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    • 18 hours, 2 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 18 hours, 8 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 18 hours, 14 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 15 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 19 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 17 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    Over the past 12 months, how many telehealth appointments have you had with your main diabetes care provider?

    Home > LC Polls > Over the past 12 months, how many telehealth appointments have you had with your main diabetes care provider?
    Previous

    Do you have any appointments currently scheduled with your main T1D healthcare provider?

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    When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    14 Comments

    1. Ahh Life

      3. And it’s a royal pain in the arse to take 90 minutes to drive each way to a 42 mile appointment. And my age and my eyesight barely allow me to drive anyway. Bah humbug. 🤩

      2 years ago Log in to Reply
    2. Lawrence S.

      I guessed “1”. It could have been “2”. Not sure. Anyway, from 2020 until the beginning of 2023, almost all of my visits were on zoom. But, this year, I started going back to see my Endo. I’m just not sure when I started.

      2 years ago Log in to Reply
    3. Megan S

      Since we met virtually over the pandemic and I am fully connected/am capable of uploading any information they may need, we agreed as things opened to do every other in person/virtual. They aren’t a local doc but I prefer their care and am willing to drive as needed, but it is nice to be able to take a break and not worry about it 1/2 the time.

      2 years ago Log in to Reply
    4. Karen Tay

      I answered without reading the question thoroughly
      My answer should have been “none” by telehealth

      2 years ago Log in to Reply
      1. Tracy Jean

        I did the same.

        2 years ago Log in to Reply
    5. Mary Dexter

      Medicare requires me to have appointments every 6 months to keep getting CGM supplies. Getting those appointments has become increasingly difficult. I am so tired of the runaround and excuses and the promises that they are in the process of fixing it.

      2 years ago Log in to Reply
    6. Derek West

      I have not seen my Endocrinologist in person since the start of the pandemic. All visits by Zoom with uploaded pump/CGM data and blood work.

      2 years ago Log in to Reply
    7. Patricia Kilwein

      My private insurance and now medicare require me to vis5my doctors evert 3 months.

      2 years ago Log in to Reply
      1. Patricia Kilwein

        Visit

        1
        2 years ago Log in to Reply
    8. Janis Senungetuk

      None. Over the pandemic I had three virtual Telehealth endo appointments. Bah humbug! No thanks! As soon as the clinic resumed in-person appointments I’ve opted to be three feet away from her instead. Virtual appointments do not include blood pressure checks or getting my heart and lungs listened to with a stethoscope or checking for edema in my ankles. That’s all an important part of every 90 day appointment that I don’t want ignored.

      1
      2 years ago Log in to Reply
    9. Trina Blake

      I’ve been having teleappts for a few years now. I prefer them. Less time from my workday, I upload my data every month so the Endo folks know how I am doing. I do get labs drawn n persona every 3-4 months – can’t do that successfully myself!. I monitor my BP etc and I’ve often posted about the lack of respect for patients at the Endo practice I have to use – and I try to avoid the scolding as much as possible.

      2 years ago Log in to Reply
    10. Becky Hertz

      My endo is not easy to get in to and her first available was later in the day. Did a video visit to avoid traffic. Usually I do in person and prefer those.

      2 years ago Log in to Reply
    11. Gerald Oefelein

      1, thanks to COVID.

      2 years ago Log in to Reply
    12. George Lovelace

      Though I only lived 5 minutes away from Endo’s office I made 2 Televists of the 3 Medicare will let her get by with because she Follows my Dexcom and suggests changes as needed, Now that I live an hour away the only in office appt will be for an A1c

      2 years ago Log in to Reply

    Over the past 12 months, how many telehealth appointments have you had with your main diabetes care provider? Cancel reply

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