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    • 10 hours, 50 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 10 hours, 56 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 11 hours, 3 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 5 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 7 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 11 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 13 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 14 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 6 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 6 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 8 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 8 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 10 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 11 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 11 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    During which month were you (or your loved one) diagnosed with T1D?

    Home > LC Polls > During which month were you (or your loved one) diagnosed with T1D?
    Previous

    For insulin pump users: When you were ordering your current insulin pump, at what point during the ordering process did you learn how much of the device costs your insurance plan would cover?

    Next

    The food we choose to eat as people with T1D is so personal, and each food impacts every person differently. What foods do you prefer to eat for your first meal of the day? Share what works for you in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. sweetcharlie

      Himmm.. About 70 years ago… I am even not sure of the year exactly…

      6
      3 years ago Log in to Reply
      1. Sue Martin

        70 years. I hope you are doing well. This gives the rest of us hope.

        2
        3 years ago Log in to Reply
    2. ELYSSE HELLER

      It was right before my 5th birthday. I returned from sleep away camp and was looking forward to my birthday party with a Baskin Robbin’s ice cream cake and my mother’s Hershey’s best ever brownies, but instead. My mother took one look at me and took be to the hospital where I was diagnosed with T1D. Oh well. As the saying goes, shit happens. At least we have so many new treatments options available to use now. The doctors told my mom that I probably wouldn’t make it to the age of 30 or 40 (I forget), and I am now 62.

      2
      3 years ago Log in to Reply
    3. Mary Dexter

      March 4, 2004, misdiagnosed Type 2. March 29, correctly diagnosed with LADA. I was 48.

      3 years ago Log in to Reply
    4. Kristen Clifford

      My diaversary is eight days before my birthday, both of which are in April.

      3 years ago Log in to Reply
    5. MT

      It was almost 50 yrs ago. I was 4 when diagnosed – my family doesn’t celebrate or even discuss the dx as it was a very sad day for the entire family. They told my parents I would never have children and that I would never live past age 40. In my teens whilst full of surly attitude, I decided to prove them wrong. So I had a baby at 40 and am living a great life (with some restrictions) at 50-something. Celebrating another birthday in a few days. Glad they were wrong!

      7
      3 years ago Log in to Reply
    6. Sue Martin

      I had been telling my medical professional parent for a month about my symptoms. My mom commented that it could be diabetes since her great-grandparents had it, but no. I was working at my dad’s clinic, he was a doctor, and he had me go get a blood draw in the afternoon. After his birthday dinner, we stopped by to get the results. He said my BG was about 450. I started on oral medications right then. About nine months later I needed insulin injections. I was 18 and vowed it wouldn’t change my life. It has changed every aspect of it. Every year on my dad’s birthday I remember how it started and what’s happened over the last 38 years.

      2
      3 years ago Log in to Reply
    7. Ken Raiche

      The 13th of December 1973, lucky number 13 🍀 and I was thirteen at that time.

      1
      3 years ago Log in to Reply
      1. Becky Cain

        Wow. I was December 1973 as well. I was 18.

        3 years ago Log in to Reply
    8. George Lovelace

      Admitted into the Hospital on Mar. 20 1964, 59 years ago but I knew I was diabetic in Aug or Sept 1963, just too embarrassed to admit it.

      3 years ago Log in to Reply
    9. Janis Senungetuk

      In April, 1955. Because I had missed so many school days with measles, chickenpox and rubella, one right after the other, my mom waited for the first day of what is now labeled “Spring break” to take me to the pediatrician. After a urine test in his office he said to go to the hospital. I was hospitalized a whole month.

      3 years ago Log in to Reply
    10. Kristi McAndrews-Litton

      May 8th at 4:30pm – I was at work when I got the call from my doctor. I was fired from my job at 5:00 pm. A day that will live in infamy.

      2
      3 years ago Log in to Reply
      1. Mick Martin

        @Kristi McAndrews-Litton

        My thumbs up is NOT for the b@stards firing you, ma’am. I hope that company has gone ‘bust’ now. I’m glad that laws are now in place that SHOULD prevent that sort of thing from happening nowadays.

        1
        3 years ago Log in to Reply
    11. Becky Hertz

      Either the end of May or the first of June. At the time I didn’t think it was that important to know the exact date.

      3 years ago Log in to Reply
    12. William Bennett

      December 1983. Not sure the exact date, but it was about 6 weeks after becoming symptomatic. Didn’t know what it was, but felt awful, plus the peeing/thirst thing, which I didn’t even know was related to the other symptoms. I was in grad school at the time and it was nearing end of term. I thought student stress might be making me feel so sick. Doc said “Probably your wife wouldn’t have been able to wake you up tomorrow if you hadn’t come in.”

      1
      3 years ago Log in to Reply
    13. Trina Blake

      April 1. Happy April Fool’s Day!

      2
      3 years ago Log in to Reply
    14. Diana L.

      I do not understand why this data is important.

      1
      3 years ago Log in to Reply
    15. Judy U

      Diagnosed in September, right after Labor Day, in 1946. I’m 88 and still active, driving, and in general living a ‘normal’ life for someone my age.

      4
      3 years ago Log in to Reply
    16. Donna Condi

      I was diagnosed in February 12th, 1998 and received my 25Year Lilly award .

      1
      3 years ago Log in to Reply
    17. LizB

      April 27, 1987

      3 years ago Log in to Reply
    18. KC

      Diagnosed in the hospital then left on my dad’s birthday…happy birthday dad

      3 years ago Log in to Reply
    19. ConnieT1D62

      Got sick with the classic symptoms in late November 1962 after a bout with the mumps virus earlier that fall. Went into hospital and started on insulin injections December 26, 1962. Was inpatient hospitalized for three weeks learning how to live with juvenile “sugar diabetes ” .

      3 years ago Log in to Reply

    During which month were you (or your loved one) diagnosed with T1D? Cancel reply

    You must be logged in to post a comment.




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