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    • 21 hours, 13 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 21 hours, 18 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 21 hours, 25 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 15 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 15 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 15 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 16 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 18 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 21 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 22 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 23 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 1 hour ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 16 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 16 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 18 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 19 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 20 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 22 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 22 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    What was your most recent A1c?

    Home > LC Polls > What was your most recent A1c?
    Previous

    How much have you spent (deductible, copay, out-of-pocket) on your diabetes supplies in the past three months?

    Next

    If you have T1D and gastroparesis, what helps with your symptoms? Select all that apply.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    11 Comments

    1. Lawrence S.

      5.8. But for my last Endocrinologist visit, someone along the line made a mistake, and did a Complete Blood Count on me instead of an A1c. So, the 5.8 is from about 5 months ago.

      2 years ago Log in to Reply
    2. Daniel Bestvater

      My latest A1c was 6.3 using CIQ. My A1c has ranged from 5.8-6.4 using CIQ without much effort besides pre-bolusing for most carbs.

      2 years ago Log in to Reply
    3. Eve Rabbiner

      Looking at the answers, it is clear we are not the usual patients seen by endocrinologists.

      2 years ago Log in to Reply
      1. William Ervin

        Completely agree. This is like the T1D Honor Role.

        1
        2 years ago Log in to Reply
      2. Trina Blake

        Like many of the fellow T1D tribemembers I see on the various forums. I kinda wish that there was a way for Endo’s and other HCP’s to lurk, reading posts and responses – but in a way that the posters remain anonymous (I’ve had some nasty comments about some HCP’s I’ve run into) I think the HCP’s would be impressed, and perhaps learn that people Dx’d any type of D aren’t stupid, lazy with a propensity to lie (especially about what was eaten, what/when bg was checked etc…)

        2 years ago Log in to Reply
    4. Ahh Life

      “Give me liberty or give me death.” –Patrick Henry may well have been a couple of hundred years ahead of himself when speaking for T1 diabetics.

      Some of us live and die with A1c numbers and some of us live and die with standard deviations, time in range, or the percentage of time very low Bag’s occur. 🥺😱😇

      2 years ago Log in to Reply
      1. Steven Gill

        I look at the “averages” which indicate the a1C as well the deviation (the bulk of the levels indicating how close the levels stay together). While generally in that generic range 70-180, 85-95% of the time (accepted limits of an integrated system is 70% hands-free) but my alarms are set tighter (70-130, normally 66-67% of the time).

        Yes, folks that seem to care enough to read or answer questionnaires tend to be an exception.

        2 years ago Log in to Reply
    5. Lawrence S.

      I am writing about the Question of the Day for March 31, regarding cost of diabetes supplies. I am unable to answer the question. Your site is not working, and will not register my response. Please review your systems. Thank you.

      2 years ago Log in to Reply
    6. Sheri Marcus

      My A1C was 10.7 last November 2023 with the Omnipod 5. I began the new iLet Bionic Pancreas January 3rd, 2024. In just over 2 months my A1C was already down to 7.5. Yay! This think is amazing once it learns my system I am hoping the lows subside some.

      1
      2 years ago Log in to Reply
    7. mbulzomi@optonline.net

      My A1C bounces between 5.8-6.2, but my In Range is around 85% most of the time.
      If you don’t understand what and how they get an A1C from. It’s very confusing. You can have 6 number over 200 and 2 less then 70, figure out what the average is, and boy does it look like you Numbers are in control.

      2 years ago Log in to Reply
      1. Trina Blake

        I often describe A1C this way: It’s an average. Let’s say te goal is an A1C of 5. If your bg’s run 5, 5 and 5 then your A1C =5. But it would also =5 if your bg’s ran 0,5 and 10.

        2 years ago Log in to Reply

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