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    • 11 hours, 3 minutes ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 13 hours, 22 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 13 hours, 23 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 13 hours, 25 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
    • 14 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I get the 'you can't eat that, can you?' comments when friends see me eat a lot of carbs or have a nice dessert. I remind them that as long as I have insulin, I can eat whatever I want.
    • 14 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 14 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 17 hours, 57 minutes ago
      Lenora Ventura likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like most of the above comments, it's more of a question. The statements have come in situations where I'm not actually eating something...like someone saying, "Oh, it must be hard to not be able to eat desserts!"
    • 17 hours, 57 minutes ago
      Lenora Ventura likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 17 hours, 58 minutes ago
      Lenora Ventura likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
    • 19 hours, 10 minutes ago
      kristina blake likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes and it is really annoying especially when they "You shouldn't eat that - you're a diabetic" and it's even more annoying and irritating when it is being said by a person in a healthcare profession. I can honestly say from many years of experience as a PWTID and as a RN that hardly ANYONE in the general public or in the general medical field says "because you live with diabetes" when referring to a PWD or when they admonish someone for "being diabetic" . It is a label that doesn't acknowledge the person. As I have stated before in other posts, are people who live with cancer called "canceretics"?
    • 19 hours, 34 minutes ago
      Mary Coleman likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 19 hours, 36 minutes ago
      Mary Coleman likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes and it is really annoying especially when they "You shouldn't eat that - you're a diabetic" and it's even more annoying and irritating when it is being said by a person in a healthcare profession. I can honestly say from many years of experience as a PWTID and as a RN that hardly ANYONE in the general public or in the general medical field says "because you live with diabetes" when referring to a PWD or when they admonish someone for "being diabetic" . It is a label that doesn't acknowledge the person. As I have stated before in other posts, are people who live with cancer called "canceretics"?
    • 19 hours, 47 minutes ago
      John Barbuto likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 19 hours, 47 minutes ago
      John Barbuto likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes and it is really annoying especially when they "You shouldn't eat that - you're a diabetic" and it's even more annoying and irritating when it is being said by a person in a healthcare profession. I can honestly say from many years of experience as a PWTID and as a RN that hardly ANYONE in the general public or in the general medical field says "because you live with diabetes" when referring to a PWD or when they admonish someone for "being diabetic" . It is a label that doesn't acknowledge the person. As I have stated before in other posts, are people who live with cancer called "canceretics"?
    • 19 hours, 48 minutes ago
      John Barbuto likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 20 hours, 4 minutes ago
      Anthony Harder likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like most of the above comments, it's more of a question. The statements have come in situations where I'm not actually eating something...like someone saying, "Oh, it must be hard to not be able to eat desserts!"
    • 20 hours, 5 minutes ago
      Anthony Harder likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like others here, it's more of "Can you eat . . .?" than "You shouldn't eat . . .!" Nonetheless, it comes across the same way.
    • 20 hours, 6 minutes ago
      Anthony Harder likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 21 hours, 16 minutes ago
      Steve Rumble likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like others here, it's more of "Can you eat . . .?" than "You shouldn't eat . . .!" Nonetheless, it comes across the same way.
    • 21 hours, 17 minutes ago
      Steve Rumble likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 22 hours, 41 minutes ago
      mojoseje likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 1 day, 10 hours ago
      Neha Shah likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 12 hours ago
      Amanda Ratliff likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      My grandma told me u could never have kid. I had two successful pregnancies.
    • 1 day, 12 hours ago
      Amanda Ratliff likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Oh my goodness… yes! As a child I was often reminded of my limitations because of diabetes. I’m hopeful that those misconceptions about T1D have changed over the decades.
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    For how many years have you (or your loved one) been living with T1D so far?

    Home > LC Polls > For how many years have you (or your loved one) been living with T1D so far?
    Previous

    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.

    Next

    If you have T1D, has anyone ever misinterpreted your low blood glucose for intoxication?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. LizB

      This past April marked 34 years for me.

      1
      4 years ago Log in to Reply
    2. rick phillips

      Amazing that 17% of us are in the over 50 group

      7
      4 years ago Log in to Reply
    3. Beverly Crosby

      67 years and counting. Use to have to boil my syringes and needles on the stove. Used strips to check my urine that told me what my blood sugar was 2 hours prior. We’ve come a LONG way baby.

      18
      4 years ago Log in to Reply
      1. Sue Martin

        It’s nice to have the tools and insulin that have gotten better during my duration as well (36 years). I hope they continue to improve.

        4
        4 years ago Log in to Reply
    4. Kristen Clifford

      13 years this past April

      4 years ago Log in to Reply
    5. Lawrence Stearns

      This is one of the more interesting statistics. Being a T1D, I almost always feel alone with this disease, and am unaware of other T1D’s out there. I thought I might be one of the longest living T1D’s with the disease for 44 years. Now I know that there are many who have lived much longer. Congratulations to all of the long timers. I hope to get to the top of the percentile.

