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    • 12 hours, 2 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 19 hours, 3 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 19 hours, 3 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 19 hours, 14 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 19 hours, 14 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 19 hours, 21 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 19 hours, 35 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 20 hours, 10 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 20 hours, 10 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 20 hours, 10 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 23 hours, 19 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 2 hours ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 12 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 14 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 14 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 14 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 16 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 16 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 16 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 17 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 18 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 20 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    In the past year, has your health insurance required you to change medications or devices?

    Home > LC Polls > In the past year, has your health insurance required you to change medications or devices?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. LizB

      This year I had to switch to using One Touch meter/strips because that’s the only brand my insurance covers at the normal co-pay. Any other brand would cost me a lot more money.

      4 years ago Log in to Reply
    2. TomH

      They didn’t cover my Endoscopy preferred insulin on diagnosis, but suitable sub is working fine. I’m not sure how docs determine which insulin is appropriate anyway, think it’s what they’re used to.

      4 years ago Log in to Reply
    3. M Fedor

      In order to have my insulin covered under Medicare Part B with Advanced Diabetes Supply, I had to switch from Fiasp to Lispro .

      4 years ago Log in to Reply
    4. Joan McGinnis

      Not changed but costs more due to the fact the meds I need are not on their formulary or are tier 3 or 4. The so called donut hole does not look like it’s going to be dealt with by insurance companies

      1
      4 years ago Log in to Reply
    5. Moira Motyka

      Wanted me to change test strips (meter works with my closed loop system). Doctor wrote a pre authorization so that I could keep using the test strips he prescribed.

      4 years ago Log in to Reply
    6. Sridhar Rajamohan

      None of the diabetes medications are covered under insurance in India

      4 years ago Log in to Reply
    7. BARRY HUNSINGER

      I was using Medtronic’s 670g pump and guardian 3 sensors. When I switched to Medicare I had to re- prove that I was a T1D to get Deccom because they don’t cover guardian sensors. It took three months to get everything sorted out.

      4 years ago Log in to Reply
    8. James Goldman

      My health insurance supplier has required a change in medication but only to a generic brand. This has saved me a lot of money.

      1
      4 years ago Log in to Reply
    9. Thomas Brady

      Despite all of the negatives with Medicare “rules” relating to diabetes pump and CGM supplies, doctor visits, etc., I have not had any issues with changes to medications and devices.

      4 years ago Log in to Reply
    10. Kristine Warmecke

      They want me to change to Humalog, even though I’m allergic to it. So I’m forced to pay for Novolog (while I wait to see if I qualify for assistance from the company and ration what I can afford to buy). There are currently no Medicare plan’s in my area that cover it.

      4 years ago Log in to Reply
    11. Andrew Stewart

      I had to change from Humalog to Novolog because Aetna removed Humalog from their formulary list. I haven’t noticed a difference.

      1
      4 years ago Log in to Reply
    12. Sue Martin

      I had to change my glucometer since the insurance didn’t cover the strips for the Freestyle Lite. I really liked that one since it had a light in it, which allowed me not to turn on a light at night. The new is doesn’t consistently work or doesn’t always like the test strip. I’ve had to use multiple strips to get a good read.

      1
      4 years ago Log in to Reply
    13. Tod Herman

      “Other” was my response. My insurance didn’t require me to switch insulins, they only subtly switched their preferred formulary brand without telling me and my co-pay more than doubled. My Endo discovered this and switched me over to the other brand. Saved me $60 per refill (went from $100 to $40).

      4 years ago Log in to Reply
    14. Kim Murphy

      But they also don’t cover the devices and supplies I do use.

      4 years ago Log in to Reply
    15. Mark Schweim

      My insurance changed less than a year ago and every time my insurance changes, so does which Insulin the insurance will allow me to get. I’ve lost track of how many times I’ve been switched back and forth between Humalog and Novolog Insulin by my insurance over the past decade.

      1
      4 years ago Log in to Reply
    16. Angela Naccari

      Started medicare this past January. I was using Afrezza and Tresiba. I could find only one supplemental or advatage plan that would cover Afrezza at the highest tier. I decided to get the tslim pump instead to not have to deal with such high prices! I have had dufficulty with pump use before Afrezza due to absorption problems after 59 years of TD1. So I was not forced to change but did not want to change

      4 years ago Log in to Reply
    17. ConnieT1D62

      No. The only thing they do not cover is Baqsimi, (which is my preferred choice) but they do cover the Gvoke hypo pen – which works for me as second best choice. I am hoping that the powers that make tier coverage decisions will get onboard and approve Baqsimi in the 2022 formulary.

      4 years ago Log in to Reply
    18. Paul Hanson

      This is frustrating. Truly. Insulin is not insulin. One long acting basal vs another yields a totally different experience and outcomes/individual impact should be the measure, not agreed upon price points set to maximize profit.

      1
      4 years ago Log in to Reply
    19. Sue Herflicker

      Yes, had to switch from Novolog to Homolog and my test kit, from a One Touch Verio to a Contour … both work well so no issues.

      4 years ago Log in to Reply
    20. Cheryl Seibert

      Not in the past year….. but prior to that yes. Insurance companies should NEVER have the power to require a change in medication or devices. THIS GOES FOR THE FDA IN THEIR ‘guidance’ on number of test strips for Type 2 (1 strip / day) and T1D (3 strips/day). Insurance companies claim their quantity limits are “for your safety” …. “we are following the FDA requirenments…… FDA should not set a specific number… it should say “a minimum of 3 strips/day”. Insurance companies and especially 90-day pharmacies (PBMS) take these ‘recommendations’ and make them ‘hard and fast’ “all diabetics should only use 1 strip/day. Sorry about the rant.

      4 years ago Log in to Reply

    In the past year, has your health insurance required you to change medications or devices? Cancel reply

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