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    • 2 hours, 11 minutes ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
    • 2 hours, 13 minutes ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
    • 6 hours, 56 minutes ago
      kristina blake likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Monthly to quarterly. Depending on control. If I notice more highs or lows I’ll copy check for trends and make dosing adjustments to straighten myself out. I almost never wait for appts to review and make changes on my own.
    • 6 hours, 56 minutes ago
      kristina blake likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Quick real-time checks? About 32 million per day. Uploading pump data for analysis? Once a week, usually Saturday or Sunday. Graphs are much to be preferred to just eyeballing numbers. 🙇‍♀️⌇ ⌇ ⌇
    • 9 hours, 21 minutes ago
      atr likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Quick real-time checks? About 32 million per day. Uploading pump data for analysis? Once a week, usually Saturday or Sunday. Graphs are much to be preferred to just eyeballing numbers. 🙇‍♀️⌇ ⌇ ⌇
    • 11 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      “At appointments” was the best option for me, my medical appointments are only every 6 months, so this definition really means appointments with myself! I check my bg all the time, then review trends every 2-3 months, depending on the need. I’ve been traveling quite a bit so my need to review and make pump (AID) adjustments has been more frequent.
    • 11 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Monthly to quarterly. Depending on control. If I notice more highs or lows I’ll copy check for trends and make dosing adjustments to straighten myself out. I almost never wait for appts to review and make changes on my own.
    • 12 hours, 14 minutes ago
      Steve Rumble likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Getting motivated to leave my cozy recliner!!
    • 12 hours, 15 minutes ago
      Steve Rumble likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Nothing usually gets in the way of exercising besides motivation
    • 13 hours, 53 minutes ago
      Ahh Life likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Old age (86). I'm tired.
    • 1 day, 4 hours ago
      Derek West likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 6 hours ago
      Daniel Bestvater likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      If I am below 100 and haven't eaten recently or I am below 100 and trending downward, I eat and suspend pump before walking my dogs. Sometimes I have to postpone walks or intentionally plan them after a meal in order to prevent a low.
    • 1 day, 6 hours ago
      Daniel Bestvater likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 8 hours ago
      Marty likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 9 hours ago
      Phyllis Biederman likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 9 hours ago
      Phyllis Biederman likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I find the hardest thing is getting started. Diabetes doesn’t really cause issues
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not fear to practice exercise
    • 1 day, 10 hours ago
      TEH likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Nothing usually gets in the way of exercising besides motivation
    • 2 days, 6 hours ago
      Bob Durstenfeld likes your comment at
      Which part of your diabetes routine feels the most consistent day-to-day?
      Successful diabetes management requires consistent routines. I picked morning, but all apply.
    • 2 days, 9 hours ago
      Derek West likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      I chose real life practical tips because of a suggestion I saw in an online forum. For the last week and a half I have been running my Tandem sleep mode 24/7, except while playing golf when I switched to exercise mode. My TIR has been higher than it’s been in a long time. I use a higher temp basil if I need more insulin for a short time and use a 0 temp basil if I get too low but mostly I just sail along keeping in range.
    • 3 days, 1 hour ago
      Tracy Jean likes your comment at
      Do you feel like diabetes-related decisions take more time and energy than other people realize?
      Most people think you wear a pump and it does everything. They have no idea about pre-bolus for food and adjustments, site changes or any of the other issues and decisions and actions we make every day.
    • 3 days, 10 hours ago
      Danielle Eastman likes your comment at
      Do you feel T1D has made you more adaptable to change, in general?
      I think it's actually made me go the opposite way - I really don't like change and cling to my routines 😂
    • 3 days, 12 hours ago
      lis be likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      A choice that was not available but one that is really needed is: " Aging with Type 1".
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    We’d like to know our Online Community better, please share what your primary connection to T1D is:

    Home > LC Polls > We’d like to know our Online Community better, please share what your primary connection to T1D is:
    Previous

    If you use a CGM, at what glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your local time zone.

    Next

    What do you define as a very low blood glucose reading?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Phyllis Biederman

      I have T1D and am also a medical professional workin the diabetes space.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Me too.

        2 years ago Log in to Reply
    2. jamesmpii

      LADA is Type 1. The question reinforces a constant misconception that LADA is not Type 1. If you want to differentiate, ask if our Type 1 onset was as a juvenile or as an adult. Whether it comes on suddenly at age 10 or comes on slowly at any age, it’s all Type 1.

