Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.
Not much over 50 net grams carb per day. I subtracted the grams fiber from the total grams. (Includes 10 grams fructose at breakfast and 10 grams fructose at dinner.)
I prefer a plant based diet which I think is the healthiest way to eat for longevity, but it does have higher carbs even if from whole grains, beans, fruit and veggies. It is more challenging to bolus for than a lower carb diet, particularly as the fiber is also high so I am on a bit more of a roller coaster than I would prefer.
I’m no longer on keto but I try to keep my net carbs as close to 50 grams as possible. As well I’ve completely deleted anything wheat out of my diet as well and unfortunately chilli peppers which seem to help with my arthritis.
Interesting question. My carb counting can hardly be called exact. I set my boluses for:
40-45 breakfast; 40-45 lunch; 45-50 supper. Plus, snacks in between, depending upon my blood sugars. I try to squeeze a banana or a piece of fruit in there when I can. I answered 100-150, but I may be in the 150-200 range. It’s not exact, more of an art than a science.
Eat max 20 grams of carbs per day, on my LCHF diet.
Have eaten so, every single day, for more than 12 years now. Never felt better with my T1D, than during these 12 years.
I had a kidney transplant three months ago and right afterward we diligently tracked my carbs and protein. I was told I didn’t need to track any longer, so I really don’t know.
While there are several compelling research articles establishing a firm linkage between carb intake and insulin consumption, I would be cautious about striving for an absolute number (think −273.15 °C in thermal measurements).
Because of the complexities of the types of carbs, absolute zero is an ignis fatuus, perhaps described more theologically than scientifically.
It would be exceedingly nice if protein molecules unfolded in a precise and predictable fashion. It would also be, alas, utopia, not reality. (◔_◔)🍔🍕
I answered 50-100. But there are caveats. I do not deduct fiber, I count vegetables a carbs (vegetables like broccoli, cauliflower, etc. and I eat a lot of those). And the total varies in that if I am at target (80 bg or so), steady, and not hungry, I don’t eat (one day, someday, I won’t get scolded for not losing enough weight fast enough!)
My average is just over 100 g. Because of CKD I now need to watch potassium levels and that threw a wrench in my previous whole grain, nuts , fresh fruit and vegetables focused diet. I carefully count everything and have kept a food/activity diary for the past 8 years.
Started out on R/NPH and the (mostly farcical) Exchange Diet regimen back in the 80s and somehow that attitude was burned in pretty deeply and never quite caught up to “you can eat what you want, just bolus for it.” I’m not as carb avoidant as I once was, but I still keep it down. My pump says I’m in the neighborhood of 50 grams/day, which includes blousing for coffee in the a.m. even though I don’t use any sugar. Yeah, caffeine affects my BG pretty dramatically. So I guess I qualify as eating LCHF, though it’s really more about the Bernstein rule than anything else: the less insulin you have to take, the easier it is to manage.
My Tandem Tconnect report says 264 g/day. However, this is inaccurate and is actually less. The TSlim X2 menu bolus screen records any/all entries in the carb field even if you modify it before completing the bolus screen. Example, I was going to eat 30g to correct a low, but saw the calculation indicated 30g wasn’t enough to cover the low given IOB. So I modified the carb input to 36g. The software records 66g of carbs instead of 36g.
Realistically? To be truthful about 90 to 150, sometimes up to 180. Depends on my activity level, stress level, and lifestyle choices for the day. Whatever the amount I don’t judge myself for whatever it is.
Not much over 50 net grams carb per day. I subtracted the grams fiber from the total grams. (Includes 10 grams fructose at breakfast and 10 grams fructose at dinner.)
What is the recommended number of carbs per day for T1D patients?
I prefer a plant based diet which I think is the healthiest way to eat for longevity, but it does have higher carbs even if from whole grains, beans, fruit and veggies. It is more challenging to bolus for than a lower carb diet, particularly as the fiber is also high so I am on a bit more of a roller coaster than I would prefer.
Right around 50 gms daily. Little more sometimes but never over 65
I’m no longer on keto but I try to keep my net carbs as close to 50 grams as possible. As well I’ve completely deleted anything wheat out of my diet as well and unfortunately chilli peppers which seem to help with my arthritis.
Interesting question. My carb counting can hardly be called exact. I set my boluses for:
40-45 breakfast; 40-45 lunch; 45-50 supper. Plus, snacks in between, depending upon my blood sugars. I try to squeeze a banana or a piece of fruit in there when I can. I answered 100-150, but I may be in the 150-200 range. It’s not exact, more of an art than a science.
Eat max 20 grams of carbs per day, on my LCHF diet.
Have eaten so, every single day, for more than 12 years now. Never felt better with my T1D, than during these 12 years.
I had a kidney transplant three months ago and right afterward we diligently tracked my carbs and protein. I was told I didn’t need to track any longer, so I really don’t know.
While there are several compelling research articles establishing a firm linkage between carb intake and insulin consumption, I would be cautious about striving for an absolute number (think −273.15 °C in thermal measurements).
Because of the complexities of the types of carbs, absolute zero is an ignis fatuus, perhaps described more theologically than scientifically.
It would be exceedingly nice if protein molecules unfolded in a precise and predictable fashion. It would also be, alas, utopia, not reality. (◔_◔)🍔🍕
well said
I answered 50-100. But there are caveats. I do not deduct fiber, I count vegetables a carbs (vegetables like broccoli, cauliflower, etc. and I eat a lot of those). And the total varies in that if I am at target (80 bg or so), steady, and not hungry, I don’t eat (one day, someday, I won’t get scolded for not losing enough weight fast enough!)
My average is just over 100 g. Because of CKD I now need to watch potassium levels and that threw a wrench in my previous whole grain, nuts , fresh fruit and vegetables focused diet. I carefully count everything and have kept a food/activity diary for the past 8 years.
A good day for me should be under be 100 Carb, day. But good old New York City (In NYC) pizza can exceed that in a heartbeat!
Started out on R/NPH and the (mostly farcical) Exchange Diet regimen back in the 80s and somehow that attitude was burned in pretty deeply and never quite caught up to “you can eat what you want, just bolus for it.” I’m not as carb avoidant as I once was, but I still keep it down. My pump says I’m in the neighborhood of 50 grams/day, which includes blousing for coffee in the a.m. even though I don’t use any sugar. Yeah, caffeine affects my BG pretty dramatically. So I guess I qualify as eating LCHF, though it’s really more about the Bernstein rule than anything else: the less insulin you have to take, the easier it is to manage.
My Tandem Tconnect report says 264 g/day. However, this is inaccurate and is actually less. The TSlim X2 menu bolus screen records any/all entries in the carb field even if you modify it before completing the bolus screen. Example, I was going to eat 30g to correct a low, but saw the calculation indicated 30g wasn’t enough to cover the low given IOB. So I modified the carb input to 36g. The software records 66g of carbs instead of 36g.
Realistically? To be truthful about 90 to 150, sometimes up to 180. Depends on my activity level, stress level, and lifestyle choices for the day. Whatever the amount I don’t judge myself for whatever it is.