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    • 5 hours, 57 minutes ago
      Phyllis Biederman likes your comment at
      Have you ever attended a diabetes-related conference?
      TCOYD one conference and Breakthrough T1D summits. I really enjoy in person events.
    • 6 hours, 7 minutes ago
      Phyllis Biederman likes your comment at
      Have you ever attended a diabetes-related conference?
      Many because I am a retired RN, CDE
    • 8 hours, 13 minutes ago
      ChrisW likes your comment at
      If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
      BAAAAAAD WORDS. Definitely the next step for sure.... After that more grumbling, cursing and eventually the decision whether or not taking the long acting THIS late is smart idea. If NOT, then a slightly heavier dose the next day of the short acting insulin seems real likely
    • 8 hours, 14 minutes ago
      ChrisW likes your comment at
      If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
      OH boy, an impossible question to answer without a lot more specific details......ie name of insulin / miss an injection completely over 24 hrs or by shorter time frame / to list a few.
    • 12 hours, 52 minutes ago
      Lawrence S. likes your comment at
      Have you ever attended a diabetes-related conference?
      While living in San Diego, I got spoiled: TCOYD is based there and their annual flagship conference occurs there. I went every year. Among my favorite break away sessions we always the ones where we as patients got to share ideas on how Endo's could better respect us as patients. All of the vendors (pharma an device) were there - great oppo0rtunity to see hands-on the devices. An added benefit to being in San Diego, Dexcom and Tandem are based there - so having face-to-face interaction with their staff was awesome. And of course, great swag! Once I moved to Portland OR, I went to an ADA conference. AS a T1D person, I was very disappointed. I had gone with the hopes of meeting my Dexcom and Tandem rep. No device companies were there. The focus of the break away sessions were are oriented to T2D. Fortunately for me, there was was an Oregon Potters Guild show at the convention center at the same time. I bought some great artwork. Since I knew Steve Edelman (TCOYD founder), I got in touch to see what I needed to do to get a TCOYD conference in Portland. I needed to have an idea of the budget so I could also work on funding support. First thing, I wanted support (not $$) from the local ADA and JDRF. Contacted them, but they never returned my calls or emails. Very disappointed I couldn't pull it off.
    • 12 hours, 53 minutes ago
      Lawrence S. likes your comment at
      Have you ever attended a diabetes-related conference?
      Literal poverty prevents attending such conferences. I must survive, therefore to do so the job(s) require all that I have which remains. I would likely enjoy such conference(s), ALWAYS go for the "small" tables FIRST, their survival depends on it...
    • 14 hours, 19 minutes ago
      Lenora Ventura likes your comment at
      Have you ever attended a diabetes-related conference?
      Yes, TCOYD and maybe an ADA conference. The second conference I went to in order to check out tech. Both were in the 90s.
    • 14 hours, 22 minutes ago
      Lenora Ventura likes your comment at
      Have you ever attended a diabetes-related conference?
      While living in San Diego, I got spoiled: TCOYD is based there and their annual flagship conference occurs there. I went every year. Among my favorite break away sessions we always the ones where we as patients got to share ideas on how Endo's could better respect us as patients. All of the vendors (pharma an device) were there - great oppo0rtunity to see hands-on the devices. An added benefit to being in San Diego, Dexcom and Tandem are based there - so having face-to-face interaction with their staff was awesome. And of course, great swag! Once I moved to Portland OR, I went to an ADA conference. AS a T1D person, I was very disappointed. I had gone with the hopes of meeting my Dexcom and Tandem rep. No device companies were there. The focus of the break away sessions were are oriented to T2D. Fortunately for me, there was was an Oregon Potters Guild show at the convention center at the same time. I bought some great artwork. Since I knew Steve Edelman (TCOYD founder), I got in touch to see what I needed to do to get a TCOYD conference in Portland. I needed to have an idea of the budget so I could also work on funding support. First thing, I wanted support (not $$) from the local ADA and JDRF. Contacted them, but they never returned my calls or emails. Very disappointed I couldn't pull it off.
    • 14 hours, 33 minutes ago
      Kathy Hanavan likes your comment at
      Have you ever attended a diabetes-related conference?
      Before retiring I would go to our local teaching hospital/ADA conferences. They were held yearly and were a great way getting my CE's.
    • 1 day, 1 hour ago
      kilupx likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Other: I was not diagnosed with T1D at a young age.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
      The word "chose" is past tense. In the present tense, "no." In the past tense, the ancient of days 1996, the answer was "yes." They even hospitalized you for 2 days. I was and am very healthy and horrified the medical staff when I walked up and down 9 flights of stairs to get something. C'est la vie 🫠
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      I felt my lows when I was younger. Now after 45+ years with type 1 I feel a bit of “blurry brain function” when below 50. Thankful for CGM alerts!
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      I was diagnosed at age 29. Is that considered "young"?
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Yes 74 years ago. Yes today intensely. I am one of the small percentage of folks who, instead of experiencing hypoglycemia unawareness, feels it with even more almost acute intensity today. I guess sometime the nerves go the other direction?!? 🐦‍🔥
    • 1 day, 14 hours ago
      Trina Blake likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      The "target" is set for 100 (the lowest option with Medtronic), my alarms are 70-130. With the algorithm it's interesting with a basal that rises and falls (and the "auto-bolus") according to levels and dosing, thus my alarms (down to 2% lows this way). But... There's another setting offering different target range, I have it set 70-90 for now. Only been a few weeks so interesting to see how it goes.
    • 1 day, 14 hours ago
      Trina Blake likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      On my Omnipod, both the high and the low are set at 110, the lowest it will allow. My preferred target rang is 70 to 120.
    • 1 day, 14 hours ago
      Janis Senungetuk likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Diagnosed in 1951 when I was 6 years old. I would feel terrible when glucose went low, but did not know what was wrong.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Missing answer is “I felt them early in, but not it can be hard at times to physically see a low.”
    • 1 day, 16 hours ago
      Steven Gill likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      To me... (a1C has been as low as 5.2, now near 6.0 with a lot less lows). Discuss with your doc goals, read the DCCT trials (determined "multiple injections" were more beneficial than 1 or 2 shots a day (mixed). Than up to your own confidence with insulin: -how your body reacts (after dosed I notice in 30-35 minutes) it's different for everyone -confidence with understanding the glycemic scale for food (some reach the blood stream quicker, some slower) -your health-as I grow up may not hear a low alarm as quick, nor be able to react as well -and tools... I'm confident with my CGM, alarms, understanding my insulin pump A tighter or lower target can lower a1C, wasn't worth my lows. But an a1C a little closer to non-diabetic can offer a little more prevention against the damage from diabetes. We're doing this to get as old a we can and be as healthy as we can (not necessarily a brag about numbers)---read a definition of heath is to be as far from death as possible. I think that changes...
    • 1 day, 17 hours ago
      atr likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      110, which is as low as omnipod 5 allows. If I could change it, it would be 90-100.
    • 1 day, 18 hours ago
      Phyllis Biederman likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      In 1973 when I was diagnosed the hospital policy was to force a low so you knew what they felt like. Around 2000 I became severely hypo unaware.
    • 1 day, 18 hours ago
      Phyllis Biederman likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Initially, I felt lows long before they became problematic. This diminished gradually over time. Now, after 51 years, I feel nothing until BG drops to critical levels -50. Exception is when BG drops dramatically over a very short period of time.
    • 1 day, 19 hours ago
      Edward Geary likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Yes 74 years ago. Yes today intensely. I am one of the small percentage of folks who, instead of experiencing hypoglycemia unawareness, feels it with even more almost acute intensity today. I guess sometime the nerves go the other direction?!? 🐦‍🔥
    • 2 days, 11 hours ago
      kilupx likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      My alarm range is 70 - 180.
    • 2 days, 12 hours ago
      Anita Stokar likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      The whole "target" question is a mess. I think most of us here (T1D people who are proactive etc) define "target" as where we want to be after a meal or correction bolus has done it's job. Pump mfr's (and many Endo's) define "target" like they define an A1C goal: averaging 110 over time. Lots of "discussions" (notice the quotes) with my Endo about my targets (I don't accept the "standard goal" of 70-180, I prefer aiming for 70-140). So so answer today's question, my alert ranges are 70 and 120 for high (I correct if I have no IOB, but may have food on board). My target bg (post bolus) is 80-90.
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    Do you think it would be beneficial if at-home DNA tests (23andMe, Ancestry DNA, etc.) were able to assess a person’s risk of developing T1D?

