Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 8 hours, 1 minute ago
      Amanda Barras likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      It would depend on if it was blood sugar responsive. I currently have an A1c near 6 and don’t want to give up control.
    • 14 hours, 4 minutes ago
      Bruce Schnitzler likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      This sounds like a pipe dream to me. I said, "Not at all interested," with a little unsure. How would one dose a week of insulin handle high and low blood glucose? How would it handle exercise and work activities? If you're talking only as a long-acting insulin, and you have to take boluses, then it's NOT once-weekly. I took NPH years ago, and it was a horrible experience for me (for 25 yrs. ).
    • 14 hours, 5 minutes ago
      Bruce Schnitzler likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 18 hours ago
      Molly Jones likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 21 hours, 31 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      If it handled basal and bolus correctly, where my time in range was 80-90% and I only had to do one shot a week that would be amazing
    • 21 hours, 31 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Would this be a basal insulin? How would meal-time insulin be administered? And how would fluctuating insulin needs (day vs night, sedentary vs active) be managed with a single dose? I have many questions that outweigh the possible convenience of a single injection (if that’s what this question is about).
    • 21 hours, 32 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 21 hours, 32 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 21 hours, 32 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I said moderately because being on Medicare, I’d need much more information such as how many weeks would I be able to have on hand without additional prescriptions? Would I still need some kind of preauthorization once per year that’s a hassle getting? How long would it stay good - the same amount of time? Would the pump take a week’s worth or how does that work with pump supplies?
    • 21 hours, 42 minutes ago
      eherban1 likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I'm MDI and if we're talking basal it isn't a big deal to me. Now if we're talking fast acting, that's a much different story!
    • 21 hours, 45 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Would this be a basal insulin? How would meal-time insulin be administered? And how would fluctuating insulin needs (day vs night, sedentary vs active) be managed with a single dose? I have many questions that outweigh the possible convenience of a single injection (if that’s what this question is about).
    • 21 hours, 45 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 21 hours, 45 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 21 hours, 47 minutes ago
      KCR likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 21 hours, 47 minutes ago
      KCR likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I'm MDI and if we're talking basal it isn't a big deal to me. Now if we're talking fast acting, that's a much different story!
    • 21 hours, 52 minutes ago
      Bonnie Lundblom likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 21 hours, 59 minutes ago
      eherban1 likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      I find I can normalize my BG in 15-30 minutes. But after ~50 years with T1D and maybe due to getting older I am fairly exhausted for hours after a hypo.
    • 22 hours ago
      eherban1 likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      To feel like it hadn’t happened I need a nap.
    • 22 hours, 1 minute ago
      Derek West likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      It varies from 5 minutes to 20 minutes. The exception to this is the very occasional low that's resistant to resolving and - as Anthony said in his comment - I continue adding more glucose until I begin to feel the symptoms ebb. Once the low is gone the extra glucose will slowly but surely result in a higher-than-desired blood sugar.
    • 22 hours, 1 minute ago
      Derek West likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      I answered 15-30 minutes, but there are times, especially at night, especially when very low, that it can take 1-2 hours. That's a real pain. I just keep throwing glucose at the problem which will creat high readings later, but I have to get the glucose reading to rise and it won't. Also, my best quality decisions are not made when awoken in the middle of the night.
    • 22 hours, 4 minutes ago
      Debbie Pine likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 22 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never! I think about my blood sugar so much less with all these devices attached. And I barely notice them once they are on. It’s such a blessing that when I have to take them off that’s more of a problem/inconvenience than a vacation.
    • 22 hours, 17 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never. I have severe hypoglycemic unawareness. No symptoms even at glucose levels of 40.
    • 22 hours, 18 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Nope. Love my technology! Having it frees up so much mental bandwidth that I would otherwise have to spend on finger sticks, calculating insulin doses, figuring how much insulin on board, etc. Also, I love not carrying a purse with all that "stuff" everywhere I go - I put my license & credit card in my phone case and I'm hands-free. Absolute magic!
    • 22 hours, 19 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Not sure how I would without serious ramifications!
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed?

    Home > LC Polls > If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed?
    Previous

    How often do you clean your skin with an alcohol wipe before giving yourself an injection or inserting a new pump site or sensor?

