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    • 3 hours, 32 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 15 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 17 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 22 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 23 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 23 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 15 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 17 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 17 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 21 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 21 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 22 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 22 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Do you have any of the following autoimmune diseases in addition to T1D? Select all that apply.

    Home > LC Polls > Do you have any of the following autoimmune diseases in addition to T1D? Select all that apply.
    Previous

    When traveling, does changing time zones impact your blood glucose levels? Share your tips for traveling across time zones with T1D in the comments!

    Next

    If you wear a CGM, how important is it to you that you are able to view your CGM readings on a smartphone?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    29 Comments

    1. Daniel Smith

      While I don’t have anything yet, I am always concerned about thyroid stuff. Anxiety and hyperthyroid can feel similar to me. I just keep getting that blood work checked and it’s the number one reason I see my endo every 3 to 4 months.

      5 years ago Log in to Reply
    2. Yaffa Steubinger

      In addition to Hashimoto’s and T1, I have pernicious anemia and autoimmune hepatitis.

      5 years ago Log in to Reply
    3. Julie Akawie

      Where is the option for “None”? I answered N/A, even though as a person with T1D the question is, in fact, applicable.

      1
      5 years ago Log in to Reply
    4. ConnieT1D62

      T1D Exchange has asked this question before. For those of us who have answered it in previous QOTD surveys, does it skew the outcome data? Or not?

      2
      5 years ago Log in to Reply
    5. Rebecca Lambert

      Hemalytic anemia and vitiligo in addition to type 1 and Graves. Diagnosed with Polyglandular Autoimmune Syndrome.

      1
      5 years ago Log in to Reply
    6. connie ker

      There should have been an option that said “NO” so I checked N/A.

      2
      5 years ago Log in to Reply
      1. Joan McGinnis

        ditto

        1
        5 years ago Log in to Reply
    7. Tina Roberts

      N/A. Not sure yet. Seeing a rheumatologist in September.

      5 years ago Log in to Reply
    8. Denise Lyons

      I was diagnosed with vitiligo more than 10 years prior to my T1D diagnosis. Just diagnosed with T1D last year.

      5 years ago Log in to Reply
    9. Kristine Warmecke

      I have Moyamoya Disease. It’s thought it maybe autoimmune, no one wants to do research on it though, because it’s it not a money maker.

      5 years ago Log in to Reply
    10. Steve Gold

      I have Normal Pressure Hydrocephalus

      5 years ago Log in to Reply
    11. rick phillips

      I am a 3-time winner. T1D – RA – AS

      5 years ago Log in to Reply
    12. Henry Renn

      T1 65 yrs: other autoimmune diseases – Vitiligo 30 yrs, Unknown Autoimmune Disease 21 yrs.,

      5 years ago Log in to Reply
    13. Pauline M Reynolds

      In addition to Type I, enteropathic arthritis (I marked Crohn’s and rheumatoid arthritis), Hashimoto’s thyroiditis, I also have seborheic dermatitis. Don’t know if that’s autoimmune.

      5 years ago Log in to Reply
    14. Stacia Wohlford

      Not sure if this counts, but I have hypothyroidism.

      5 years ago Log in to Reply
      1. AnitaS

        Stacia, yes it does—under the thyroid disease category. I have that too. Never heard it called Hashimoto by any of my doctors, but I believe Hashimoto is a type of low thyroid.

        5 years ago Log in to Reply
    15. Wayne Rybak

      Vitiligo Skin Disease
      Pyronines Disease

      5 years ago Log in to Reply
    16. Maurine Bowser

      Pernicious anemia- I get B-12 injections monthly.

      1
      5 years ago Log in to Reply
      1. lis be

        me too, just diagnosed. Autoimmune atrophic gastritis. Need B-12 injections

        5 years ago Log in to Reply
      2. Stang777

        I also have pernicious anemia. Was diagnosed with it close to 25 years before getting type 1.

        5 years ago Log in to Reply
    17. Molly Jones

      I have Hashimoto’s as does every member of my mother’s family.
      I also have extremely high GAD 65 antibodies (above 25,000) which causes some if not all of my epileptic seizures.

      I assume GAD 65 antibodies were the cause of all of my autoimmune problems as a few years after a vitamin b deficiency, epilepsy happened, then thyroid, then T1D.
      I will be grateful not to gain many more of the autoimmune conditions my mother’s family has.

      5 years ago Log in to Reply
    18. PamK

      Was diagnosed with UC @15 years ago. Very stressful time in my life, which is what I think caused it. My doctor thinks if’s because of my diabetes (over 50 years). Psoriasis just diagnosed in the past 6 months.

      5 years ago Log in to Reply
      1. Becky Cain

        I was diagnosed with lymphocytic colitis which is autoimmune.

        5 years ago Log in to Reply
    19. Wanacure

      Mild skin cancer. Once a year for past 3 years at least one small melanoma has been surgically removed using local anesthetic in a doctor’s office. For past two years they’ve been removed by dermatology specialist. No big deal. Cancer is an auto-immune disease. Why didn’t you include it? Also just this year an endoscopy revealed celiac disease. Since I’m already on a low carb diet, and do not pasta, bread or grains the diagnosis made no difference in my life except maybe to explain an anomalous factor in past lab tests.

      5 years ago Log in to Reply
    20. Bonnie Lundblom

      Thyroid disease and vitiligo, both diagnosed within a few years after my T1D.

      5 years ago Log in to Reply
    21. T1D5/1971

      T1 – 50 years ago. First misdiagnosed as a UTI.
      Hashimoto’s – 25 years ago. This one was diagnosed correctly.
      Seronegative Inflammatory arthritis – 10 years ago. Diagnosed as RA, but questioned by more than one specialist. May be psoriatic.
      Possible pustular psoriasis – awaiting specialist confirmation. Misdiagnosed as folliculits.
      Idiopathic guttate hypomelanosis (most likely another autoimmune disease) – more than 10 years. Misdiagnosed as vitiligo.
      Can’t get the auto-antibody testing that’s recommended every 2 years for those of us with Polyglandular Autoimmune Syndrome. My doctors know nothing about this condition, including my primary care doc and multiple specialists – and can’t be bothered to learn. There could well be more as yet undiagnosed autoimmune issues going on.

      5 years ago Log in to Reply
    22. Jena Benoit

      T1D (for 7 years), Hypothyroidism (for 2 years), POTS (which some consider to be autoimmune, for 15 years)

      5 years ago Log in to Reply
    23. persevereT1D52

      I seem to be diagnosed with a new autoimmune disease regularly. Most significant being CIDP chronic inflammatory demyelinating polyneuropathy. Another is burning mouth syndrome which has a surprising effect on my quality of life. Several skin conditions which effect the use of the pump and cgm

      5 years ago Log in to Reply
    24. Becky Cain

      I have Sjogren’s which is autoimmune and also lymphocytic colitis which is different from ulcerative colitis. Lymphocytic is autoimmune.

      5 years ago Log in to Reply

    Do you have any of the following autoimmune diseases in addition to T1D? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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