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    • 1 hour, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 22 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 45 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 43 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours, 6 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 8 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 9 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 9 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 18 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    In your location, have you received official guidance about when people with T1D will be able to get the COVID-19 vaccine?

    Home > LC Polls > In your location, have you received official guidance about when people with T1D will be able to get the COVID-19 vaccine?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Molly Jones

      At my Endo appointment in late December, I was told when to hopefully expect vaccinations and to contact the clinic if I needed any certification.

      5 years ago Log in to Reply
    2. Kristen Clifford

      I haven’t directly received any information, but I was planning to call my endocrinologist today to see if they have any insights into when that might be.

      5 years ago Log in to Reply
    3. Patricia Dalrymple

      Answered other because I haven’t researched it but assume I am not yet in line. Last time I looked T2s were in line but saw nothing about T1s. Assuming again because all the research is focused on T2s. Numbers matter unfortunately.

      5 years ago Log in to Reply
    4. Gene Maggard

      I’m in Marietta, Georgia, and was able to schedule my vaccine dose due to my age (over 65). They are currently offering the vaccine to Phase 1A+, then next will be 1B and 1C, then Phase 2 and finally Phase 3. If you’re under age 65 here I think people with T1D or other pre-existing conditions have to wait until Phase 2.

      5 years ago Log in to Reply
    5. Andrew Adams

      My county in Illinois specifically prioritized “Type 2 Diabetes” but has given no higher priority to T1Ds, despite evidence of higher risk. It’s very frustrating. I thought this article had a good summary of where things stand in the U.S. for T1D vaccination priority https://www.statnews.com/2021/01/11/for-people-with-type-1-diabetes-cdc-guidelines-for-covid-19-vaccine-priority-are-puzzling/

      5 years ago Log in to Reply
    6. Bill Williams

      In Tennessee, T1Ds over 16 years of age are in Phase 1c, trailing healthcare workers, teachers and a few other groups. I expect to receive the vaccine based on my age before we reach Phase 1c.

      5 years ago Log in to Reply
    7. Pete Murphy

      I chose OTHER because, yes we’ve received guidance, YET…..Rhode Island is WAY behind other states apparently. I just spoke with my dental hygienist, who informed me their ‘hoping’ to get theirs the first week of February! I called my doctors office that informed me via a generic welcome message not to bother asking about when we would receive the vaccines, as they have not been informed yet by the state! Yet people over 65 (Not front end workers) are receiving the vaccine in Florida!!

      5 years ago Log in to Reply
    8. Kristine Warmecke

      Currently myState has “Diabetic’s” listed in the 1B group. So technically the next the group, but not everyone that wants it has gotten the first injection yet here. Have just started the first dose in some LTC, Assisted Living, Memory Care Homes, etc.

      5 years ago Log in to Reply
    9. Greg Felton

      In Washington persons over 50 with “2 or more comorbidities” are just behind front line workers and persons over 70. “Co-morbidity” is left undefined but I think I have but one with T1. Without some other reason I would get the vaccine after the homeless.

      5 years ago Log in to Reply
    10. Mick Martin

      Yes. I’ve received notification from our Department of Health & Social Care, but I live in the UK, so the information I’ve received will not be applicable to the vast majority of people on here. (I’ll be getting my first ‘jab’ by mid-February.)

      5 years ago Log in to Reply
    11. Rose Lentzke

      In Florida, anyone over 65 can get Covid 19 vaccine. My husband and I are part of a lottery for the vaccine. When your name is drawn, they call you to set up an appointment for both of us.

      5 years ago Log in to Reply
    12. Trina Blake

      I expect I will be in the group of “regular” people over 65. From what I’ve read (TCOYD, JDRF) those with T1D aren’t more likely to contract covid91 than anyone else in their age group as long as our D mgt is good. Not intending to boast, but my A1C’s are consistently 5.3-5.5 and my TIR is in the upper 90’s and I practice safety, I am not concerned about when I get the vaccine. I am more worried about T1D mgt for hospital inpatients (few fingersticks – although some hospitals are using CGM’s in order to save on PPE – use of regular insulin, high targets for bg – 200+).

