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    • 1 hour, 4 minutes ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 hour, 10 minutes ago
      atr likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 1 hour, 46 minutes ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 19 hours, 40 minutes ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 1 day, 22 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 2 days ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 2 days, 16 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 3 days, 11 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 3 days, 23 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 1 hour ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 1 hour ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 2 hours ago
      Gary Taylor likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 12 hours ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 4 days, 22 hours ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 22 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
    • 4 days, 22 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
    • 5 days ago
      Marty likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
    • 5 days, 17 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      And TCOYD
    • 5 days, 17 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      Diabetes Strong
    • 5 days, 17 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      TCOYD AND DiaTribe are thoughtful information providers.
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    How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022?
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    Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)

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    If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. 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    23 Comments

    1. Mick Martin

      $0. I live in the United Kingdom where all of my diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people.

      5
      3 years ago Log in to Reply
      1. P-O Heidling

        Same setup in Sweden and therefore $0 (or 0 SKR) for me too.

        4
        3 years ago Log in to Reply
      2. ELYSSE HELLER

        I wish that we had National Health Service in the USA. Opponents of socialized medicine claim that you would have to wait a long time to get to see a doctor. Well, I saw my endocrinologist in December and she wanted to see me in three months but I couldn’t get an appointment until next summer and that was with a Nurse Practitioner because the doctor was booked for the rest of 2023! Healthcare is not a privaledge it is a basic human right!

        3
        3 years ago Log in to Reply
      3. Mick Martin

        @ELYSSE HELLER,

        I ‘hear’ what you say, ma’am. Unfortunately, I have ‘lost’ internet friends from America when they have died from not being able to afford insulin. I’m sure that Mr. Banting and his colleagues would be ‘turning in their graves’ if they knew what was happening.

        I’d like to say that I agree with your assertion that “Healthcare is not a privaledge it is a basic human right!” but I’m a realist. I KNOW that things have to be paid for. i.e. who would pay for the doctors/nurses/development and production of medicines?

        3 years ago Log in to Reply
      4. Mick Martin

        @P-O Heidling,

        Thank you for educating me, my friend. I hadn’t any idea that Sweden has a National Health Service. Methinks I need to do more reading/become better educated. 😉

        1
        3 years ago Log in to Reply
    2. Lawrence S.

      Novolog $55 copay. Does not count Dr.’s visit copay.

      3 years ago Log in to Reply
    3. jeredb

      The last quarter is always great, I usually have hit my $6,000 maximum out of pocket so the last quarter is free. First quarter before my deductible hits ($4,000) is rough though!!

      3
      3 years ago Log in to Reply
    4. Jane Cerullo

      Copay for insulin pens. Medtronic Iport, pen needles.

      3 years ago Log in to Reply
    5. Nevin Bowman

      My deductible for insulin pump supplies is 2000 which I always meet, plus my copay for Dexcom, so somewhere between 2K and 3k.

      1
      3 years ago Log in to Reply
    6. Louise Robinson

      Being on Medicare and using a CGM, Medicare refuses to pay for ANY of my glucose test strips. Although I use far fewer than prior to CGM use, there are times when test strips are necessary to verify lows or to obtain glucose levels when the CGM is in its “warming-up” period. Medicare is penny-wise and pound foolinh, IMHO.

      3
      3 years ago Log in to Reply
      1. Marty

        I have Medicare Part D prescription coverage that does pay for test strips along with most drug costs. Could there be some route to strips coverage for you, too?

        1
        3 years ago Log in to Reply
    7. Diana L.

      Theonly supply that is not covered 100% by Medicare and supplemental insurance is Glucagon, partially covered by my prescription benefit

      1
      3 years ago Log in to Reply
      1. Diana L.

        I have to add that I pay $200 a month for my supplemental insurance, it has a $250 deductible (Plan G) very worthwhile for all my medical expenses

        3 years ago Log in to Reply
    8. john36m

      It was Zero, since I reached my maximum out of pocket for my insurance plan.

      2
      3 years ago Log in to Reply
    9. Mig Vascos

      I live in the USA and have Medicare and a supplemental to cover the 20% not covered by it.
      All my diabetes supplies , including whatever pump I choose every 5 years, insulin, strips, pump supplies and Dexcom sensors are covered 100% thru the Medicare part B durable equipment clause (considered part of the pump system). This only applies if you use a pump.
      I only have copayments when I order Lantus pens every couple of years in case my pump fails.
      I do pay my Medicare premium and my supplemental premium though that comes to about $500 a month but that covers all my medical necessities. So I’m not complaining. I feel I’m getting more than I’m
      Paying for.

      4
      3 years ago Log in to Reply
    10. Carl Robertson

      $0 due to having reached my medical insurance out of pocket maximum for the year

      2
      3 years ago Log in to Reply
    11. Karington Johnston

      I’m a teacher and my insurance year starts over in September. This is the time of year that I have to pay the most.

      1
      3 years ago Log in to Reply
    12. Tom Caesar

      On insulin approx $300. For insurance to get CGM and pump supplies “free” approx $1400

      1
      3 years ago Log in to Reply
    13. Dave Akers

      Deductible met! Loaded up!

      3 years ago Log in to Reply
    14. Lenora Ventura

      I met my Out of Pocket maximum of $4,000 in early October so the rest of the year was covered @ 100%

      1
      3 years ago Log in to Reply
    15. Jeff Balbirnie

      Uncertain, too much with a million percent certainty.

      3 years ago Log in to Reply
    16. T1D4LongTime

      $0.00 in qtr 4 of 2022 due to exceeding my out of pocket max thanks to cataract surgery in August. Normally, I would spend about $200 in 3 months

      3 years ago Log in to Reply
    17. Lisa Gerken

      This question is so dependent on your health plan. PPO, HSA, nothing? I hit my HSA deductible well before October.

      3 years ago Log in to Reply

    How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022? Cancel reply

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