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    • 3 hours, 19 minutes ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 hours, 19 minutes ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 4 hours, 1 minute ago
      KSannie likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Requests for my personal information that I don't want to share online.
    • 4 hours, 24 minutes ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 4 hours, 24 minutes ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 4 hours, 30 minutes ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 4 hours, 46 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 4 hours, 46 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 4 hours, 47 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 5 hours, 38 minutes ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 19 hours, 23 minutes ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 21 hours, 14 minutes ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 23 hours, 56 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 23 hours, 58 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 23 hours, 58 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 1 day, 2 hours ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 1 day, 3 hours ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      That’s a tricky question, somewhere between always and sometimes. After about 50 years of T1D I think I run on autopilot. But having said that everything one eats or if you move around or sit around must be taken into account. Even with CIQ I need to run different basal programs…..inactive to highly active….or am I eating larger quantities of carbohydrates…many variables that we automatically adjust for.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 5 hours ago
      Kathy Hanavan likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 20 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is so true! I left out the time going to get meds, pods, and CGMs. It doesn't amount to much when spread out weekly. Takes about 1/2 hr to get to pharmacy, 1/2 hour back, 1-3 hrs waiting at the pharmacy or correcting their misinterpretation of a script (seriously?). Then there's the Endo visits (waiting time, actual talking with doc, blood work, etc.) that's between 1 and 4 times a year. Then there's the need to get BG meter supplies; I've reduced this to once a year, thanks to CGM, but Walgreens always charges me $3.81 and then cuts me a check 6 months later to reimburse it because...I don't know why, neither do they! Then there's the additional time it takes to change a pod every 3+8hours and the CGM every 10.5 days (wouldn't it be great if they could synch these up?!
    • 1 day, 20 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 day, 20 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
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    Did you add, remove, or change T1D devices in 2021? Select all that apply.

    Home > LC Polls > Did you add, remove, or change T1D devices in 2021? Select all that apply.
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    31 Comments

    1. Louise Jesserer

      Added a Dexcom and Tandem t-slim with IQ control! Both great devices…

      4 years ago Log in to Reply
    2. Lisa Sierra

      I would switch to a pump and cgm that are compatible, but can’t and since they had to switch out my recalled medtronic pump, they didn’t upgrade, just sent me a refurbished crappy pump and added more time since it had been replaced. No upgrade.

      1
      4 years ago Log in to Reply
      1. Lisa Sierra

        Now I can’t upgrade and get compatible devices. I only need to change one device, but no.

        4 years ago Log in to Reply
    3. Antsy

      I’ve been waiting for the newest Medtronic pump to be released (rumor was it would come out by the end of the year, hoping my “expired” 670G doesn’t fail completely. If it is a big enough improvement over the current system, I’ll stick with Medtronic, otherwise I’m jumping ship to the Dexcom/Tandem combo.

      4 years ago Log in to Reply
      1. Joan Fray

        Tandem with Control IQ changed my life. Sometimes I even sleep through the night! Exercise is now possible for me too.

        3
        4 years ago Log in to Reply
      2. Steven Gill

        I got the 770G system this past fall, 100% the same as the previous with the exception of the app get can utilize a cell phone to reach contacts it there are concerns.

        While I read the complaints and concerns with the MEDTRONIC system it does well. Especially since my insurance has no trouble with coverage.

        In answer to the poll: I stopped using the Guardian3 sensor three years ago because of the cost. Inherited an old dog with congestive heart failure, the option was to forego her meds ($250 a month) or the sensor. She passed away a happy deaf, half blind, old lady at 16 this past spring. Waiting for the upgrades MEDTRONIC’s rep contacted me, and thankfully I’m now on their patient assistance program cutting my “after insurance” costs. BUT Motorola phones don’t work the app, so no idea on that yet.

        1
        4 years ago Log in to Reply
      3. Antsy

        Steven, I’m sorry about your dog, good for you for you for taking such good care of her. As for the 770g, seeing my numbers on my phone is not something I need. Now if my BG could pop up on my dashboard screen when I’m driving and my pump starts buzzing, I’d stick with Medtronic for another 4+ years.

        4 years ago Log in to Reply
    4. George Lovelace

      I will Never give up my Tandem X2 and hope the Dexcom G6 will upgrade to the G7 but the G6 works just Great now

      4 years ago Log in to Reply
    5. Lawrence S.

