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  • Activity
    • 2 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 3 hours, 15 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 3 hours, 31 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 3 hours, 31 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 3 hours, 48 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 3 hours, 48 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 3 hours, 48 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 3 hours, 50 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 5 hours, 10 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 5 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 5 hours, 12 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 5 hours, 13 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 5 hours, 13 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 5 hours, 14 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 5 hours, 15 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 5 hours, 16 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 8 hours, 12 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 8 hours, 12 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 8 hours, 13 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 8 hours, 13 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 8 hours, 59 minutes ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 9 hours, 27 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 9 hours, 28 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 9 hours, 29 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 9 hours, 29 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    Did you learn anything new about T1D in 2020? Share what you learned in the comments!

    Home > LC Polls > Did you learn anything new about T1D in 2020? Share what you learned in the comments!
    Previous

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    Do you (or your loved one with T1D) have seasonal affective disorder (SAD)?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    29 Comments

    1. Bob Durstenfeld

      Using overnight insulin control to set basal rates and how to use time in range.

      2 years ago Log in to Reply
    2. Gustavo Avitabile

      Steps forward in research about suppressing the autoimmune process

      2 years ago Log in to Reply
    3. Elissa Macher

      I learned that I can keep my blood sugars normal by avoiding carbs as much as possible. I also have lost weight as a result and use very little insulin.

      2 years ago Log in to Reply
    4. Jana Wardian

      I learned that about 60% of people with T1D are diagnosed in adulthood.

      2 years ago Log in to Reply
    5. Jonathan Strait

      I learned getting excited/stressed by simply watching your kid’s football game releases cortisol and adrenaline which can spike sugar levels!! I kept spiking during games and couldn’t figure it out 😂

      2 years ago Log in to Reply
    6. connie ker

      I learned that time in range was just as important as the A1C number. They are both important but before cgms, we couldn’t see time in range as well. Happy New Year to all of the type 1s from a 72 year old woman with LADA for the past 23 years. Husband was a juvenile type 1 and one adult child is also a juvenile. 3 under the same roof for awhile; now my grand dog is a diabetic on insulin, wore a freestyle libre at first, and has had cataract surgery! I learned vets treat diabetes too and vet opthamologists are expensive and hard to find!

      2 years ago Log in to Reply
    7. Kathy Hanavan

      I learned about Control IQ and how to make work arounds when it does not work the way I want.

      2 years ago Log in to Reply
    8. Gene Maggard

      I learned two things: (1) As others have said, Time in Range is more important than A1C, since the latter can be affected more from the lows and I always seemed to go low a lot, even with my CGM. And (2) It’s ok to be out of the 80-120 range as long as I’m keeping in the >80% TIR value. In the past trying to keep within that tight range pretty much ensured I would always gravitate to lows.

      2 years ago Log in to Reply
    9. Mara Pentlarge

      I started using Afrezza, the fast acting insulin that I inhale. The last doctor visit I had before the March shut down was to the pulmonologist to have the test to see that my lungs work well enough to use this insulin (no problem). I only use it when my blood sugar won’t come down after a few boluses from my pump. But then I need to pay attention because sometimes the numbers come down really quickly.

      2 years ago Log in to Reply
    10. Bill Marston

      I learned of a wider range of even just Type 1 diabetes sub-types and the several different varieties of broken gene pieces(!) in the context of T1D-social media. For example a couple of Facebook T1D group surveys of “will you take the COVID-19 vaccine”, revealed a minority whose reluctance and/or concerns were the range of comorbidities beyond ‘merely’ pregnancy – allergies, Lupus, etc. Hooray for bioscience research!

      2 years ago Log in to Reply
    11. Patricia Dalrymple

      I learned a lot from other subscribers on glu. I’m not learning as much from others on this site and on my phone can no longer read ALL the comments. It only shows me the last few. I too learned TIR is more important and don’t know why meters don’t calculate those like they do averages. Should be pretty easy to program.

      2 years ago Log in to Reply
    12. Patricia Dalrymple

      Says are 11 comments but I can only view the last 6 on my XR iPhone that is only a couple of years old. What’s up with that? How can I learn from others if I can’t see the comments? I am on my laptop 55 hours a week for work. Don’t feel like seeing if I can get to more comments on the laptop. I’m done with that in off hours.

      2 years ago Log in to Reply
    13. keith johnson

      Alarm fatigue is a real thing relating to medical decides ( GGM/PUMPS). I thought I was being overly sensitive.

      2 years ago Log in to Reply
    14. Jose Almodovar

      If COVID-19 hits you, confirmation is uncontrolled high blood glucose levels. Even before the results are back.