      5
      2 years ago Log in to Reply
      1. Carol Evans

        Or comes on fast as an adult. If you don’t produce any insulin at all, you are Type 1. If your immune system decided to go to town on your beta cells and destroy them, at whatever age, you have the autoimmune disease called Type 1 diabetes. I don’t understand the LADA distinction, other than for research purposes.

        4
        2 years ago Log in to Reply
      2. William Bennett

        Yeah, the LADA thing confuses me too. I think the typical profile has to do with the slow speed of onset, hence “latent,” in combo with “Adult.” But it doesn’t fit me.

        I was dx’d when I’d just turned 28, and it went from first noticing I felt kinda crappy all the time to incipient DKA in about 6 weeks. That was in 1983 when Type 1/Type 2 wasn’t a thing, let alone LADA, so my record actually says “Juvenile type” anyway.

        1
        2 years ago Log in to Reply
    3. Patricia Dalrymple

      Thank you to the respondents who clarified LADA v. T1D. I marked LADA but probably should have marked T1D. I’m still trying to come to terms with the fact that my own body attacked my pancreatic cells at age 40.

      1
      2 years ago Log in to Reply
      1. Carol Meares

        That is roughly the age I was diagnosed. 39

        2 years ago Log in to Reply
    4. Ruth Schwartz

      Looking for Frontline anwers for the Trigger of the AutoImmune Response of TD1, and what is the Strategies for the Stopping/ Restoration of the Pancreas Functions and Islet Cells. Questions seem to be mpre of the Focus on Big Pharma Marketing vs. Cellular Restoration and Functions?

      2 years ago Log in to Reply
    5. Katherine Kettig

      I was diagnosed at 65 but was told I have type 1. Not sure what LADA is.

      2 years ago Log in to Reply
    6. james zellerhoff

      Watch your TID site daily
      For any “news” on TID
      MY diabetic DR Erl Hirsch — well known—Seattle WA
      I am neither type 1 or type 2
      So do studies with “Rariant”
      On Humalog insulin
      Go to the Diabetes care center @ the uw facility
      In Seattle WA
      JIM ZELLERHOFF.

      1
      2 years ago Log in to Reply
      1. Sue Martin

        I’m with another doctor in the same clinic.

        2 years ago Log in to Reply
    7. Kristi Warmecke

      I’ve been apart of the T1 community since 1972 when my brother was diagnosed at 7 months old. I was diagnosed 10 years later.

      2 years ago Log in to Reply
    8. Bob Durstenfeld

      I would have checked several boxes, I have T1D, my eldest son has T1D, and my eldest granddaughter has T1D. Sort of runs in the family.

      1
      2 years ago Log in to Reply
    9. Carol Meares

      I have been told that LADA is not an official diagnosis although that may have changed. I put LADA because I figured by the question you wanted to differentiate the Type ones to know your audience better. My diagnosis is now Type 1 although for many years the diagnosis was Type 2 even though I was on insulin and was not characteristic of Type 2, i.e. insulin resistance. I was diagnosed at age 39. The term LADA may not have even been coined at the time (1993). I am now almost 70.

      1
      2 years ago Log in to Reply
    10. Ken Raiche

      I would figure by the title of this site it would be an extremely high percentage of T1D.

      2 years ago Log in to Reply
    11. Sue Herflicker

      I live with LADA and I also raised 2 T1ds before my diagnosis. Also my brother is a T1d.

      2 years ago Log in to Reply
    12. Jneticdiabetic

      Multiple responses apply to me, but could only select one:
      – I live with type 1 diabetes
      – I am a family member of someone living with T1D
      – I work in diabetes/diabetes research

      1
      2 years ago Log in to Reply
    13. Bill Kast

      I identify as a T1D but actually I am not auto-immune compromised. My entire pancreas was removed in an attempt to avoid Early and Certain Death from Pancreas Adinocarcinoma. The procedure was about 9 years ago, and my recovery was slow but has been excellent. I am in good health (for a 75 year old man…) Anyone interested in my journey is welcome to browse my WordPress Blog that documents my adventure. https://billspancreas.wordpress.com

      2 years ago Log in to Reply
    14. ConnieT1D62

      Would have been nice to be able to select more than one answer as several of us have more then one primary connection to T1D.

      2 years ago Log in to Reply
    15. Michele Dougherty

      I’ve had type 1 diabetes for 43 years

      2 years ago Log in to Reply
    16. jamesmpii

      I am T1D.

      2 years ago Log in to Reply

    We’d like to know our Online Community better, please share what your primary connection to T1D is: Cancel reply

    You must be logged in to post a comment.




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