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    • 11 hours, 33 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 11 hours, 34 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Requests for my personal information that I don't want to share online.
    • 16 hours, 10 minutes ago
      KSannie likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I understand enough to decide not to participate in the study ... sometimes.
    • 16 hours, 48 minutes ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 1 day, 17 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 4 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 2 days, 4 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 2 days, 11 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 11 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 2 days, 11 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 2 days, 11 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 2 days, 16 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 2 days, 16 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 2 days, 17 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 17 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 17 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 18 hours ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 8 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 9 hours ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 3 days, 12 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 3 days, 12 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 3 days, 12 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
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    If you use a CGM, at what blood glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your time zone.

    Home > LC Polls > If you use a CGM, at what blood glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your time zone.
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. qachemist

      I set my alert higher than normal because it takes me quite a while to absorb even pure sugar and have it register on the CGM, so I give myself plenty of time to monitor and adjust.

      1
      3 years ago Log in to Reply
    2. Annie Wall

      I answered 55-59 because that’s what I have on Dexcom. However, on my Tandem my low alert is set to 80. Why the big difference? I don’t want alerts from both Dexcom and Tandem. I chose 80 for Tandem so I have plenty of time to stop the drop.

      2
      3 years ago Log in to Reply
    3. Jane Cerullo

      Works well for me. I am
      Alerted that I may be going low.

      1
      3 years ago Log in to Reply
    4. Gary Rind

      used to have my low set at 60. In a video, the TCOYD endos suggested that you set it at 80 so you can address your BS before it gets too low. Works out really well for me.

      1
      3 years ago Log in to Reply
    5. Carolann Hunt

      Multiple- my daughter’s phone is set at 100 so she will react sooner than later. My Nightscout is set at 65 so I react if she didn’t already

      3 years ago Log in to Reply
    6. Lawrence S.

      70, all the time.

      2
      3 years ago Log in to Reply
    7. Henry Renn

      I have it set high bc I like to have warning well in advance if my bg might go down so low I have to treat it.

      1
      3 years ago Log in to Reply
    8. JeremyW

      I used to have it set lower at 70 to be alerted less. But now it’s at 85 because I found that most of the time I go under 85 I’m headed for 70 anyway so it wasn’t really less anyway, and might as well know sooner.

      Night is different, no low alerts except 55 required alert because of compression low false alarms.

      2
      3 years ago Log in to Reply
    9. LZ

      Have 80 on dexcom, 75 on tandem

      3 years ago Log in to Reply
    10. Donna Condi

      I have my low set on 90 so that I can do something before it gets too low.

      2
      3 years ago Log in to Reply
    11. Pauline M Reynolds

      I use 80 because my lows seem to come fast.

      1
      3 years ago Log in to Reply
    12. jo

      I have it set at 70 at all times, because it only goes lower from there and rather quickly.

      2
      3 years ago Log in to Reply
    13. C B

      80 because 70 is already low

      1
      3 years ago Log in to Reply
    14. KarenM6

      My low alert is set at 80. Having hypo unawareness means earlier alerts are better.
      I change the alert to 90 to 95 if I have to drive any long distances (over 60 miles) because of the hypo unawareness, too.

      2
      3 years ago Log in to Reply
      1. Lawrence S.

        Good idea about driving long distances.

        3 years ago Log in to Reply
      2. KarenM6

        Thank you, Lawrence S! 🙂

        3 years ago Log in to Reply
    15. AnitaS

      I have mine set at 85, for the same reason most people set their alarms a little higher–to prevent my sugar from going under 70.

      3 years ago Log in to Reply
    16. Bea Anderson

      I have 2 low settings. 70 low and 55 urgent low. I bump it up if away from home. 16 years t1, and still have awareness. Settings might be too low, but have been able to fix things myself. First I pause insulin pump for 30 minutes. If I seem to feel ok I check bg to verify bg. If shaky or sweaty, I do glucose tabs or skittles.

      3 years ago Log in to Reply
    17. Jen Farley

      I have mine set high 90 is my first alert, by the time it hits the 50’s it won’t shut up. I drop fast. My endocrinologist wants the lows to stop because I no longer feel the lows. A little secret, I prefer lows over highs due to the correction for high blood sugars take longer and I feel worse. Lows I take some glucose and they go away. I do get the point, more die from the lows than the highs so following the rules.

      3 years ago Log in to Reply
    18. T1D4LongTime

      During the day, I have it set at 60, but many times I will silence it because after you treat a low, it drives you nuts until the SG comes back up. My TSlim incessantly alarms at 55, so a Rise or Fall Rate alarm is often more helpful.

      3 years ago Log in to Reply

    If you use a CGM, at what blood glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your time zone. Cancel reply

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