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    • 17 hours, 50 minutes ago
      Phyllis Biederman likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Many trials don’t take older people. I’m 71 and get eliminated.
    • 17 hours, 51 minutes ago
      Phyllis Biederman likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Great point, not much recognition for those of us that have lived with T1D for a long time.
    • 17 hours, 51 minutes ago
      Phyllis Biederman likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      I’m going to be 80, and a “healthy” diabetic, yet my age eliminates me from most research. Aren’t they curious how I lived this long?
    • 17 hours, 51 minutes ago
      Phyllis Biederman likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Their acceptance of "older" volunteers! T1D for 56 years, and currently 78 years old. Research opportunities are typically age restricted at levels well below my current age.
    • 17 hours, 51 minutes ago
      Phyllis Biederman likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Maybe if most research studies did exclude people who are older than their 30s, they’d get more participation.
    • 23 hours, 5 minutes ago
      eherban1 likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Many trials don’t take older people. I’m 71 and get eliminated.
    • 23 hours, 5 minutes ago
      eherban1 likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      I’m going to be 80, and a “healthy” diabetic, yet my age eliminates me from most research. Aren’t they curious how I lived this long?
    • 1 day ago
      Laurie B likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      I’m going to be 80, and a “healthy” diabetic, yet my age eliminates me from most research. Aren’t they curious how I lived this long?
    • 1 day ago
      Laurie B likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      The last clinical trial I participated in was a double failure, so it was all for not. So professionalisem, and error free for me.
    • 1 day ago
      Marty likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Many trials don’t take older people. I’m 71 and get eliminated.
    • 1 day, 1 hour ago
      KCR likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Many trials don’t take older people. I’m 71 and get eliminated.
    • 1 day, 2 hours ago
      John Barbuto likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Many trials don’t take older people. I’m 71 and get eliminated.
    • 1 day, 15 hours ago
      kristina blake likes your comment at
      What factors would affect your participation in diabetes-related research?
      I am willing to participate in research, but at 75, I'm usually outside the age requirements.
    • 1 day, 15 hours ago
      kristina blake likes your comment at
      What factors would affect your participation in diabetes-related research?
      I'm close to 80. No researchers are interested people my age so I don't give it much thought.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      What factors would affect your participation in diabetes-related research?
      With the comments I see here there should be more research about aging with T1d. Just an idea…
    • 1 day, 19 hours ago
      lis be likes your comment at
      What factors would affect your participation in diabetes-related research?
      With the comments I see here there should be more research about aging with T1d. Just an idea…
    • 1 day, 19 hours ago
      lis be likes your comment at
      What factors would affect your participation in diabetes-related research?
      I do not qualify for most surveys and when I do, they want private information I do not want to give them, because I do not know how secure their computers ate.
    • 2 days ago
      Gerald Oefelein likes your comment at
      What factors would affect your participation in diabetes-related research?
      You get very few opportunities to volunteer when you're over 75.
    • 2 days ago
      Gerald Oefelein likes your comment at
      What factors would affect your participation in diabetes-related research?
      My age.
    • 2 days ago
      Gerald Oefelein likes your comment at
      What factors would affect your participation in diabetes-related research?
      I am willing to participate in research, but at 75, I'm usually outside the age requirements.
    • 2 days ago
      Gerald Oefelein likes your comment at
      What factors would affect your participation in diabetes-related research?
      I'm close to 80. No researchers are interested people my age so I don't give it much thought.
    • 2 days, 2 hours ago
      John Barbuto likes your comment at
      What factors would affect your participation in diabetes-related research?
      I have participated many times however at 69 I am now outside of their acceptable age range.
    • 2 days, 2 hours ago
      John Barbuto likes your comment at
      What factors would affect your participation in diabetes-related research?
      I am willing to participate in research, but at 75, I'm usually outside the age requirements.
    • 2 days, 2 hours ago
      John Barbuto likes your comment at
      What factors would affect your participation in diabetes-related research?
      I'm close to 80. No researchers are interested people my age so I don't give it much thought.
    • 2 days, 2 hours ago
      Steve Rumble likes your comment at
      What factors would affect your participation in diabetes-related research?
      I have participated many times however at 69 I am now outside of their acceptable age range.
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    How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022?
    Previous

    Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)

    Next

    If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Mick Martin

      $0. I live in the United Kingdom where all of my diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people.

      5
      3 years ago Log in to Reply
      1. P-O Heidling

        Same setup in Sweden and therefore $0 (or 0 SKR) for me too.

        4
        3 years ago Log in to Reply
      2. ELYSSE HELLER

        I wish that we had National Health Service in the USA. Opponents of socialized medicine claim that you would have to wait a long time to get to see a doctor. Well, I saw my endocrinologist in December and she wanted to see me in three months but I couldn’t get an appointment until next summer and that was with a Nurse Practitioner because the doctor was booked for the rest of 2023! Healthcare is not a privaledge it is a basic human right!

