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    • 9 hours, 30 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 9 hours, 32 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 9 hours, 33 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 9 hours, 34 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 9 hours, 42 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 11 hours, 34 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 11 hours, 35 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 11 hours, 37 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 15 hours, 38 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 17 hours, 40 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 18 hours, 22 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 18 hours, 25 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 18 hours, 49 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 18 hours, 50 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 18 hours, 50 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 18 hours, 51 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 18 hours, 51 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 18 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 18 hours, 56 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 18 hours, 58 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 18 hours, 59 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 19 hours, 11 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 19 hours, 25 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 19 hours, 41 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 7 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    If you wear an insulin pump, how many times in the past month have you had to change your pump site one or more days before the 3-day session was over?

    Home > LC Polls > If you wear an insulin pump, how many times in the past month have you had to change your pump site one or more days before the 3-day session was over?
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    If you wear a CGM, have you ever used expired sensors? If so, did you notice any issues with the sensors?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    35 Comments

    1. LizB

      I think it was twice. One didn’t seem to be working but honestly, if I left it in it probably would have started working. I sometimes run high after a set change. The other time I accidentally ripped it off so that was my fault.

      4 years ago Log in to Reply
    2. Ahh Life

      Probably twice. I was typing the tubing out. It got so bad (I had been using both legs) that I resumed using the abdomen in spite of prolific scars and lipoatrophy since 1996. pump usage. 😑🤕🥴

      2
      4 years ago Log in to Reply
      1. Ahh Life

        Taking! Expletive deleted spell checker.😖

        1
        4 years ago Log in to Reply
      2. Richard Wiener

        Much bleeding?

        4 years ago Log in to Reply
      3. Ahh Life

        Richard–very little bleeding, most poor adhesiveness.

        4 years ago Log in to Reply
    3. Britni

      I don’t wear one anymore, but when I did I routinely changed it every 2 days. When I was first starting out my blood sugars were always higher on the 3rd day, so my doctor rewrote my prescription.

      3
      4 years ago Log in to Reply
    4. BARRY HUNSINGER

      My reservoir only lasts 2 days sometimes 3 if I usually if I go 3 days my BG goes up overall

      3
      4 years ago Log in to Reply
    5. Lawrence Stearns

      I put once. I sometime tear them off when I wear them on my legs.

      4 years ago Log in to Reply
      1. Jan Masty

        Me too. I like to use my legs but they almost always end up getting pulled off.

        4 years ago Log in to Reply
    6. Mike S

      I got a bad box of Omnipods and had four of them fail on me during setup or shortly after. Insulet is good about sending replacement pods, but the process takes some patience. (waiting on hold, having to talk to someone directly to give all the batch information etc. Usually about 15-20 minutes) Wish there was just an online form to fill in. Other than the recent challenges, it’s rare that one fails early.

      1
      4 years ago Log in to Reply
    7. Sahran Holiday

      On a 2 day Omnipod change because of bleeding. Had to change it 4 times in a row. Then it won’t record or provide set bolus based on blood glucose and carbs that are programmed. Watching to see if it’s defective.

      4 years ago Log in to Reply
    8. Kristine Warmecke

      My normal change is 2 to 3 days. This question is worded badly.

      4
      4 years ago Log in to Reply
    9. Mark Fuller

      I never have a problem with my insulin pump insertion and I change it every five days.

      4 years ago Log in to Reply
    10. Carol Meares

      It’s just a guess but truSteel sometimes I have to change more often but mostly get 3 days.

      1
      4 years ago Log in to Reply
    11. Ernie Richmann

      I often change the infusion set before 3 days -my choice and not because I have to.

      1
      4 years ago Log in to Reply
    12. George Lovelace

      23 Year Pumper and when I began it was a “Rule” Steel Sets change on Second Day, Teflon on the Third. But I’ve gone to almost always changing on the Second Day

      4 years ago Log in to Reply
    13. Amanda Barras

      There should be an “other” option here… If eating a regular diet that includes carbs, I use so much insulin that I must either refill my pump on day 2 or put in a brand new site. A brand new site is a better choice as there are absorption issues that can arise after a refill in day 3, but most time it works ok into day 3 with a refill. Luckily tho on a low carb diet that I am currently on I get safely through all 3 days without a refill, and only have had to replace a site early due to poor placement and it getting ripped out.

      1
      4 years ago Log in to Reply
    14. Cyndi Evans

      I now have to change every 2 days to prevent a 3rd day spike. Still trying to figure out the cause, recent insurance change in insulin brand, no XC sets so trying true steel along with the 90’s. Just another diabetes puzzle 🤷🏼‍♀️

      1
      4 years ago Log in to Reply
    15. CandyM

      I agree, this question is not worded well. Are you asking if the pump/pod malfunctions prior to the 3 day required change or do you want to know if we get less than 3 days out of it due to higher insulin needs?
      For me, I have to change my Omnipod about every 56-60 hours because I need more insulin and always run out before the 72 hour mark. It is pretty rare for the pod to malfunction and need to be changed early for that reason.