      11
      4 years ago Log in to Reply
      1. T1DGJ

        I feel exactly the same! And I thought I was a long-timer at 37 years. This is so encouraging and delightful!!

        3
        4 years ago Log in to Reply
      2. Jonathan Lowenson

        It is “many” in our group, but we are enriched in long timers. I wonder what the national/international numbers are…

        4 years ago Log in to Reply
    6. Joan Fray

      59 long years.

      6
      4 years ago Log in to Reply
    7. Jen Smith

      49 years next month. No complications, praise God! 🙌🏼

      3
      4 years ago Log in to Reply
    8. lynda meyer

      68 years here!

      7
      4 years ago Log in to Reply
    9. Richard Vaughn

      Diagnosed in Sept, 1945. Type 1 for 75 years. No serious complications.

      14
      4 years ago Log in to Reply
    10. ConnieT1D62

      59 years, diagnosed at age 8. And I figure I have another 12 to 18 of good life years before I depart this earthly body.

      1
      4 years ago Log in to Reply
      1. Sydney Bush

        Hopefully, you’ll have many more than that! My parents were told I’d be lucky to get to 20 years old (diagnosed at 16 months), but I turned 70 in March and am doing pretty well.

        2
        4 years ago Log in to Reply
    11. Ronny Samuels

      Some days living, Some days surviving

      2
      4 years ago Log in to Reply
    12. Anneyun

      43 years.

      4 years ago Log in to Reply
    13. Kristine Warmecke

      I’m 39 years, this year, my younger brother is 49 years and his daughter is 17 years as T1D.

      4 years ago Log in to Reply
    14. Kathy Krapohl

      Dx. June 8 or 15 1983, 38 years

      1
      4 years ago Log in to Reply
    15. Brandon Denson

      I’m a Diabetes Warrior!

      1
      4 years ago Log in to Reply
    16. Kaylea Bowers

      21 years on July 20 :-\

      1
      4 years ago Log in to Reply
    17. Sydney Bush

      I turned 70 in March and next Thursday, July 8, (my mom’s 94th birthday), I will have been diagnosed with Type 1 for 69 years!

      4
      4 years ago Log in to Reply
    18. Bob Durstenfeld

      I was Dx’d in 1956, 65 years for me. Not doing too bad. Better than my dad at this age, he was Dx’d in 1931 and died in 2000. My eldest of three sons (34 years with T1D) and his daughter (1.5 years with T1D) also have T1D.

      2
      4 years ago Log in to Reply
    19. Marla Peaslee

      20 years for my son. 53 years for me.

      4 years ago Log in to Reply
    20. Janis Senungetuk

      66 yrs, dx at 8 in 1955

      4 years ago Log in to Reply
    21. Angela Naccari

      I will have been diagnosed 60 years in November! Age 6 in 1961.

      4 years ago Log in to Reply
    22. George Lovelace

      I was a ‘late bloomer’, 15 yo at Dx in ’64 so I’m at T1 year 57. Dad was a LADA Dxed in ’40, passed after 49 yrs T1. On Dex & Tandem CIQ, hope to replace it at least 2 more times (at least 82 yo)

      1
      4 years ago Log in to Reply
    23. Christina Trudo

      59 years this month- diagnosed at age 11 in 1962

      1
      4 years ago Log in to Reply
    24. Linda Smith

      Diagnosed in April of 1963. That makes 58 years.

      1
      4 years ago Log in to Reply
    25. Mitch Chernoff

      It’s 56 years. Diagnosed when I was 12. Used UltraLente for something like the first 25 years, sometimes mixed with Regular. Lots has changed.

      1
      4 years ago Log in to Reply
    26. Carlin Sadowski

      Seeing these comments from yall more seasoned diabetics make me really happy. So amazing to see so many long lives with diabetes. Just had my 18th dx anniversary myself!

      1
      4 years ago Log in to Reply
    27. Daniel Bestvater

      I have been T1D for about 45 years. No serious complications, just frozen & sore shoulders for the past ~ 10 years.

      4 years ago Log in to Reply
    28. Brenda Lipscomb

      53+ years.
      Diagnosed at 11 months old, Jan 1968. I’m blessed to not have any other autoimmune issues, nor any complications from diabetes. Happy, Healthy… and unless I die of something else, I’ll probably live to be at least 95, therefore be possibly the oldest living T1. ??? 🙂

      1
      4 years ago Log in to Reply
    29. KarenM6

      50 years in November this year!

      4 years ago Log in to Reply
    30. Ben Galindo

      64 yrs & counting, my original Endo said if I took perfect care I might see 40 74 & still kicking!

      1
      4 years ago Log in to Reply
    31. JoAnn Pinkowitz

      Diagnosed 55 years ago and doing well with no complications.

      1
      4 years ago Log in to Reply
    32. MikeeB.

      Fifty four years (54) and I’m a US Naval Aviation Vet.

      4 years ago Log in to Reply

    For how many years have you (or your loved one) been living with T1D so far? Cancel reply

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