Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.
I have had this tested with both tissue sample and blood tests and I do not have celiac disease according to current measures. My family has friends who have tried to make me understand this is the way to improve my health conditions. Even their dog has celiac.
Yes, I was tested by my doctor years ago. I have been following strict celiac diet for years.
I find this to be more restricting than diabetes. It has been devestating for me.
I do have what is now called EPI (exocrine diabetic insufficiency) which was commonly known as “diabetic diarrhea). Now that a pharmaceutical company has come out with a medication for this condition, it has a fancier name.
No I don’t. However my sister who was T1D for over 60 years also had eiliac disease and sarcoidosis.
Of the three she found ceiliac disease the most difficult.
Blood levels do not indicate I have celiac but I suspect I do because of some symptoms. I am fearful of an endoscope procedure for final diagnosis as well as the mechanics of the procedure. I can’t imagine how strict this diet can be. And truly dread the day I am diagnosis with it. Which I probably will be- 56 yrs T1D with familial ties. What next?
To my surprise an endoscopy and lab test indicate I have celiac disease or gluten intolerance. Makes little difference to me since I was already on a low carbohydrate diet. My T1D brother claimed he was gluten intolerant years ago, but I thought it was just a fad. So most alcohol drinks are out, with exception of dry sake (rice), rum (sugarcane), a Texas vodka made from only corn, tequila (cactus), kombucha, and wine. Most booze is a blend of alcohols, including that which distilled from wheat. So do your internet research.
I have had this tested with both tissue sample and blood tests and I do not have celiac disease according to current measures. My family has friends who have tried to make me understand this is the way to improve my health conditions. Even their dog has celiac.
That is tough when the dog has celiac. God forbid they buy a parrot.
Hashimto’s Syndrome, stomach trouble that has been tested for everything and medicated on and off, genital schleraderma
Yes, I was tested by my doctor years ago. I have been following strict celiac diet for years.
I find this to be more restricting than diabetes. It has been devestating for me.
No, but my son has the genetic markers for it in addition to having low IGa levels, so he’s at a greater risk of developing it.
I do have what is now called EPI (exocrine diabetic insufficiency) which was commonly known as “diabetic diarrhea). Now that a pharmaceutical company has come out with a medication for this condition, it has a fancier name.
Never heard of that one!
Not as far as I know but 23andMe says I have 1 of the 2 genes they test for Celiac and I do have IBS.
I have lymphocytic colitis which one doc says indicates celiac disease and another says it does not.
I agree with Lawrence S. My celiac disease feels, in regards to food, even more restrictive than my T1D.
No, but my granddaughter has been diagnosed with it and it looks like her son, my great-grandson has it too.
No. Not that I’m aware of.
No I don’t. However my sister who was T1D for over 60 years also had eiliac disease and sarcoidosis.
Of the three she found ceiliac disease the most difficult.
Blood levels do not indicate I have celiac but I suspect I do because of some symptoms. I am fearful of an endoscope procedure for final diagnosis as well as the mechanics of the procedure. I can’t imagine how strict this diet can be. And truly dread the day I am diagnosis with it. Which I probably will be- 56 yrs T1D with familial ties. What next?
I do not have celiac (screened by blood test only), but 1 of my 2 sons does and 1 aunt.
No and I was recently tested for it, again.
To my surprise an endoscopy and lab test indicate I have celiac disease or gluten intolerance. Makes little difference to me since I was already on a low carbohydrate diet. My T1D brother claimed he was gluten intolerant years ago, but I thought it was just a fad. So most alcohol drinks are out, with exception of dry sake (rice), rum (sugarcane), a Texas vodka made from only corn, tequila (cactus), kombucha, and wine. Most booze is a blend of alcohols, including that which distilled from wheat. So do your internet research.
I don’t have issues with gluten but 2 of my kids (non T1D) have severe reactions to it (non celiac). So I fear something is lurking there…