      1
      4 years ago Log in to Reply
    16. Patricia Dalrymple

      After reading comments I think I am fortunate. I fill my reservoir to 2 ML and get a weeks worth out of it. My A1C is 5.7 and docs don’t like that so I don’t change it more often. I’m LADA for 20 years.

      4 years ago Log in to Reply
    17. Henry Renn

      I already change sites every other day.

      4 years ago Log in to Reply
    18. Louise Robinson

      Beginning last June, I began having insulin absorption issues on Day 3 of my infusion site, no matter where I rotated the site location. Being on Medicare, I only receive 30 infusion sets and cartridges/reservoirs every 90 days unless my doctor can provide documentation of more frequent site changes. (I have been Type 1 since 1976.) It took until August 20 to obtain Medicare approval for site changes every 2.5 days. I have been trying to make my sites last the full 3 days and paying the price with higher BG’s and a higher A1c. I called my Medicare-approved provider, CCS Medical, to advise them that I will be running out of pump supplies before my next scheduled shipment on November 12 (they hadn’t sent me any additional supplies since I had last received them on August 13….my bad for not following up with them sooner despite their assurances when I spoke with them in July and August that they would send extras once the increased frequency received approval. They are sending me extras today to tide me over until the November date of service.) Another skirmish in the battle to maintain good diabetes control.

      3
      4 years ago Log in to Reply
      1. persevereT1D52

        I went through 2 years of fighting with Medicare and supply companies to get enough infusion sets. It was one roadblock after another. I finally gave up and suffer with lack of absorption, discomfort and infections. I’m going to start the fight again in January.

        3
        4 years ago Log in to Reply
    19. Maureen Helinski

      If I wear the Tru Steels they only last 2 days. I did change those more often. The Varisoft last 3+ days.

      1
      4 years ago Log in to Reply
    20. Becky Hertz

      Misleading question or answer, perhaps. I primarily use trusteel so I’m supposed to change it every two days. However, I do get does that don’t work, or work for a day or two then have absorption issues, or are painful from the start. I do occasionally use the Autosoft xc or 90 and rarely get 3 days out of those.

      4 years ago Log in to Reply
    21. Lynn Green

      What insulin pump or session this question referring to? On a tslim pump and change my pump site every 2 days as per my dr’s rx and because I use tru steel.

      4 years ago Log in to Reply
    22. StPetie

      Due to a plethora of abdominal scars and a colostomy, plus being 5′ 10″ and 140 lbs, I have limited room on my abdomen for infusion sites. Therefore, i use my autosoft xc’s for 6 days. After 1-1/2 years I’ve had no absorption issues or other problems. After reading these comments I feel pretty fortunate.

      4 years ago Log in to Reply
    23. Molly Jones

      Only once in the last month did I have to change my pump earlier than my normal “-” day session. This was because my BG wasn’t responding normally and I needed to remedy all the variables.

      4 years ago Log in to Reply
    24. ConnieT1D62

      I use True Steel infusion sets with a Tandem X2 pump and generally wear them for 3 days. This past month? I had no issues.

      4 years ago Log in to Reply
    25. Kevin McCue

      I always change my site at 2 days, site irritation occurs early in the 3rd day. Redness, itching, swelling, insulin resistance in some combination prompted me to get a prescription change that allowed me to change more frequently than every 3 days. No recurring problems since the more frequent site changes.

      1
      4 years ago Log in to Reply
      1. Kevin McCue

        After reading comments I decided to add that I use the T-slim and AutoSoft 90s with 9mm cannula.

        4 years ago Log in to Reply
    26. persevereT1D52

      Unfortunately, due to allergy/sensitivity to adhesives, tubing and cannulas along with significant scarring from 30+ years of pumping I need to use Tru-steel infusion sets and they require changing every other day if I’m lucky.

      4 years ago Log in to Reply
    27. Steven Gill

      Most of the time I damage the insert, which is why I sometimes change after a single day. Today I was in my belly in a crawlspace cleaning mold, while everything is working fine bringing an extra set tomorrow. A little of the tape came loose and I expect it to fail before the task is completed. So when finished I’ll wash up and switch. Otherwise I plan in 3 days pretty consistent.

      Since dropping carbs down to about 30 units a day, 2 years ago was at 27, but prior to meal adjustments this spring almost 40 units a day (down to 115-125 grams carbs).

      4 years ago Log in to Reply
    28. PamK

      I have to change my infusion sets out every other day due to allergies.

      4 years ago Log in to Reply
    29. Dixie Ybarra

      Yes

      4 years ago Log in to Reply

    If you wear an insulin pump, how many times in the past month have you had to change your pump site one or more days before the 3-day session was over? Cancel reply

    You must be logged in to post a comment.




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