Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 7 hours, 12 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 7 hours, 12 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 8 hours, 28 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 8 hours, 28 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 8 hours, 28 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 8 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 8 hours, 30 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 8 hours, 31 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 8 hours, 31 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 8 hours, 32 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 10 hours, 33 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 11 hours, 11 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 11 hours, 11 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 11 hours, 54 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 12 hours, 17 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 12 hours, 40 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 12 hours, 40 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 12 hours, 41 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 12 hours, 56 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 13 hours, 57 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 13 hours, 57 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 4 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 4 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 4 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 10 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    After your diabetes diagnosis, did you go through a “Honeymoon” phase? If so, for how long did it last?

    Home > LC Polls > After your diabetes diagnosis, did you go through a “Honeymoon” phase? If so, for how long did it last?
    Previous

    If you have ever changed or upgraded from one insulin pump to another, why did you change from your previous pump to your current pump? Select all that apply!

    Next

    In which room(s) of your home do you store diabetes supplies? Select all that apply and share how you organize your supplies in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 1 week ago 7 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 3 weeks ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 4 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 1 month ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 1 month ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 2 months ago 5 min read  

    29 Comments

    1. Lawrence S.

      I said, “No.” I don’t know what a honeymoon phase is, in relation to diabetes. It has been chalanging from day one.

      3 years ago Log in to Reply
    2. CindyGoddard

      That was 50 years ago. I can’t remember.

      2
      3 years ago Log in to Reply
    3. Nevin Bowman

      Diagnosed in 1977 – honeymoon ended in 1980. In my opinion, this is proof of what a low-carb diet can do. I also had an A1c of 6.0 before finger sticks were possible.

      3 years ago Log in to Reply
    4. Scott Rudolph

      I don’t understand the question.

      3 years ago Log in to Reply
    5. ConnieT1D62

      I was diagnosed in 1962 … I don’t know if the “honeymoon phase” was even identified back then. Personally I never heard of it until 1982.

      3 years ago Log in to Reply
    6. Francisco Varea

      I don’t know what that is

      3 years ago Log in to Reply
    7. Gary Taylor

      I was diagnosed in February, 1976. After a couple of weeks of injecting insulin, I went into the honeymoon phase. If I remember correctly, it was late spring when I restarted the injections.

      3 years ago Log in to Reply
    8. Carrolyn Barloco

      I was diagnosed in 1981 then had a period of about 3 months insulin free after the birth of my son in 1982.

      3 years ago Log in to Reply
    9. Jneticdiabetic

      My T1D was never romantic. I’d divorce him if I could, but he’s old-fashioned. I have wandering eyes for science. I hope to run off with him one day and have a lovely, insulin-free honeymoon then. 🌅

      10
      3 years ago Log in to Reply
    10. Rose Lentzke

      I was 4 years old when diagnosed with T1D in 1956. I doubt that there was a “Honeymoon” phase;)

      1
      3 years ago Log in to Reply
    11. Marty

      I’m not sure if this qualifies as a honeymoon, but I used less than 2u of insulin per day for about a year after my diagnosis. That first year was still pretty awful with no CGM, a rigid meal and snack schedule, post-meal highs, and sudden severe lows coming out of nowhere since I had to rely on just 4 finger sticks per day. I’m only remembering it as a honeymoon because my endo called it that before I started needing enough insulin to justify a pump.

      1
      3 years ago Log in to Reply
    12. KIMBERELY SMITH

      Less than 3 months

      3 years ago Log in to Reply
    13. pru barry

      69 years ago. It’s really hard to dredge up that info, but I’m willing to bet that any teenager who’s beginning a life of shots and diets doesn’t come close to describing it as a honeymoon.
      I’m just glad for great training at Joslin, and a sense of wanting to live to a ripe old age. Think we need to focus on the bigger picture!

      2
      3 years ago Log in to Reply
    14. cynthia jaworski

      it would e hard t o say, since , once diagnosed, I was actively growing and changing.

