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    • 13 hours, 37 minutes ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None.
    • 13 hours, 37 minutes ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      Other for the lacking answer of none of these. It took a while to get used to wearing my pump and CGM. I HATE the feeling of attachments to my skin and can't wear jewelry or watches.
    • 13 hours, 39 minutes ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 13 hours, 39 minutes ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      Pump and CGM 99.9% of the time.
    • 13 hours, 39 minutes ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 13 hours, 39 minutes ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 18 hours, 4 minutes ago
      Steve Rumble likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      Pump and CGM 99.9% of the time.
    • 18 hours, 33 minutes ago
      lis be likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      No one wants me. I am eighty four years old.
    • 18 hours, 33 minutes ago
      lis be likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      I can find research studies that pertain to my medical problems but I do not always have the prerequisites needed for the study.
    • 18 hours, 33 minutes ago
      lis be likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Aged out
    • 18 hours, 33 minutes ago
      lis be likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      My age limits me
    • 18 hours, 33 minutes ago
      lis be likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 18 hours, 35 minutes ago
      lis be likes your comment at
      If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
      Would you be interested if the immuno-suppression was the new tegoprubart which is being used in the new Eledon trials? That immunosuppression is targeted to the attack of the islet cells and does not affect the rest of the body. So far no side effects shown. The longest participant in this trial is 20 months insulin free. Currently the trial uses a infusion of the tegoprubart every three weeks, but the company is working on injections/ pill that could be used at home. Possible a once a week or once a month injection or pill that would keep you insulin free. I think that is one immunosuppression I would take if at the end of the trials if the results are very good.
    • 18 hours, 35 minutes ago
      lis be likes your comment at
      If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
      Depends on the therapy. For example if it requires anti-rejection medications I would not be interested.
    • 18 hours, 35 minutes ago
      lis be likes your comment at
      If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
      I answered “Neutral” because it depends on the requirements of the treatment. If it means a lifetime of typical immuno-suppressants, then no; there are too many other risks and requirements. If it means a lifetime of targeted immuno-suppressants, with minimal risks associated, the I’d consider it. If it means no immuno-suppressants or similar requirements, then “yes” I’d not only consider it but would likely choose it.
    • 18 hours, 36 minutes ago
      lis be likes your comment at
      If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
      Very likely to consider it. But many questions before accepting it, even if it were to be offered to someone my age (68).
    • 19 hours, 12 minutes ago
      John Barbuto likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 19 hours, 12 minutes ago
      John Barbuto likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 1 day, 2 hours ago
      Sandra Norman likes your comment at
      If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
      Would you be interested if the immuno-suppression was the new tegoprubart which is being used in the new Eledon trials? That immunosuppression is targeted to the attack of the islet cells and does not affect the rest of the body. So far no side effects shown. The longest participant in this trial is 20 months insulin free. Currently the trial uses a infusion of the tegoprubart every three weeks, but the company is working on injections/ pill that could be used at home. Possible a once a week or once a month injection or pill that would keep you insulin free. I think that is one immunosuppression I would take if at the end of the trials if the results are very good.
    • 1 day, 15 hours ago
      Gerald Oefelein likes your comment at
      If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
      I would want all the details including risks and maintenance. I would not want to take rejection medicine as part of the cure .
    • 1 day, 15 hours ago
      Gerald Oefelein likes your comment at
      If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
      Would you be interested if the immuno-suppression was the new tegoprubart which is being used in the new Eledon trials? That immunosuppression is targeted to the attack of the islet cells and does not affect the rest of the body. So far no side effects shown. The longest participant in this trial is 20 months insulin free. Currently the trial uses a infusion of the tegoprubart every three weeks, but the company is working on injections/ pill that could be used at home. Possible a once a week or once a month injection or pill that would keep you insulin free. I think that is one immunosuppression I would take if at the end of the trials if the results are very good.
    • 1 day, 16 hours ago
      kristina blake likes your comment at
      If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
      I answered “Neutral” because it depends on the requirements of the treatment. If it means a lifetime of typical immuno-suppressants, then no; there are too many other risks and requirements. If it means a lifetime of targeted immuno-suppressants, with minimal risks associated, the I’d consider it. If it means no immuno-suppressants or similar requirements, then “yes” I’d not only consider it but would likely choose it.
    • 1 day, 16 hours ago
      kristina blake likes your comment at
      If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
      Very likely to consider it. But many questions before accepting it, even if it were to be offered to someone my age (68).
    • 1 day, 16 hours ago
      Bob Durstenfeld likes your comment at
      If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
      Would you be interested if the immuno-suppression was the new tegoprubart which is being used in the new Eledon trials? That immunosuppression is targeted to the attack of the islet cells and does not affect the rest of the body. So far no side effects shown. The longest participant in this trial is 20 months insulin free. Currently the trial uses a infusion of the tegoprubart every three weeks, but the company is working on injections/ pill that could be used at home. Possible a once a week or once a month injection or pill that would keep you insulin free. I think that is one immunosuppression I would take if at the end of the trials if the results are very good.
    • 1 day, 16 hours ago
      cynthia jaworski likes your comment at
      If you were offered a therapy that aimed to restore your body’s insulin production, how likely are you to consider it?
      I answered “Neutral” because it depends on the requirements of the treatment. If it means a lifetime of typical immuno-suppressants, then no; there are too many other risks and requirements. If it means a lifetime of targeted immuno-suppressants, with minimal risks associated, the I’d consider it. If it means no immuno-suppressants or similar requirements, then “yes” I’d not only consider it but would likely choose it.
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    If you use a CGM, at what blood glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your time zone.

