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    • 1 hour, 30 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 12 hours, 13 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 39 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 39 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 40 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 52 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 53 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 54 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 36 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 59 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 56 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    For how many years have you (or your loved one) been living with T1D so far?

    Home > LC Polls > For how many years have you (or your loved one) been living with T1D so far?
    Previous

    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.

    Next

    If you have T1D, has anyone ever misinterpreted your low blood glucose for intoxication?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. LizB

      This past April marked 34 years for me.

      1
      4 years ago Log in to Reply
    2. rick phillips

      Amazing that 17% of us are in the over 50 group

      7
      4 years ago Log in to Reply
    3. Beverly Crosby

      67 years and counting. Use to have to boil my syringes and needles on the stove. Used strips to check my urine that told me what my blood sugar was 2 hours prior. We’ve come a LONG way baby.

      18
      4 years ago Log in to Reply
      1. Sue Martin

        It’s nice to have the tools and insulin that have gotten better during my duration as well (36 years). I hope they continue to improve.

        4
        4 years ago Log in to Reply
    4. Kristen Clifford

      13 years this past April

      4 years ago Log in to Reply
    5. Lawrence Stearns

      This is one of the more interesting statistics. Being a T1D, I almost always feel alone with this disease, and am unaware of other T1D’s out there. I thought I might be one of the longest living T1D’s with the disease for 44 years. Now I know that there are many who have lived much longer. Congratulations to all of the long timers. I hope to get to the top of the percentile.

      11
      4 years ago Log in to Reply
      1. T1DGJ

        I feel exactly the same! And I thought I was a long-timer at 37 years. This is so encouraging and delightful!!

        3
        4 years ago Log in to Reply
      2. Jonathan Lowenson

        It is “many” in our group, but we are enriched in long timers. I wonder what the national/international numbers are…

        4 years ago Log in to Reply
    6. Joan Fray

      59 long years.

      6
      4 years ago Log in to Reply
    7. Jen Smith

      49 years next month. No complications, praise God! 🙌🏼

      3
      4 years ago Log in to Reply
    8. lynda meyer

      68 years here!

      7
      4 years ago Log in to Reply
    9. Richard Vaughn

      Diagnosed in Sept, 1945. Type 1 for 75 years. No serious complications.

      14
      4 years ago Log in to Reply
    10. ConnieT1D62

      59 years, diagnosed at age 8. And I figure I have another 12 to 18 of good life years before I depart this earthly body.

      1
      4 years ago Log in to Reply
      1. Sydney Bush

        Hopefully, you’ll have many more than that! My parents were told I’d be lucky to get to 20 years old (diagnosed at 16 months), but I turned 70 in March and am doing pretty well.

        2
        4 years ago Log in to Reply
    11. Ronny Samuels

      Some days living, Some days surviving

      2
      4 years ago Log in to Reply
    12. Anneyun

      43 years.

      4 years ago Log in to Reply
    13. Kristine Warmecke

      I’m 39 years, this year, my younger brother is 49 years and his daughter is 17 years as T1D.

      4 years ago Log in to Reply
    14. Kathy Krapohl

      Dx. June 8 or 15 1983, 38 years

      1
      4 years ago Log in to Reply
    15. Brandon Denson

      I’m a Diabetes Warrior!

      1
      4 years ago Log in to Reply
    16. Kaylea Bowers

      21 years on July 20 :-\

      1
      4 years ago Log in to Reply
    17. Sydney Bush

      I turned 70 in March and next Thursday, July 8, (my mom’s 94th birthday), I will have been diagnosed with Type 1 for 69 years!

      4
      4 years ago Log in to Reply
    18. Bob Durstenfeld

      I was Dx’d in 1956, 65 years for me. Not doing too bad. Better than my dad at this age, he was Dx’d in 1931 and died in 2000. My eldest of three sons (34 years with T1D) and his daughter (1.5 years with T1D) also have T1D.

      2
      4 years ago Log in to Reply
    19. Marla Peaslee

      20 years for my son. 53 years for me.

      4 years ago Log in to Reply
    20. Janis Senungetuk

      66 yrs, dx at 8 in 1955

      4 years ago Log in to Reply
    21. Angela Naccari

      I will have been diagnosed 60 years in November! Age 6 in 1961.

      4 years ago Log in to Reply
    22. George Lovelace

      I was a ‘late bloomer’, 15 yo at Dx in ’64 so I’m at T1 year 57. Dad was a LADA Dxed in ’40, passed after 49 yrs T1. On Dex & Tandem CIQ, hope to replace it at least 2 more times (at least 82 yo)

      1
      4 years ago Log in to Reply
    23. Christina Trudo

      59 years this month- diagnosed at age 11 in 1962

      1
      4 years ago Log in to Reply
    24. Linda Smith

      Diagnosed in April of 1963. That makes 58 years.

      1
      4 years ago Log in to Reply
    25. Mitch Chernoff

      It’s 56 years. Diagnosed when I was 12. Used UltraLente for something like the first 25 years, sometimes mixed with Regular. Lots has changed.

      1
      4 years ago Log in to Reply
    26. Carlin Sadowski

      Seeing these comments from yall more seasoned diabetics make me really happy. So amazing to see so many long lives with diabetes. Just had my 18th dx anniversary myself!

      1
      4 years ago Log in to Reply
    27. Daniel Bestvater

      I have been T1D for about 45 years. No serious complications, just frozen & sore shoulders for the past ~ 10 years.

      4 years ago Log in to Reply
    28. Brenda Lipscomb

      53+ years.
      Diagnosed at 11 months old, Jan 1968. I’m blessed to not have any other autoimmune issues, nor any complications from diabetes. Happy, Healthy… and unless I die of something else, I’ll probably live to be at least 95, therefore be possibly the oldest living T1. ??? 🙂

      1
      4 years ago Log in to Reply
    29. KarenM6

      50 years in November this year!

      4 years ago Log in to Reply
    30. Ben Galindo

      64 yrs & counting, my original Endo said if I took perfect care I might see 40 74 & still kicking!

      1
      4 years ago Log in to Reply
    31. JoAnn Pinkowitz

      Diagnosed 55 years ago and doing well with no complications.

      1
      4 years ago Log in to Reply
    32. MikeeB.

      Fifty four years (54) and I’m a US Naval Aviation Vet.

      4 years ago Log in to Reply

    For how many years have you (or your loved one) been living with T1D so far? Cancel reply

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