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    • 2 hours, 24 minutes ago
      Bruce Schnitzler likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I broke down for the first time in 25 years and bought a bottle of insulin because I think I may have thrown a bottle out with the box. Medicare wouldn’t fill the prescription because it was too early. I just didn’t want the fight and worry. I’m not sure that’s what happened but it’s the only explanation. Also, I live in Florida and the threat of losing power is always there. I should get a generator but I’m a little afraid of them and you still can’t be sure you have access to propane. If my insulin goes bad, I’m not sure I could get refills. My back up plan is to leave before hurricane or go to a hospital. But it is all just causes concern.
    • 2 hours, 56 minutes ago
      Karen Newe likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 3 hours, 14 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Very! However, I wish I could use Fiasp insulin in the Tandem pumps.
    • 3 hours, 15 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 3 hours, 15 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 4 hours, 42 minutes ago
      Patricia Dalrymple likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Try Uni-Solve Adhesive Remover (smith&nephew)- wipe it on wait a minute to let it work and it will come off easy. at least it works great for me and I've tried several different brands, I use it for CGM & Omnipod removal
    • 11 hours, 42 minutes ago
      Sandy Norman likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 19 hours, 8 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 19 hours, 8 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 19 hours, 9 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 19 hours, 10 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 22 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 23 hours, 55 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 1 day, 1 hour ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day, 3 hours ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day, 4 hours ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 16 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 16 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 17 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 2 days ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 2 days ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
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    For how many years have you (or your loved one) been living with T1D so far?

    Home > LC Polls > For how many years have you (or your loved one) been living with T1D so far?
    Previous

    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.

    Next

    If you have T1D, has anyone ever misinterpreted your low blood glucose for intoxication?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. LizB

      This past April marked 34 years for me.

      1
      5 years ago Log in to Reply
    2. rick phillips

      Amazing that 17% of us are in the over 50 group

      7
      5 years ago Log in to Reply
    3. Beverly Crosby

      67 years and counting. Use to have to boil my syringes and needles on the stove. Used strips to check my urine that told me what my blood sugar was 2 hours prior. We’ve come a LONG way baby.

      18
      5 years ago Log in to Reply
      1. Sue Martin

        It’s nice to have the tools and insulin that have gotten better during my duration as well (36 years). I hope they continue to improve.

        4
        5 years ago Log in to Reply
    4. Kristen Clifford

      13 years this past April

      5 years ago Log in to Reply
    5. Lawrence Stearns

      This is one of the more interesting statistics. Being a T1D, I almost always feel alone with this disease, and am unaware of other T1D’s out there. I thought I might be one of the longest living T1D’s with the disease for 44 years. Now I know that there are many who have lived much longer. Congratulations to all of the long timers. I hope to get to the top of the percentile.

      11
      5 years ago Log in to Reply
      1. T1DGJ

        I feel exactly the same! And I thought I was a long-timer at 37 years. This is so encouraging and delightful!!

        3
        5 years ago Log in to Reply
      2. Jonathan Lowenson

        It is “many” in our group, but we are enriched in long timers. I wonder what the national/international numbers are…

        5 years ago Log in to Reply
    6. Joan Fray

      59 long years.

      6
      5 years ago Log in to Reply
    7. Jen Smith

      49 years next month. No complications, praise God! 🙌🏼

      3
      5 years ago Log in to Reply
    8. lynda meyer

      68 years here!

      7
      5 years ago Log in to Reply
    9. Richard Vaughn

      Diagnosed in Sept, 1945. Type 1 for 75 years. No serious complications.

      14
      5 years ago Log in to Reply
    10. ConnieT1D62

      59 years, diagnosed at age 8. And I figure I have another 12 to 18 of good life years before I depart this earthly body.

      1
      5 years ago Log in to Reply
      1. Sydney Bush

        Hopefully, you’ll have many more than that! My parents were told I’d be lucky to get to 20 years old (diagnosed at 16 months), but I turned 70 in March and am doing pretty well.

