In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

Activity
- 56 minutes ago
  
  Richard Wiener likes your comment at
  Is your insulin sensitivity factor (or correction factor) different during sleeping hours than waking hours?
  Sl less at night
- 4 hours, 38 minutes ago
  
  P-O Heidling likes your comment at
  What dietary patterns have you tried to increase your glucose time in range?
  Low carb
- 4 hours, 38 minutes ago
  
  P-O Heidling likes your comment at
  What dietary patterns have you tried to increase your glucose time in range?
  Low carb/keto. Last time my A1c dropped from 6.3 to 5.8 when I did this. Omit sugar desserts, bread, rice, pasta, potatoes and corn. Anything else that aren’t specifically low carb but aren’t high carb in moderation. Also, 2 meals or OMAD one meal a day helps limit carbs and calories.
- 4 hours, 38 minutes ago
  
  P-O Heidling likes your comment at
  What dietary patterns have you tried to increase your glucose time in range?
  Low carb
- 4 hours, 38 minutes ago
  
  P-O Heidling likes your comment at
  What dietary patterns have you tried to increase your glucose time in range?
  I have tried low carb and keto - keto seems to work better for me.
- 4 hours, 39 minutes ago
  
  P-O Heidling likes your comment at
  What dietary patterns have you tried to increase your glucose time in range?
  High protein, low carb
- 4 hours, 40 minutes ago
  
  P-O Heidling likes your comment at
  What dietary patterns have you tried to increase your glucose time in range?
  I mostly eat low carb high protein diet similar to keto.
- 4 hours, 40 minutes ago
  
  P-O Heidling likes your comment at
  What dietary patterns have you tried to increase your glucose time in range?
  Low carb. I have also had success managing my time and range to my total daily intake of insulin.
- 4 hours, 40 minutes ago
  
  P-O Heidling likes your comment at
  What dietary patterns have you tried to increase your glucose time in range?
  intermittent fasting, low carb, higher protein
- 4 hours, 40 minutes ago
  
  P-O Heidling likes your comment at
  What dietary patterns have you tried to increase your glucose time in range?
  Keto/low carb
- 4 hours, 41 minutes ago
  
  P-O Heidling likes your comment at
  What dietary patterns have you tried to increase your glucose time in range?
  I have been on an ultra low-carb diet for the last year. It has significantly helped with my TIR and insulin usage.
- 6 hours, 3 minutes ago
  
  Anita Stokar likes your comment at
  Do you bolus insulin for “total carbs” (including fiber) or “net carbs” (total carbs minus fiber)?
  I'd be high all day if I bolused for net carbs.
- 6 hours, 12 minutes ago
  
  Anita Stokar likes your comment at
  Have you ever experienced a frozen shoulder (adhesive capsulitis)?
  Yes, my right shoulder when I was 58, about 11 1/2 years ago. Physical therapy just made it hurt more, so I just had a cortisone shot and let it rest. After about 13 months, I had 90% usage back. It took a year and a half to get back to normal. I'm really amazed at how high the percentage of people who have had this condition.
- 18 hours, 3 minutes ago
  
  Vicki Breckenridge likes your comment at
  Have you ever experienced a frozen shoulder (adhesive capsulitis)?
  Yes, both shoulders (separately). It was the most miserable part experience. All medical treatments and therapies were worthless. I just had to wait in misery until the shoulder decided to unfreeze.
- 19 hours, 50 minutes ago
  
  Bret Itskowitch likes your comment at
  Do you bolus insulin for “total carbs” (including fiber) or “net carbs” (total carbs minus fiber)?
  Soooo, that's a trick question for me. I use the Total Carb count on packages. I don't know if that includes fiber or not.
- 1 day, 1 hour ago
  
  Derek West likes your comment at
  How often do you change your insulin to carbohydrate ratios?
  I change them when I start having trouble with daily low or high sugars at a certain time of day. I also might change my basal rates, if that is the more appropriate fix. I have basically been in charge of my doses the whole time, even when I was on injections.
- 1 day, 6 hours ago
  
  Stephen Woodward likes your comment at
  How often do you change your insulin to carbohydrate ratios?
  My icr changes so often between days and intra-day that it's not very useful to me. Instead, I take a standard safe dose every meal and then take an additional dose (or two) later if my BG goes above 7mmol
- 1 day, 6 hours ago
  
  Marty likes your comment at
  In your close circle of friends and family, how many others live with T1D?
  Since they are my close friends I'd say they all live with to some degree with me in their life. I'm the only one that has it, but they are a second set of eyes
- 1 day, 20 hours ago
  
  Danielle Eastman likes your comment at
  In your close circle of friends and family, how many others live with T1D?
  My sister was diagnosed at 10 and passed in 1992 at 40. Our good friend passed in 2016 at the age of 65 after living 55 years with T1D. Their history keeps me striving to stay in range with the tools that were not available for them.
- 1 day, 20 hours ago
  
  Danielle Eastman likes your comment at
  In your close circle of friends and family, how many others live with T1D?
  I have 1 friend who I met when she was my diabetes educator. She has since retired. But we continue to go to lunch from time to time. I am a 69 year old, 57 year T1D. She is a 70 year old, 61 year T1D!!!
- 1 day, 20 hours ago
  
