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  • Activity
    • 21 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 32 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 44 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 45 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 2 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 51 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 3 hours, 57 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours, 57 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 59 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 4 hours, 8 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 14 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 4 hours, 15 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 17 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 33 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 4 hours, 33 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 4 hours, 34 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 4 hours, 34 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 34 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 4 hours, 35 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 35 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 53 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 4 hours, 54 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 4 hours, 56 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 5 hours, 26 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
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    At your current job (or most recent, if you are not currently working), do your coworkers know that you have T1D?

    Home > LC Polls > At your current job (or most recent, if you are not currently working), do your coworkers know that you have T1D?
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    14 Comments

    1. Steven Gill

      I’m not bashful about it, guess it’s part of what makes me work harder. When testing or injecting I’d ask if anyone was squeamish or minded. Absolutely nobody cared. Of course if asked about TYPE 1 diabetes I’d say I had a crippling disease that made me handicapped and unable to survive…

      After working a 10 day/90 hour week (presently at least 3 more days to go). Everyone knows I ‘m on insulin, I’ve tested quite a few blood sugars, seems just about everyone has a cousin/uncle/friend who’s diabetic and struggling (a co-worker’s dad just had toes amputated).

      Yeah I relish to hear “You don’t look like…” or “You don’t act like…” Means I just might die of old age?

      4
      10 months ago Log in to Reply
      1. Ahh Life

        Here’s rooting for old age as the cause, . . . 🌈

        6
        10 months ago Log in to Reply
    2. Britni

      All of my coworkers know. We eat lunch together every day and they hear my Libre alarms all the time. No sense hiding it. Plus my glucagon is useless in an emergency if no one knows about it.

      3
      10 months ago Log in to Reply
    3. Sherolyn Newell

      I’d say pretty much everyone knows. It’s not a big deal around here. A couple people have T1D kids, so they know how it works.

      1
      10 months ago Log in to Reply
    4. Mick Martin

      Many of my coworkers knew that I had diabetes, though some didn’t know the difference between Type 1 and Type 2, even though I’d tried to explain things to them on more than one occasion.

      My immediate coworkers were NOT the ‘problem’. The ‘problem’ existed with my superiors (sic) who used the fact that I’m diabetic against me. i.e. I had to ‘fight’ to get accepted to do Social Work training, with members of the hierarchy suggesting that “it could prove too stressful” for me to complete, and worries that I “may miss time attending the course(s)” due to my diabetes.

      I’ve even talked myself out of being offered different jobs within Social Services as I ‘couldn’t keep my big mouth shut’ and explained that it was down to interviewers’ ignorance about diabetes as to their ‘attitude’ towards me during interviews. šŸ˜‰

      1
      10 months ago Log in to Reply
    5. Virginia Barndollar

      Yes, all of them! As a CCU clinical Pharmacist the nursing and medical staff that I worked with daily, all were aware. And supportive!

      1
      10 months ago Log in to Reply
    6. Sarah Austin

      I was going to answer that some of them know,those I work closely with and are located nearby but I changed it to most of them know as my CGM is usually visible on the back of my arm

      1
      10 months ago Log in to Reply
    7. Thomas Brady

      Holding a top executive position at my last company, and for twenty-five years before that at other companies, I NEVER told anyone except my administrative assistant or executive secretary. With the level of responsibility I had, the competition moving up the corporate ladder and general ignorance about diabetes I found it easier to not disclose it. I had absolute trust in the discretion of my assistant or secretary and they never failed me. If meetings were running over mealtime, she would always offer coffee, drinks or snacks to everyone in the meeting and say to me “The usual for you?” which meant a soda or juice and some packaged cookies. No one was ever the wiser.

      6
      10 months ago Log in to Reply
    8. ConnieT1D62

      Yes, all of them. I never hide it or keep it a secret. They need to know “just in case” an event arises where I need assistance or in a highly unlikely situation where I am unable to answer for myself.

      10 months ago Log in to Reply
    9. Janice B

      I work at a small office and everyone at work knows that I have T1D.

      10 months ago Log in to Reply
    10. Janis Senungetuk

      A severe low at my last 40 hour position many years ago is the reason I became self-employed. I was terminated for creating a disruptive work experience. The Assistant Manager of the department was aware that I had T1D, came to my work area but instead of getting a Coke from the lunchroom called for EMTs to treat me.

      10 months ago Log in to Reply
    11. Lawrence S.

      I’m retired. But, when I was working, I found it to my advantage to tell as many people as possible about my condition, and how to treat a low blood sugar.

      A funny story was when I had a low blood sugar during a physical training session at work. A coworker grabbed me by the arm and ran me down to the administration building and poured a can of soda down my throat. Unfortunately, it was diet soda. Luckily, I became conscious enough to realize that it was diet soda, and was able to get to my bottle of juice. I appreciated that my coworker helped me, and tried his best. In the end, we all got through it okay, and I was back out within 20 minutes finishing the physical therapy session.

      1
      10 months ago Log in to Reply
    12. PamK

      I don’t try to hide my diabetes. However, working as a long-term substitute teacher, I only know the other teachers in my building. So, most of them are aware. As for the rest of the campus, only the school nurse and my supervisor are aware. My students are also aware, but they do not fall under the category of “coworkers.”

      10 months ago Log in to Reply
    13. Wanacure

      When diagnosed in 1959, my endocrinologist advised me to stay in the closet when applying for a job. Wise advice, back then.
      Once I was hired and proved I could do the job, it was up tomy discretion who and when to tell.
      Applying for the Federal Government, you better not cover up anything…because it can be grounds for dismissal regardless of your aptitude. Just say you’ve got diabetes and it’s under excellent control. I also revealed I’d been jailed for protesting war in Vietnam. Even if you’re applying for a lowly file clerk position, sooner or later a nosy snoop will mine the internet; there is no privacy anymore, especially with Feds. Even file clerks, once hired, get fingerprinted and photographed.

      After I was hired, AIDS became a source of panicky misinformation. It was rumored you could get AIDS from public drinking fountains or public toilets! After a couple of months, someone decided I was endangering my co-workers because I injected before lunch. So I had to go to the Fed Building’s nurse’s station on another floor to do my lunch bolus. After a couple more months, I was allowed to return to my station to inject.

      Nowadays I could sue for that shabby treatment. Back then, no legal grounds.

      10 months ago Log in to Reply

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