Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 19 hours, 7 minutes ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 19 hours, 8 minutes ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 19 hours, 9 minutes ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 20 hours, 50 minutes ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 20 hours, 50 minutes ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 21 hours, 30 minutes ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 22 hours, 11 minutes ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 22 hours, 18 minutes ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 22 hours, 48 minutes ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 22 hours, 48 minutes ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 22 hours, 58 minutes ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 22 hours, 58 minutes ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 22 hours, 58 minutes ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 23 hours ago
      Kathy Hanavan likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 23 hours, 29 minutes ago
      John Barbuto likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 23 hours, 55 minutes ago
      KCR likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 23 hours, 55 minutes ago
      KCR likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day ago
      Katrina Mundinger likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Scylla and Charybdis being perhaps more apt.
    • 1 day ago
      TEH likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 3 hours ago
      Ahh Life likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      After 70 years with T1d and some reduced kidney function and seeing my dad's poor recovery after a kidney transplant, I have no desire to be subjected to chemicals that would further accelerate the demise of my kidneys.
    • 1 day, 19 hours ago
      lis be likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
    • 1 day, 19 hours ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 2 days, 1 hour ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 2 days, 1 hour ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 2 days, 1 hour ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    For how many years have you (or your loved one) been living with T1D so far?

    Home > LC Polls > For how many years have you (or your loved one) been living with T1D so far?
    Previous

    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.

    Next

    If you have T1D, has anyone ever misinterpreted your low blood glucose for intoxication?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 6 days ago 7 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 3 weeks ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 4 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 4 weeks ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 1 month ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 2 months ago 5 min read  

    36 Comments

    1. LizB

      This past April marked 34 years for me.

      1
      5 years ago Log in to Reply
    2. rick phillips

      Amazing that 17% of us are in the over 50 group

      7
      5 years ago Log in to Reply
    3. Beverly Crosby

      67 years and counting. Use to have to boil my syringes and needles on the stove. Used strips to check my urine that told me what my blood sugar was 2 hours prior. We’ve come a LONG way baby.

      18
      5 years ago Log in to Reply
      1. Sue Martin

        It’s nice to have the tools and insulin that have gotten better during my duration as well (36 years). I hope they continue to improve.

        4
        5 years ago Log in to Reply
    4. Kristen Clifford

      13 years this past April

      5 years ago Log in to Reply
    5. Lawrence Stearns

      This is one of the more interesting statistics. Being a T1D, I almost always feel alone with this disease, and am unaware of other T1D’s out there. I thought I might be one of the longest living T1D’s with the disease for 44 years. Now I know that there are many who have lived much longer. Congratulations to all of the long timers. I hope to get to the top of the percentile.

      11
      5 years ago Log in to Reply
      1. T1DGJ

        I feel exactly the same! And I thought I was a long-timer at 37 years. This is so encouraging and delightful!!

        3
        5 years ago Log in to Reply
      2. Jonathan Lowenson

        It is “many” in our group, but we are enriched in long timers. I wonder what the national/international numbers are…

        5 years ago Log in to Reply
    6. Joan Fray

      59 long years.

      6
      5 years ago Log in to Reply
    7. Jen Smith

      49 years next month. No complications, praise God! 🙌🏼

      3
      5 years ago Log in to Reply
    8. lynda meyer

      68 years here!

      7
      5 years ago Log in to Reply
    9. Richard Vaughn

      Diagnosed in Sept, 1945. Type 1 for 75 years. No serious complications.

      14
      5 years ago Log in to Reply
    10. ConnieT1D62

      59 years, diagnosed at age 8. And I figure I have another 12 to 18 of good life years before I depart this earthly body.

      1
      5 years ago Log in to Reply
      1. Sydney Bush

        Hopefully, you’ll have many more than that! My parents were told I’d be lucky to get to 20 years old (diagnosed at 16 months), but I turned 70 in March and am doing pretty well.

        2
        5 years ago Log in to Reply
    11. Ronny Samuels

      Some days living, Some days surviving

      2
      5 years ago Log in to Reply
    12. Anneyun

      43 years.

      5 years ago Log in to Reply
    13. Kristine Warmecke

      I’m 39 years, this year, my younger brother is 49 years and his daughter is 17 years as T1D.

      5 years ago Log in to Reply
    14. Kathy Krapohl

      Dx. June 8 or 15 1983, 38 years

      1
      5 years ago Log in to Reply
    15. Brandon Denson

      I’m a Diabetes Warrior!

      1
      5 years ago Log in to Reply
    16. Kaylea Bowers

      21 years on July 20 :-\

      1
      5 years ago Log in to Reply
    17. Sydney Bush

      I turned 70 in March and next Thursday, July 8, (my mom’s 94th birthday), I will have been diagnosed with Type 1 for 69 years!

      4
      5 years ago Log in to Reply
    18. Bob Durstenfeld

      I was Dx’d in 1956, 65 years for me. Not doing too bad. Better than my dad at this age, he was Dx’d in 1931 and died in 2000. My eldest of three sons (34 years with T1D) and his daughter (1.5 years with T1D) also have T1D.

      2
      5 years ago Log in to Reply
    19. Marla Peaslee

      20 years for my son. 53 years for me.

      5 years ago Log in to Reply
    20. Janis Senungetuk

      66 yrs, dx at 8 in 1955

      5 years ago Log in to Reply
    21. Angela Naccari

      I will have been diagnosed 60 years in November! Age 6 in 1961.

      5 years ago Log in to Reply
    22. George Lovelace

      I was a ‘late bloomer’, 15 yo at Dx in ’64 so I’m at T1 year 57. Dad was a LADA Dxed in ’40, passed after 49 yrs T1. On Dex & Tandem CIQ, hope to replace it at least 2 more times (at least 82 yo)

      1
      5 years ago Log in to Reply
    23. Christina Trudo

      59 years this month- diagnosed at age 11 in 1962

      1
      5 years ago Log in to Reply
    24. Linda Smith

      Diagnosed in April of 1963. That makes 58 years.

      1
      5 years ago Log in to Reply
    25. Mitch Chernoff

      It’s 56 years. Diagnosed when I was 12. Used UltraLente for something like the first 25 years, sometimes mixed with Regular. Lots has changed.

      1
      5 years ago Log in to Reply
    26. Carlin Sadowski

      Seeing these comments from yall more seasoned diabetics make me really happy. So amazing to see so many long lives with diabetes. Just had my 18th dx anniversary myself!

      1
      5 years ago Log in to Reply
    27. Daniel Bestvater

      I have been T1D for about 45 years. No serious complications, just frozen & sore shoulders for the past ~ 10 years.

      5 years ago Log in to Reply
    28. Brenda Lipscomb

      53+ years.
      Diagnosed at 11 months old, Jan 1968. I’m blessed to not have any other autoimmune issues, nor any complications from diabetes. Happy, Healthy… and unless I die of something else, I’ll probably live to be at least 95, therefore be possibly the oldest living T1. ??? 🙂

      1
      5 years ago Log in to Reply
    29. KarenM6

      50 years in November this year!

      5 years ago Log in to Reply
    30. Ben Galindo

      64 yrs & counting, my original Endo said if I took perfect care I might see 40 74 & still kicking!

      1
      5 years ago Log in to Reply
    31. JoAnn Pinkowitz

      Diagnosed 55 years ago and doing well with no complications.

      1
      5 years ago Log in to Reply
    32. MikeeB.

      Fifty four years (54) and I’m a US Naval Aviation Vet.

      5 years ago Log in to Reply

    For how many years have you (or your loved one) been living with T1D so far? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]