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    • 16 hours, 20 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 16 hours, 25 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 16 hours, 32 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    Has living with diabetes adversely affected your dental health?

    Home > LC Polls > Has living with diabetes adversely affected your dental health?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    39 Comments

    1. sdimond

      Eating a low carb diet makes managing blood glucose much easier and significantly improves dental health.

      2 years ago Log in to Reply
    2. Tom Rintelmann

      CGM’s weren’t yet made so playing soccer I made your my blood sugar tester was in my bag for halftime use. A few peeled ripe oranges in a plastic container were also in my in my bag for quick snack when needed.
      Kind of a hassle for a 17 year old but better than the alternative.
      It didn’t prevent me from making varsity!

      2 years ago Log in to Reply
    3. Molly Jones

      I think diabetes has been okay on my teeth although I have had other conditions that have had adverse effects on my dental health that were present well before T1D.

      2 years ago Log in to Reply
    4. Lawrence S.

      I honestly have no idea if diabetes has affected my dental health one way or another. I have always taken care of my teeth, brushing 2 or 3 times a day, flossing, and sometimes waterpik. But, I’ve had dental issues with softening teeth, sensitive teeth and the need for crowns. I once read an article that said, Celiac disease causes softening of teeth. I do have Celiac disease. But, honestly, no dentist or doctor has ever mentioned anything about diabetes or Celiac disease affecting my teeth. They just keep telling me to keep doing what I am doing. There appears to be a lack of information on this subject matter.

      3
      2 years ago Log in to Reply
    5. Meerkat

      My dentist explained to me years ago that having diabetes can cause more bacteria in the mouth. I use a special mouth wash and brush often!

      2 years ago Log in to Reply
    6. Mick Martin

      I’m not 100% sure that it was diabetes that has adversely affected my dental health, but I did have to have one tooth surgically removed as I couldn’t bite down on something as soft as toast. I developed an infection in my gum after the tooth was removed, but that MAY have already been developing prior to its removal.

      Since that time, some 15 years ago, I often notice blood when brushing my teeth, but that MAY be more to do with me being unaware of just how much pressure I’m exerting on my teeth/gums due to having peripheral neuropathy in my fingers/hands.

      2 years ago Log in to Reply
    7. Vicki Breckenridge

      I’ve had T1D for almost 40 years and have never had dental issues. I am diligent about brushing, flossing, and dental visits twice a year.

      2 years ago Log in to Reply
    8. Richard Vaughn

      I have been a type 1 diabetic for 84 years and I have had many problems with my teeth even though I brushed properly every day. Several root canals, many fillings for cavities, and three extractions in 2023. A bridge costing $7000+ is necessary to cover the gap created by the extractions.
      I think my dental problems are at least partially caused by diabetes.

      5
      2 years ago Log in to Reply
    9. Kristi Warmecke

      I said other because I’ve had gum issues since I was a teenager. I didn’t have a cavity until I was in my 40’s; then during chemotherapy and radiation it just went downhill fast. I was told my gum issues were related to T1D .

      1
      2 years ago Log in to Reply
    10. Francisco Varea

      Gingivitis, which may or may not have been exacerbated by diabetes

      2
      2 years ago Log in to Reply
    11. Eva

      I answered yes because I learned that my gum health was affected due to the exchange of potassium when you go low. potassium is so, so important for healthy gums and veins. I load up to have upto 3,000 mgs a day and my gum and dental health has improved 100%.

      2
      2 years ago Log in to Reply
    12. ConnieT1D62

      Yes – even with practice of good dental hygiene self-care. Over the years I have issues with gingivitis and gum tissue inflammation, cavities in my molars and have endured two root canals to remove decaying teeth and to clean out infected gums. I was told long duration T!D is often a factor in inflammatory gum disease. Now I see a dental hygienist faithfully twice a year for the past 20 years. However, in my some of my young and mid-adult years, I wasn’t always so disciplined with my dental health … mostly because I moved around a lot through various self-employed jobs and often didn’t have regular dental insurance. I still have many of my original teeth, but have crowns on 6 molars.

      1
      2 years ago Log in to Reply
    13. Judy Hampton

      Over the very many years of Type 1 diabetes, I used candy as a method for treating low blood sugars as recommended by my pediatrician. He said I should keep Lifesavor candy with me at all times. Especially in the 60’s and 70’s before liquid glucose treatments were developed. Often this happened at times I could not immediately brush my teeth, i.e., away from home at school, at work, as a child during the night just trying to go back to sleep. I have spent thousands on dental care and I believe the sugar in treating lows without immediate brushing afterwards contributed to a lot of the cost.

      1
      2 years ago Log in to Reply
    14. Bob Durstenfeld

      I have had receding gums that needed grafts plus Multiple root canals.
      It’s hard to tell it it is diabetes or that my parents had poor teeth too.

      1
      2 years ago Log in to Reply
      1. Lenora Ventura

        Me too!

        2 years ago Log in to Reply
    15. Tina Roberts

      Yes! My teeth started breaking off and cracking right before my diagnosis. I have many root canals and caps!

