Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.
A lot of sexual side effects have to do with menopause in women. I read an article recently in support of HRT but was never offered it or didn’t consider it because I thought it increased the chances of breast cancer, and those are already high enough. The comments related to the article were hilarious and said that if men had to suffer like women do, there would be drugs available over the counter or in the water for free.
ED (Erectile Dysfunction) which started when I was about 27 or 28. (I’m now 66.)
I’ve tried a multitude of different pills/tablets, penile injections, intraurethral suppositories, vacuum therapy device, Kegel exercises as advised by a physiotherapist, B12 tablets, as advised by a psycho-sexual counsellor, but none of them have been as good as I was expecting.
On a side note, when I first began having penile injections, I was informed by the doctor that I must carry a note explaining what medication I was taking as it was still experimental in the UK … apparently, it was an injection that was used on horses and MIGHT cause extended erections that would need blood removing at a hospital to cause demutescence.
I have had low libido for several years. As well as intermittent circulation issues in regard to that area. I asked for help and advice and my GYN, who is also female, basically she said it’s all in my head and normal for woman no longer trying to reproduce. And my Endo suggested DHEA but I haven’t noticed any improvement since taking it.
I also feel like women get ignored in this department like it only matters if you are a male with ED. Because that is the only sexual health question asked on my Endo’s intake questionnaires.
If YOU have questions feel free… T1 is not for the shy or inhibited. Bring it, ask away researchers, white coats. Unclear, never gotten a formal diagnosis regardless of how many times I do and have asked. The white coats seem candidly disinterested on any level and frankly quasi puritanical?! I ask but they have no answer(s), nor referred me to anybody so I cannot be certain. I strongly suspect/believe there are issues, but unless or until diagnosed… cannot be certain
I developed ED decades ago, the available meds worked for a while, but alas, no longer.
However, it was an early indicator of heart related issues.
the answer all depends on whom is answering, myself & or partner & atmosphere …. Hmmmmm. …..some things are inevitable after 70 yrs of T1
A lot of sexual side effects have to do with menopause in women. I read an article recently in support of HRT but was never offered it or didn’t consider it because I thought it increased the chances of breast cancer, and those are already high enough. The comments related to the article were hilarious and said that if men had to suffer like women do, there would be drugs available over the counter or in the water for free.
I have had a penile prosthesis, but after 20 years, it failed.
I have had low libido but having a brain tumor, dialysis, and kidney transplant all play into it. I’ve talked to my OBGYN and read some books.
Not many ways to define NO!
ED since 2013. Viagra doesn’t work, not for lack of trying. Just had to get used to not being intimate.
🙁
Some symptoms can also be age related, so who knows what any actual cause is?
73 years of T1D. This is probably the ONLY area that has not been affected. . . . Yet. ✌️
@Ahh Life. Keep going, brother. 😉
I have vaginal dryness, but I am told that this is due to menopause.
ED (Erectile Dysfunction) which started when I was about 27 or 28. (I’m now 66.)
I’ve tried a multitude of different pills/tablets, penile injections, intraurethral suppositories, vacuum therapy device, Kegel exercises as advised by a physiotherapist, B12 tablets, as advised by a psycho-sexual counsellor, but none of them have been as good as I was expecting.
On a side note, when I first began having penile injections, I was informed by the doctor that I must carry a note explaining what medication I was taking as it was still experimental in the UK … apparently, it was an injection that was used on horses and MIGHT cause extended erections that would need blood removing at a hospital to cause demutescence.
The vacuum therapy device was the most useful.
I have had low libido for several years. As well as intermittent circulation issues in regard to that area. I asked for help and advice and my GYN, who is also female, basically she said it’s all in my head and normal for woman no longer trying to reproduce. And my Endo suggested DHEA but I haven’t noticed any improvement since taking it.
I also feel like women get ignored in this department like it only matters if you are a male with ED. Because that is the only sexual health question asked on my Endo’s intake questionnaires.
If YOU have questions feel free… T1 is not for the shy or inhibited. Bring it, ask away researchers, white coats. Unclear, never gotten a formal diagnosis regardless of how many times I do and have asked. The white coats seem candidly disinterested on any level and frankly quasi puritanical?! I ask but they have no answer(s), nor referred me to anybody so I cannot be certain. I strongly suspect/believe there are issues, but unless or until diagnosed… cannot be certain