    Home > LC Polls > Do you think it would be beneficial if at-home DNA tests (23andMe, Ancestry DNA, etc.) were able to assess a person’s risk of developing T1D?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Don P

      went through this & found it rather interesting, taking history into account & how diabetes was labelled many years ago, there is definitely a shortfall of information with death certificates.

      4 years ago Log in to Reply
    2. john36m

      These DNA tests all have me concerned about the privacy of your data. If that concern went away, I’d answer yes.

      1
      4 years ago Log in to Reply
    3. Beth Franz

      Assuming you want that information and those genetic markers have been defined accurately – certainly that would be helpful. I’m going through this process now but decided against 23andme, ancestrydna, etc companies due to the fact their popular tests are not full genome/exome and you don’t necessarily own your data or control it. I went with another company after researching extensively how I accessed/controlled the data and paid bit more for the full data set to upload it where I see fit for the reports I want and will be available in the future as more genetic research is always coming out.

      1
      4 years ago Log in to Reply
      1. Trina Blake

        What company did you use?

        4 years ago Log in to Reply
    4. Lawrence Stearns

      I’m not sure. What does a person do with the information? Is there any means of prevention? I think the information would be useful if there were some way of correcting the genetic factor, or preventing the risk factor. Otherwise, it’s information to add unnecessary stress. Then, there’s the issue about security of private information.