      3 years ago Log in to Reply
    15. Eva

      I’m not quite sure what a honeymoon period is. I know that I needed insulin when I was diagnosed and my A1C was super low (< 5.0) for years even as they titrated my insulin dosage down. Even today, I take about 20 units a day in total and I eat like a pig.

      3 years ago Log in to Reply
    16. Joan Benedetto

      Yes, but my son’s “honeymoon “ phase lasted less than three weeks. It occurred about one month post diagnosis. He dropped from 4.5u Lantus to 1.0, and carb ratio of 1:80 if that. He was nineteen months old. I am so grateful that I had been trained to watch for this, and to not think he had been missed diagnosed.

      3 years ago Log in to Reply
    17. Sue Martin

      There wasn’t that term when I was diagnosed. I was on oral meds that stopped helping about 9 months later. it took another couple of months before getting insulin injections.

      3 years ago Log in to Reply
    18. Janis Senungetuk

      The term wasn’t used in 1955 when I was dx. I was started on Regular beef/pork insulin immediately after diagnosis and have continued using insulin since then.

      3 years ago Log in to Reply
    19. LuckyPineapple

      Mine was about exactly 1 year to the day. I took lantus every night but if I took nearly any novolog, I’d go low every time.

      3 years ago Log in to Reply
    20. TomH

      I was mis-dx’d T2 for 8 years, so probably had one, but don’t know. Eventually the oral meds I was on gave up completely leading to T1 dx.

      3 years ago Log in to Reply
    21. Becky Hertz

      I’m 1974 there was no real way to monitor blood sugars yourself. I have no clue if I went through a honeymoon phase or not.

      3 years ago Log in to Reply
    22. Lisa Ann Felton

      I was 3 years old. My parents wouldn’t have been aware of it. It was 1970

      3 years ago Log in to Reply
    23. Sue Herflicker

      I was diagnosed LADA, treated as type one, I am still on my honeymoon 5 years later!!

      3 years ago Log in to Reply
    24. KarenM6

      I did, but I don’t remember how long it lasted. I remember my Mom asking the doctor about me not seeming to need insulin. The doctor then explained the honeymoon phase where our bodies kinda try to kick start the pancreas back to life. And also then to continue to use insulin (as there was a fear that not using the beef/pork insulins would cause allergies.) But, then the doctor said it wouldn’t last. That was a bummer. Even in my 5-year-old brain I knew it was a bit of a trick to diabetics!

      3 years ago Log in to Reply
    25. Bruce Johnson

      Not sure what a Honeymoon Phase means but it sure wasn’t that. Mostly learning to put up with rejection for the rest of your life.

      3 years ago Log in to Reply
    26. Karen Mielish-Clausell

      I was very young when I was diagnosed with diabetes and I don’t know if I have a honeymoon stage or not so I can’t see how long it lasted or anything else

      3 years ago Log in to Reply
    27. Cristina Jorge Schwarz

      Nope. I was already in DKA at diagnosis. (over 40, not overweight, no family history, and previously no health issues! Who suspected T1D? No one, except the ICU doc!)

      3 years ago Log in to Reply
    28. Steven Gill

      Diagnosed TYPE 2, 3 1/2 years later after bloodwork was changed to TYPE 1. That was after 3 years diet alone (105 lbs lost?), one heck of a honeymoon.

      3 years ago Log in to Reply
    29. Wanacure

      No initial honeymoon phase. I was full blown T1D aged 15 in 1959. Could have pre-diabetes stage been detected scientifically and onset delayed or even prevented? Not possible then. But today, yes, to some extent for some folks, I believe onset of insulin-dependent stage can be detected by certain lab tests* and at least delayed by diet, exercise, and learning how to handle STRESS. STRESS, diet, lack of exercise and genetics were definitely factors for me, my sibling and 1 of 2 cousins. I’ve met adult Vietnam war vets who developed T1D in their twenties after being on the stressful frontlines of war & exposure to chemicals such as agent orange. How many vets have developed stress-T1D or chemically-induced T1D during wars?

      3 years ago Log in to Reply

    After your diabetes diagnosis, did you go through a “Honeymoon” phase? If so, for how long did it last? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]