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    • 1 hour, 38 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 4 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 3 hours, 4 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 3 hours, 5 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 17 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 18 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 18 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 6 hours, 1 minute ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 24 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 21 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 8 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023?
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    In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments!

    Next

    If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    15 Comments

    1. Jane Cerullo

      Insulin for MDI $210. Iport $60. Needles $10. Dexcom no cost.

      3 years ago Log in to Reply
    2. Gerald Oefelein

      Medicare deductible.

      3 years ago Log in to Reply
    3. emily anderson

      I live in Spain, where we have socialized medicine. Our citizens´ taxes pay for my insulin, sensors, tubing, pump, and all medical appointments. I am from the USA but would be terrified to have to move back there because of my diabetes. I mean, that, and all the mass shootings…

      7
      3 years ago Log in to Reply
      1. JOAN ULMER

        So how much are citizens paying in taxes? Just curious how much socialized medicine costs each person/year?

        1
        3 years ago Log in to Reply
    4. Daniel Bestvater

      I live in Ontario Canada so pump is covered but not Dexcom G6, insulin and medication. So I spent ~$1,800 during this time period.

      3 years ago Log in to Reply
    5. Louise Robinson

      Annual Part B Medicare Deductible. $226 in 2023.

      3 years ago Log in to Reply
    6. Steven Gill

      Dropped insurance until the end of the year, guessing about $500 for Libre3, insulin pens, strips, and prescriptions. Lower than my copay with insurance? (dropped the pump/CGM combo)

      3 years ago Log in to Reply
    7. Marty

      I spent $227, about half my Medicare Part D deductible, on prescriptions. I also had to buy some test strips out of pocket because CVS suddenly won’t refill the prescription. It’s probably some nonsense about Medicare Part B coverage but I haven’t had time to devote to waiting on the phone to try to figure it out.

      3 years ago Log in to Reply
    8. KarenM6

      I spent over $6,000. Ugh and ouch.

      1
      3 years ago Log in to Reply
    9. Wanacure

      At least $500. ($105 for 3 vials of Lantus, long acting insulin + $105 for 3 vials of Humalog, fast acting insulin + $127.85 Byram for Dexcom 6 supplies in January and $127.85 to Byram for Dexcom 6 supplies in March

      3 years ago Log in to Reply
    10. Wanacure

      + cost of surgery for ankle fracture surgery caused by osteopenia & neuropathy in feet, both T1D complications, + pain pills & antibiotics after ankle surgery exceeds $500 total out of pocket costs for T1D January thru March 2023. I forgot cost of crutches and walker and appointment copayments, x-rays. Most of the thousands of $ for surgery and metal implants and screws and overnight hospital stay were paid by Medicare. Do not privatize Medicare.

      3 years ago Log in to Reply
    11. Michelle Turner

      My Insurance is the best I have ever had! I work for a hospital, I get my meds from their pharmacy. All of my diabetes supplies are covered. My Insulin, my omnipod 5, DexcomG6. I’m very Thankful!

      2
      3 years ago Log in to Reply
    12. Troy Bruce

      Largest expense is for Dexcom g6 Sensors. Using GoodRX averaging 170 a month. My insurance won’t consider them as preventative. So i have to meet a ridiculous deductible first. DoubleCross of Michigan. They do consider insulin as preventative. I believe it’s mandatory. Fiasp and Lantus each is around 200 for 90 day supply. Can’t complain about that.

      1
      3 years ago Log in to Reply
    13. Maurine Bowser

      I spent around $500 in Jan to get an InPen which also covered my deductible. I’m on Medicare so generics are covered but not pen needles.

      3 years ago Log in to Reply
    14. Britni

      I misread the question. I answered 501-750 but should have said 1-250

      3 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023? Cancel reply

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