      1
      4 years ago Log in to Reply
    5. Kristine Warmecke

      I think it will cause more harm than good. Look at what has happen with trying to get Life Insurance & they find out through one of these test that you have a slight increase risk of cancer. Your rate is increased or you are denied.

      2
      4 years ago Log in to Reply
    6. rick phillips

      I simply do not know. I fear people might use it in place of diagnosis. However, I understand that if used properly it could be boom to trialnet and early detection

      4 years ago Log in to Reply
    7. Trina Blake

      I do have the privacy concerns (but I didn’t have kids, and just an older brother who decided against the anti-bodies test when I was Dx’d). But I also would want to know if my children had the possibility. I would start them early on helping me manage so it wasn’t as scary and there are things being researched that apply within the first year or so of Dx.

      4 years ago Log in to Reply
    8. Sue Herflicker

      I just said other, because It really doesn’t matter to me. Truth be told I really don’t want to know. Why worry about something especially if it never happens.

      4 years ago Log in to Reply
    9. Patricia Dalrymple

      I selected other. I think you would have to opt to know, not automatic and who knows how accurate these companies are with their processes and procedures. But one day soon, people are going to know exactly what diseases they will and won’t get, and yes, that’s going to be very stressful. I know 2 young girls whose father died of stomachs cancer. They were told they were definitely going to it and one found out breast cancer too. They started cutting out their body parts: breast, stomach bypass, etc. I’m not sure there are any winners there.

      4 years ago Log in to Reply
    10. connie ker

      I have no clue what I am saying Yes or No to, but another factor that isn’t presented is the cost. If it is pricey and not covered by insurance, most would opt out of doing such a test. My 2 sons were in the DCCT testing back in the early 90s to predict their propensity for T1D, but to do all this , it was a lot of travel and cost, not to mention the trauma for our 2 little boys. We even had a flat tired trying to get to the hospital which was 3 hours away. The boys missed school and their T1D Dad missed work. I wouldn’t do it again because it did not stave off the onset for 1 of our sons. The other is still OK.

      4 years ago Log in to Reply
    11. KarenM6

      I think the value is in knowing there is something to keep an eye on.
      I did 23andMe. They are VERY clear that anything that is revealed is NOT to be used as a diagnosis and that any concerns or symptoms need to be taken to a doctor.
      As a for instance in how it helped me, I tested as having a genetic marker for celiac disease. If I have stomach issues, I will know to ask my doctor if they think testing me for celiac is a good idea since I have a genetic marker for it.
      While testing for diabetes isn’t as “needle in a needlestack” testing for something as vague as stomach pain, I think some people would benefit.
      And, also, I can always ignore what is found! No one is pressuring me to react to what they find.

      As for the privacy issues… well, I can’t relieve that fear… but, they have systems in place… and, I have decided to trust those systems. Don’t know if that’s a “more fool me” moment or not…

      Those are my thoughts!

      2
      4 years ago Log in to Reply
      1. Henry Renn

        KarenM6 is correct. Results cannot be used as diagnosis. Speak to a doctor about concerns.

        4 years ago Log in to Reply
    12. Leona Hanson

      I believe that some of these companies maybe accurate or not. so what do you believe.but if doctors did it through your insurance it would more believable.

      4 years ago Log in to Reply
    13. Amy Nance

      I think being notified with the dna results that there is a genetic marker for T1d, might be helpful. However, verbiage should be added that just because the genetic markers are there that without an autoimmune event that triggers yours body into destroying beta cells, no T1 will be induced. For instance, when diagnosing rheumatoid arthritis, just the RH factor is blood is not enough for a dx, it requires symptoms to appear alongside, as well as those that do not have increased RH factor, but still have the active signs and symptoms of disease. If they did notify those that donated dna sample of risk of t1d, I would suggest a specialized zoom or video call with a specialist to explain that genetic markers only establish risk, not diagnosis and to be aware of the signs and symptoms of actual disease, so treatment could be established when the symptoms appear, and no worry to be taken until then. As far as I know, many CDEs have this knowledge, but I would hate an uneducated doctor to scare someone to death over a genetic marker !

      1
      4 years ago Log in to Reply
    14. Cheryl Seibert

      For identity security reasons, as long as the DNA test kit did not leave my home and the results were available without sending the kit somewhere, I would be encouraged to use it to identify potential chronic disease risks. This is especially true for those who do not or cannot determine family medical history.

      4 years ago Log in to Reply
    15. Molly Jones

      Hopefully the research on T!D reversal for most types comes through. If this happens it would be very beneficial to patients if not treated and government in general. I have no idea what an insurance company would feel: do I want more or less possibly fatal diseases. More are being discovered but you need to take…

      4 years ago Log in to Reply

    Do you think it would be beneficial if at-home DNA tests (23andMe, Ancestry DNA, etc.) were able to assess a person’s risk of developing T1D? Cancel reply

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