and counting)

      2 years ago Log in to Reply
    34. abir albazian

      Fitted dresses rly bother me with the pump on my waist so I try to use the thigh pump band but so far they slip. Let me say that while that’s annoying it’s nothing compared to how angry I get trying to wear a jumper. Nowhere for the tubing to come out! Unless I’m wearing my set on my arm but then the tubing is running down my body on the outside of my clothes which rly irritates me!

      2 years ago Log in to Reply

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