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    • 9 hours, 4 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 9 hours, 11 minutes ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 9 hours, 37 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 13 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 13 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 33 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 14 hours, 34 minutes ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 34 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I answered no, but I do experience nausea and/or vomiting, usually on a daily basis, but this is because I have gastroparesis. I have rarely been able to eat breakfast over the last 20+ years as I end up vomiting it all back up ... try explaining that to ward staff in hospital(s). ;-)
    • 14 hours, 54 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 9 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      Saw one, recently out of school, when I was first diagnosed ten years ago. She insisted I needed 150 grams of carbs per day minimum and handed me a sheet with meal plans. She explained that I needed those carbs to keep my brain functioning properly. GEEZ. I can only hope she's learned a thing or two since then.
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    If you wear a device, has anyone ever mistaken your device for any of the following? Select all that apply!

    Home > LC Polls > If you wear a device, has anyone ever mistaken your device for any of the following? Select all that apply!
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    29 Comments

    1. Tina Roberts

      I was taking care of a customer one day at work and my pump alarmed. I said excuse me a moment please. I checked it and gave myself a correction bolus. After I said ok now where were we? He said well before we were interrupted by your pager (he was very angry) we were discussing…I interrupted very firmly with, that is NOT a pager Sir. That is my insulin pump and it needed my immediate attention. Now where were we again?? POS 😁

      2
      2 years ago Log in to Reply
    2. Lawrence Stearns

      A tape recorder.

      2 years ago Log in to Reply
    3. Kathleen Amper

      Yes I was taking a test and was told that pagers weren’t allowed because you could get answers. I quietly showed them the pump with tubing and said medical device. Back then the pumps were much larger too.

      2 years ago Log in to Reply
    4. George Lovelace

      They were impressed with the length of the antenna!

      2
      2 years ago Log in to Reply
    5. ConnieT1D62

      One time when I was participating in a weekend meditation retreat my pump alarmed and disturbed the silence. It was mildly disruptive but most people, including me, got over it and moved past it. However, after the meditation session was over a man came up to me and angrily said “How rude of you to wear a cell phone in the meditation!”

      I showed him my pump and explained it delivers insulin and alarms when it needs to to signify various functions and to alert me to take appropriate action to prevent hyper or hypoglycemia. He said “Well you better just shut it off when we meditate!” I apologized and explained it is functioning as an artificial pancreas and it is not safe for me to just shut it off or take it off even during a morning meditation. I asked him would he be willing to shut off a necessary body function if it made noise in a meditation? He just looked at me with an annoyed expression on his face and walked away.

      So my take away from that experience is how to deal with my pump when I am participating in an in person group meditation. Do I take it off and leave it somewhere away from the meditation room and hope for the best that my BG will behave itself while I mediate for 45 to 60 minutes? Do I leave it on and hope for the best that it is not going to beep or vibrate an alarm during the meditation? Often when I am engaged in an intense “spiritual work” weekend my BG is unpredictable because it may sink or rise depending on the activities and energies generated during the weekend.

      3
      2 years ago Log in to Reply
      1. David Smith

        For me, because I have good hypoglycemic awareness, shutting off a sensor and pump for a 45-60 minute meditation session wouldn’t be a problem. I ensure my blood glucose is a little elevated before I begin and check it immediately after the activity. And I always carry glucose tabs so if, worst case, I begin to feel low, I can take a couple tabs to stay out of trouble. But if you have hypoglycemic unawareness, my approach is probably not a good idea!

        2 years ago Log in to Reply
    6. Greg Felton

      I worked as a district court bailiff for a few years, but the position was more administrative and not armed court security. A few jurors thought I was wearing a taser.

      2 years ago Log in to Reply
    7. Trina Blake

      Early on, a pager. Then a cell phone (I had fun telling people that I didn’t need anything like earbuds – people could talk to me into my abdomen. And one time my Dexcom transmitter was mistaken for a Neulasta pod (for adjunct chemo treatment). That time people were really supportive and kind

      2 years ago Log in to Reply
      1. Kristine Warmecke

        During my chemo, my infusion nurses were all like wait, what is that? My G6 for T1D, you haven’t placed my OnPro yet.

        2 years ago Log in to Reply
    8. Catherine Van Hove

      I had a friend who wore her pump on the outside of her wedding dress and I heard her tell someone (who obviously did not know her) it was her phone just in case her old boyfriend called.

