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    • 19 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Have you ever altered your clothing to accommodate T1D devices?

    Home > LC Polls > Have you ever altered your clothing to accommodate T1D devices?
    Previous

    If you wear a device, how many times in the past month have you accidentally ripped out a sensor or pump site?

    Next

    Which of these best describes how often you typically change your lancet?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. Patricia Dalrymple

      For a wedding, I wore a dress with pockets. I normally don’t wear dresses because of the pump but I deliberately wanted one with pockets to put a hole in the pocket so I could put my pump in it. It worked great.

      5 years ago Log in to Reply
    2. Bob Durstenfeld

      I like a pocket for my pump in my pajama top

      5 years ago Log in to Reply
    3. Janis Senungetuk

      I had an inside pocket added to a suit jacket to hold my pump.

      5 years ago Log in to Reply
    4. Ahh Life

      ❥ Starting on a pump in 1996, I put a small 1/4″ hole in every right pants pocket, since I invariably carried the pump in my right pocket. I suppose my clothes will be given to a thrift store after I die. Wonder what the recipients will think about each right pocket having the same hole in the same place in them? ❥

      5 years ago Log in to Reply
    5. Gene Maggard

      Every time I buy a new pair of pants, my wife slices the inside of the right pocket and sews on velcro. to enable it to be closed after I put my pump in. My night shirts are all pocket tees to accommodate the pump while I’m sleeping.

      5 years ago Log in to Reply
    6. joan Fray

      I stopped wearing dresses after I got the pump. Which is fine because now I only wear 👖. Warmer, easier, go with anything. Of course I wear tops too!

      5 years ago Log in to Reply
    7. connie ker

      I donated all of my sleeveless dresses and tops because of the Abbott Freestyle Libre sensors worn on the upper arms. I have seen Theresa May of England in a sleeveless top, and her Freestyle sensor showed on TV. So I know she is wearing one and I could identify with this lady. She probably is public with her takng of insulin too, and we need to get over being secretive with our condition and treatments.

      5 years ago Log in to Reply
    8. Beckie McCammitt

      I’ve cut small holes in the pockets of dresses/rompers for the tubing of my pump

      5 years ago Log in to Reply
    9. AimmcG

      I have altered little but I choose certain clothing to accommodate my insulting pump. I have to admit I have considered changing my pump to a pod due to the tubing issue and clothing with the pump but the continuous loop is not an option with the pod yet.

      5 years ago Log in to Reply
    10. Ernie Richmann

      No- alterations are beyond my pay grade. Just use the belt clip.

      5 years ago Log in to Reply
    11. Deb Souther

      I try to choose clothing with pockets. I will often cut a hole in the pocket to accommodate tubing. I sometimes sow a pocket in a bra or leggings to accommodate my pump.

      5 years ago Log in to Reply
    12. Annie Wall

      I answered “other”. When I was on the pump, I stopped wearing dresses. But a year and a half ago, I went off the pump (after 24 years, scarring prevented infusion sets from working properly) so I can wear anything now. I wear my Dexcom pretty much anywhere including my bare arms and have actually met others wearing CGMs and I’ve enjoyed that. I don’t mind being “public” with my T1D.

      5 years ago Log in to Reply
    13. Sherolyn Newell

      I have pods and I don’t care if they show, so my answer was no. Clothes were one of the reasons I chose the pods. I know you can strap the pumps to your leg for dresses, but then what? You lift up your dress to give a bolus? I didn’t care for that idea.

      5 years ago Log in to Reply
    14. Kathleen Amper

      I started my first pump in 1986 and they were so large that my grandmother sewed pockets in all my pants custom made for the pump.

      5 years ago Log in to Reply
    15. Clare Fishman

      I wear pods. Their tubeless design is one of the main reasons I chose them over a tubed pump. I use a DIY Loop which allows my iphone to collect my Dexcom readings and use a RileyLink to send instructions to my pod. It is pretty sweet. I have been Looping almost 2 years and have never experienced such ease of blood sugar management.

      5 years ago Log in to Reply
    16. Kelly Steiner

      My wedding dress! They added a pocket for my pump!

      5 years ago Log in to Reply
    17. Trina Blake

      For some dresses I simply wear lightweight men’s boxers underneath – nice waistband. I have also taken the side bands from worn out bras, cut them off the old bra and use them to make pockets in the sidebands of new bras. Easy access to the pump via my neckline. Of course most of the time, I wear pants so I use the clip.

