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    • 16 hours, 52 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      shortly after I was diagnosed at age 43, went on a date with a T1D who had had it forever. she criticized what I ate, how much insulin I was taking for it (MDI) and when I ordered a Corona, I thought that her head would explode! needless to say there was no second date.
    • 16 hours, 52 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 16 hours, 54 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      At the time we dated and were married my wife was not diabetic. She was diagnosed as T1D during/after her first pregnancy. We shared T1D through the next 37 years and a second pregnancy!
    • 18 hours ago
      Ahh Life likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 1 day, 9 hours ago
      Anita Stokar likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I put "Never" because I'm 85 and stable. Why change a good thing?
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 10 hours ago
      Janis Senungetuk likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I said “No.” Perhaps I’m the luckiest person alive since I’ve navigated the diabetic road for 74 years. Have never had DKA, although symptomatic twice. Have had numerous hypoglycemic affairs, but no hospitalizations. I am also a bit determined. They may hospitalize me for dementia or other old age conditions. But not for T1D. ✨.•*¨*.¸.•*¨*.¸¸.•*¨`*• ¨*.¸.•*¨`*. ¸.•*¨*.¸¸.•*¨`*•.✨
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 13 hours ago
      ChrisW likes your comment at
      Do you check your blood glucose before driving a car?
      Kind of a bad question, “check” means what, CGM and meter both are used to “check” BG, so it would appear that 60%+ “check”. Maybe it should have been, “How do you check BG before driving?” To get a more specific assessment of the BG checking task.
    • 1 day, 13 hours ago
      ChrisW likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      She recommended having the latest incarnation of Glucagon on hand and Lantus pens in case I have a pump problem.
    • 1 day, 16 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 16 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 17 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 17 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 18 hours ago
      Vicki Andersen likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
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    How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022?
    Previous

    Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)

    Next

    If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Mick Martin

      $0. I live in the United Kingdom where all of my diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people.

      5
      2 years ago Log in to Reply
      1. P-O Heidling

        Same setup in Sweden and therefore $0 (or 0 SKR) for me too.

        4
        2 years ago Log in to Reply
      2. ELYSSE HELLER

        I wish that we had National Health Service in the USA. Opponents of socialized medicine claim that you would have to wait a long time to get to see a doctor. Well, I saw my endocrinologist in December and she wanted to see me in three months but I couldn’t get an appointment until next summer and that was with a Nurse Practitioner because the doctor was booked for the rest of 2023! Healthcare is not a privaledge it is a basic human right!

        3
        2 years ago Log in to Reply
      3. Mick Martin

        @ELYSSE HELLER,

        I ‘hear’ what you say, ma’am. Unfortunately, I have ‘lost’ internet friends from America when they have died from not being able to afford insulin. I’m sure that Mr. Banting and his colleagues would be ‘turning in their graves’ if they knew what was happening.

        I’d like to say that I agree with your assertion that “Healthcare is not a privaledge it is a basic human right!” but I’m a realist. I KNOW that things have to be paid for. i.e. who would pay for the doctors/nurses/development and production of medicines?

        2 years ago Log in to Reply
      4. Mick Martin

        @P-O Heidling,

        Thank you for educating me, my friend. I hadn’t any idea that Sweden has a National Health Service. Methinks I need to do more reading/become better educated. 😉

        1
        2 years ago Log in to Reply
    2. Lawrence S.

      Novolog $55 copay. Does not count Dr.’s visit copay.

      2 years ago Log in to Reply
    3. jeredb

      The last quarter is always great, I usually have hit my $6,000 maximum out of pocket so the last quarter is free. First quarter before my deductible hits ($4,000) is rough though!!

      3
      2 years ago Log in to Reply
    4. Jane Cerullo

      Copay for insulin pens. Medtronic Iport, pen needles.

      2 years ago Log in to Reply
    5. Nevin Bowman

      My deductible for insulin pump supplies is 2000 which I always meet, plus my copay for Dexcom, so somewhere between 2K and 3k.

      1
      2 years ago Log in to Reply
    6. Louise Robinson

      Being on Medicare and using a CGM, Medicare refuses to pay for ANY of my glucose test strips. Although I use far fewer than prior to CGM use, there are times when test strips are necessary to verify lows or to obtain glucose levels when the CGM is in its “warming-up” period. Medicare is penny-wise and pound foolinh, IMHO.

      3
      2 years ago Log in to Reply
      1. Marty

        I have Medicare Part D prescription coverage that does pay for test strips along with most drug costs. Could there be some route to strips coverage for you, too?

        1
        2 years ago Log in to Reply
    7. Diana L.

      Theonly supply that is not covered 100% by Medicare and supplemental insurance is Glucagon, partially covered by my prescription benefit

      1
      2 years ago Log in to Reply
      1. Diana L.

        I have to add that I pay $200 a month for my supplemental insurance, it has a $250 deductible (Plan G) very worthwhile for all my medical expenses

        2 years ago Log in to Reply
    8. john36m

      It was Zero, since I reached my maximum out of pocket for my insurance plan.

      2
      2 years ago Log in to Reply
    9. Mig Vascos

      I live in the USA and have Medicare and a supplemental to cover the 20% not covered by it.
      All my diabetes supplies , including whatever pump I choose every 5 years, insulin, strips, pump supplies and Dexcom sensors are covered 100% thru the Medicare part B durable equipment clause (considered part of the pump system). This only applies if you use a pump.
      I only have copayments when I order Lantus pens every couple of years in case my pump fails.
      I do pay my Medicare premium and my supplemental premium though that comes to about $500 a month but that covers all my medical necessities. So I’m not complaining. I feel I’m getting more than I’m
      Paying for.

      4
      2 years ago Log in to Reply
    10. Carl Robertson

      $0 due to having reached my medical insurance out of pocket maximum for the year

      2
      2 years ago Log in to Reply
    11. Karington Johnston

      I’m a teacher and my insurance year starts over in September. This is the time of year that I have to pay the most.

      1
      2 years ago Log in to Reply
    12. Tom Caesar

      On insulin approx $300. For insurance to get CGM and pump supplies “free” approx $1400

      1
      2 years ago Log in to Reply
    13. Dave Akers

      Deductible met! Loaded up!

      2 years ago Log in to Reply
    14. Lenora Ventura

      I met my Out of Pocket maximum of $4,000 in early October so the rest of the year was covered @ 100%

      1
      2 years ago Log in to Reply
    15. Jeff Balbirnie

      Uncertain, too much with a million percent certainty.

      2 years ago Log in to Reply
    16. T1D4LongTime

      $0.00 in qtr 4 of 2022 due to exceeding my out of pocket max thanks to cataract surgery in August. Normally, I would spend about $200 in 3 months

      2 years ago Log in to Reply
    17. Lisa Gerken

      This question is so dependent on your health plan. PPO, HSA, nothing? I hit my HSA deductible well before October.

      2 years ago Log in to Reply

    How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022? Cancel reply

    You must be logged in to post a comment.




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