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If you were misdiagnosed with another condition when seeking care for T1D symptoms, did you have diabetes-related ketoacidosis (DKA) when you were finally diagnosed with T1D?
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My family doctor initially thought I had a stomach flu
I saw three doctors in 1945, and did not receive a diagnosis. There was so little known about diabetes back then. A fourth doctor made a correct diagnosis later that year. I had very advanced symptoms at that time. I probably had DKA at the time I was placed in a hospital. Pork insulin brought me back to life in the nick of time.
I was being screened to make sure I had recovered from jaundice, Hep A I suspect, as a teenager and they picked up sugar in my urine.
Diagnosed at 54 with type 2. As an RN I was sure I did not have type 2 but was not sure what I had. But no metabolic syndrome. My fasting BS was 130. Took 2 years for correct diagnosis of LADA. Was a relief. Started insulin on my own because oral med not working.
I was misdiagnosed as Type 2 because of my age (29). The diagnosis was done by a GP not an endocrinologist.
I was seven. My mom died. For two months I was acting “strangely”. It was 1969. The doctor put me on antipsychotic and antidepressant drugs. Finally, 2 months later, I lapsed into a coma. Two days later, a young doctor thought to run a blood sugar test- bingo. I woke up soon after.
Mis-dx’d for 8 years as T2 by PCP because of age (58). Meds continually increased in dose and stopped having any effect. Referred to End who appropriately tested, dx’d T1, prescribed insulin-CGM.
Wasn’t diagnosed officially with anything, despite several pediatrician appointments over concerns
N/A, I was diagnosed correctly in mid 1950s by an alert doctor who didn’t need any fancy diagnostic equipment. He, a neighbor, came into our home on a holiday, sniffed and asked my mother – “Who has diabetes? Yes, his nose picked up the burned acetone aroma which must have been accumulating so slowly for months that noone else realized the presence.
I was driven to a hospital and it wasn’t too surprising that my first BS registered at 1,700+.
That is an amazing story. What a great doctor!
I was misdiagnosed as having type 2 by a GP for about 3 days before going into DKA and going to the emergency room where I was properly diagnosed. This was in 2001 when I was 24.
Diagnosed T2D at family physician practice due to age, even though had all the symptom’s of T1D and was always thin. Ended up in DKA and got the T1D diagnosis. Have since had multiple blood tests, required for participation in clinical trials all confirm T1D.
It is ridiculous that when someone presents they do not do confirming blood tests.
l answered yes, but was not actually misdiagnosed. I was NOT diagnosed until I suffered DKA and ended in a diabetic coma. I was 20 years old in the USAF and though I knew something was wrong I did not seek medical attention, because I returned from an extended temporary duty and wanted to visit my family. While visiting family I went into a coma and was rushed to the hospital where I was diagnosed!
Tough to answer accurately: initially diagnosed TYPE 2, with ketones present.
Yes, 100%.
I don’t believe I went into a coma, but it was a close thing. I’m not sure because I was SO tired and all I wanted to do was sleep. When I finally got diagnosed, I was put into an ambulance for an hour and a bit ride to the hospital. The EMTs made my Mom keep me awake… I was so annoyed with her for that! But, I understand better now than when I was 5.
I had all the symptoms, but it took 3 or 4 doctors before one didn’t call me a liar and a faker.
However, in 1968 DKA was not known.
Diagnosed T1d in 1975, I don’t remember the term coming up.