      2 years ago Log in to Reply
    15. George Hamilton

      I have to new discoveries: 1. Control-IQ works better to produce stable BG levelsthan anything I have tried before. 2. For me, as I grow older I find that very small changes in activity level (it does not have to be even light exercise) produces quick changes in BG level. I started using Control-IQ in May, 2020 with good results. My biggest challenge is to be patient with it so that I receive full benefits. I have spent years trying to manage my own insulin and carb interaction to adjust for ups and downs. Control-IQ provides a more finely tuned result than I can, but I have to wait for the adjustments to take effect, Then it is great. On the activity level question, I find that shifting from desk work to even 10 or 15 minutes of food prep or other household activities will trigger a drop in BG level. (I am 78 years old. Diagnosed at age 20. I did not have such swings in BG from light activity even 5 years ago.

      2 years ago Log in to Reply
    16. Kristine Warmecke

      Nothing about T1D. A lot about how to control T1D. Which is what the question ask.

      2 years ago Log in to Reply
    17. Mig Vascos

      I learned to use Control IQ. It’s fantastic for night time. During the day it helps, but waiting for adjustments to work takes forever. I keep my pump on sleep mode, that way it strives to keep the glucose at a lower level than when it is at the standard setting. It has also help me determine that if my glucose levels are not as they’re supposed to by my food intake and insulin on board, it has nothing to do with the insulin going bad in the cartridge, it has to do with the infusion site not absorbing the insulin well. So now all I do is get a new infusion set but do not replace the cartridge if it still has more than half the insulin I originally put in. I also agree with another contributor that the way this site is set up now, it doesn’t allow us to see all the answers. It’s also more complicated to sign in. Why do all the sites push us to sign up thru Facebook or Google when we can sign up directly to the site. It takes longer.

      2 years ago Log in to Reply
    18. Maureen Helinski

      I have been using Control IQ and love it but as others said it takes getting used to. A tiny bit of activity-putting out trash etc.-can send me low. A correction doesn’t show up immediately so I put in a fake BG-85-to not have another alarm. All other alarms are turned off.

      2 years ago Log in to Reply
    19. Becky Hertz

      Strategies for bg management from TCOYD web conferences. In particular how to bolts for the different arrow configurations going up. Very helpful.

      2 years ago Log in to Reply
    20. Bekki Weston

      Added Afrezza to my tool box. Helpful with stubborn highs. Also, I’ve had a Dexcom for about four years, and just started using its Clarity program. Really like ability to see Time in Range. Keep learning, everyone!

      2 years ago Log in to Reply
    21. Jeff Perzan

      Consistently, Medtronic Guardian sensors glucose readings have a bias towards numbers lower than blood glucose readings.

      2 years ago Log in to Reply
    22. Stephen Woodward

      This year I’ve joined several d product and T1D Facebook groups. The thing that seems to have never changed, even with the new technology, is that the lack of direct support and education about managing T1D is still causing a lot of suffering and killing us. Facebook can be very helpful, however, the abundance of misinformation and negativity comes from those who think they’re right or know the facts.

      2 years ago Log in to Reply
    23. Patricia Maddix

      I have learned that with even more accurate blood glucose information I’m able to greatly decrease my hemoglobin A-1 C and improve my time in range. A year ago Medicare allowed us to get the Dexcom G6 which gives much more accurate information and when you are using more accurate information to make dosing decisions you’re going to get a lot better results. I also started using a More accurate blood glucose meter for win I need to double check the Dexcom This year I also researched all of the major insulin pumps and continuous glucose monitor systems on the market to understand them more completely as I am going to have to be getting a new insulin pump soon. Although all the new technologies for type one diabetes are fantastic, I learned that all of the alarms and alerts and hands on things that you have to do are very stressful. I am involved in a number of diabetes related social media sites and there is never an end to learning. I have had diabetes for 60 years.

      2 years ago Log in to Reply
    24. Skye Greer

      High Intensity Interval Training (HIIT) is a great long-term BG lowering ‘tool’.

      2 years ago Log in to Reply
    25. Leona Hanson

      I learn when to take my insulin before meals and the new insulins I could use.

      2 years ago Log in to Reply
    26. Molly Jones

      It is interesting to read pubmed.gov and see headway being made on knowledge of and vaccinations for T1D.

      2 years ago Log in to Reply
    27. Bonnie Lundblom

      I learned that I enjoyed the previous “glu” online site more than this revised one, my apologies to those who revamped it! The previous version was so much easier to navigate and I got so much more from it. I also learned that recovering from major surgery while hospitalized was difficult when an endocrinologist picked up my Tslimx2 pump and tried to make changes to my settings. T1D is always teaching us each and every year. Hoping 2021 will bring happiness and good (or at least improved) health and stable blood sugars to everyone!

      2 years ago Log in to Reply
    28. Melva Church

      I changed from Humalog to lyumjev to help with BS spikes I have not experienced any stinging or pain on insulin delivery Wearing Omnipod and G6 and looper for 2 1/2 years T1D 55 years T1D for

      2 years ago Log in to Reply
    29. Jneticdiabetic

      After 25 years with T1D, I still learning about how my body responds to different carbs, exercise, insulin, and other life happenings. Also, involved in diabetes research and encouraged by discoveries and advances being made.

      2 years ago Log in to Reply

    Did you learn anything new about T1D in 2020? Share what you learned in the comments! Cancel reply

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