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    • 1 hour, 28 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 13 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 15 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you wear any devices, how many times in the past month have you accidentally ripped out a sensor or pump site?

    Home > LC Polls > If you wear any devices, how many times in the past month have you accidentally ripped out a sensor or pump site?
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    If you were diagnosed with T1D as an adult, were you first misdiagnosed before you got the correct diagnosis? If yes, with what were you misdiagnosed? Select all that apply to you.

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. George Hamilton

      I have pulled out two infusion sets, both of them last week. That was unusual for me. I was trying them in a new location on my abdomen, and I think the tubing was pulling on it in a new way. No problem with sensors; they seem to stay attached even without the overtape that Dexcom recommends.

      5 years ago Log in to Reply
    2. Tina Roberts

      None in a very long time. In the beginning I accidentally knocked a couple out by running into things. I finally got used to them and learned to avoid bumping them.

      1
      5 years ago Log in to Reply
    3. connie ker

      I didn’t rip it out, it just got loose in the bath tub and was recording low numbers. So I ripped it off myself,, and replaced the sensor ( Abbott Freestyle Libre).

      5 years ago Log in to Reply
    4. Lawrence Stearns

      I have not counted, but it’s about 3 times this past month. I have recently expanded the areas where I place my cannula to my arms and legs. I was no longer getting the full effect of the insulin in my belly area. I am using much more of the overtape, taping both the cannula and the tubing. I keep knocking the cannulas out when I take showers, and dry off with the towels. I am also getting much more pulling when I move my arms and legs, working or exercising.

      5 years ago Log in to Reply
    5. Kathy Hanavan

      Unusually a sensor site became loose in the bathtub as did a pump site so 2 this month, but normally only 1 or less.

      5 years ago Log in to Reply
    6. Natalie Daley

      Would be handy to have NA since people who don’t wear devices may have used none as the only option available to answer the question.

      1
      5 years ago Log in to Reply
    7. Ken Raiche

      It has happened in the past but not in the last 3 months, I just hope I haven’t hexed myself.😉

      5 years ago Log in to Reply
    8. Nancy Murphy

      Losing pump sites never ever happens to me (and I’ve been wearing pumps since they were invented!) But this past week my tubing got caught on a cabinet door, not once, but twice! I put a new site on, then an hour later, the same exact door yanked off my tubing!

      1
      5 years ago Log in to Reply
      1. Derek West

        Dam doors, you just can’t trust ’em.

        1
        5 years ago Log in to Reply
    9. Grey Gray

      I answered once because I somehow dislodged a sensor from the back of my arm. But that never happens in the last 25 years I may have lost 5 sites due to dropping my pump or something. I have sweated off hundreds.

      5 years ago Log in to Reply
    10. Ceolmhor

      Three times in four years. I don’t have enough real estate (with sufficient fat) around my middle to manage a rotating system, so I use thighs. Doing exercise, I occasionally ripped things out early on, but after I started wearing compression shorts, that problem disappeared. I think they may have improved the adhesives, though, as I no longer seem to even need to do that. I’ve been amazed at how well the Medtronic stuff stays put when tugged or scraped.

      5 years ago Log in to Reply
    11. Bob Durstenfeld

      For my pump, I loop the tubing and tape it to provide safety for the infusion set from being ripped out. My CGM I wear on my chest and only catch it through my shirt, either on my seatbelt or an occasional table edge or counter.

      5 years ago Log in to Reply
    12. Dan Patrick

      Hi All, this is a challenge. Personally the choice of the “glu” can make a big difference.

      5 years ago Log in to Reply
    13. LizB

      I’ve never ripped out a sensor but over the years I’ve lost a few sets to door knobs/handles. Not in the last month or even last few years though.

      5 years ago Log in to Reply
    14. Sally Numrich

      I can’t even remember the last time this happened. I did pull pump sites out back in my early days. Tube getting hooked on cabinet knobs but I have been pumping over 30 years. It has been a couple decades since this has happened.

      5 years ago Log in to Reply
    15. Ahh Life

      Ripped them all, the small, the short & the tall. In the last month, maybe twice. But over a lifetime? Let me count the ways: knobs, drawer handles, twigs, branches, car doors, USB connectors, dressing, undressing, running, lying, sitting, exceeding the 3-day limit, you name it, I’ve done it. ( ͡> ͜ʖ ͡<)

      5 years ago Log in to Reply
    16. Leona Hanson

      I didn’t rip one out the cow did I was walking down the road and this cow went through the gate ran me over she ripped out and stomped on my pump about 3 times I’m ok the pump did great I tell you medtronic made a strong pump except for a scratch it work great

      5 years ago Log in to Reply

    If you wear any devices, how many times in the past month have you accidentally ripped out a sensor or pump site? Cancel reply

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