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    • 2 hours, 13 minutes ago
      Bruce Schnitzler likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I broke down for the first time in 25 years and bought a bottle of insulin because I think I may have thrown a bottle out with the box. Medicare wouldn’t fill the prescription because it was too early. I just didn’t want the fight and worry. I’m not sure that’s what happened but it’s the only explanation. Also, I live in Florida and the threat of losing power is always there. I should get a generator but I’m a little afraid of them and you still can’t be sure you have access to propane. If my insulin goes bad, I’m not sure I could get refills. My back up plan is to leave before hurricane or go to a hospital. But it is all just causes concern.
    • 2 hours, 45 minutes ago
      Karen Newe likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 3 hours, 3 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Very! However, I wish I could use Fiasp insulin in the Tandem pumps.
    • 3 hours, 4 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 3 hours, 4 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 4 hours, 31 minutes ago
      Patricia Dalrymple likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Try Uni-Solve Adhesive Remover (smith&nephew)- wipe it on wait a minute to let it work and it will come off easy. at least it works great for me and I've tried several different brands, I use it for CGM & Omnipod removal
    • 11 hours, 31 minutes ago
      Sandy Norman likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 18 hours, 57 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 18 hours, 57 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 18 hours, 58 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 18 hours, 59 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 11 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 23 hours, 43 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 1 day, 1 hour ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day, 3 hours ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day, 4 hours ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 16 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 16 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 17 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 20 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 20 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 2 days ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 2 days ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
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    What was your most recent A1c?

    Home > LC Polls > What was your most recent A1c?
    Previous

    When driving or riding in a car for a long period of time, do you make any changes to your typical insulin dosage? Select all that apply to you!

    Next

    For which of these classic cookout foods do you feel most confident in your ability to maintain comfortable blood glucose levels? Select all that apply and share what works for you in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Catherine Davis

      I have never had an A1c this low before the hybrid closed-loop systems. Love the Dexcom and Tandem t:slim X2 system! That said, I have had to panic-eat sugar too many times due to minor physical activity recently. Looking forward to dual-hormone iLet!

      1
      5 years ago Log in to Reply
      1. Sahran Holiday

        Adjust your rates, don’t wait.

        5 years ago Log in to Reply
    2. Wanacure

      Taking shots & eating meals & exercising at same times helped me eliminate variables. But biggest help was reading Dr. Richard K. Bernstein’s books and reducing carbohydrates to minimal levels resulted in lower insulin doses and less risk of hypoglycemia. Plus yoga classes, weight training, and cardio exercise at least every other day. I’m on multiple daily injections. Hoping that recent use of CGM will help me get blood glucose levels into normal (non diabetic) range, a goal that seems to bug my doctor.

      4
      5 years ago Log in to Reply
      1. Henry Renn

        T1 for 65yrs. 70 yr old. I’ve been aware that I need to reduce carbs for some time. Thanks for your comment. I feel more like trying after reading it.

        3
        5 years ago Log in to Reply
    3. Lawrence Stearns

      Surprisingly, my A1c has gone higher since being on the closed loop system with Tandem and Dexcom. However, I think the problem is not the closed loop system, but my own reduction in aerobic exercise over the past half year. With age, I’m experiencing more pain in my neck and shoulders from arthritis, tendonitis, and calcium deposits, which make it very painful to run. Hence, my A1c has climbed from slightly below 6.0, to 6.1. I’m trying to get back into less stressful running.

      5 years ago Log in to Reply
      1. Sahran Holiday

        Surely reducing exercise is affecting your A1c. Regular moderate exercise so essential for everyone’s health. Get started again, figure out why you stopped and address that.

        5 years ago Log in to Reply
    4. Kathy Hanavan

      My endo no longer recommends an A1c as it does not correlate well with my TIR of 88% and avg glucose 132 which is much lower than my A1c of 6.9 suggests.

      3
      5 years ago Log in to Reply
    5. Daniel Bestvater

      my A1c has ranged from 5.8 – 6.6.
      I eat pretty much what I want, but try to alway prebolus 15-60 minutes before eating. TIR is currently 88% while using Tandem CIQ about 70% of the time.

      2
      5 years ago Log in to Reply
    6. Sahran Holiday

      Mostly always 5.4 – 6.1. most recent 5.8. Doctors, endocrinologist, ophthalmologist, podiatrist, primary care all satisfied. After years finally listening to endocrinologist that under 5.6 not necessary. Since subject to severe lows have adjusted accordingly. Next A1c is later this July. We’ll see.

      1
      5 years ago Log in to Reply
    7. Philip Bunsick

      Interesting numbers that truly show that as a group this is certainly an outlier group as the traditional average A1C for T1D is about 8.5. It does seem to indicate that the physician and medical community should continue to ask this group HOW BEST to achieve low and viable A1C and TIR numbers and how they are doing this. There is a very large group of patients out there who can learn and improve immeasurable from the knowledge and capabilities of this group.

      6
      5 years ago Log in to Reply
      1. Ahh Life

        Philip Bunsick–A cautionary note from one of those battle-scared knows-ones-stuff veterans 💉 . . . My most recent was 6.2 while last week’s time in range was 92% with less than 1% low and standard deviation of 42. It is still imperative that those <1% count and count mightily. I have been repeatedly advised to strive for 7.0. Because of my long-developed habits and eating/exercise behaviors, I find getting things up to 7.0 is exceedingly difficult. The tSlimX2 Control IQ, and the human being are all doing their jobs and doing their *#$&!. The GI tract nerve? It’s a short-circuit that flickers on and off, also known as gastroparesis. Seems like sometimes in this game you can’t win even when you’re winning. 🎖 🔫

        1
        5 years ago Log in to Reply
    8. LuckyPineapple

      Wow! I can’t imagine actually being in the 6’s…I feel like I would be hitting too many lows to be seeing a number like that. I have been sitting in the low 8’s for the last six years and I am personally happy with it. After getting the Miao Miao 2 for my Libre/Apple watch, I have broken 7.9 for two of my A1Cs and that is the best for me, and the ultimate personal goal (to be a high 7)

      1
      5 years ago Log in to Reply
    9. Becky Hertz

      TIR has been >90% with <5% highs and lows and 0 very low. It can be done with low carb living, temp basal rates for activity, and knowing how to adjust. On a tandem pump and using Dexcom but no basal or control iq.

      5 years ago Log in to Reply
    10. Molly Jones

      I have always had good A1c numbers since the onset 21 yrs ago. I don’t trust it as showing how well I am doing as I have multiple lows that last variable lengths of time and short term highs after most meals. I don’t want the side effects on my brain from hypoglycemia.

      5 years ago Log in to Reply
    11. Leona Hanson

      I have a 7.9 due to all of my low that i don’t feel. I can be walking and don’t even know that my Sugars are a 59 until I check my sugars so that’s how I have the A1C of 7.9 waiting for my cgm

      5 years ago Log in to Reply
    12. Bonnie Lundblom

      5.2, for the past few years I’m usually between 5.2-5.7

      5 years ago Log in to Reply
    13. T1D5/1971

      Last 2 were 6.3. For what that’s worth.
      I’d really rather work on TIR. Why the focus on the outdated metric of A1c? I valued that in prior decades before CGM. It’s time to move on.

      5 years ago Log in to Reply

    What was your most recent A1c? Cancel reply

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