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    • 9 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you wear a device, has anyone ever mistaken your device for any of the following? Select all that apply!

    Home > LC Polls > If you wear a device, has anyone ever mistaken your device for any of the following? Select all that apply!
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    29 Comments

    1. Tina Roberts

      I was taking care of a customer one day at work and my pump alarmed. I said excuse me a moment please. I checked it and gave myself a correction bolus. After I said ok now where were we? He said well before we were interrupted by your pager (he was very angry) we were discussing…I interrupted very firmly with, that is NOT a pager Sir. That is my insulin pump and it needed my immediate attention. Now where were we again?? POS 😁

      2
      5 years ago Log in to Reply
    2. Lawrence Stearns

      A tape recorder.

      5 years ago Log in to Reply
    3. Kathleen Amper

      Yes I was taking a test and was told that pagers weren’t allowed because you could get answers. I quietly showed them the pump with tubing and said medical device. Back then the pumps were much larger too.

      5 years ago Log in to Reply
    4. George Lovelace

      They were impressed with the length of the antenna!

      2
      5 years ago Log in to Reply
    5. ConnieT1D62

      One time when I was participating in a weekend meditation retreat my pump alarmed and disturbed the silence. It was mildly disruptive but most people, including me, got over it and moved past it. However, after the meditation session was over a man came up to me and angrily said “How rude of you to wear a cell phone in the meditation!”

      I showed him my pump and explained it delivers insulin and alarms when it needs to to signify various functions and to alert me to take appropriate action to prevent hyper or hypoglycemia. He said “Well you better just shut it off when we meditate!” I apologized and explained it is functioning as an artificial pancreas and it is not safe for me to just shut it off or take it off even during a morning meditation. I asked him would he be willing to shut off a necessary body function if it made noise in a meditation? He just looked at me with an annoyed expression on his face and walked away.

      So my take away from that experience is how to deal with my pump when I am participating in an in person group meditation. Do I take it off and leave it somewhere away from the meditation room and hope for the best that my BG will behave itself while I mediate for 45 to 60 minutes? Do I leave it on and hope for the best that it is not going to beep or vibrate an alarm during the meditation? Often when I am engaged in an intense “spiritual work” weekend my BG is unpredictable because it may sink or rise depending on the activities and energies generated during the weekend.

      3
      5 years ago Log in to Reply
      1. David Smith

        For me, because I have good hypoglycemic awareness, shutting off a sensor and pump for a 45-60 minute meditation session wouldn’t be a problem. I ensure my blood glucose is a little elevated before I begin and check it immediately after the activity. And I always carry glucose tabs so if, worst case, I begin to feel low, I can take a couple tabs to stay out of trouble. But if you have hypoglycemic unawareness, my approach is probably not a good idea!

        5 years ago Log in to Reply
    6. Greg Felton

      I worked as a district court bailiff for a few years, but the position was more administrative and not armed court security. A few jurors thought I was wearing a taser.

      5 years ago Log in to Reply
    7. Trina Blake

      Early on, a pager. Then a cell phone (I had fun telling people that I didn’t need anything like earbuds – people could talk to me into my abdomen. And one time my Dexcom transmitter was mistaken for a Neulasta pod (for adjunct chemo treatment). That time people were really supportive and kind

      5 years ago Log in to Reply
      1. Kristine Warmecke

        During my chemo, my infusion nurses were all like wait, what is that? My G6 for T1D, you haven’t placed my OnPro yet.

        5 years ago Log in to Reply
    8. Catherine Van Hove

      I had a friend who wore her pump on the outside of her wedding dress and I heard her tell someone (who obviously did not know her) it was her phone just in case her old boyfriend called.

      6
      5 years ago Log in to Reply
      1. Kristine Warmecke

        I love that

        5 years ago Log in to Reply
    9. connie ker

      When I first showed my family my new Abbott Freestyle Libre, my daughter said “do me, do me”. Then I showed them the sensor inserted in my upper arm that was the technology for the reader. Get this: now her dog was diagnosed with diabetes, and had to wear a sensor to get the insulin dosage figured out in the beginning. So even vets are using these new technologies in their practice too.

      5 years ago Log in to Reply
    10. Kristine Warmecke

      I’ve been asked if it was a Walkman, when I first started wearing one. Had a good chuckle with that one.