    Next

    Do you currently have a kit containing the diabetes supplies you would need in case of a natural disaster or emergency?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 3 days ago 5 min read  
    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 2 weeks ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 2 weeks ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 3 weeks ago 1 min read  
    Advocacy

    The Language of Type 1 Diabetes: Why Words Matter 

    Jewels Doskicz, 3 weeks ago 6 min read  
    News

    Understanding Time in Range, GMI, and A1C in Type 1 Diabetes 

    Jewels Doskicz, 1 month ago 4 min read  

    19 Comments

    1. Scott Rudolph

      It was two weeks before my eighteenth birthday.

      2 years ago Log in to Reply
    2. lynda meyer

      I was 4 when I was diagnosed. In May I “celebrated” my 70th year living with T1D!

      10
      2 years ago Log in to Reply
      1. Mick Martin

        @lynda meyer. Bless you, ma’am. May you survive a long and healthy life.

        2 years ago Log in to Reply
    3. dholl62@gmail.com

      I was diagnosed at age 18

      2 years ago Log in to Reply
    4. Joan Benedetto

      My son, now 11.5, was diagnosed at 18 months of age.

      2 years ago Log in to Reply
    5. Kristine Warmecke

      I was diagnosed at 11 years in 1982, my brother was diagnosed at 7 months old in 1972 and his oldest daughter was 23 months old in 2004.

      2 years ago Log in to Reply
    6. mlettinga

      My younger brother was diagnosed at 5 and I at 8. My poor parents as this was 55 years ago in the dark ages of juvenile diabetes as it was called back then. Average life span after diagnosis 20 years.

      2 years ago Log in to Reply
    7. Edward Geary

      Barely, I was eighteen and totally unprepared for what lay ahead. As the saying goes
      : “if I knew then….”

      2 years ago Log in to Reply
    8. Lyn McQuaid

      I was diagnosed shortly after I turned 20, which is technically “adult” status, but I was in college and still living at home. Now, 30 years later, I think of myself as being a “kid” at diagnosis as I was not yet living what I think of as my “adult” life.

      2 years ago Log in to Reply
    9. Ahh Life

      At age 4, life was as simple as an Amazon 1-swipe—poke a syringe in with NPH and regular.

      Now life is more complicated than Byzantine philosophy—insulin, inserts, tubing, syringes, skin wipes, alcohol, algorithms, adjustments, hardware, software, vaporware, cgm’s, overpatches, signal interference, test strips, glucometers, , steroid interferences, PPI interferences, and other complications to be tended to.

      And I haven’t even gotten to the Byzantine-squared public/private/not-for-profit/for-some-profit-but-not-all-profit gargantuan American medical system frustrations and delays.

      Dying unto one’s former self to be born anew is an old Christian trope. I think I know where its appeal comes from. Sigh! 😖🤣😑

      2 years ago Log in to Reply
    10. George Lovelace

      15 and ever since Life has been a “Shot in the Dark” even with CGMs and Control IQ

      2 years ago Log in to Reply
    11. Bob Durstenfeld

      I was dx’ed at 18 months of age, my eldest son was dx’ed by me at 8 months of age and his eldest daughter was dx’ed at 18 months. Sort of runs on the family.

      2 years ago Log in to Reply
    12. Barb Robertson

      I was in dka and told I was diabetic on my 10th birthday…….61 years ago.

      2 years ago Log in to Reply
    13. KIMBERELY SMITH

      I am Type 2 Dietetic

      2 years ago Log in to Reply
    14. Jen Farley

      I was 13. I was a defiant kid and feel now I am glad I was not my parents. That is, looking back on the situation now. Back then, they just did not understand but being a parent now they were trying to save my life from complications down the way. I have a younger brother with adult onset and a sister with pancreatic cancer, I wish there was a way to help them besides advice and recipes.

      1
      2 years ago Log in to Reply
    15. Juha Kankaanpaa

      I have always believed that while we T1s are born with the predispositions to this disease, there usually is some trigger to activate it. In my case this was stress at the last year of university, and in my daughter’s case, move to a new country and starting school at the age of 4.

      2 years ago Log in to Reply
    16. Mark Schweim

      Diagnosed at age 24, well into adulthood, but not yet transitioned from childhood into adultery.

      2 years ago Log in to Reply
    17. Janis Senungetuk

      I was 8 when dx in 1955.

      2 years ago Log in to Reply
    18. Kristen Clifford

      I once again reiterate that you guys are in dire need of new questions. This one has been asked at least twice before.

      2 years ago Log in to Reply

    If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]