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    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 1 day, 15 hours ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I have to try my best to move my Leg's for at least 30 minutes a day. If not something around that.
    • 1 day, 15 hours ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I exercise daily! I ski, bicycle, walk/jog, and workout at the gym. I currently have a rotator cuff injury so I limit my trips to the gym.
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      During Ramadhan I keep it slightly elevated so that I don’t have to break the 12 hour fast.
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      when I am traveling, I will let it run a little higher because I don't know what I'll be doing at any given moment.
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 2 days, 13 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 2 days, 13 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 2 days, 13 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 2 days, 13 hours ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 2 days, 14 hours ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 2 days, 15 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 2 days, 15 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 2 days, 15 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 2 days, 15 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 2 days, 16 hours ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 2 days, 17 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 2 days, 17 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 2 days, 17 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 2 days, 17 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 2 days, 17 hours ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 2 days, 17 hours ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
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    New research found a gene that may put some people at higher risk for “long-COVID” (symptoms that persist after a COVID-19 infection, such as ongoing shortness of breath, fatigue, brain fog, or memory issues). What is your experience with long COVID? Share your experience in the comments.

    Home > LC Polls > New research found a gene that may put some people at higher risk for “long-COVID” (symptoms that persist after a COVID-19 infection, such as ongoing shortness of breath, fatigue, brain fog, or memory issues). What is your experience with long COVID? Share your experience in the comments.
    Previous

    If you use a CGM and share your real-time glucose levels with other people using an app (e.g., Dexcom Share, Carelink Connect, Nightscout, etc.), with whom have you shared your live CGM data? Select all that apply!

    Next

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. John McHenery

      Not sure if it is really classed as a symptom but since having Covid I seem to produce excessive saliva.

      3 years ago Log in to Reply
    2. eherban1

      The results of this poll, so far, harkens back to the early Italian study that found during the height of the pandemic in Italy- that when the hospitals were overwhelmed, none of the patients in the hospital were T1Ds. I think there is cause to research the link between T1D and Covid 19 more closely.

      1
      3 years ago Log in to Reply
      1. Marty

        Dr. Jeremy Pettus, who is a diabetes researcher involved with the TCOYD organization, reported that, like T2Ds, T1Ds have elevated risk from COVID, particularly with poor diabetes control: https://pubmed.ncbi.nlm.nih.gov/33268335/

        3 years ago Log in to Reply
    3. Nevin Bowman

      I had covid twice after being vaccinated and boosted. Symptoms disappeared within 2 days both times.

      3 years ago Log in to Reply
    4. Lawrence S.

      I’m not sure. I had my first case of Covid 19 in May, 2023. Since then I’ve had constant congestion, shortness of breath, fatigue and memory issues. However, I had these conditions before I had Covid 19. I’ve dealt with asthma since childhood, fatigue often from hard workouts and muscle fatigue. I’ve always had a very bad memory. I have great difficulty remembering names, songs. Great difficulty with geometry because of the memorization of theorums, etc.
      It does seem that these conditions became more intense since having Covid 19. Constant Phlem that I cannot get rid of. Coughing constantly.

      3 years ago Log in to Reply
    5. Jane Cerullo

      After making it through the worst of the pandemic as a nurse in the hospital I contracted Covid in March 2023 while on vacation. Bummer. I was pretty sick for two weeks. Not eating and sleeping a lot. Some pulmonary issues. Had to see a pulmonologist. Was extremely fatigued for about three months then started to feel better.

      3 years ago Log in to Reply
    6. AimmcG

      I was diagnosed with MS in March of 2020 right before the Covid Shut down. I didn’t get Covid for a full 18 months. I was diagnosed with the only symptom being a headache when my son became sick and tested positive. My entire family got it but I didn’t become fully symptomatic until 3 weeks later. I was vaccinated but the doctors believe my body couldn’t fight off the repeated exposure from my family members. So to answer the question. My MS symptoms are brain fog, memory lapses, and fatigued so I’m not sure if these things are MS or Covid related or both. It’s just part of my life.

      3 years ago Log in to Reply
    7. Ken Raiche

      The biggest issue I still have after getting Covid at the beginning of December 2022 was my loss of smell and taste. This situation has yet to resolve itself I smell certain things but they are not what they use to be coffee doesn’t smell like coffee everything seems to have a onion or garlic like sweet odor to it. Hoping for things to return to normal some day.

      3 years ago Log in to Reply
    8. GLORIA MILLER

      66 years T1 and well controlled but I have had Covid twice. Fully vaccinated and boosted. Once I was asymptomatic and the last time it lasted 17 days before I tested negative. After two months some foods (and wine) taste very sweet that are not sweet but this is the only “long Covid” symptom I have and I assume it will go away in time.

      3 years ago Log in to Reply
    9. Scott Doerner

      I just had covid last week. I healed In about a week. Still have mild weakness, but do everything without a problem

      3 years ago Log in to Reply
    10. Carrolyn Barloco

      We had our second positive CoVID tests in February despite being vaccinated. My husband was negative in a week but mine lasted 2 weeks. What followed was intense shoulder pain, 12 physical therapy sessions, a rheumatology referral that resulted in tests showing inflammation and altered

      3 years ago Log in to Reply
      1. Carrolyn Barloco

        factors and I was started on Methotrexate. I still get monthly lab work now with normal results.