      5 years ago Log in to Reply
    11. Patricia Dalrymple

      I said Other because I don’t know if it has been mistaken, but 2 different people knew what it was: a young teen who had just gotten his and was very excited to know how I liked mine. And at a conference I sat down by a gentleman and there was a beep and we both looked down at our pumps, then looked at each other and smiled. It is definitely a club. Sometimes, it can be a nice one.

      1
      5 years ago Log in to Reply
      1. Amanda Barras

        Had this happen at a new church I attended recently! I alarmed for a low and a gentleman approached me and asked if I was ok and showed me his pump! Told me snacks are kept on hand in church fridge that I was always welcome to.

        3
        5 years ago Log in to Reply
    12. rick phillips

      Heart pump

      1
      5 years ago Log in to Reply
    13. Karington Johnston

      I’m a 5th grade math teacher, and I tell my own students what my devices are, so that they know to get another teacher if something should happen. However, I tell all the younger students that it’s my battery pack, because I’m a robot. All the other teachers play along, and I’m known as the robot teacher until kids are in my class.

      2
      5 years ago Log in to Reply
    14. Jana Foley

      It has been years and years ago, but both of my kids had been accused of have pagers or cellphones when they were quite young. Too young to have had either one of those items. An explanation cleared the misunderstandings right up, though.

      2
      5 years ago Log in to Reply
    15. Jneticdiabetic

      My pump has been mistaken for:
      *pager (most common)
      * walkman (most hilarious)
      *chemotherapy delivery device (concerned cashier asked if I had cancer)

      5 years ago Log in to Reply
    16. Joanne Milo

      It was hilarious … a guy in the elevator stared at it and asked if it was a methadone drip!

      2
      5 years ago Log in to Reply
    17. Leona Hanson

      People believe that my insulin pump is a pain pump I tell them no just a insulin pump

      1
      5 years ago Log in to Reply
    18. Greg Felton

      Several years ago I attended a legal update on HR laws related to disability accommodations. The speaker began by asking the audience to silence our phones. Almost on cue, my CGM alarmed as the lawyer began his presentation. He paused and repeated the instruction in an annoyed voice. I raised my hand apologized and quickly explained that it was my medical device. The speaker practically fell over himself apologizing to me. Ah, the irony. 😉

      2
      5 years ago Log in to Reply
    19. Donald Cragun

      I have never had my pump or CGM mistaken for any of the suggested answers, but I have had several doctors and nurses ask me what my pump and CGM were.

      1
      5 years ago Log in to Reply
    20. Donna Condi

      I was asked if my Tandem pump was a pager. But My first pump was an Omnipod. I was wearing it on my arm while on vacation and at the breakfast buffet a woman came over to me and asked if she could pray for me. I said yes and she did ask for prayers for my health but nothing specific. When she was done I thanked her and sat down to eat my meal. It was then that I realized that she must have thought my pod was the Nulasta pod that cancer patients use since it had been advertised so much on tv.

      5 years ago Log in to Reply
    21. Megan L

      A pager is definitely the most common for me. I got asked yesterday at work if it was mace (I work at a jail and the inmate thought it was a tiny bottle). That was a first for that thought though!

      5 years ago Log in to Reply
    22. Sally Numrich

      Back in the early 90’s it was always a pager. Since no one really uses them anymore that is not the usually ask. I have been asked a number of times if it is my “port”. I had no idea what they were talking about at first but I get that on more than anything else.

      5 years ago Log in to Reply
    23. Kim Rehtus

      I was at the post office and a gentleman noticed my Dexcom sensor on the back of my arm. He proceeded to ask (quite seriously) if my husband was using this device to track me??!! I was not amused and rarely wear the sensor where it can be seen after that unpleasant exchange.

      5 years ago Log in to Reply
    24. Kimberly Starkey

      No one has ever commented about my pump to me.

      5 years ago Log in to Reply
    25. Molly Jones

      My pump and sensor have not been mistaken for anything. The option was not available. I chose cell phone which, which can be done with what is appropriate.

      5 years ago Log in to Reply

    If you wear a device, has anyone ever mistaken your device for any of the following? Select all that apply! Cancel reply

    You must be logged in to post a comment.




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