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    • 5 hours, 37 minutes ago
      KarenM6 likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I received a 50 year medal. But it was tough to prove my 1956 diagnosis of T1D.
    • 5 hours, 37 minutes ago
      KarenM6 likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Eligible for anyone's T1D 50 year medal(s), in theory. Considering the privacy implications, re: potential new employment and their background internet searches. Illegal to not hire because of T1D but employers do and will. No interest in giving a potential employer ammunition to use against me, if I can prevent it outright. Plus all primary "verification" is gone; no human sources are alive, no written records exist from that period as actual proof. So considering the possibility but gravely concerned I am able to meet the threshold required for proof for anybody's T1D medal(s). Sigh...
    • 5 hours, 38 minutes ago
      KarenM6 likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I received the Joslin 50-year medal 2 years ago, but I have had T1D for 63 years in June. Thankfully my endocrinologist submitted the paperwork for me since I have been his patient for 30 years. There are no records of my diagnosis or pediatrician. My Mom is still alive but has dementia and thinks I have been cured.
    • 8 hours, 37 minutes ago
      Pam Hamilton likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I have the Joslin 50 year medal.
    • 10 hours, 44 minutes ago
      Alyne Branson likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      This is just a simple comment, For pump connectivity, keep the pump and CGM on the same side of your body.
    • 15 hours, 43 minutes ago
      Steve Rumble likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      I try closing the app & turn off Bluetooth for a few minutes.
    • 16 hours, 31 minutes ago
      KSannie likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      This is just a simple comment, For pump connectivity, keep the pump and CGM on the same side of your body.
    • 16 hours, 32 minutes ago
      KSannie likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Keep CGM and insulin pump on same side of body. Keep Smartphone nearby with you for CGM readings.
    • 16 hours, 36 minutes ago
      Lawrence S. likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Call tech support for the cgm. They should be able to walk you through get it set up .
    • 16 hours, 43 minutes ago
      KCR likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Start by turning your phone completely off and on again. Sometimes it is updates that need to occur to make them sync together. Then call tech support for the device and ask for help.
    • 17 hours, 22 minutes ago
      Tina Roberts likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Start by turning your phone completely off and on again. Sometimes it is updates that need to occur to make them sync together. Then call tech support for the device and ask for help.
    • 17 hours, 24 minutes ago
      Mike S likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Start by turning your phone completely off and on again. Sometimes it is updates that need to occur to make them sync together. Then call tech support for the device and ask for help.
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, unless you count the "boyfriend" aka dance date at Diabetes Camp. LOL
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      At the time we dated and were married my wife was not diabetic. She was diagnosed as T1D during/after her first pregnancy. We shared T1D through the next 37 years and a second pregnancy!
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Yes. I got my 25 year Lilly award two years ago.
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Lilly 25 and 50 year medals.
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      The Joslin 50 year medal. I've been T1 D since 12/28/1966.
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I received a 50 year metal in 2022
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Lily 10 year medal
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Got a medal for 50 years.
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Lilly 50 year metal
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I have a medal for my tenth anniversary
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I got the lily Award for 50 years . Never heard of the Joplin one
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I have 50 years awards from Lilly, Joslin and the Journey Award. Staying healthy to get my 75! 15 years to go.
    • 1 day, 15 hours ago
      Vicki Breckenridge likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      The Joslin 50 year medal. I've been T1 D since 12/28/1966.
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    If you wear any devices, how many times in the past month have you accidentally ripped out a sensor or pump site?

    Home > LC Polls > If you wear any devices, how many times in the past month have you accidentally ripped out a sensor or pump site?
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    If you were diagnosed with T1D as an adult, were you first misdiagnosed before you got the correct diagnosis? If yes, with what were you misdiagnosed? Select all that apply to you.

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    Do you think it would be beneficial if at-home DNA tests (23andMe, Ancestry DNA, etc.) were able to assess a person’s risk of developing T1D?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. George Hamilton

      I have pulled out two infusion sets, both of them last week. That was unusual for me. I was trying them in a new location on my abdomen, and I think the tubing was pulling on it in a new way. No problem with sensors; they seem to stay attached even without the overtape that Dexcom recommends.

