What was your most recent A1c?

Activity
- 10 hours, 8 minutes ago
  
  TEH likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  I changed to the Dexcom G7 from the Dexcom G6. I got a new Tandem T:slim X2 last year (2023) to replace my old one that was out of warranty.
- 12 hours, 21 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  I kept my Tandem pump, but changed From Dexcom G6 to G7.
- 12 hours, 21 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  Upgraded from Dexcom G6 to G7.
- 12 hours, 22 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  I switched from Dexcom G6 to G7 this year. I've had the same Tandem T:slim X2 pump model for many years now, although it's been replaced a couple of times for charging problems.
- 12 hours, 22 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  I changed to the Dexcom G7 from the Dexcom G6. I got a new Tandem T:slim X2 last year (2023) to replace my old one that was out of warranty.
- 16 hours, 43 minutes ago
  
  Cristina Jorge Schwarz likes your comment at
  Do you try to have healthier options on the days leading up to a holiday get-together?
  I always try to eat healthy. Holiday time is no different.
- 16 hours, 43 minutes ago
  
  Cristina Jorge Schwarz likes your comment at
  Do you try to have healthier options on the days leading up to a holiday get-together?
  Your brain may be having a holiday, but your body is still T1D. It doesn’t take vacations or holidays. Changing routines rarely works out well.
- 1 day, 2 hours ago
  
  Janis Senungetuk likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  I had to enter not sure. I can’t recall any direct expenses. However, I paid several thousand dollars for Medicare and the supplemental insurance that paid for my supplies.
- 1 day, 10 hours ago
  
  Lawrence S. likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  I had 4 with my endocrinologist because I have a pump and Medicare requires it also had 1 appt with a diabetes pharmacist
- 1 day, 10 hours ago
  
  Lawrence S. likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  My endo would be happy to see me only 2x a year vs 4x a year because of my good diabetes control BUT, Medicare mandates a visit every 90 days to the prescribing physician for any approval of claims for insulin pump supplies....penny-wise and pound-foolish, IMO.
- 1 day, 12 hours ago
  
  TEH likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  My endo would be happy to see me only 2x a year vs 4x a year because of my good diabetes control BUT, Medicare mandates a visit every 90 days to the prescribing physician for any approval of claims for insulin pump supplies....penny-wise and pound-foolish, IMO.
- 1 day, 14 hours ago
  
  Gerald Oefelein likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  Oh, I also went to diabetes training camp for the second year and honestly, that's the most helpful thing I do. Several days with endocrinologists, educators, dietitians, sports physiologists, and others, most of whom also have type one.
- 2 days, 3 hours ago
  
  dholl62@gmail.com likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  It depends if you include my Medicare Part B and Part D premiums. Those are $156 and $180 per month.
- 2 days, 3 hours ago
  
  dholl62@gmail.com likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  I had to enter not sure. I can’t recall any direct expenses. However, I paid several thousand dollars for Medicare and the supplemental insurance that paid for my supplies.
- 2 days, 22 hours ago
  
  Janis Senungetuk likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 2 days, 22 hours ago
  
  Janis Senungetuk likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes I do and I keep long acting insulin in my supplies. But for periods of a day or two I usually just take small doses of my fast acting (Novolog) every two to four hours and do fine with that... Luckily I am 75 years old and get up to use bathroom several times through the night; also my insulin needs are low, about 25 to 30 units per day
- 3 days, 7 hours ago
  
