Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 18 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 12 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 15 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?

    Home > LC Polls > How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?
    Previous

    How many people in your family — grandparents, aunts, uncles, cousins, parents, siblings, spouse, etc. — live with type 2 diabetes? Share who in the comments!

    Next

    If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 2 days ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 2 weeks ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 3 weeks ago 5 min read  
    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 4 weeks ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 1 month ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 1 month ago 1 min read  

    23 Comments

    1. Molly Jones

      I am the only one with T1D, but 75% of my immediate family have autoimmune issues.

      2
      2 years ago Log in to Reply
      1. Lawrence S.

        My reply is the same as yours, Molly.

        2 years ago Log in to Reply
    2. mlettinga

      My younger brother and I have type 1. I was diagnosed at 8 and was 5. I do have several 2nd cousins from my mom side who do also.

      2 years ago Log in to Reply
    3. Gary Taylor

      Myself and my oldest daughter. I was 18 when diagnosed. She was 23 when diagnosed.

      2 years ago Log in to Reply
    4. KIMBERELY SMITH

      Step dad passed away from Type 2 Dietetic

      2 years ago Log in to Reply
    5. Alyne Branson

      I am adopted and have always told doctors, etc. that when asked if anyone in my family has type 1. Now I have 2 children and neither have it. I just found out that the daughter of my birth father (biological 1/2 sister) has had type 1 since she was 6 yrs old.

      2 years ago Log in to Reply
    6. Brian Vodehnal

      Honestly anyone living with you , you’re the only one, lives with diabetes. Kinda vague on the “living” term.

      3
      2 years ago Log in to Reply
    7. Tanya Levchuk

      My older half brother and I both have type 1. He was diagnosed at 12 and I was at 8.

      2 years ago Log in to Reply
    8. Nichole Pleisch

      Myself, a parent and my fiancé

      2 years ago Log in to Reply
    9. Bob Durstenfeld

      My dad was the first, then me, then two of my younger siblings, then my eldest son, then his eldest daughter. All of us were diagnosed under age 2.

      2 years ago Log in to Reply
    10. Donal Conway

      Two cousins on my Mothers side have T1 since their before and after their teenage years. A few more developed T2 on the same side of the family. I was the first diabetes T1 diagnosed 53 years ago in my family. None of my children or Grandchildren so far have fortunately escaped the condition. I preach the gospel that there are a lot worse conditions out there that some people are unfortunately been discovered with? Diabetes is a very manageable condition to get. I am trying to prove that in a very positive and visible way.

      2 years ago Log in to Reply
    11. Mick Martin

      I selected “I am the only one in my family who lives with T1D”, which is true, but I did have a younger brother, also T1D, that died a couple of years ago.

      Other members of my extended family, two cousins, also have T1D, and 2 of my siblings have T2D.

      2 years ago Log in to Reply
    12. Carol Meares

      To be clear. My sister and I both have LADA. I put 2, counting myself.

      2 years ago Log in to Reply
    13. Lyn McQuaid

      My father is the only other person in my family with type one diabetes and we were both diagnosed right around the same age. We were both in our early 20s but when he was diagnosed in the early 1960’s, he was misdiagnosed as type two because of his age. Fortunately, when I was diagnosed in 1993, I was diagnosed correctly immediately, perhaps because of my father.

      2 years ago Log in to Reply
    14. Pauline M Reynolds

      I am the only one with Type I, but Type 2 has had its way with us. My husband, and four out of five children have/had Type 2!

      2 years ago Log in to Reply
    15. Kristen Clifford

      Pretty sure this one has been asked before

      2 years ago Log in to Reply
    16. Natalie Daley

      Live or lived? My older brother was T1D and died 13 years ago at age 67. I’m 77 and 4.5 years younger than he was, but I became T1D 17 years later than he did at age 23. I was 40.

      2 years ago Log in to Reply
    17. Lenora Ventura

      I chose I am the only one living with T1D but my dad had T1D for 40 years before a heart attack ended his journey. We had 15 years together as moral support which I greatly miss.

      2 years ago Log in to Reply
    18. Twinniepoo74

      My niece and I. I was diagnosed 1 year before my niece was diagnosed.

      2 years ago Log in to Reply
    19. Bruce Johnson

      My younger sister⁷

      2 years ago Log in to Reply
    20. Rex Franklin

      I’m the only T1D in my immediate family.

      2 years ago Log in to Reply
    21. Steve Rumble

      I answered 1 because my spouse was T1D, however she died of cancer 3 years ago, so now no one in my immediate family is T1D.

      2 years ago Log in to Reply
    22. PamK

      I wish I could have answered “Other,” but chose 1 other person. One of my parents has LADA and was diagnosed after I have had lived with T1D for over 20 years.

      2 years ago Log in to Reply

    How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]