      6
      2 years ago Log in to Reply
      1. Kristine Warmecke

        I love that

        2 years ago Log in to Reply
    9. connie ker

      When I first showed my family my new Abbott Freestyle Libre, my daughter said “do me, do me”. Then I showed them the sensor inserted in my upper arm that was the technology for the reader. Get this: now her dog was diagnosed with diabetes, and had to wear a sensor to get the insulin dosage figured out in the beginning. So even vets are using these new technologies in their practice too.

      2 years ago Log in to Reply
    10. Kristine Warmecke

      I’ve been asked if it was a Walkman, when I first started wearing one. Had a good chuckle with that one.

      2 years ago Log in to Reply
    11. Patricia Dalrymple

      I said Other because I don’t know if it has been mistaken, but 2 different people knew what it was: a young teen who had just gotten his and was very excited to know how I liked mine. And at a conference I sat down by a gentleman and there was a beep and we both looked down at our pumps, then looked at each other and smiled. It is definitely a club. Sometimes, it can be a nice one.

      1
      2 years ago Log in to Reply
      1. Amanda Barras

        Had this happen at a new church I attended recently! I alarmed for a low and a gentleman approached me and asked if I was ok and showed me his pump! Told me snacks are kept on hand in church fridge that I was always welcome to.

        3
        2 years ago Log in to Reply
    12. rick phillips

      Heart pump

      1
      2 years ago Log in to Reply
    13. Karington Johnston

      I’m a 5th grade math teacher, and I tell my own students what my devices are, so that they know to get another teacher if something should happen. However, I tell all the younger students that it’s my battery pack, because I’m a robot. All the other teachers play along, and I’m known as the robot teacher until kids are in my class.

      2
      2 years ago Log in to Reply
    14. Jana Foley

      It has been years and years ago, but both of my kids had been accused of have pagers or cellphones when they were quite young. Too young to have had either one of those items. An explanation cleared the misunderstandings right up, though.

      2
      2 years ago Log in to Reply
    15. Jneticdiabetic

      My pump has been mistaken for:
      *pager (most common)
      * walkman (most hilarious)
      *chemotherapy delivery device (concerned cashier asked if I had cancer)

      2 years ago Log in to Reply
    16. Joanne Milo

      It was hilarious … a guy in the elevator stared at it and asked if it was a methadone drip!

      2
      2 years ago Log in to Reply
    17. Leona Hanson

      People believe that my insulin pump is a pain pump I tell them no just a insulin pump

      1
      2 years ago Log in to Reply
    18. Greg Felton

      Several years ago I attended a legal update on HR laws related to disability accommodations. The speaker began by asking the audience to silence our phones. Almost on cue, my CGM alarmed as the lawyer began his presentation. He paused and repeated the instruction in an annoyed voice. I raised my hand apologized and quickly explained that it was my medical device. The speaker practically fell over himself apologizing to me. Ah, the irony. 😉

      2
      2 years ago Log in to Reply
    19. Donald Cragun

      I have never had my pump or CGM mistaken for any of the suggested answers, but I have had several doctors and nurses ask me what my pump and CGM were.

      1
      2 years ago Log in to Reply
    20. Donna Condi

      I was asked if my Tandem pump was a pager. But My first pump was an Omnipod. I was wearing it on my arm while on vacation and at the breakfast buffet a woman came over to me and asked if she could pray for me. I said yes and she did ask for prayers for my health but nothing specific. When she was done I thanked her and sat down to eat my meal. It was then that I realized that she must have thought my pod was the Nulasta pod that cancer patients use since it had been advertised so much on tv.

      2 years ago Log in to Reply
    21. Megan L

      A pager is definitely the most common for me. I got asked yesterday at work if it was mace (I work at a jail and the inmate thought it was a tiny bottle). That was a first for that thought though!

      2 years ago Log in to Reply
    22. Sally Numrich

      Back in the early 90’s it was always a pager. Since no one really uses them anymore that is not the usually ask. I have been asked a number of times if it is my “port”. I had no idea what they were talking about at first but I get that on more than anything else.

      2 years ago Log in to Reply
    23. Kim Rehtus

      I was at the post office and a gentleman noticed my Dexcom sensor on the back of my arm. He proceeded to ask (quite seriously) if my husband was using this device to track me??!! I was not amused and rarely wear the sensor where it can be seen after that unpleasant exchange.

      2 years ago Log in to Reply
    24. Kimberly Starkey

      No one has ever commented about my pump to me.

      2 years ago Log in to Reply
    25. Molly Jones

      My pump and sensor have not been mistaken for anything. The option was not available. I chose cell phone which, which can be done with what is appropriate.

      2 years ago Log in to Reply

    If you wear a device, has anyone ever mistaken your device for any of the following? Select all that apply! Cancel reply

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