        2
        5 years ago Log in to Reply
    11. Ronny Samuels

      Some days living, Some days surviving

      2
      5 years ago Log in to Reply
    12. Anneyun

      43 years.

      5 years ago Log in to Reply
    13. Kristine Warmecke

      I’m 39 years, this year, my younger brother is 49 years and his daughter is 17 years as T1D.

      5 years ago Log in to Reply
    14. Kathy Krapohl

      Dx. June 8 or 15 1983, 38 years

      1
      5 years ago Log in to Reply
    15. Brandon Denson

      I’m a Diabetes Warrior!

      1
      5 years ago Log in to Reply
    16. Kaylea Bowers

      21 years on July 20 :-\

      1
      5 years ago Log in to Reply
    17. Sydney Bush

      I turned 70 in March and next Thursday, July 8, (my mom’s 94th birthday), I will have been diagnosed with Type 1 for 69 years!

      4
      5 years ago Log in to Reply
    18. Bob Durstenfeld

      I was Dx’d in 1956, 65 years for me. Not doing too bad. Better than my dad at this age, he was Dx’d in 1931 and died in 2000. My eldest of three sons (34 years with T1D) and his daughter (1.5 years with T1D) also have T1D.

      2
      5 years ago Log in to Reply
    19. Marla Peaslee

      20 years for my son. 53 years for me.

      5 years ago Log in to Reply
    20. Janis Senungetuk

      66 yrs, dx at 8 in 1955

      5 years ago Log in to Reply
    21. Angela Naccari

      I will have been diagnosed 60 years in November! Age 6 in 1961.

      5 years ago Log in to Reply
    22. George Lovelace

      I was a ‘late bloomer’, 15 yo at Dx in ’64 so I’m at T1 year 57. Dad was a LADA Dxed in ’40, passed after 49 yrs T1. On Dex & Tandem CIQ, hope to replace it at least 2 more times (at least 82 yo)

      1
      5 years ago Log in to Reply
    23. Christina Trudo

      59 years this month- diagnosed at age 11 in 1962

      1
      5 years ago Log in to Reply
    24. Linda Smith

      Diagnosed in April of 1963. That makes 58 years.

      1
      5 years ago Log in to Reply
    25. Mitch Chernoff

      It’s 56 years. Diagnosed when I was 12. Used UltraLente for something like the first 25 years, sometimes mixed with Regular. Lots has changed.

      1
      5 years ago Log in to Reply
    26. Carlin Sadowski

      Seeing these comments from yall more seasoned diabetics make me really happy. So amazing to see so many long lives with diabetes. Just had my 18th dx anniversary myself!

      1
      5 years ago Log in to Reply
    27. Daniel Bestvater

      I have been T1D for about 45 years. No serious complications, just frozen & sore shoulders for the past ~ 10 years.

      5 years ago Log in to Reply
    28. Brenda Lipscomb

      53+ years.
      Diagnosed at 11 months old, Jan 1968. I’m blessed to not have any other autoimmune issues, nor any complications from diabetes. Happy, Healthy… and unless I die of something else, I’ll probably live to be at least 95, therefore be possibly the oldest living T1. ??? 🙂

      1
      5 years ago Log in to Reply
    29. KarenM6

      50 years in November this year!

      5 years ago Log in to Reply
    30. Ben Galindo

      64 yrs & counting, my original Endo said if I took perfect care I might see 40 74 & still kicking!

      1
      5 years ago Log in to Reply
    31. JoAnn Pinkowitz

      Diagnosed 55 years ago and doing well with no complications.

      1
      5 years ago Log in to Reply
    32. MikeeB.

      Fifty four years (54) and I’m a US Naval Aviation Vet.

      5 years ago Log in to Reply

    For how many years have you (or your loved one) been living with T1D so far? Cancel reply

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