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    • 50 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 51 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 6 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 7 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 27 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 36 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 37 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 33 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 12 hours, 49 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Did you learn anything new about T1D in 2020? Share what you learned in the comments!

    Home > LC Polls > Did you learn anything new about T1D in 2020? Share what you learned in the comments!
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    29 Comments

    1. Bob Durstenfeld

      Using overnight insulin control to set basal rates and how to use time in range.

      2 years ago Log in to Reply
    2. Gustavo Avitabile

      Steps forward in research about suppressing the autoimmune process

      2 years ago Log in to Reply
    3. Elissa Macher

      I learned that I can keep my blood sugars normal by avoiding carbs as much as possible. I also have lost weight as a result and use very little insulin.

      2 years ago Log in to Reply
    4. Jana Wardian

      I learned that about 60% of people with T1D are diagnosed in adulthood.

      2 years ago Log in to Reply
    5. Jonathan Strait

      I learned getting excited/stressed by simply watching your kid’s football game releases cortisol and adrenaline which can spike sugar levels!! I kept spiking during games and couldn’t figure it out šŸ˜‚

      2 years ago Log in to Reply
    6. connie ker

      I learned that time in range was just as important as the A1C number. They are both important but before cgms, we couldn’t see time in range as well. Happy New Year to all of the type 1s from a 72 year old woman with LADA for the past 23 years. Husband was a juvenile type 1 and one adult child is also a juvenile. 3 under the same roof for awhile; now my grand dog is a diabetic on insulin, wore a freestyle libre at first, and has had cataract surgery! I learned vets treat diabetes too and vet opthamologists are expensive and hard to find!

      2 years ago Log in to Reply
    7. Kathy Hanavan

      I learned about Control IQ and how to make work arounds when it does not work the way I want.

      2 years ago Log in to Reply
    8. Gene Maggard

      I learned two things: (1) As others have said, Time in Range is more important than A1C, since the latter can be affected more from the lows and I always seemed to go low a lot, even with my CGM. And (2) It’s ok to be out of the 80-120 range as long as I’m keeping in the >80% TIR value. In the past trying to keep within that tight range pretty much ensured I would always gravitate to lows.

      2 years ago Log in to Reply
    9. Mara Pentlarge

      I started using Afrezza, the fast acting insulin that I inhale. The last doctor visit I had before the March shut down was to the pulmonologist to have the test to see that my lungs work well enough to use this insulin (no problem). I only use it when my blood sugar won’t come down after a few boluses from my pump. But then I need to pay attention because sometimes the numbers come down really quickly.

      2 years ago Log in to Reply
    10. Bill Marston

      I learned of a wider range of even just Type 1 diabetes sub-types and the several different varieties of broken gene pieces(!) in the context of T1D-social media. For example a couple of Facebook T1D group surveys of ā€œwill you take the COVID-19 vaccineā€, revealed a minority whose reluctance and/or concerns were the range of comorbidities beyond ā€˜merely’ pregnancy – allergies, Lupus, etc. Hooray for bioscience research!

      2 years ago Log in to Reply
    11. Patricia Dalrymple

      I learned a lot from other subscribers on glu. I’m not learning as much from others on this site and on my phone can no longer read ALL the comments. It only shows me the last few. I too learned TIR is more important and don’t know why meters don’t calculate those like they do averages. Should be pretty easy to program.

      2 years ago Log in to Reply
    12. Patricia Dalrymple

      Says are 11 comments but I can only view the last 6 on my XR iPhone that is only a couple of years old. What’s up with that? How can I learn from others if I can’t see the comments? I am on my laptop 55 hours a week for work. Don’t feel like seeing if I can get to more comments on the laptop. I’m done with that in off hours.

      2 years ago Log in to Reply
    13. keith johnson

      Alarm fatigue is a real thing relating to medical decides ( GGM/PUMPS). I thought I was being overly sensitive.

      2 years ago Log in to Reply
    14. Jose Almodovar

      If COVID-19 hits you, confirmation is uncontrolled high blood glucose levels. Even before the results are back.

      2 years ago Log in to Reply
    15. George Hamilton

      I have to new discoveries: 1. Control-IQ works better to produce stable BG levelsthan anything I have tried before. 2. For me, as I grow older I find that very small changes in activity level (it does not have to be even light exercise) produces quick changes in BG level. I started using Control-IQ in May, 2020 with good results. My biggest challenge is to be patient with it so that I receive full benefits. I have spent years trying to manage my own insulin and carb interaction to adjust for ups and downs. Control-IQ provides a more finely tuned result than I can, but I have to wait for the adjustments to take effect, Then it is great. On the activity level question, I find that shifting from desk work to even 10 or 15 minutes of food prep or other household activities will trigger a drop in BG level. (I am 78 years old. Diagnosed at age 20. I did not have such swings in BG from light activity even 5 years ago.