      5 years ago Log in to Reply
    18. Kristine Warmecke

      Yes, I no longer wear one piece clothing like dresses, jumpsuits, etc. unless I have to. Then I have to have it altered so that it works for me & still lays correctly.

      5 years ago Log in to Reply
    19. Ceolmhor

      After the 30-lb weight loss that was one of the symptoms that caused me to self-diagnose as diabetic at age 72, I don’t have enough real estate around my waist to support a system of rotating sites for sensors and infusion sets (Medtronic). So I use my thighs for those placements, and I’ve had button-hole style openings made inside all my front pants pockets to allow the pump in my pocket to connect with the infusion set internally.

      5 years ago Log in to Reply
    20. Nicholas Argento

      No. Most men do not have to for a simple reason: pockets. I use a belt clip most of the time but pockets other times. I feel for women on this, because it is far more of a challenge, esp with more formal attire.

      5 years ago Log in to Reply
    21. Donald Stitt

      I have cut holes in pockets to run the infusion set through… sometimes I like to have my pump in my pocket without the line going out of my waistband….

      5 years ago Log in to Reply
    22. Thomas Brady

      Hated the pump line coming out of my pocket routed to the infusion site! I had a tailor put button hole style pockets in my suit pants so it did not show.

      5 years ago Log in to Reply
    23. Janice B

      I have had pockets added clothing and holes on pockets for tubing. I have had pouches made for bras for my pump. I have also added a slim clip attached directly to my pump so the pump sits closer to my clothing so the pump does not protrude as much.

      5 years ago Log in to Reply
    24. Carol Meares

      No but I buy clothing to accommodate my pump and supplies. All clothing must have pockets. Many times multiple pockets.

      5 years ago Log in to Reply
    25. Stacie G.

      Yes, I’ve cut slits into pockets so my pump can fit through and my inset line won’t be hanging out so much. It tends to get caught on door handles, cabinets and my purse if I don’t.

      5 years ago Log in to Reply
    26. Molly Jones

      Dresses now have to have buttons up the front or not have a high neck in order to be worn. This would be the only alteration in my clothing I can think of.

      5 years ago Log in to Reply
    27. Pat Reynolds

      Al the time! I make holes so that I can feed the cannula from apimp in a pocket Tomy flesh.

      5 years ago Log in to Reply
    28. Pat Reynolds

      A pump!

      5 years ago Log in to Reply
    29. Pat Reynolds

      To my!

      5 years ago Log in to Reply
    30. Nevin Bowman

      Every pair of pants has a hole in the top of the right pocket to run my pump tubing through.

      5 years ago Log in to Reply
    31. ConnieT1D62

      Occasionally. I mostly adapt and make due with whatever I choose to wear. I often just slip the pump into a pocket or clip it to the waistband of whatever I am wearing. T-slim has a pretty slim profile. If wearing a one piece dress sometimes I just stick it into my bra.

      5 years ago Log in to Reply
    32. Joanne Bohm

      Oh my gosh, I almost laughed at this question. Only because of the daily modifications I go through for all of my attachments. Not for looks but for convenience. Judging from the results of the answers, it is not that way for half of us. I have other T1 complications that also have attachments so I’m sure that adds to the ordeal.

      5 years ago Log in to Reply
    33. Anita Galliher

      When I was wearing a pump with tubing I would cut a hole in the pocket to run the tubing through. I even thought about starting a clothing line with a hole already there and call it something like “Hole In My Pocket.” Then I started wearing an Omnipod which is tubeless -YES!!! So in the winter I wear Jeanne Pierre sweaters that many times have 2 small pockets at the bottom of the sweater (I ONLY buy the ones with pockets) and in the summer I wear dresses and skorts and shorts with pockets. I need the pockets for my CGM and PDM. Oh how I’d love a cure!!! (57 years and counting)

      5 years ago Log in to Reply
    34. abir albazian

      Fitted dresses rly bother me with the pump on my waist so I try to use the thigh pump band but so far they slip. Let me say that while that’s annoying it’s nothing compared to how angry I get trying to wear a jumper. Nowhere for the tubing to come out! Unless I’m wearing my set on my arm but then the tubing is running down my body on the outside of my clothes which rly irritates me!

      5 years ago Log in to Reply

    Have you ever altered your clothing to accommodate T1D devices? Cancel reply

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