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    • 4 hours, 39 minutes ago
      AmyM likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Is a 1/2 hour a vacation? On those magic days when the pump and sensor need to be changed at the same time, I might take a "naked" shower where I don't have to worry about scrubbing one or the other off, but that's about it.
    • 14 hours, 24 minutes ago
      KarenM6 likes your comment at
      To what extent does diabetes technology reduce day-to-day stress for you?
      CGM is great, but sometimes too much data is stressful. All the pressure to be in range is a new numerical stress with statistical worries added on. The worries were always present, but nowadays they are front and center.
    • 14 hours, 25 minutes ago
      KarenM6 likes your comment at
      To what extent does diabetes technology reduce day-to-day stress for you?
      Krisit, the struggle's are real, and the ridiculous codes, makes us have to be Pharmaceutical experts. I'm a fan of the devices, but not the issues that come up when we try to fill them. Trying to travel, during a period when you are supposed to receive them, means you may have to go back to MDI. I tried to order some before a trip,, and they said they'd send them early, but that didn't happen. It's crazy, what we have to navigate to get our devices.
    • 14 hours, 26 minutes ago
      KarenM6 likes your comment at
      To what extent does diabetes technology reduce day-to-day stress for you?
      Agree!
    • 14 hours, 26 minutes ago
      KarenM6 likes your comment at
      To what extent does diabetes technology reduce day-to-day stress for you?
      I selected “ somewhat” because sometimes when it works, it’s fantastic but sometimes when it doesn’t work is a nightmare. It is either your best friend or your worst enemy.
    • 14 hours, 27 minutes ago
      KarenM6 likes your comment at
      To what extent does diabetes technology reduce day-to-day stress for you?
      You’re not alone, I agree and feel similar and bet many of us do!
    • 14 hours, 28 minutes ago
      KarenM6 likes your comment at
      To what extent does diabetes technology reduce day-to-day stress for you?
      I put somewhat since sometimes the technology adds stress (eg. Won’t connect, or alarms that tell me what I already know and am in the middle of treating)
    • 14 hours, 29 minutes ago
      KarenM6 likes your comment at
      How much do you agree with the following statement: “The financial costs of diabetes are a burden for me (or my family).”
      If I did not have diabetes I'd be a multimillionaire! All the money spent on diabetes care, supplies, etc invested in this disease since 1969!!! 😑 Yes, diabetes is a very expensive disease!
    • 14 hours, 33 minutes ago
      KarenM6 likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Only when the pump or sensor fails & I'm not with the next replacement. Not really a vacation. (I've had them fail on vacation, too.)
    • 15 hours, 37 minutes ago
      John Barbuto likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never. I have severe hypoglycemic unawareness. No symptoms even at glucose levels of 40.
    • 15 hours, 38 minutes ago
      John Barbuto likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Not sure how I would without serious ramifications!
    • 15 hours, 38 minutes ago
      John Barbuto likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Vacation? Sounds like a bad idea, to me.
    • 15 hours, 39 minutes ago
      John Barbuto likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Being on a pump and CGM is not something I would want to be without no matter what. The only way I would ever consider it being a vacation a life long vacation is if I was cured of T1D.
    • 15 hours, 41 minutes ago
      John Barbuto likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      as soon as T1D "takes a vacation", then I will too! ;)
    • 15 hours, 58 minutes ago
      Brian Vodehnal likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      I never take a vacation from my pump. But I often do with my CGM because it fails so often.
    • 16 hours, 29 minutes ago
      Patricia Dalrymple likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Is a 1/2 hour a vacation? On those magic days when the pump and sensor need to be changed at the same time, I might take a "naked" shower where I don't have to worry about scrubbing one or the other off, but that's about it.
    • 16 hours, 30 minutes ago
      Patricia Dalrymple likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      as soon as T1D "takes a vacation", then I will too! ;)
    • 17 hours, 53 minutes ago
      atr likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Being on a pump and CGM is not something I would want to be without no matter what. The only way I would ever consider it being a vacation a life long vacation is if I was cured of T1D.
    • 17 hours, 53 minutes ago
      atr likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      I never take a vacation from my pump. But I often do with my CGM because it fails so often.
    • 17 hours, 55 minutes ago
      atr likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Is a 1/2 hour a vacation? On those magic days when the pump and sensor need to be changed at the same time, I might take a "naked" shower where I don't have to worry about scrubbing one or the other off, but that's about it.
    • 18 hours, 19 minutes ago
      KCR likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      I took one once when I was on vacation at a beach resort and used Lantus and Novolog pens, but I kept my CGM on. It was kinda nice...
    • 18 hours, 27 minutes ago
      Marty likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      as soon as T1D "takes a vacation", then I will too! ;)
    • 18 hours, 27 minutes ago
      Marty likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Vacation? Sounds like a bad idea, to me.
    • 18 hours, 27 minutes ago
      Marty likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Being on a pump and CGM is not something I would want to be without no matter what. The only way I would ever consider it being a vacation a life long vacation is if I was cured of T1D.
    • 18 hours, 28 minutes ago
      Marty likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      What's the alternative? MDI? No thanks. That did not work well for me when I was Dx-ed 35 years ago. I have kept my old 770 Medtronic pump and some resivors & infusion sets to fall back on.
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    We’d like to know our Online Community better, please share what your primary connection to T1D is:

    Home > LC Polls > We’d like to know our Online Community better, please share what your primary connection to T1D is:
    Previous

    If you use a CGM, at what glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your local time zone.