      5 years ago Log in to Reply
    13. Ken Raiche

      By the way I’m Canadian and live in Canada just to make things clear. So as expected our government is having a hard time getting things organized when it comes to rolling things out as well getting product in. The way I see things it’s going to take quite dinner time for them to get their act together so who knows. Fingers crossed hoping this damn pandemic gets resolved soon.

      5 years ago Log in to Reply
    14. Carol Meares

      I will be getting my vaccine this weekend. Moderna. I qualify because I am 65 or older not because I have diabetes.

      5 years ago Log in to Reply
    15. Christina Trudo

      “Other”- depends on what you mean by received. When I heard something about the next phase on the local news, I checked on the state website and found the current updated information. So I HAVE what I think is current info but was not given it directly. Because of multiple conditions I am in the next phase and will be checking with my doctor(s) to see that they are including me in the next round. BTW in my state there was a list of qualifying conditions which included Type 2 diabetes with no mention of Type 1. (I have CAD, COPD and asthma so I qualify for this earlier round anyway,)

      5 years ago Log in to Reply
    16. Melinda Lipe

      Other – I’m in healthcare, so I got it already – MS

      5 years ago Log in to Reply
    17. Martin Fuhrer

      In Oman we are in phase one of vaccinations, and only diabetics 65 years and older qualify (no specific mention of T1D). The state clinic in Muscat advised me to return next week, when phase two begins, which should include all diabetics.

      5 years ago Log in to Reply
    18. Mark Fuller

      Here in Massachusetts we are in phase 1. I am 71 years old and have T1D. I am not in phase 1. Phase 2 will start in February. If you are over 75 you will be eligible in February. If you are over 65 with two comorbidities , you will be first in line. I have one. Still, I will very likely get my first shot in February.

      5 years ago Log in to Reply
    19. Mary Coleman

      I’m in Indiana, and the vaccine has been given first to Medical personnel and now is being given to those 80 years and older. The next tiers are by age only (next 70+, then 60+), risk factors are not a consideration in this plan.

      5 years ago Log in to Reply
    20. Becky Hertz

      There’s a semi list that shows the sequence of who will get the vaccine, but no timelines. I’m 1b tier3

      5 years ago Log in to Reply
    21. Janis Senungetuk

      Just had my 90 day endo visit and was told that I’d be notified by my primary physician. Since T1D isn’t listed as a priority medical condition, I imagine my age (74) will be the deciding factor. Maybe sometime in the late spring?

      5 years ago Log in to Reply
    22. ANN GALLUZZO

      My diabetes does not count in my state either. They have not finished the senior living people and front line workers yet. They are now doing teachers. After that, they will only do those over 75, so neither I nor my husband will get it, even though we are over 65. Our state is low on the list of vaccines given per capita. It is likely to start in March or April for us to be vaccinated.

      5 years ago Log in to Reply
    23. Annie Simon

      Living in Montreal, Quebec Canada, my condition if T1D is considered underlying condition and will follow over 60 year olds but for now our elderly and health care workers are priority and hopefully my Endocrinolgist feels by April should be realistic in receiving vaccine🙏

      5 years ago Log in to Reply
    24. Robby Doyle

      Well diabetics allegedly can get vaccinated in NYCS

      5 years ago Log in to Reply
    25. Robby Doyle

      While diabetics allegedly can get vaccinated in NYS, good luck finding an appointment! If you are not 65, you are shut out from the pharmacy appointments. If you go to the State site, you think you are going to be able to book an appointment but it eventually locks you out. NY is a mess! Shame on you Governor Cuomo.

      5 years ago Log in to Reply

    In your location, have you received official guidance about when people with T1D will be able to get the COVID-19 vaccine? Cancel reply

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