      I Kept the same Tandem X2 pump and Dexcom G6 CGM. However, I did buy a new telephone, Samsung A1 G5 because it was supposed to receive the Dexcom G6 sensor signal. I downloaded the G6 app and used it for about 2 month. It did not work correctly, and ended up messing up my transmitters, sensors, and had continuously and repeatedly losing the CGM signals. The phone was a waste of money.

      1
      4 years ago Log in to Reply
    6. Andrew Stewart

      I changed from the Omnipod to Tandem tslim with Control-IQ. My only complaint is the tubes but I’m getting used to it.

      4 years ago Log in to Reply
    7. Meghan Larson

      I took a pump break and started using the InPen (which I did not see listed as an option to select!).

      4 years ago Log in to Reply
      1. AnitaS

        I think your option would have been “stopped using a pump ?

        4 years ago Log in to Reply
    8. Tom Caesar

      Anxiously waiting until Jan 10 when I can apply for a Tandem to replace my five year old Medtronic. Hoping my numbers and piece of mind level out with the change.

      4 years ago Log in to Reply
    9. Tabatha Rush

      Diagnosed in 2021

      4 years ago Log in to Reply
    10. Annie Wall

      After 25 years pumping, I took a 2 year vacation and was MDI using the InPen. This last spring I ended my “vacation” and started using a Tandem pump with Control IQ, a game changer for sure!

      4 years ago Log in to Reply
      1. Tina Roberts

        How did you like the impen?

        4 years ago Log in to Reply
      2. JoAnn Pinkowitz

        I would also like your impression of using the InPen please.

        4 years ago Log in to Reply
    11. Jneticdiabetic

      Switched from the Medtronic 670G pump/CGM to the Tandem Tslim pump and Dexcom G6 CGM in Nov. I was 98% within range yesterday (despite some residual holiday eating). A new all time best for me!

      3
      4 years ago Log in to Reply
      1. AnitaS

        Good for you!

        2
        4 years ago Log in to Reply
    12. Nicholas Argento

      Stayed with Dexcom G6 and T-slim control IQ- which I love. I sleep better, with higher time in range, than ever before.

      1
      4 years ago Log in to Reply
    13. Karen DeVeaux

      I said I added a new CGM but it was actually a FreeStyle Libre.

      4 years ago Log in to Reply
    14. Jane Cerullo

      Change from Medtronic to Omnipod. Because of insurance had to change from Dexcom to freestyle libre. Omnipod too expensive under Medicare so January first will switch back to MDI using insulin pens. Need a pump break.

      4 years ago Log in to Reply
    15. Janis Senungetuk

      This year I continued using the Tandem t-slim X2 pump with Control-IQ app/Dexcom G6 CGM.

      4 years ago Log in to Reply
    16. Tina Roberts

      I kept the same pump and cgm only because it’s still in warranty and my insurance won’t pay for a new one yet.

      2
      4 years ago Log in to Reply
    17. Rick Martin

      Switched from Tandem t-slim with IQ control to Afrezza (inhaled insulin). Much more time in range than on the pump!

      4 years ago Log in to Reply
    18. Vickie Baumgartner

      Actually changed insulin pump and CGM models that Medtronic sent to me unannounced.

      4 years ago Log in to Reply
      1. Dave Akers

        Typical Medtronic’s! Pushers is why they are!

        1
        4 years ago Log in to Reply
    19. Dave Akers

      AND Completely left the meal time injectable marketplace. Thank you Inhaled Insulin!!! Would love to see a question here one day about inhaled insulin… it’s a thing now!

      4 years ago Log in to Reply
    20. LizB

      I chose that I stayed with the same pump/CGM but realized I did pay for the Pathway upgrade from the Minimed 670g to 770g. But it is pretty much the same exact pump except now I can see the CGM readings on my phone. I’m still under warranty for another 10 months and am thinking of Tandem/Dexcom next year but cost will be a huge factor.

      1
      4 years ago Log in to Reply
    21. Bonnie Lundblom

      I remain on the Tslim pump and Dexcom CGM6. Does anyone know how long Medicare makes you wait to change CGM’s? I’m hoping the Dexcom CGM7 with the shorter cannula will be more accurate.

      4 years ago Log in to Reply
    22. PamK

      I did a trial of a different brand pump, but ended up staying with the one I’ve been on for the past few years.

      4 years ago Log in to Reply

    Did you add, remove, or change T1D devices in 2021? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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