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  • Activity
    • 3 hours, 32 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 32 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 29 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 5 hours, 45 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 16 hours, 55 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 20 hours, 43 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 20 hours, 46 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 28 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 28 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 31 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 21 hours, 35 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 36 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 21 hours, 38 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 38 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 21 hours, 39 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 14 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 26 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 22 hours, 38 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 22 hours, 38 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 23 hours, 54 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    Do you ever use alternative sweeteners instead of table sugar? If so, which do you prefer? Select all that apply!

    Home > LC Polls > Do you ever use alternative sweeteners instead of table sugar? If so, which do you prefer? Select all that apply!
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    34 Comments

    1. Bob Durstenfeld

      I have been using Sweet’nLow /Saccharin for more than 50 years. I know that it has killed lab rats, but I am not a rat and I only use one packet a day.

      4
      2 years ago Log in to Reply
    2. Phyllis Lewis

      I seldom use any sweetener, never artificial ones, occasionally raw honey.

      2 years ago Log in to Reply
    3. Sahran Holiday

      Sucralose in tea and coffee, buy large bags on Amazon and buy no sugar added ice cream and soda sweetened with it.

      2 years ago Log in to Reply
    4. Rebecca Lambert

      Swerve (eurythritol) for baking

      2 years ago Log in to Reply
    5. Daniel Bestvater

      I generally use aspartame(Equal).
      It’s made from two amino acids that are found in many foods we eat. So I can’t think it would be bad for a person.

      1
      2 years ago Log in to Reply
    6. MarĆ­a Ana Lugo

      Allulose works great for baking and cooking. Very similar flavor to table sugar, though 70% less sweet (so I use more), and no aftertaste. And, most importantly, my son’s blood sugar is not affected at all – as if it had 0 carbs. Couldn’t find anything better than this.

      2 years ago Log in to Reply
    7. Annie Wall

      The only sweetener I use is sugar-free pancake sweetener on my plain Greek yogurt and fruit to sweeten it up slightly. It has sorbitol in it.

      2 years ago Log in to Reply
    8. Don P

      haven’t used anything EVER …… 65+ a few yrs T1

      2 years ago Log in to Reply
    9. John McHenery

      Fructose

      2 years ago Log in to Reply
    10. Patricia Dalrymple

      Put N/A. I never add sugar to anything. There’s enough if it everywhere you look. I’m not a baker and lucky for me my husband of 23 years today does not eat sweets

      2 years ago Log in to Reply
    11. Maureen Helinski

      I use Natreen which was only available in Germany in the 80’s and 90’s because one ingrediant was banned in the US. But it tasted great. I still use it because I buy it when in Germany. I only use it in the morning with coffee.

      2 years ago Log in to Reply
    12. Kristine Warmecke

      When cooking/baking I use the real thing. My body lets me know when Sucralose or a sugar alcohol has been used & I’ve been lied to by the person serving it. I do use Equal on occasion without any GI distress.
      It’s just easier on my body to account for the sugar, eat a “real” serving size or smaller & be just as happy without all the carbs of the no sugar added stuff.

      2 years ago Log in to Reply
    13. Anthony Harder

      I’ve been a T1D for 55+ years. I grew up using various artificial sweeteners. However they do t work well in cooking or baking. As I’ve grown older, sugar is not as appealing to me. I don’t use sugar on cereal, or in coffee, or sprinkle it on anything. When cooking, I will use 1/4 what the recipe calls for. Baking is more difficult to cut sugar ingredients because that messes up the chemistry. Therefore, I use baking recipes with very low/no sugar.

      2 years ago Log in to Reply
    14. Carol Meares

      Monk fruit, Erithritol

      1
      2 years ago Log in to Reply
    15. Natalie Daley

      When I bake I use real sugar. I would rather have a small piece of something that tastes good.