    Home > LC Polls > If you use a CGM, at what blood glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your time zone.
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    What advice would you give to a caregiver of a teenager with T1D?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. qachemist

      I set my alert higher than normal because it takes me quite a while to absorb even pure sugar and have it register on the CGM, so I give myself plenty of time to monitor and adjust.

      1
      3 years ago Log in to Reply
    2. Annie Wall

      I answered 55-59 because that’s what I have on Dexcom. However, on my Tandem my low alert is set to 80. Why the big difference? I don’t want alerts from both Dexcom and Tandem. I chose 80 for Tandem so I have plenty of time to stop the drop.

      2
      3 years ago Log in to Reply
    3. Jane Cerullo

      Works well for me. I am
      Alerted that I may be going low.

      1
      3 years ago Log in to Reply
    4. Gary Rind

      used to have my low set at 60. In a video, the TCOYD endos suggested that you set it at 80 so you can address your BS before it gets too low. Works out really well for me.

      1
      3 years ago Log in to Reply
    5. Carolann Hunt

      Multiple- my daughter’s phone is set at 100 so she will react sooner than later. My Nightscout is set at 65 so I react if she didn’t already

      3 years ago Log in to Reply
    6. Lawrence S.

      70, all the time.

      2
      3 years ago Log in to Reply
    7. Henry Renn

      I have it set high bc I like to have warning well in advance if my bg might go down so low I have to treat it.

      1
      3 years ago Log in to Reply
    8. JeremyW

      I used to have it set lower at 70 to be alerted less. But now it’s at 85 because I found that most of the time I go under 85 I’m headed for 70 anyway so it wasn’t really less anyway, and might as well know sooner.

      Night is different, no low alerts except 55 required alert because of compression low false alarms.

      2
      3 years ago Log in to Reply
    9. LZ

      Have 80 on dexcom, 75 on tandem

      3 years ago Log in to Reply
    10. Donna Condi

      I have my low set on 90 so that I can do something before it gets too low.

      2
      3 years ago Log in to Reply
    11. Pauline M Reynolds

      I use 80 because my lows seem to come fast.

      1
      3 years ago Log in to Reply
    12. jo

      I have it set at 70 at all times, because it only goes lower from there and rather quickly.

      2
      3 years ago Log in to Reply
    13. C B

      80 because 70 is already low

      1
      3 years ago Log in to Reply
    14. KarenM6

      My low alert is set at 80. Having hypo unawareness means earlier alerts are better.
      I change the alert to 90 to 95 if I have to drive any long distances (over 60 miles) because of the hypo unawareness, too.

      2
      3 years ago Log in to Reply
      1. Lawrence S.

        Good idea about driving long distances.

        3 years ago Log in to Reply
      2. KarenM6

        Thank you, Lawrence S! 🙂

        3 years ago Log in to Reply
    15. AnitaS

      I have mine set at 85, for the same reason most people set their alarms a little higher–to prevent my sugar from going under 70.

      3 years ago Log in to Reply
    16. Bea Anderson

      I have 2 low settings. 70 low and 55 urgent low. I bump it up if away from home. 16 years t1, and still have awareness. Settings might be too low, but have been able to fix things myself. First I pause insulin pump for 30 minutes. If I seem to feel ok I check bg to verify bg. If shaky or sweaty, I do glucose tabs or skittles.

      3 years ago Log in to Reply
    17. Jen Farley

      I have mine set high 90 is my first alert, by the time it hits the 50’s it won’t shut up. I drop fast. My endocrinologist wants the lows to stop because I no longer feel the lows. A little secret, I prefer lows over highs due to the correction for high blood sugars take longer and I feel worse. Lows I take some glucose and they go away. I do get the point, more die from the lows than the highs so following the rules.

      3 years ago Log in to Reply
    18. T1D4LongTime

      During the day, I have it set at 60, but many times I will silence it because after you treat a low, it drives you nuts until the SG comes back up. My TSlim incessantly alarms at 55, so a Rise or Fall Rate alarm is often more helpful.

      3 years ago Log in to Reply

    If you use a CGM, at what blood glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your time zone. Cancel reply

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