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    • 5 hours, 32 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 5 hours, 38 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 5 hours, 44 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 2 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 6 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 6 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 8 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 9 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 3 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 3 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 4 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 6 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 6 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love?

    Home > LC Polls > Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    17 Comments

    1. Lawrence S.

      I answered, “unsure.” I have never been diagnosed with attention-deficit hyperactivity disorder, but I believe I exhibited symptoms, especially when I was young. Also, my brother, and his son, who was diagnosed, exhibit the symptoms. I often get distracted and have difficulty concentrating. Sometimes I find myself stopping in the middle of what I am doing to do something else that distracted me. I am easily distracted.

      2
      2 years ago Log in to Reply
      1. Ahh Life

        Lawrence S, you and billions of Earth’s residence are being encouraged, reinforced, and mandated by the digital likes of Amazon, Meta, Google, Microsoft, et al to shorter and shorter attention spans. Most of society hates it, while the big. monster companies just rake in the cash. Sigh!

        1
        2 years ago Log in to Reply
    2. mlettinga

      I thought I was the only one with adhd. I think of many times I had to check my trash when I was young to see if I gave my shot. Or gave double insulin forgetting I already gave my shot. So much easier now when I can just look at my pump. 55 years type 1 and still going strong.

      4
      2 years ago Log in to Reply
    3. Bob Durstenfeld

      I live with mild AdD. One of my sons has ADD, but not T1D. My son with T1D does not have ADD.

      2 years ago Log in to Reply
    4. mbulzomi@optonline.net

      I check-off “NO”, no comment necessary.

      2 years ago Log in to Reply
    5. ConnieT1D62

      yes I live with both TID and ADHD (non-attentive type) since my early childhood. However the ADHD was not diagnosed until I was in my late 40’s. I have been on a very low dose of generic Adderall for several years and it does make a difference to stabilize my scattered attention difficulties and tendencies.

      2 years ago Log in to Reply
    6. Kristi Warmecke

      I’ve not heard of connection between T1D & ADHD before. Is this a new discovery from some research?

      1
      2 years ago Log in to Reply
    7. Daniel Bestvater

      T1D for 45 years and I most definitely have many of the behaviours associated with ADHD. I have a brother without T1D that exhibits many of the same behaviours. At least 10 things on the go at the same time and nothing ever gets finished!!

      2 years ago Log in to Reply
    8. Richard Vaughn

      My wife is diagnosed with Dementia. She has the symptoms of ADHD, too. The symptoms of both ADHD and Dementia can be very similar.

      1
      2 years ago Log in to Reply
    9. Edward Geary

      Diagnosed at age 50. Routinely told it was diabetic fatigue until I consulted a neuropharmacologist.

      2 years ago Log in to Reply
    10. Lynn Smith

      I answered No, but I probably have symptoms. I have always had trouble sitting still and at times I know my focus should be better. But, my judgment of symptoms is greatly affected by raising my severely ADHD son, who is not a T1D. He is grown now and has a daughter who is ADHD and is also not T1D. Both have been tested for T1 autoantibodies and they were both negative.

      2 years ago Log in to Reply
    11. Andrea Panganiban

      I have type 1 diabetes. My husband has ADHD.

      2 years ago Log in to Reply
    12. Ceolmhor

      I said “Other”. I have T1D. Our oldest son has T1D, our youngest son has ADD (i.e., ADHD without the hyperactivity — they never should have combined the two names). Our middle son has MS. We all seem to have very active immune systems. 😉

      2 years ago Log in to Reply
    13. Sue Herflicker

      My son diagnosed at 23 months with T1D had some form of ADD. We managed it without meds but as an adult he has had to seek help for it. He is doing excellent on his new medication. It has made the world of difference for him.

      2 years ago Log in to Reply
    14. kim bullock

      I have type 1 diabetes and possibly ADD. I don’t have the hyperactive but I am do have the symptoms of other stuff.

      2 years ago Log in to Reply
    15. Jeff Balbirnie

      Badly phrased question. Irrelevant someone else’s ADD/ADHD has no affect or influence of my D symptoms, or treatment. They are entirely separate creatures.

      2 years ago Log in to Reply
    16. babyish aggregate

      I have been diagnosed with type 1 diabetes for 45 years, and I fnaf very certainly exhibit many of the behaviors that are associated with attention-deficit/hyperactivity disorder.

      1 week ago Log in to Reply

    Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love? Cancel reply

    You must be logged in to post a comment.




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