  Anita Stokar likes your comment at
  Do you use insulin pens or vials?
  I do! Also for if I want a larger bolus (I'll often use the pod for part and the pen for part) to avoid over saturating the pod site, or if I'm worried my site isn't absorbing well enough but I'm not 100% convinced enough to pull it off. I always have a pen in my bag in case of emergencies (though I do use vials to fill my pods) and I figure it's good to use the pen occasionally in the "use it or lose it" mentality. I'm happy keeping an active pen for many months or even a year but I'm sure it would fail eventually and need to be tossed.
- 3 days, 9 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes for close, accuracy is a challenge and the dose may be off, just part of the process.
- 3 days, 9 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I am blessed, in 30+ years of pumping I've only had one pump failure. A Minimed pump failed on a flight home.
- 3 days, 9 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 3 days, 9 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don’t know how much long acting insulin I would need if my pump stopped working. I would simply contact my doctor, asking for the long acting that I’ve have used and would ask him to help me figure out how much of it I would need on a daily basis. When that has happened recently, I would just give myself periodic shots of my regular fast acting to tide me over.
- 3 days, 9 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don't, but I also don't have any long acting insulin
- 3 days, 9 hours ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 3 days, 9 hours ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don't, but I also don't have any long acting insulin
- 3 days, 9 hours ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes I do and I keep long acting insulin in my supplies. But for periods of a day or two I usually just take small doses of my fast acting (Novolog) every two to four hours and do fine with that... Luckily I am 75 years old and get up to use bathroom several times through the night; also my insulin needs are low, about 25 to 30 units per day
Clear All

What was your most recent A1c?

At your current job (or most recent, if you are not currently working), do your coworkers know that you have T1D?

Sarah Howard

Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.

16 Comments

lis be

although my CGM results are different and seem a more accurate picture

2

3 years ago Log in to Reply
Sherolyn Newell

Didn’t we recently have this question?

3 years ago Log in to Reply
Kathy Hanavan

I think it is pretty amazing how great the A1c’s in the exchange are compared to the average type 1 which is something above 7.

2

3 years ago Log in to Reply
Joan Fray

60 years with T1d this month. Only complication is hypoglycemic unawareness. My doc and I both agreed that 6.5-6,8 is a good number for me.

3 years ago Log in to Reply
1. Ahh Life
  
  Funny. I have complete, even intense awareness and my recommended amount is 7.0, so go figure?
  
  3 years ago Log in to Reply
Janis Senungetuk

Eight months ago 6.7, the highest it’s been for many years. My endo wants it to be at 7. For the last 20+ years my A1c results have hovered around 6. I think TIR is more important and I’m pleased with those numbers.

3 years ago Log in to Reply
1. Sheri Marcus
  
  What is TIR?
  
  3 years ago Log in to Reply
2. Hanneke vanProosdij
  
  TIR= Time in range
  
  3 years ago Log in to Reply
Kristine Warmecke

I will have one done next Tuesday at my first in person endocrinologist visit since 2020. Last one was in February.

3 years ago Log in to Reply
mbulzomi@optonline.net

6.3 eight days ago. Down from 6.5.

3 years ago Log in to Reply
Steven Gill

I have a horrible tendency for hypoglycemia, every doc I’ve seen is comfortable with my a1C in tour low 7.

3 years ago Log in to Reply
Sheri Marcus

I just can’t get my A1C down. Ugh!
I am very blessed to have the OmniPod pump and Dexcom G6 GCM but can’t get my glucose under control. Hopefully we will be able to get the new Omnipod 5 AID, Automated Insulin Delivery soon. Hopefully it will help me tremendously!

1

3 years ago Log in to Reply
1. Sheri Marcus
  
  My Last A1c was 9.2 I meant to mention
  
  3 years ago Log in to Reply
Randell Cole

Was lower than I wanted, try to stay around 6

3 years ago Log in to Reply
Linda Zottoli

I think my A1c has probably always read lower than bg would suggest. When glycosylated hemoglobin tests first came out, I remember my doctor remarking that mine was sure lower than most of his patients (I seem to remember an 8, but don’t know how comparable those late 1970s numbers were to the current tests). At least 2 endos have remarked on it more recently. It’s been running mostly in 5s for years, low 5s since Tandem Control IQ, but Dexcom numbers would suggest about 6.

I’ve wondered if I’m just lucky, and the low glycosylation has contributed to my 67 years with T1, more than a third of that without even home blood testing.

3 years ago Log in to Reply
Wanacure

On 18 January 2022 I was 6.0. This was BEFORE using a CGM, just using finger pokes, MDI, lower carb diet, not much exercise. Doctors want it higher. I want it lower and CGM has helped much. Now to the gym. 🤓

3 years ago Log in to Reply