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    • 11 hours, 2 minutes ago
      lis be likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
    • 11 hours, 34 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      It seems to get harder every year. They seem to be looking for younger and newly diagnosed people.
    • 11 hours, 34 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 16 hours, 55 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 16 hours, 55 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 16 hours, 56 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 1 hour ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 1 day, 9 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 1 day, 9 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 13 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 13 hours ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 13 hours ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 1 day, 13 hours ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 13 hours ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 1 day, 15 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 15 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 1 day, 15 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 15 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 15 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 15 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
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    What was your most recent A1c?

    Home > LC Polls > What was your most recent A1c?
    Previous

    How much have you spent (deductible, copay, out-of-pocket) on your diabetes supplies in the past three months?

    Next

    If you have T1D and gastroparesis, what helps with your symptoms? Select all that apply.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    11 Comments

    1. Lawrence S.

      5.8. But for my last Endocrinologist visit, someone along the line made a mistake, and did a Complete Blood Count on me instead of an A1c. So, the 5.8 is from about 5 months ago.

      2 years ago Log in to Reply
    2. Daniel Bestvater

      My latest A1c was 6.3 using CIQ. My A1c has ranged from 5.8-6.4 using CIQ without much effort besides pre-bolusing for most carbs.

      2 years ago Log in to Reply
    3. Eve Rabbiner

      Looking at the answers, it is clear we are not the usual patients seen by endocrinologists.

      2 years ago Log in to Reply
      1. William Ervin

        Completely agree. This is like the T1D Honor Role.

        1
        2 years ago Log in to Reply
      2. Trina Blake

        Like many of the fellow T1D tribemembers I see on the various forums. I kinda wish that there was a way for Endo’s and other HCP’s to lurk, reading posts and responses – but in a way that the posters remain anonymous (I’ve had some nasty comments about some HCP’s I’ve run into) I think the HCP’s would be impressed, and perhaps learn that people Dx’d any type of D aren’t stupid, lazy with a propensity to lie (especially about what was eaten, what/when bg was checked etc…)

        2 years ago Log in to Reply
    4. Ahh Life

      “Give me liberty or give me death.” –Patrick Henry may well have been a couple of hundred years ahead of himself when speaking for T1 diabetics.

      Some of us live and die with A1c numbers and some of us live and die with standard deviations, time in range, or the percentage of time very low Bag’s occur. 🥺😱😇

      2 years ago Log in to Reply
      1. Steven Gill

        I look at the “averages” which indicate the a1C as well the deviation (the bulk of the levels indicating how close the levels stay together). While generally in that generic range 70-180, 85-95% of the time (accepted limits of an integrated system is 70% hands-free) but my alarms are set tighter (70-130, normally 66-67% of the time).

        Yes, folks that seem to care enough to read or answer questionnaires tend to be an exception.

        2 years ago Log in to Reply
    5. Lawrence S.

      I am writing about the Question of the Day for March 31, regarding cost of diabetes supplies. I am unable to answer the question. Your site is not working, and will not register my response. Please review your systems. Thank you.

      2 years ago Log in to Reply
    6. Sheri Marcus

      My A1C was 10.7 last November 2023 with the Omnipod 5. I began the new iLet Bionic Pancreas January 3rd, 2024. In just over 2 months my A1C was already down to 7.5. Yay! This think is amazing once it learns my system I am hoping the lows subside some.

      1
      2 years ago Log in to Reply
    7. mbulzomi@optonline.net

      My A1C bounces between 5.8-6.2, but my In Range is around 85% most of the time.
      If you don’t understand what and how they get an A1C from. It’s very confusing. You can have 6 number over 200 and 2 less then 70, figure out what the average is, and boy does it look like you Numbers are in control.

      2 years ago Log in to Reply
      1. Trina Blake

        I often describe A1C this way: It’s an average. Let’s say te goal is an A1C of 5. If your bg’s run 5, 5 and 5 then your A1C =5. But it would also =5 if your bg’s ran 0,5 and 10.

        2 years ago Log in to Reply

    What was your most recent A1c? Cancel reply

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