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    • 1 hour, 13 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    What was your most recent A1c?

    Home > LC Polls > What was your most recent A1c?
    Previous

    At your current job (or most recent, if you are not currently working), do your coworkers know that you have T1D?

    Next

    Many people experience diabetes-related stigma, ranging from one-off negative and misinformed comments to more pervasive experiences that can lead people to feel they need to hide their T1D. How much has stigma impacted you or your loved ones with T1D?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. lis be

      although my CGM results are different and seem a more accurate picture

      2
      4 years ago Log in to Reply
    2. Sherolyn Newell

      Didn’t we recently have this question?

      4 years ago Log in to Reply
    3. Kathy Hanavan

      I think it is pretty amazing how great the A1c’s in the exchange are compared to the average type 1 which is something above 7.

      2
      4 years ago Log in to Reply
    4. Joan Fray

      60 years with T1d this month. Only complication is hypoglycemic unawareness. My doc and I both agreed that 6.5-6,8 is a good number for me.

      4 years ago Log in to Reply
      1. Ahh Life

        Funny. I have complete, even intense awareness and my recommended amount is 7.0, so go figure?

        4 years ago Log in to Reply
    5. Janis Senungetuk

      Eight months ago 6.7, the highest it’s been for many years. My endo wants it to be at 7. For the last 20+ years my A1c results have hovered around 6. I think TIR is more important and I’m pleased with those numbers.

      4 years ago Log in to Reply
      1. Sheri Marcus

        What is TIR?

        4 years ago Log in to Reply
      2. Hanneke vanProosdij

        TIR= Time in range

        4 years ago Log in to Reply
    6. Kristine Warmecke

      I will have one done next Tuesday at my first in person endocrinologist visit since 2020. Last one was in February.

      4 years ago Log in to Reply
    7. mbulzomi@optonline.net

      6.3 eight days ago. Down from 6.5.

      4 years ago Log in to Reply
    8. Steven Gill

      I have a horrible tendency for hypoglycemia, every doc I’ve seen is comfortable with my a1C in tour low 7.

      4 years ago Log in to Reply
    9. Sheri Marcus

      I just can’t get my A1C down. Ugh!
      I am very blessed to have the OmniPod pump and Dexcom G6 GCM but can’t get my glucose under control. Hopefully we will be able to get the new Omnipod 5 AID, Automated Insulin Delivery soon. Hopefully it will help me tremendously!

      1
      4 years ago Log in to Reply
      1. Sheri Marcus

        My Last A1c was 9.2 I meant to mention

        4 years ago Log in to Reply
    10. Randell Cole

      Was lower than I wanted, try to stay around 6

      4 years ago Log in to Reply
    11. Linda Zottoli

      I think my A1c has probably always read lower than bg would suggest. When glycosylated hemoglobin tests first came out, I remember my doctor remarking that mine was sure lower than most of his patients (I seem to remember an 8, but don’t know how comparable those late 1970s numbers were to the current tests). At least 2 endos have remarked on it more recently. It’s been running mostly in 5s for years, low 5s since Tandem Control IQ, but Dexcom numbers would suggest about 6.

      I’ve wondered if I’m just lucky, and the low glycosylation has contributed to my 67 years with T1, more than a third of that without even home blood testing.

      4 years ago Log in to Reply
    12. Wanacure

      On 18 January 2022 I was 6.0. This was BEFORE using a CGM, just using finger pokes, MDI, lower carb diet, not much exercise. Doctors want it higher. I want it lower and CGM has helped much. Now to the gym. 🤓

      4 years ago Log in to Reply

    What was your most recent A1c? Cancel reply

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