    Next

    What do you define as a very low blood glucose reading?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Phyllis Biederman

      I have T1D and am also a medical professional workin the diabetes space.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Me too.

        2 years ago Log in to Reply
    2. jamesmpii

      LADA is Type 1. The question reinforces a constant misconception that LADA is not Type 1. If you want to differentiate, ask if our Type 1 onset was as a juvenile or as an adult. Whether it comes on suddenly at age 10 or comes on slowly at any age, it’s all Type 1.

      5
      2 years ago Log in to Reply
      1. Carol Evans

        Or comes on fast as an adult. If you don’t produce any insulin at all, you are Type 1. If your immune system decided to go to town on your beta cells and destroy them, at whatever age, you have the autoimmune disease called Type 1 diabetes. I don’t understand the LADA distinction, other than for research purposes.

        4
        2 years ago Log in to Reply
      2. William Bennett

        Yeah, the LADA thing confuses me too. I think the typical profile has to do with the slow speed of onset, hence “latent,” in combo with “Adult.” But it doesn’t fit me.

        I was dx’d when I’d just turned 28, and it went from first noticing I felt kinda crappy all the time to incipient DKA in about 6 weeks. That was in 1983 when Type 1/Type 2 wasn’t a thing, let alone LADA, so my record actually says “Juvenile type” anyway.

        1
        2 years ago Log in to Reply
    3. Patricia Dalrymple

      Thank you to the respondents who clarified LADA v. T1D. I marked LADA but probably should have marked T1D. I’m still trying to come to terms with the fact that my own body attacked my pancreatic cells at age 40.

      1
      2 years ago Log in to Reply
      1. Carol Meares

        That is roughly the age I was diagnosed. 39

        2 years ago Log in to Reply
    4. Ruth Schwartz

      Looking for Frontline anwers for the Trigger of the AutoImmune Response of TD1, and what is the Strategies for the Stopping/ Restoration of the Pancreas Functions and Islet Cells. Questions seem to be mpre of the Focus on Big Pharma Marketing vs. Cellular Restoration and Functions?

      2 years ago Log in to Reply
    5. Katherine Kettig

      I was diagnosed at 65 but was told I have type 1. Not sure what LADA is.

      2 years ago Log in to Reply
    6. james zellerhoff

      Watch your TID site daily
      For any “news” on TID
      MY diabetic DR Erl Hirsch — well known—Seattle WA
      I am neither type 1 or type 2
      So do studies with “Rariant”
      On Humalog insulin
      Go to the Diabetes care center @ the uw facility
      In Seattle WA
      JIM ZELLERHOFF.

      1
      2 years ago Log in to Reply
      1. Sue Martin

        I’m with another doctor in the same clinic.

        2 years ago Log in to Reply
    7. Kristi Warmecke

      I’ve been apart of the T1 community since 1972 when my brother was diagnosed at 7 months old. I was diagnosed 10 years later.

      2 years ago Log in to Reply
    8. Bob Durstenfeld

      I would have checked several boxes, I have T1D, my eldest son has T1D, and my eldest granddaughter has T1D. Sort of runs in the family.

      1
      2 years ago Log in to Reply
    9. Carol Meares

      I have been told that LADA is not an official diagnosis although that may have changed. I put LADA because I figured by the question you wanted to differentiate the Type ones to know your audience better. My diagnosis is now Type 1 although for many years the diagnosis was Type 2 even though I was on insulin and was not characteristic of Type 2, i.e. insulin resistance. I was diagnosed at age 39. The term LADA may not have even been coined at the time (1993). I am now almost 70.

      1
      2 years ago Log in to Reply
    10. Ken Raiche

      I would figure by the title of this site it would be an extremely high percentage of T1D.

      2 years ago Log in to Reply
    11. Sue Herflicker

      I live with LADA and I also raised 2 T1ds before my diagnosis. Also my brother is a T1d.

      2 years ago Log in to Reply
    12. Jneticdiabetic

      Multiple responses apply to me, but could only select one:
      – I live with type 1 diabetes
      – I am a family member of someone living with T1D
      – I work in diabetes/diabetes research

      1
      2 years ago Log in to Reply
    13. Bill Kast

      I identify as a T1D but actually I am not auto-immune compromised. My entire pancreas was removed in an attempt to avoid Early and Certain Death from Pancreas Adinocarcinoma. The procedure was about 9 years ago, and my recovery was slow but has been excellent. I am in good health (for a 75 year old man…) Anyone interested in my journey is welcome to browse my WordPress Blog that documents my adventure. https://billspancreas.wordpress.com

      2 years ago Log in to Reply
    14. ConnieT1D62

      Would have been nice to be able to select more than one answer as several of us have more then one primary connection to T1D.

      2 years ago Log in to Reply
    15. Michele Dougherty

      I’ve had type 1 diabetes for 43 years

      2 years ago Log in to Reply
    16. jamesmpii

      I am T1D.

      2 years ago Log in to Reply

    We’d like to know our Online Community better, please share what your primary connection to T1D is: Cancel reply

    You must be logged in to post a comment.




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