      2 years ago Log in to Reply
    16. Kristine Warmecke

      Nothing about T1D. A lot about how to control T1D. Which is what the question ask.

      2 years ago Log in to Reply
    17. Mig Vascos

      I learned to use Control IQ. It’s fantastic for night time. During the day it helps, but waiting for adjustments to work takes forever. I keep my pump on sleep mode, that way it strives to keep the glucose at a lower level than when it is at the standard setting. It has also help me determine that if my glucose levels are not as they’re supposed to by my food intake and insulin on board, it has nothing to do with the insulin going bad in the cartridge, it has to do with the infusion site not absorbing the insulin well. So now all I do is get a new infusion set but do not replace the cartridge if it still has more than half the insulin I originally put in. I also agree with another contributor that the way this site is set up now, it doesn’t allow us to see all the answers. It’s also more complicated to sign in. Why do all the sites push us to sign up thru Facebook or Google when we can sign up directly to the site. It takes longer.

      2 years ago Log in to Reply
    18. Maureen Helinski

      I have been using Control IQ and love it but as others said it takes getting used to. A tiny bit of activity-putting out trash etc.-can send me low. A correction doesn’t show up immediately so I put in a fake BG-85-to not have another alarm. All other alarms are turned off.

      2 years ago Log in to Reply
    19. Becky Hertz

      Strategies for bg management from TCOYD web conferences. In particular how to bolts for the different arrow configurations going up. Very helpful.

      2 years ago Log in to Reply
    20. Bekki Weston

      Added Afrezza to my tool box. Helpful with stubborn highs. Also, I’ve had a Dexcom for about four years, and just started using its Clarity program. Really like ability to see Time in Range. Keep learning, everyone!

      2 years ago Log in to Reply
    21. Jeff Perzan

      Consistently, Medtronic Guardian sensors glucose readings have a bias towards numbers lower than blood glucose readings.

      2 years ago Log in to Reply
    22. Stephen Woodward

      This year I’ve joined several d product and T1D Facebook groups. The thing that seems to have never changed, even with the new technology, is that the lack of direct support and education about managing T1D is still causing a lot of suffering and killing us. Facebook can be very helpful, however, the abundance of misinformation and negativity comes from those who think they’re right or know the facts.

      2 years ago Log in to Reply
    23. Patricia Maddix

      I have learned that with even more accurate blood glucose information I’m able to greatly decrease my hemoglobin A-1 C and improve my time in range. A year ago Medicare allowed us to get the Dexcom G6 which gives much more accurate information and when you are using more accurate information to make dosing decisions you’re going to get a lot better results. I also started using a More accurate blood glucose meter for win I need to double check the Dexcom This year I also researched all of the major insulin pumps and continuous glucose monitor systems on the market to understand them more completely as I am going to have to be getting a new insulin pump soon. Although all the new technologies for type one diabetes are fantastic, I learned that all of the alarms and alerts and hands on things that you have to do are very stressful. I am involved in a number of diabetes related social media sites and there is never an end to learning. I have had diabetes for 60 years.

      2 years ago Log in to Reply
    24. Skye Greer

      High Intensity Interval Training (HIIT) is a great long-term BG lowering ā€˜tool’.

      2 years ago Log in to Reply
    25. Leona Hanson

      I learn when to take my insulin before meals and the new insulins I could use.

      2 years ago Log in to Reply
    26. Molly Jones

      It is interesting to read pubmed.gov and see headway being made on knowledge of and vaccinations for T1D.

      2 years ago Log in to Reply
    27. Bonnie Lundblom

      I learned that I enjoyed the previous “glu” online site more than this revised one, my apologies to those who revamped it! The previous version was so much easier to navigate and I got so much more from it. I also learned that recovering from major surgery while hospitalized was difficult when an endocrinologist picked up my Tslimx2 pump and tried to make changes to my settings. T1D is always teaching us each and every year. Hoping 2021 will bring happiness and good (or at least improved) health and stable blood sugars to everyone!

      2 years ago Log in to Reply
    28. Melva Church

      I changed from Humalog to lyumjev to help with BS spikes I have not experienced any stinging or pain on insulin delivery Wearing Omnipod and G6 and looper for 2 1/2 years T1D 55 years T1D for

      2 years ago Log in to Reply
    29. Jneticdiabetic

      After 25 years with T1D, I still learning about how my body responds to different carbs, exercise, insulin, and other life happenings. Also, involved in diabetes research and encouraged by discoveries and advances being made.

      2 years ago Log in to Reply

    Did you learn anything new about T1D in 2020? Share what you learned in the comments! Cancel reply

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