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    • 14 hours, 37 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 14 hours, 39 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 14 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 14 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 14 hours, 49 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 16 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 16 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 16 hours, 44 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 20 hours, 45 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 22 hours, 47 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 33 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 23 hours, 56 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 23 hours, 57 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 57 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 23 hours, 58 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 23 hours, 58 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 12 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    If your blood sugar is dropping slowly, how low does your blood sugar typically need to go before you feel symptoms?

    Home > LC Polls > If your blood sugar is dropping slowly, how low does your blood sugar typically need to go before you feel symptoms?
    Previous

    On a scale of 1-5, how satisfied are you with your current T1D therapy regimen? (5 = the most satisfied, 1 = the least satisfied)

    Next

    Have you ever needed to pull over while driving because of a low or a high? Share how you handle your blood sugar while driving in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. connie ker

      Often the people around you notice a low blood sugar drop before the diabetic does. Personality gets irritable for sure and sometimes combative when the diabetic is living with the diabetic police.

      3
      5 years ago Log in to Reply
    2. William Bennett

      One thing about this is that it’s VERY dependent on your overall control and average BG. People who are accustomed to running high tend to experience hypo symptoms at a commensurately higher point. People who’ve just been dx’d or are struggling to get A1C’s down into the 6’s after running 7’s or above for years can feel hypo at levels well above “normal.” 100s, 130s, even higher for some. Before CGM, when my A1Cs ranged in the upper 6s, my threshold for feeling hypo was about 80; I’d get the funny walk and the hunger monster coming on as I got into the 70s. Now I don’t sense anything until I’m in the 50s-60s, which can actually be kind of a problem. But yes, the speed of change is definitely a factor. A fast crash always feels different, almost irrespective of your BG reading at any given moment in the decline if it’s really sudden. That was much more common for me back in the R/NPH days. The Eat Now Or Die regimen–thank goodness most of us are not stuck with that stuff anymore.

      3
      5 years ago Log in to Reply
    3. Patricia Dalrymple

      It all depends for me. If I have been eating out a lot (live in FLA and have a lot of visitors), then I could feel low in 70s. If I’ve been good, then usually 62 or so. And, it depends on how fast I react to the feeling. Because I’ve never felt a negative affect from my lows, I tend to ignore them longer than I should.

      5 years ago Log in to Reply
    4. Mark Schweim

      Depends greatly on how rapidly I’m dropping… Last night I started feeling it every time despite having only gotten as low as 45, but if my BG isn’t dropping rapidly, I usually don’t start feeling any symptoms until my actual BG gets down into the 30s or lower.
      I have even continued working fully functionally at times when my BG dropped into the SINGLE-DIGIT range back when LifeScan and many other companies used to still make BG meters that were “CERTIFIED ACCURATE giving BG readings ranging all the way from 0 mg/dl up to 600 mg/dl.” But since around 2003 or so, it’s become literally IMPOSSIBLE to find a Blood Glucose Monitor that is certified as able to give accurate readings any lower than around 40 mg/dl up to a high of between 400 and 600 mg/dl.

      1
      5 years ago Log in to Reply
    5. Kimberly Starkey

      One caveat–I don’t feel lows coming on while I’m sleeping. The cgm with alarms is literally a life saver.

      1
      5 years ago Log in to Reply
    6. Sally Numrich

      Other. I lost the ability to feel lows many, many years ago. Thank goodness for my CGM!

      2
      5 years ago Log in to Reply
    7. ConnieT1D62

      I may, or may not, start to “feel” it when I am trending downwards at <62 and I am in a kind of null zone. My husband has deemed it "the twilight zone" he says because I suddenly get irritable with a dazed look on my face as I struggle to make sense of what I am doing or trying to say.

      5 years ago Log in to Reply
    8. Janis Senungetuk

      As others have stated, it all depends on how fast it drops and my activities at the time. If my attention is on an activity I can easily drop to the 40’s or 30’s before realizing I need to treat a low. I’m not aware if I’m exhibiting any low symptoms. My spouse is often the first to notice. Fortunately, the Dexcom CGM I wear all the time lets me know I need to check.

      1
      5 years ago Log in to Reply
    9. Lenora Ventura

      It is never consistently the same. Sometimes I feel it in the 60’s, other times, I have no idea when approaching the 40’s. I have had hypoglycemia unawareness for the 36 years of being T1D. Having Dexcom by my side since 2008 has changed my life

      2
      5 years ago Log in to Reply
    10. Becky Hertz

      I used to feel them in the 40’s. Now, thanks to my DAD and CGM, I rarely, if ever, get to that point. Slow drops suck.

      2
      5 years ago Log in to Reply
      1. Kristine Warmecke

        I just received my service dog on 4-21-2021, once she is fully grown she will be used mainly as my mobility dog, she is also my my D.A.D. I’m totally amazed at how she alerts me a good 5 min. before my G6 even.

        5 years ago Log in to Reply
    11. Carol Meares

      I put “other” because it depends mostly on the speed in which it is dropping, perhaps my activity level and my mindfulness. I have low unawareness but not always. Sometimes I will feel a low at 60 and sometimes not til 55 or 50. I rarely go lower than that but it can happen. The alarms on my pump become background noise sometimes, or I’ll be walking on the beach or along a road where there is surf or car noise to overcome. I am so thankful for my Dex. When I am mindful, I habitually check but there are times when I forget to look.

      5 years ago Log in to Reply
    12. Stephen Woodward

      70-65

      5 years ago Log in to Reply
    13. Ahh Life

      Wow! In spite of significant nerve problems in the legs and the digestive tract (PDN in the limbs, gastroparesis to the gut), I am among the 2% that feels it at 80 and higher. And with ACCUTE intensity. There must be a special one-of-a-kind nerve that goes straight to the brain signaling “Eat the table.” ( ͡❛ ⏏ ͡❛) . ( ͡❛ ⏏ ͡❛)

      5 years ago Log in to Reply
    14. Britni Steingard

      I said other because it varies a lot. I’ll sometimes start to feel the hunger and fatigue in the 80’s, but sometimes I don’t notice it until I’m in the 50’s.

      5 years ago Log in to Reply
    15. Kristine Warmecke

      It has it be below 40 for me feel it anytime, no matter slow or fast it is falling.

      5 years ago Log in to Reply
    16. Marcia Pulleyblank

      I often do not get clear signals. I am using Canadian counts, so it is generally about 2.7 mmol/l before I get definite symptoms. I also find that they symptoms do not go away until 30 minutes or so after I am back in range.

      5 years ago Log in to Reply
    17. Cheryl Seibert

      I answered “Other” but I should have chose “Below 40”. The key to this question is “dropping SLOWLY”. A slow drop does not cause symptoms for me until I’m in the low 40s, only the fast drops.

      1
      5 years ago Log in to Reply

    If your blood sugar is dropping slowly, how low does your blood sugar typically need to go before you feel symptoms? Cancel reply

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