        3 years ago Log in to Reply
    11. Mark Schweim

      I never had COVID until AFTER I was “fully vaccinated” and at the time of my first instance of COVID, the “experts” and gooberment officials were still falsely claiming that being fully vaccinated would make you unable to catch or spread COVID!

      I had, and tested positive for COVID ZERO times prior to being fully vaccinated, but have had COVID and tested positive for it THREE TIMES after I was fully vaccinated.

      Two of my times with COVID, I had definite syptoms, but the second time, I tested positive for COVID but had nothing more than a mild sore throat that until the positive COVID test result, the doctor was saying was nothing but the “common cold.” Then after they got the test results back, the following day, the Doctors office called me and told me to stay home from work for the following ten days after having allowed me to go to work the night between my doctor appointment and the doctor getting my COVID test results back.

      3 years ago Log in to Reply
      1. AnitaS

        I have never heard the claim that being fully vaccinated would prevent you from getting Covid. It may help prevent it but not 100% prevent it.

        1
        3 years ago Log in to Reply
    12. Mick Martin

      I responded with “I’m not sure”, but what I can say is that I have definitely had COVID-19. This MAY have been contracted during a stay in hospital as I had been admitted after having a fall during the early hours of a specific day and wasn’t able to get myself up to get back in my bed. My youngest brother found me when he got up to get ready for work and found me lying in a pool of urine, vomit, excrement, and blood. He put me back into my bed and cleaned me up then shouted my wife to come and see, explaining how he’d found me.

      My wife telephoned a NHS (National Health Service, over here in the UK) telephone line for advice, who sent out an ambulance to admit me to hospital. The ward to which I was admitted had the nursing staff questioning why I’d been admitted to that specific ward as it was a ‘COVID Ward’, used for treating COVID-19 positive patients. I was moved into a side-bay and had my nose swabbed, which turned out that I was COVID-free. A second test confirmed that I had COVID-19.

      Since being discharged home, I have now received 4 Covid vaccinations, but the difficulty for me is that some of the symptoms of long-covid are present almost all of the time in me as I have various diabetes-related complications which require me to have a hospital bed at home. (I also have a sleep disorder, called narcolepsy, where the sufferer falls asleep inappropriately, which leaves me falling asleep several times a day, sometimes whilst I’m talking to someone, or sat in front of my computer.)

      3 years ago Log in to Reply
    13. Carol Meares

      I have taken every vaccination available to me to prevent hospitalization from CoVid. So far I have not gotten CoVid despite much travel and eating out. I mask when it makes sense (on planes, in crowded shopping areas) but there are many times it is difficult. I have been more lax recently. Viruses destroy me. I want nothing to do with this one. I know I will probably get it, or possibly have already had it without symptom, but have vax gratitude as my brother who never got a vaccination has had CoVid three times and exacerbated heart and autoimmune conditions drastically.

      3 years ago Log in to Reply
    14. Eva

      I didn’t feel well for a couple of days in Dec 2021. My doctor tested for FLU and COVID, but all came back negative. I chalk it up to supplements and enzymes to help my digestive and immune function. Everyone around me tested positive and had it pretty bad despite being vaccinated and boosted. Heard certain blood types (like blood type 0 negative ) don’t get as bad as others.

      1
      3 years ago Log in to Reply
    15. Kristine Warmecke

      I haven’t tested positive for COVID-19 thus far. I was tested just today for both COVID-19 & influenza. Waiting to hear the results.

      3 years ago Log in to Reply
    16. Wanacure

      I always get flu shots and whatever vaccinations are recommended. Never diagnosed with Covid, BUT about 4 years BEFORE Covid-19, I went 2 or 3 months with the same persistent symptoms, culminating in loss of smell and taste, and having my lungs mechanically cleared of mucous. I and another caught it while in a senior exercise class (closed doors) where someone was continuously coughing. Finally cured by taking 2 powerful antibiotics. Now I do 8’ of deep breathing exercises blowing forcefully into a Smith & Cline “Acapella” every morning. This seems to prevent congestion from building up. Nurses instructed me how to use the Acapella after cleaning out my lungs. I did not notice any “long-Covid-19” symptoms after FINALLY recuperating. No colds or flu since.

      3 years ago Log in to Reply
    17. Twinniepoo74

      I still have body aches and pains. Plus my asthma from covid pneumonia has gotten worse. I still have short term memory and seizures. Long term COVID is no joke doctors are still running test and finding other problems along with one’s I have now the long part is that covid pneumonia or covid does permanent damage to all of us some like me worse than others

      3 years ago Log in to Reply
    18. T1D4LongTime

      Tested positive after having unusual joint pain in the night and a low-grade fever in the morning. Fever rose quickly but peaked at 101. Pain stopped after a couple of hours. Runny nose and dry cough for a couple of days. Endo immediately put me on Paxlovid. I restarted 81 mg aspirin for several months to ward off stroke (diabetics are prone to post-covid strokes). Absolutely no long-Covid and having Covid was more an inconvenience than feeling sick.

      3 years ago Log in to Reply
    19. PamK

      I answered, “I’m not sure,” because I had COVID @ 2 months ago and still feel some shortness of breadth and tiredness. So, I can’t say how long my symptoms will last!

      3 years ago Log in to Reply

    New research found a gene that may put some people at higher risk for “long-COVID” (symptoms that persist after a COVID-19 infection, such as ongoing shortness of breath, fatigue, brain fog, or memory issues). What is your experience with long COVID? Share your experience in the comments. Cancel reply

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