  Danielle Eastman likes your comment at
  In your close circle of friends and family, how many others live with T1D?
  Many of my close friends I met through Connected in Motion (a group for adults with Type 1 to get out and get active). They have different types of events from super active to less active, but it’s all about experiential learning.
- 1 day, 23 hours ago
  
  Maryfranbarry likes your comment at
  In your close circle of friends and family, how many others live with T1D?
  I have 1 friend who I met when she was my diabetes educator. She has since retired. But we continue to go to lunch from time to time. I am a 69 year old, 57 year T1D. She is a 70 year old, 61 year T1D!!!
- 2 days, 3 hours ago
  
  KarenM6 likes your comment at
  In your close circle of friends and family, how many others live with T1D?
  I am the only one, and I pray it stays that way.
- 2 days, 3 hours ago
  
  KarenM6 likes your comment at
  In your close circle of friends and family, how many others live with T1D?
  Just me. Thank goodness.
- 2 days, 5 hours ago
  
  lis be likes your comment at
  What dietary patterns have you tried to increase your glucose time in range?
  I generally consume 15-30g of carbohydrate 3 times per day. Mostly lower glycemic whole foods and a moderate amount of protein. Years ago when I was studying biochemistry I read a research paper suggesting that humans can consume about 30g of carbohydrate efficiently. After that absorption becomes more unpredictable. So since reading this 20-30 years ago I've prebolused by about 30 minutes and try to keep my carbohydrate under 30g. Seems to work.
Clear All

In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

In the past 12 months, have you attended any virtual or in-person diabetes community events? For this question, we include any event that brings together people with diabetes, such as a fundraising event, research update, conference, info session, or something else!

Sarah Howard

Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.

15 Comments

mbulzomi@optonline.net

As I have stated several times before, every time I change my set after the first day most of the time, I need to reset the Basels. (The first day is just to monitor the numbers.)

2 years ago Log in to Reply
Jane Cerullo

I have turned off alerts for Dexcom. Changed sensor and had to turn off again. Last night woke me up. I answered 4 because I usually get up to use bathroom at least once during night and I check to make sure I am not high or low. And fix.

2 years ago Log in to Reply
Sherolyn Newell

I managed to get poison ivy all around my eyes, so I have been on prednisone for the past 5 days. Despite increased basal (45%) and frequent extra boluses, I haven’t been below 200, so I have been disrupted all the time. Normally, in 7 days, it’s more like 2 times.

1

2 years ago Log in to Reply
1. Becky Hertz
  
  I usually have to temp basal 200% when on steroids.
  
  2
  
  2 years ago Log in to Reply
2. KarenM6
  
  Hi Sherolyn –
  I’m so sorry about getting poison ivy around your eyes and having to take prednisone to help. Steroids are the WORST thing for blood sugars!
  Hope you are feeling better now!
  
  1
  
  2 years ago Log in to Reply
Karen DeVeaux

I answered 0, but I have no devices.

1

2 years ago Log in to Reply
Marty

I happened to get one of those “signal loss” error messages from my Dexcom last night at 3 am. I thought I woke up enough to turn off my CGM to avoid more alerts but it was up and running this morning and had managed to guide my BG to my typical morning BG of 115. I very rarely have any problems at night since I started using sleep mode in Tandem Control IQ.

1

2 years ago Log in to Reply
GLORIA MILLER

I answered zero. I think I have received alerts at night about three times since I started the Omnipod 5 and Dexcom since August.

2 years ago Log in to Reply
Georgina Sokol

My DEXCOM sensor was faulty.

2 years ago Log in to Reply
Nicholas Argento

With control IQ, sleep disturbance from low BG are far less common than before using it. CGM protected me from severe hypoglycemia, but often caused sleep disturbance; w CIQ, lows at night are infrequent and my fault for over treating snacks before bed.

1

2 years ago Log in to Reply
Becky Hertz

Going to give CIQ a try when I get my new pump. Hoping it will cut down on the night disturbances.

2 years ago Log in to Reply
ConnieT1D62

in the past 7 days? None at all. I usually sleep through the night with Tandem CQI. Occasionally I may get an alarm with arrows indicating high or low BG, or announcing it’s time to insert new sensor or to fill and insert a new cartridge.

2 years ago Log in to Reply
Steven Gill

From a CGM and pumping learned I needed quite a bit less basal overnight than through the day, with just a CGM now playing a balancing game. Dose for overnight levels rise in the day, dose for the day levels plummet overnight. My alarms are tight (70-130), I get frequent alarms to correct to stay as close to a normal range and live (am retired, always lived on 4-5 hours sleep so this is no problem). Plan on a pump next year, just which?

2 years ago Log in to Reply
sweetcharlie

Every night for lows.. never for highs… For past 70 years, I guess..

2 years ago Log in to Reply
1. sweetcharlie
  
  I forgot, I always wake up around 5 or 6 AM to pee, so I check my CGM..
  
  2 years ago Log in to Reply