      1
      2 years ago Log in to Reply
    16. Carrolyn Barloco

      50 years ago, before I was diagnosed with T1, my dentist asked if I had diabetes because of my teeth and gums. more recently, my oral health seems directly correlated to my time in range.

      2 years ago Log in to Reply
    17. Marty

      I believe I inherited terrible teeth from my mother. Every molar in my mouth has a filling, a root canal and crown, or has been replaced by an implant. However, all of this happened before I was diagnosed with diabetes in my early 30’s. Now I get compliments from my dental hygienist after every visit.

      2 years ago Log in to Reply
    18. Janis Senungetuk

      Yes! Past childhood, when my parents paid the bills, I have often lacked the financial reserves to pay for dental care. When I was able to have scheduled care I needed several crowns and extractions. For the past decade, increasing issues with gum disease have left me with a mouth filled with decaying teeth. When I was able to get dental services I was told that there was a strong connection with gum disease and T1D. In 2019 I participated in a clinical study as a Joslin Medalist regarding that connection.

      2
      2 years ago Log in to Reply
      1. Lenora Ventura

        Did u ever hear back the results of the study?

        2 years ago Log in to Reply
    19. Bruce Schnitzler

      Diagnosed with T1D in Dec 1951. The only available home testing was using urine. I’m certain the elevated BG levels contributed to dental problems.

      2
      2 years ago Log in to Reply
    20. A Montalbano

      Not yet, but worry about it. Especially treating overnight lows without brushing.

      2
      2 years ago Log in to Reply
    21. cynthia jaworski

      Not as much as grinding my teeth has.

      2 years ago Log in to Reply
      1. Jeff Balbirnie

        And that grinding our teeth… THAT is caused by our D directly, just sayin >;~ )

        2 years ago Log in to Reply
    22. KCR

      I am not sure whether night-time dry mouth is more attributable to age or diabetes or some combination of both.

      2 years ago Log in to Reply
    23. Sandra Rosborough

      Knocked out a tooth during a seizure. Also knocked front tooth out of place.

      2 years ago Log in to Reply
    24. Twinniepoo74

      Yes it caused a bad infection in my mouth that I had to get all my teeth removed. I remember having bad sores than the infection spread according to my dentist from the diabetes.

      2 years ago Log in to Reply
    25. Edward Geary

      Yes, unfortunately, after about 30 years of T1D, I began experiencing progressive gum disease and bone loss requiring extensive surgeries, bone grafts and now dental implants. Now at fifty years, I routinely need dental work costing thousands of dollars over and above insurance coverage. Dental care particularly home care for diabetics is critical as well as 90 cleanings by a hygienist needs to be an element of every care plan. In hindsight, I wish my caregivers recognized this complication and recommended preventative treatments. Similarly, I wish insurance companies provided coverage for more frequent cleanings and other treatments.

      0
      2 years ago Log in to Reply
    26. LuckyPineapple

      My teeth are horribly yellow because of the sugar leaching out through them. It’s affected my self confidence immensely

      2 years ago Log in to Reply
    27. Maureen Helinski

      Yes, I lost bone tissue and have several implants.

      2 years ago Log in to Reply
    28. Lynn Smith

      I put Other because my answer is probably. I suspect it did years ago before fast acting insulin and pumps. No one ever said anything about a connection between diabetes and dental health in the past. I have had 5 root canals in my lifetime, so obviously that’s a possibility. But since getting on a pump and CGM, I have had no problems. Also, these days, I floss constantly during the day, so that helps, too. I carry around flossers everywhere I go.

      2 years ago Log in to Reply
    29. Lenora Ventura

      Yes it has. Coupled with lack of instruction and no access to dental treatment until after diagnosis @ 9, my experiences have scarred me more than those left by T1D. I will say that the personal responsibility required by T1D has come in handy during my adult years to lessen the trauma of dental treatment thanks to education and consistent care by dental professionals

      1
      2 years ago Log in to Reply
    30. Daniel Bestvater

      I think maybe. I’ve always brushed and flossed but ended up with multiple fillings and two implants. Maybe 45 years of T1D contributed.

      2 years ago Log in to Reply
    31. Lisa Sierra

      It’s worse as I’ve gotten older.

      2 years ago Log in to Reply
    32. Becky Hertz

      Not that I know of.

      2 years ago Log in to Reply
    33. Carol Meares

      gum recession

      1
      2 years ago Log in to Reply
    34. William Bennett

      Well no, but my current dental health is adversely affecting my T1. An old root canal has developed an infection/abscess and it’s driving my BGs higher.

      2 years ago Log in to Reply
    35. Joindy23

      I answered ‘other’ because I don’t know.

      2 years ago Log in to Reply
    36. Anita Stokar

      I am not 100% positive, but my mouth can be a little drier than normal according to my dentist and I know dry mouth can be a dental problem for diabetics, so I said yes.

      2 years ago Log in to Reply

    Has living with diabetes adversely affected your dental health? Cancel reply

    You must be logged in to post a comment.




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