      2
      2 years ago Log in to Reply
    16. connie ker

      Beware of the sugar alcohols ending in OL. These are what cause gastro intestinal problems. I loved the no sugar added Kroger ice creams until I read the nutrition label and realized the sugar substitute Maltitol was the reason for the gastric upset afterwards. Stevia made from plants is the best choice for a sugar substitute. However the diet pops still have aspartame as the sweetner. Fructose is a natural sweetner made from fruit.

      2 years ago Log in to Reply
    17. george lovelace

      Haven’t really used much since they Banned Cyclamates in 1970

      2 years ago Log in to Reply
    18. ConnieT1D62

      I occasionally use stevia or monk fruit or real sugar in the form of cane sugar, honey or maple syrup in a small amount. I despise the artificial sugar substitute sweeteners – they are not designed for beneficial nutrient consumption by the human body. I prefer to eat real deal sources of sugar provided by nature in moderation. At least the body can process it appropriately even if it means I have to coordinate a bolus delivery of extra insulin myself to cover it.

      2 years ago Log in to Reply
    19. Aimee Martin

      Monk fruit and allulose

      2 years ago Log in to Reply
    20. Becky Hertz

      I use primarily stevia product. Love Sweet Lead but last time I went to order, they didn’t have the tables.
      I just make sure the packets contain only stevia, many packets have dextrose as their first ingredient.

      2 years ago Log in to Reply
    21. KarenM6

      Aspartame gives me heart palpitations.

      2 years ago Log in to Reply
    22. Donald Cragun

      I don’t use any sweeteners on my food. When I’m baking I use sugar. Some of the prepared foods I get at the grocery store use various sweeteners, but I don’t usually worry about which ones they use.

      1
      2 years ago Log in to Reply
    23. Jneticdiabetic

      I used to drink an occasional diet soda, but artificial sweeteners upset my stomach these days. I don’t really sprinkle sugar/substitute on anything. Very rarely will add a little sucralose/stevia to an iced latte. For baking, I use real sugar and bolus for it.

      2 years ago Log in to Reply
    24. Britni

      I grew up using aspartame and will still use it from time to time, but these days I mostly just use sugar.

      2 years ago Log in to Reply
    25. Paul McLoughlin

      Rx Sugar

      2 years ago Log in to Reply
    26. Don (Lucky) Copps

      Prefer local raw honey and/or New Zealand Manuka honey. Local bee šŸ’© poop is an excellent allergy blocker. I’ve used all of the artificial sweeteners and everyone has side effects that are scary. Use the perfect portions scale for proper carb counting.

      2 years ago Log in to Reply
    27. KSannie

      Acesulfane K and stevia do not taste sweet to me, so I do not use them.

      2 years ago Log in to Reply
    28. LizB

      I only use artificial sweeteners in “wet” foods – hot tea, oatmeal, plain yogurt. If I am going to bake something I use regular sugar. I used Nutrasweet/Equal/aspartame for decades and really didn’t like the taste of Splenda when it came out. Eventually after using it more I now prefer Splenda.

      1
      2 years ago Log in to Reply
    29. Marla Peaslee

      I never knew table sugar was an Option, unless treating a low.

      2 years ago Log in to Reply
    30. Nicholas Argento

      It would have been good to have an answer that I don’t use any sweetener.

      2 years ago Log in to Reply
    31. Robby Doyle

      Been using artificial sweeteners since 1974, beginning with saccharine (ugh!). The only one that hasn’t felt like a compromise is Organic Sweet Leaf Stevia. Read the label. There is nothing artificial in it, and it tastes great. I’ve tested it on my husband, who swears he won’t like it. If he doesn’t know I used it, he can’t tell the difference!

      2 years ago Log in to Reply
    32. Laurie Tomer

      Artificial sweeteners make my mouth sore, especially Splenda. I use table sugar if needed.

      2 years ago Log in to Reply
    33. James Cheairs

      Monkfruit sweetner

      2 years ago Log in to Reply
    34. Terrie Lynne

      Monk fruit

      2 years ago Log in to Reply

    Do you ever use alternative sweeteners instead of table sugar? If so, which do you prefer? Select all that apply! Cancel reply

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