Activity
- 3 hours, 8 minutes ago
  
  Jeremy Hanson likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
- 5 hours ago
  
  ConnieT1D62 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
- 5 hours, 5 minutes ago
  
  ConnieT1D62 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
- 6 hours, 41 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 6 hours, 42 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
- 6 hours, 43 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 6 hours, 44 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yeah. Totally agree! This is totally unnecessary and extremely annoying.
- 6 hours, 44 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
- 6 hours, 53 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 6 hours, 55 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
- 6 hours, 55 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
- 6 hours, 56 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
- 6 hours, 56 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yeah. Totally agree! This is totally unnecessary and extremely annoying.
- 7 hours, 2 minutes ago
  
  Wanacure likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Why isn't going to the bathroom not on this list?
- 7 hours, 6 minutes ago
  
  Wanacure likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 7 hours, 22 minutes ago
  
  TEH likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
- 7 hours, 45 minutes ago
  
  Steven Gill likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My pump, "I need to BG! I need to BG!" Such a cry baby it is!
- 8 hours, 39 minutes ago
  
  Robin Melen likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 9 hours, 25 minutes ago
  
  Mick Martin likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 9 hours, 27 minutes ago
  
  Mick Martin likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
- 9 hours, 52 minutes ago
  
  Anneyun likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 10 hours, 34 minutes ago
  
  Sue Martin likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 11 hours, 6 minutes ago
  
  T1diabetic likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 11 hours, 6 minutes ago
  
  T1diabetic likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
- 11 hours, 27 minutes ago
  
  Velika Peterson likes your comment at
  Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
  I stopped using those sites and paid more attention to rotation of available ones.
Clear All

Share Your Voice During National Diabetes Awareness Month

Sarah Howard, 3 years ago 0 2 min read

Every November, the type 1 diabetes community comes together for National Diabetes Awareness Month to celebrate and support people living with T1D. This year, the T1D community has shown more strength than ever. From adjusting to new routines, to being away from their support systems, people with T1D and their loved ones have been resilient this year, and we want to honor that with you.

Join us in raising awareness this November!

30 Facts in 30 Days

On the T1D Exchange Instagram (@T1DExchange), we will be sharing facts and insights that we have learned from the T1D Exchange Registry. When you see a post that resonates with you, share it on your social media platforms! Be sure to follow @T1DExchange to learn more.

Share Your Voice

Tell us about your type 1 diabetes story on social media throughout November and join the T1D Exchange Registry! The T1D Exchange Registry is a way for you to participate in research that may make a difference in the treatment and care of type 1 diabetes. By confidentially sharing your experiences, you will help create the most comprehensive data set of those diagnosed with type 1 diabetes in the United States, advancing meaningful treatment, care, and policy.   

Already a member of the Registry? Record a video and tell the world why you joined!

T1D Exchange will be showcasing our participants’ stories on our website and social media channels all month long! Click here to learn more.

Connect with Others on the T1D Exchange Online Community

Share your experiences through our Question of the Day, see the latest T1D news, and build your community of people who know what it’s like to live with T1D or care for someone with T1D.

Give Express Feedback for Good

Starting November 23rd, T1D Exchange is partnering with Express Feedback for Good to fundraise for type 1 diabetes research. Through this program, you can give your quick opinions about different products, services and experiences from brands, and the proceeds will go to T1D Exchange. Keep an eye out for an email with instructions from T1D Exchange later in November!

Support T1D Exchange by Making a Gift

With your gift, you are funding work to improve care delivery in clinics, allow people with T1D to share their voice, and advocate for policy that helps our community, and leads to better, longer lives for all with T1D. Support our Online Community, the Quality Improvement Collaborative and the T1D Exchange Registry.

Donate Today

COVID-19 Hospitalization in Adults with Type 1 Diabetes: Results from the T1D Exchange Multi-Center Surveillance Study.

Sarah Howard

Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.