        3
        3 years ago Log in to Reply
      3. Mick Martin

        @ELYSSE HELLER,

        I ‘hear’ what you say, ma’am. Unfortunately, I have ‘lost’ internet friends from America when they have died from not being able to afford insulin. I’m sure that Mr. Banting and his colleagues would be ‘turning in their graves’ if they knew what was happening.

        I’d like to say that I agree with your assertion that “Healthcare is not a privaledge it is a basic human right!” but I’m a realist. I KNOW that things have to be paid for. i.e. who would pay for the doctors/nurses/development and production of medicines?

        3 years ago Log in to Reply
      4. Mick Martin

        @P-O Heidling,

        Thank you for educating me, my friend. I hadn’t any idea that Sweden has a National Health Service. Methinks I need to do more reading/become better educated. 😉

        1
        3 years ago Log in to Reply
    2. Lawrence S.

      Novolog $55 copay. Does not count Dr.’s visit copay.

      3 years ago Log in to Reply
    3. jeredb

      The last quarter is always great, I usually have hit my $6,000 maximum out of pocket so the last quarter is free. First quarter before my deductible hits ($4,000) is rough though!!

      3
      3 years ago Log in to Reply
    4. Jane Cerullo

      Copay for insulin pens. Medtronic Iport, pen needles.

      3 years ago Log in to Reply
    5. Nevin Bowman

      My deductible for insulin pump supplies is 2000 which I always meet, plus my copay for Dexcom, so somewhere between 2K and 3k.

      1
      3 years ago Log in to Reply
    6. Louise Robinson

      Being on Medicare and using a CGM, Medicare refuses to pay for ANY of my glucose test strips. Although I use far fewer than prior to CGM use, there are times when test strips are necessary to verify lows or to obtain glucose levels when the CGM is in its “warming-up” period. Medicare is penny-wise and pound foolinh, IMHO.

      3
      3 years ago Log in to Reply
      1. Marty

        I have Medicare Part D prescription coverage that does pay for test strips along with most drug costs. Could there be some route to strips coverage for you, too?

        1
        3 years ago Log in to Reply
    7. Diana L.

      Theonly supply that is not covered 100% by Medicare and supplemental insurance is Glucagon, partially covered by my prescription benefit

      1
      3 years ago Log in to Reply
      1. Diana L.

        I have to add that I pay $200 a month for my supplemental insurance, it has a $250 deductible (Plan G) very worthwhile for all my medical expenses

        3 years ago Log in to Reply
    8. john36m

      It was Zero, since I reached my maximum out of pocket for my insurance plan.

      2
      3 years ago Log in to Reply
    9. Mig Vascos

      I live in the USA and have Medicare and a supplemental to cover the 20% not covered by it.
      All my diabetes supplies , including whatever pump I choose every 5 years, insulin, strips, pump supplies and Dexcom sensors are covered 100% thru the Medicare part B durable equipment clause (considered part of the pump system). This only applies if you use a pump.
      I only have copayments when I order Lantus pens every couple of years in case my pump fails.
      I do pay my Medicare premium and my supplemental premium though that comes to about $500 a month but that covers all my medical necessities. So I’m not complaining. I feel I’m getting more than I’m
      Paying for.

      4
      3 years ago Log in to Reply
    10. Carl Robertson

      $0 due to having reached my medical insurance out of pocket maximum for the year

      2
      3 years ago Log in to Reply
    11. Karington Johnston

      I’m a teacher and my insurance year starts over in September. This is the time of year that I have to pay the most.

      1
      3 years ago Log in to Reply
    12. Tom Caesar

      On insulin approx $300. For insurance to get CGM and pump supplies “free” approx $1400

      1
      3 years ago Log in to Reply
    13. Dave Akers

      Deductible met! Loaded up!

      3 years ago Log in to Reply
    14. Lenora Ventura

      I met my Out of Pocket maximum of $4,000 in early October so the rest of the year was covered @ 100%

      1
      3 years ago Log in to Reply
    15. Jeff Balbirnie

      Uncertain, too much with a million percent certainty.

      3 years ago Log in to Reply
    16. T1D4LongTime

      $0.00 in qtr 4 of 2022 due to exceeding my out of pocket max thanks to cataract surgery in August. Normally, I would spend about $200 in 3 months

      3 years ago Log in to Reply
    17. Lisa Gerken

      This question is so dependent on your health plan. PPO, HSA, nothing? I hit my HSA deductible well before October.

      3 years ago Log in to Reply

    How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022? Cancel reply

    You must be logged in to post a comment.




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