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    • 7 hours, 38 minutes ago
      lis be likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 10 hours, 31 minutes ago
      Ahh Life likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 11 hours, 53 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 11 hours, 54 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 15 hours, 28 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day, 13 hours ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day, 13 hours ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day, 13 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 3 days, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 3 days, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 3 days, 8 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 3 days, 10 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 14 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 16 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 17 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 17 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 4 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
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    When you have an overnight low or high that you need wake up to treat, how often does your spouse or romantic partner also wake up?

    Home > LC Polls > When you have an overnight low or high that you need wake up to treat, how often does your spouse or romantic partner also wake up?
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    How often do you need to ration your insulin supplies because you’re concerned you could not afford to use it as prescribed? If you're comfortable share more about your experience in the comments.

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    If you use an insulin pump, where do you get your insulin pump supplies from?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    14 Comments

    1. Molly Jones

      My husband is an incredibly light sleeper and wakes up to all of the alerts on my meter and phone app no matter how they are set. He often changes bedrooms, sometimes due to alerts, or just because he is awake.
      I rarely if ever wake to these anymore. If I desired to wake, I would need to rotate through the alert sounds. Control-IQ seems to take control. My primary family are/ were very heavy sleepers.

      2 years ago Log in to Reply
    2. Lawrence S.

      I said, “Sometimes.” I think I catch most of the alarms. But, sometimes, my wife wakes me to say, “your alarm is going off.”
      After years of hearing alarms and buzzes, I often don’t hear them. I also think this is a mechanism to allow me to get some sleep.

      1
      2 years ago Log in to Reply
    3. george lovelace

      I’m recently Widowed but before it was rarely occurring. In younger days it was a horror trying to wake from an NPH caused Low

      1
      2 years ago Log in to Reply
    4. Annie Wall

      Rarely. I have my phone on do not disturb and my pump’s alerts are all on vibration so any that come during the night mostly just awaken me so I can simply, quiety handle a low or a high and don’t have to bother him. So much better with CIQ and eons better than the old days, when I would wake up and find a team of paramedics and my husband trying to get my blood glucose back up!

      2 years ago Log in to Reply
    5. spencercarter1

      My wife sleeps like a log every night and doesn’t usually wake when I do, which is multiple times each night. And yet, she complains that I get up too much. I eventually started sleeping on the couch downstairs a few years ago. I now sleep in a separate bedroom, all for this reason. This has not been good for our marriage, but my wife prefers it this way.

      1
      2 years ago Log in to Reply
    6. Ernie Richmann

      Sometimes my partner is romantic.

      3
      2 years ago Log in to Reply
    7. Ceolmhor

      I answered “Always”, but that isn’t actually true. It was as close as I could come from the available choices to describing our situation. We sleep in separate bedrooms precisely because she’s a light sleeper who can’t get back to sleep if she wakes up during the night, and she’s always awakened if my alarm goes off in the same room.

      3
      2 years ago Log in to Reply
    8. Lori COLLINS

      Thanks to Medtronic’s 780G and G4 sensors my night time lows and highs have been essentially eliminated and we are both sleeping much better. Prior to this Improvement in technology, I would occasionally wake him up with alarms.

      2 years ago Log in to Reply
    9. Kathleen Juzenas

      Always. Unfortunately I’m hard of hearing, don’t wear hearing aids at night, and don’t usually hear alarms. My night owl husband is sometimes still awake or is woken by my alarms to wake me. All much to our mutual chagrin.

      2 years ago Log in to Reply
    10. Anthony Harder

      I replied “sometimes”. My partner and I have different sleeping schedules. She is an “owl” and up late, while I am a “lark” and up early. When I first started using a CGM, she woke up whenever it went off. Now, she only does some of the time.

      2 years ago Log in to Reply
    11. Mick Martin

      I chose “Never” as I sleep in a hospital bed on the ground floor and my wife sleeps in a bed upstairs.

      When I was able to get up the stairs, and we shared a bed, my wife used to wake up on the vast majority of occasions when I woke up to treat a high or a low.

      2 years ago Log in to Reply
    12. Ahh Life

      Silence speaks volumes. I almost prefer vibration-konks-you-in-the-head to the hideous sounds of a sour pump. Spouse agrees. 🙃

      2
      2 years ago Log in to Reply
    13. Craig Suchin

      Rarely

      2 years ago Log in to Reply
    14. Sue Herflicker

      I picked sometimes, because he follows me on his phone only when I am an urgent low will his phone go off. Thank goodness they are far and few between.

      2 years ago Log in to Reply

    When you have an overnight low or high that you need wake up to treat, how often does your spouse or romantic partner also wake up? Cancel reply

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