      4 years ago Log in to Reply
    2. Tina Roberts

      None in a very long time. In the beginning I accidentally knocked a couple out by running into things. I finally got used to them and learned to avoid bumping them.

      1
      4 years ago Log in to Reply
    3. connie ker

      I didn’t rip it out, it just got loose in the bath tub and was recording low numbers. So I ripped it off myself,, and replaced the sensor ( Abbott Freestyle Libre).

      4 years ago Log in to Reply
    4. Lawrence Stearns

      I have not counted, but it’s about 3 times this past month. I have recently expanded the areas where I place my cannula to my arms and legs. I was no longer getting the full effect of the insulin in my belly area. I am using much more of the overtape, taping both the cannula and the tubing. I keep knocking the cannulas out when I take showers, and dry off with the towels. I am also getting much more pulling when I move my arms and legs, working or exercising.

      4 years ago Log in to Reply
    5. Kathy Hanavan

      Unusually a sensor site became loose in the bathtub as did a pump site so 2 this month, but normally only 1 or less.

      4 years ago Log in to Reply
    6. Natalie Daley

      Would be handy to have NA since people who don’t wear devices may have used none as the only option available to answer the question.

      1
      4 years ago Log in to Reply
    7. Ken Raiche

      It has happened in the past but not in the last 3 months, I just hope I haven’t hexed myself.😉

      4 years ago Log in to Reply
    8. Nancy Murphy

      Losing pump sites never ever happens to me (and I’ve been wearing pumps since they were invented!) But this past week my tubing got caught on a cabinet door, not once, but twice! I put a new site on, then an hour later, the same exact door yanked off my tubing!

      1
      4 years ago Log in to Reply
      1. Derek West

        Dam doors, you just can’t trust ’em.

        1
        4 years ago Log in to Reply
    9. Grey Gray

      I answered once because I somehow dislodged a sensor from the back of my arm. But that never happens in the last 25 years I may have lost 5 sites due to dropping my pump or something. I have sweated off hundreds.

      4 years ago Log in to Reply
    10. Ceolmhor

      Three times in four years. I don’t have enough real estate (with sufficient fat) around my middle to manage a rotating system, so I use thighs. Doing exercise, I occasionally ripped things out early on, but after I started wearing compression shorts, that problem disappeared. I think they may have improved the adhesives, though, as I no longer seem to even need to do that. I’ve been amazed at how well the Medtronic stuff stays put when tugged or scraped.

      4 years ago Log in to Reply
    11. Bob Durstenfeld

      For my pump, I loop the tubing and tape it to provide safety for the infusion set from being ripped out. My CGM I wear on my chest and only catch it through my shirt, either on my seatbelt or an occasional table edge or counter.

      4 years ago Log in to Reply
    12. Dan Patrick

      Hi All, this is a challenge. Personally the choice of the “glu” can make a big difference.

      4 years ago Log in to Reply
    13. LizB

      I’ve never ripped out a sensor but over the years I’ve lost a few sets to door knobs/handles. Not in the last month or even last few years though.

      4 years ago Log in to Reply
    14. Sally Numrich

      I can’t even remember the last time this happened. I did pull pump sites out back in my early days. Tube getting hooked on cabinet knobs but I have been pumping over 30 years. It has been a couple decades since this has happened.

      4 years ago Log in to Reply
    15. Ahh Life

      Ripped them all, the small, the short & the tall. In the last month, maybe twice. But over a lifetime? Let me count the ways: knobs, drawer handles, twigs, branches, car doors, USB connectors, dressing, undressing, running, lying, sitting, exceeding the 3-day limit, you name it, I’ve done it. ( Í¡> ͜ʖ Í¡<)

      4 years ago Log in to Reply
    16. Leona Hanson

      I didn’t rip one out the cow did I was walking down the road and this cow went through the gate ran me over she ripped out and stomped on my pump about 3 times I’m ok the pump did great I tell you medtronic made a strong pump except for a scratch it work great

      4 years ago Log in to Reply

    If you wear any devices, how many times in the past month have you accidentally ripped out a sensor or pump site? Cancel reply

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